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NED again but...

Deanie0916
Posts: 385
Joined: Nov 2016

Hi everybody. I just had follow up CT Scan last week and doctor appointment today. Good news NED for kidney cancer, but there is 1.4 cm mass on my pancreas. Just wanting some good vubes and prayers. Will have biopsy and then we'll see. I so appreciate all of the help and support from the members on this board. Thanks. 

Bay Area Guy's picture
Bay Area Guy
Posts: 495
Joined: Jun 2016

Prayers and good wishes heading your way.

Deanie0916
Posts: 385
Joined: Nov 2016

Thank you

daisybud's picture
daisybud
Posts: 506
Joined: Jan 2016

And good vibes.

Deanie0916
Posts: 385
Joined: Nov 2016

Thanks so much.

Biner
Posts: 80
Joined: Apr 2020

but if you have another tumor they call it ned?

Deanie0916
Posts: 385
Joined: Nov 2016

Well, you're right not sure if it is truly NED until I have the biopsy. Best case scenario it is a benign tumor not related to any of my previous cancers. Mid case scenario it could be metastisized from the previous breast cancer or kidney cancer. My doctor tells me that it is very rare for kidney cancer to spread to the pancreas. Worst case scenario it could be pancreatic cancer. Just have to wait and see, right? My hopes and prayers are for a benign tumor.

cubsfan9
Posts: 68
Joined: Oct 2013

Good Morning!

Sorry to hear about your 'mixed report'.  You are correct, it will take a biopsy to determine exactly what you are dealing with.  However, I would share that my husband had a very large RCC met on his pancreas.  He, too, went through a biopsy to determine if it was pancreatic cancer or metastatic kidney cancer.  As I said, it was kidney cancer.  IF that is what you have, I would offer this word of encouragement...pancreatic mets tend to be more indolent/less aggressive and respond to meds.  Hubby has been on Sutent and it has resulted in shrinkage to the point of not even being mentioned on his scans any more!  Benign would, for sure, be better, but don't give up hope!!

Deanie0916
Posts: 385
Joined: Nov 2016

For your input, I appreciate it. How long was it between his kidney cancer treatment and the appearance of the mets on the pancreas?

Deanie0916
Posts: 385
Joined: Nov 2016

I just read the history I see it was a good 8 years. Thanks again and God bless you both on your journey.

eug91's picture
eug91
Posts: 305
Joined: Jan 2019

You're gonna do great. We're with ya!

Deanie0916
Posts: 385
Joined: Nov 2016

You are super encouraging.

citizenklaw
Posts: 61
Joined: Mar 2019

Sending only good vibes!

Deanie0916
Posts: 385
Joined: Nov 2016

Thank you!

Allochka's picture
Allochka
Posts: 946
Joined: Nov 2014

Keeping fingers crossed for you! When do you have a biopsy?

 

Deanie0916
Posts: 385
Joined: Nov 2016

I'm still waiting for a referral to a gastroentologist. I hope it can be done soon...

Deanie0916
Posts: 385
Joined: Nov 2016

I'm having biopsy on Oct. 29th. More waiting. 

Allochka's picture
Allochka
Posts: 946
Joined: Nov 2014

Good luck with biopsy and keep us posted!

Of course hoping that it is a benign lesion. But, if not benign - it with much more probability could be RCC met, NOT pancreatic cancer! There are people on these boards with pancreatic mets.

ANd there are lots of benign pancreatic tumors as well. I know it all won't calm you down, but possibility of the worst case scenario is very low...

Hugs,

Alla

 

APny's picture
APny
Posts: 1998
Joined: Mar 2014

Keeping fingers crossed for you. All the best!

Deanie0916
Posts: 385
Joined: Nov 2016

Very much!

Mmoses25's picture
Mmoses25
Posts: 99
Joined: May 2020

I'm praying that everything will be ok

Deanie0916
Posts: 385
Joined: Nov 2016

It is a blessing.

Allochka's picture
Allochka
Posts: 946
Joined: Nov 2014

Is there a date for biopsy now?

Hugs,

Alla

Deanie0916
Posts: 385
Joined: Nov 2016

For Oct. 29th. Thanks.

Allochka's picture
Allochka
Posts: 946
Joined: Nov 2014

Fingers crossed!

Deanie0916
Posts: 385
Joined: Nov 2016

Thanks!

APny's picture
APny
Posts: 1998
Joined: Mar 2014

My fingers are crossed too!

Deanie0916
Posts: 385
Joined: Nov 2016

Thank you!

MyMonkey's picture
MyMonkey
Posts: 1
Joined: Feb 2019

Continued prayers Deanie. ❤🌻🙏🏼

Deanie0916
Posts: 385
Joined: Nov 2016

I appreciate it!

donna_lee's picture
donna_lee
Posts: 999
Joined: Feb 2009

I've got one in my remaining kidney, and others in the liver and pancreas.

Hugs, donna_lee

Deanie0916
Posts: 385
Joined: Nov 2016

Thanks you are a great encouragement!

medic1971's picture
medic1971
Posts: 205
Joined: Sep 2015

Sending you good vibes and prayers!

Deanie0916
Posts: 385
Joined: Nov 2016

Very much!

Allochka's picture
Allochka
Posts: 946
Joined: Nov 2014

Hi, how did the biopsy go?

When are you getting results?

Deanie0916
Posts: 385
Joined: Nov 2016

The biopsy went well. No solid results yet it will be several business days. Taking it easy for a couple of days...

Allochka's picture
Allochka
Posts: 946
Joined: Nov 2014

Fingers crossed, please keep us posted!

Deanie0916
Posts: 385
Joined: Nov 2016

I got a call from the doctor today. The biopsy results are atypical cells a lot of other words. He thinks it is not an aggressive or fast growing tumor. Probably neuroendocrine. He thinks that because it's so small and low grade that they might want to just watch it for awhile. He wants another surgeon to look at the results to give a second opinion. So a little more waiting...

eug91's picture
eug91
Posts: 305
Joined: Jan 2019

I'm sorry about the news, but it sounds like you have reasons to be optimistic - plus having caught it early. 

Sending you positive prayers and thoughts. We're thinking of you!

stub1969's picture
stub1969
Posts: 888
Joined: Jul 2016

IMO your doctor is right to have another set of eyes look at the results and provide input.  I'm hopeful you will have a plan in place soon.

Wishing you the best!

Stub

Allochka's picture
Allochka
Posts: 946
Joined: Nov 2014

Hi,

sounds like lots of reasons to be relatively calm and optimistic... However, I wish you could gain a clarity asap.

Hold on there!

 

Alla

Deanie0916
Posts: 385
Joined: Nov 2016

Really. They are going to send the pathology to John Hopkins to see if they can read anything more definitive. So a few more weeks of waiting! 

Deanie0916
Posts: 385
Joined: Nov 2016

Hi I will have another CT scan to see if the spot on my pancreas has grown. If it has I most likely will have surgery to remove it. Thanks for your input and help.

Biner
Posts: 80
Joined: Apr 2020

Cry

Allochka's picture
Allochka
Posts: 946
Joined: Nov 2014

Hugs...

Deanie0916
Posts: 385
Joined: Nov 2016

For next week. Please send prayers my way thanks!

Canadian Sandy's picture
Canadian Sandy
Posts: 689
Joined: Jul 2016

Lots of prayers being sent to you Deanie. I'll be doing the same thing in January for my nodules in peritonrum. We've both been Ned fr a long time and we WILL be Ned again soon. Keep the faith and try not to worry to much. 

Deanie0916
Posts: 385
Joined: Nov 2016

I appreciate it!

Allochka's picture
Allochka
Posts: 946
Joined: Nov 2014

Keeping fingers crossed for you!

Deanie0916
Posts: 385
Joined: Nov 2016

For the postive thoughts.

APny's picture
APny
Posts: 1998
Joined: Mar 2014

Thinking of you and keeping fingers crossed for you also. Hugs. 

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