NED again but...

Deanie0916
Deanie0916 Member Posts: 628 Member
in Kidney Cancer #1

Hi everybody. I just had follow up CT Scan last week and doctor appointment today. Good news NED for kidney cancer, but there is 1.4 cm mass on my pancreas. Just wanting some good vubes and prayers. Will have biopsy and then we'll see. I so appreciate all of the help and support from the members on this board. Thanks. 

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Comments

  • Bay Area Guy
    Bay Area Guy Member Posts: 620 Member
    edited September 2020 #2
    Prayers and good wishes

    Prayers and good wishes heading your way.

  • daisybud
    daisybud Member Posts: 541 Member
    edited September 2020 #3
    Sending prayers

    And good vibes.

  • Biner
    Biner Member Posts: 137 Member
    #4
    but if you have another tumor

    but if you have another tumor they call it ned?

  • Deanie0916
    Deanie0916 Member Posts: 628 Member
    edited September 2020 #5
    Biner said:

    but if you have another tumor

    but if you have another tumor they call it ned?

    Well, you're right not sure

    Well, you're right not sure if it is truly NED until I have the biopsy. Best case scenario it is a benign tumor not related to any of my previous cancers. Mid case scenario it could be metastisized from the previous breast cancer or kidney cancer. My doctor tells me that it is very rare for kidney cancer to spread to the pancreas. Worst case scenario it could be pancreatic cancer. Just have to wait and see, right? My hopes and prayers are for a benign tumor.

  • Deanie0916
    Deanie0916 Member Posts: 628 Member
    edited September 2020 #6
    Bay Area Guy said:

    Prayers and good wishes

    Prayers and good wishes heading your way.

    Thank you

    Thank you

  • Deanie0916
    Deanie0916 Member Posts: 628 Member
    #7
    daisybud said:

    Sending prayers

    And good vibes.

    Thanks

    Thanks so much.

  • cubsfan9
    cubsfan9 Member Posts: 69 Member
    #8
    Deanie0916 said:

    Well, you're right not sure

    Well, you're right not sure if it is truly NED until I have the biopsy. Best case scenario it is a benign tumor not related to any of my previous cancers. Mid case scenario it could be metastisized from the previous breast cancer or kidney cancer. My doctor tells me that it is very rare for kidney cancer to spread to the pancreas. Worst case scenario it could be pancreatic cancer. Just have to wait and see, right? My hopes and prayers are for a benign tumor.

    Mets to pancreas possible

    Good Morning!

    Sorry to hear about your 'mixed report'.  You are correct, it will take a biopsy to determine exactly what you are dealing with.  However, I would share that my husband had a very large RCC met on his pancreas.  He, too, went through a biopsy to determine if it was pancreatic cancer or metastatic kidney cancer.  As I said, it was kidney cancer.  IF that is what you have, I would offer this word of encouragement...pancreatic mets tend to be more indolent/less aggressive and respond to meds.  Hubby has been on Sutent and it has resulted in shrinkage to the point of not even being mentioned on his scans any more!  Benign would, for sure, be better, but don't give up hope!!

  • eug91
    eug91 Member Posts: 471 Member
    edited September 2020 #9
    sending you positive prayers and thoughts-

    You're gonna do great. We're with ya!

  • Deanie0916
    Deanie0916 Member Posts: 628 Member
    #10
    cubsfan9 said:

    Mets to pancreas possible

    Good Morning!

    Sorry to hear about your 'mixed report'.  You are correct, it will take a biopsy to determine exactly what you are dealing with.  However, I would share that my husband had a very large RCC met on his pancreas.  He, too, went through a biopsy to determine if it was pancreatic cancer or metastatic kidney cancer.  As I said, it was kidney cancer.  IF that is what you have, I would offer this word of encouragement...pancreatic mets tend to be more indolent/less aggressive and respond to meds.  Hubby has been on Sutent and it has resulted in shrinkage to the point of not even being mentioned on his scans any more!  Benign would, for sure, be better, but don't give up hope!!

    Thanks Cubsfan

    For your input, I appreciate it. How long was it between his kidney cancer treatment and the appearance of the mets on the pancreas?

  • Deanie0916
    Deanie0916 Member Posts: 628 Member
    #11
    eug91 said:

    sending you positive prayers and thoughts-

    You're gonna do great. We're with ya!

    Thanks

    You are super encouraging.

  • Deanie0916
    Deanie0916 Member Posts: 628 Member
    #12
    cubsfan9 said:

    Mets to pancreas possible

    Good Morning!

    Sorry to hear about your 'mixed report'.  You are correct, it will take a biopsy to determine exactly what you are dealing with.  However, I would share that my husband had a very large RCC met on his pancreas.  He, too, went through a biopsy to determine if it was pancreatic cancer or metastatic kidney cancer.  As I said, it was kidney cancer.  IF that is what you have, I would offer this word of encouragement...pancreatic mets tend to be more indolent/less aggressive and respond to meds.  Hubby has been on Sutent and it has resulted in shrinkage to the point of not even being mentioned on his scans any more!  Benign would, for sure, be better, but don't give up hope!!

    Cubsfan

    I just read the history I see it was a good 8 years. Thanks again and God bless you both on your journey.

  • citizenklaw
    citizenklaw Member Posts: 61 Member
    #13
    You got this!

    Sending only good vibes!

  • Deanie0916
    Deanie0916 Member Posts: 628 Member
    #14
    citizenklaw said:

    You got this!

    Sending only good vibes!

    Citizenklaw

    Thank you!

  • Allochka
    Allochka Member Posts: 1,074 Member
    edited September 2020 #15
    Keeping fingers crossed for

    Keeping fingers crossed for you! When do you have a biopsy?

     

  • Deanie0916
    Deanie0916 Member Posts: 628 Member
    #16
    Allochka said:

    Keeping fingers crossed for

    Keeping fingers crossed for you! When do you have a biopsy?

     

    Hi Allochka

    I'm still waiting for a referral to a gastroentologist. I hope it can be done soon...

  • Allochka
    Allochka Member Posts: 1,074 Member
    #17
    Good luck with biopsy and

    Good luck with biopsy and keep us posted!

    Of course hoping that it is a benign lesion. But, if not benign - it with much more probability could be RCC met, NOT pancreatic cancer! There are people on these boards with pancreatic mets.

    ANd there are lots of benign pancreatic tumors as well. I know it all won't calm you down, but possibility of the worst case scenario is very low...

    Hugs,

    Alla

     

  • APny
    APny Member Posts: 1,995 Member
    edited October 2020 #18
    Keeping fingers crossed for

    Keeping fingers crossed for you. All the best!

  • Deanie0916
    Deanie0916 Member Posts: 628 Member
    #19
    APny said:

    Keeping fingers crossed for

    Keeping fingers crossed for you. All the best!

    Thank you

    Very much!

  • Deanie0916
    Deanie0916 Member Posts: 628 Member
    edited October 2020 #20
    Allochka said:

    Keeping fingers crossed for

    Keeping fingers crossed for you! When do you have a biopsy?

     

    Hi just letting you know

    I'm having biopsy on Oct. 29th. More waiting. 

  • Mmoses25
    Mmoses25 Member Posts: 326 Member
    edited October 2020 #21
    I’m praying

    I'm praying that everything will be ok

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