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Queen of Cheese (Susan), how did the Keytruda go?

EZLiving66's picture
EZLiving66
Posts: 1467
Joined: Oct 2015

How did your Keytruda infusion go yesterday? Please keep us updated if you feel good enough to do so!

Love,

 

Eldri

CheeseQueen57's picture
CheeseQueen57
Posts: 936
Joined: Feb 2016

Infusion went fine and i started Lenvima pill today. I needed 2 pints of blood also since my hemoglobin was down to 7.2. My doctor thinks the cancer is bleeding a little too. When I think of what's going on in my abdomen....We'll see how it goes.  I'll try to keep you posted. 

Molly110
Posts: 184
Joined: Oct 2019

Fingers crossed that the Keytruda succeeds and that you are comfortable in the meantime.

Warmest wishes!

Forherself's picture
Forherself
Posts: 492
Joined: Jan 2019

Hoping all went well for you.  I keep you in my prayers.   And I have been thinking of donating blood. This pushes me over the ede to action.  

BluebirdOne's picture
BluebirdOne
Posts: 370
Joined: Jul 2018

Glad you were able to have the infusion with such low hemoglobin level. Thinking of you everyday. Keep in touch as you feel able. 

xxoo

Denise

NoTimeForCancer's picture
NoTimeForCancer
Posts: 2863
Joined: Mar 2013

Susan, I hope the Keytruda works.  Keep us updated as you can.

 

P.S. - Eldri, thanks for starting this so we can have a new thread for our friend.

Donna Faye's picture
Donna Faye
Posts: 430
Joined: Jan 2017

You are loved and we all are pulling for you. Hugs! df

ConnieSW
Posts: 1545
Joined: Jun 2012

Hope the transfusion gives you a little pep

dgrdalton's picture
dgrdalton
Posts: 150
Joined: Jun 2017

I was just about to update my Keytruda #8 infusion and saw this post. Here's hoping you will have good results and few side effects!

Donna D

Armywife's picture
Armywife
Posts: 452
Joined: Feb 2018

Looking forward to seeing reports that you're feeling better!

Harmony09's picture
Harmony09
Posts: 79
Joined: Aug 2017

You have been on my mind recently, and I came on here to see how you were doing. I see I'm not the only one! ;)  I'm glad you are keeping us updated. Please know that I am praying for you. I am very curious about your experience with Keytruda. I have heard really good things about it.

 

Much Love, 

Stacey 

Red Corvette
Posts: 114
Joined: Jan 2016

Mrs. Red and I send big hugs and good thoughts your way Cheese.

Red

NoTimeForCancer's picture
NoTimeForCancer
Posts: 2863
Joined: Mar 2013

Susan, how are you doing?  

TeddyandBears_Mom's picture
TeddyandBears_Mom
Posts: 1734
Joined: Jun 2015

I'm getting concerned. Susan hasn't been on line in a week.

Susan, thinking of you. 

Love and Hugs,

Cindi

MoeKay
Posts: 313
Joined: Feb 2004

Hi Cheese,

I keep checking for a post from you, but haven't seen one in a while now.  Hope you are doing okay, that the K/L treatments are going well, and that we'll be hearing from you very soon!

Tamlen's picture
Tamlen
Posts: 294
Joined: Jan 2018

I'm thinking of you too, Susan, and hoping you're doing ok. Big virtual hug to you.

Tamlen

ConnieSW
Posts: 1545
Joined: Jun 2012

To the rest.

Donna Faye's picture
Donna Faye
Posts: 430
Joined: Jan 2017

All the best wishes...

Fridays Child
Posts: 203
Joined: Jul 2019

Prayers and best wishes.

oldbeauty
Posts: 297
Joined: May 2012

We all here are sending you virtual hugs and loving good wishes for your health and welfare while we wait patiently for you to be able to share your sassy good humor with us.  Be safe.  Be well.  Best wishes, Oldbeauty

Red Corvette
Posts: 114
Joined: Jan 2016

Mrs. Red and I hope you are ok. Virtual hugs to you.

Red

Kaleena's picture
Kaleena
Posts: 2053
Joined: Nov 2009

Just letting you know we are thinking of you.

Kathy

dgrdalton's picture
dgrdalton
Posts: 150
Joined: Jun 2017

Sending hugs and prayers!

MAbound
Posts: 1101
Joined: Jun 2016

I sent Susan a short pm a couple of days ago just to let her know we were praying for her, but starting to get a bit worried.  Below is her response. Keep praying!

I'm just not well. I'll write when I can.  My eyes are blurry and its hard to textrc

 

TeddyandBears_Mom's picture
TeddyandBears_Mom
Posts: 1734
Joined: Jun 2015

Thank you MABound for posting this. Really worried about Susan.... 

Kaleena's picture
Kaleena
Posts: 2053
Joined: Nov 2009

Thanks for updating up on CQ.  Sending well wishes!

Fridays Child
Posts: 203
Joined: Jul 2019

Thanks for the update.  Praying for her!

Armywife's picture
Armywife
Posts: 452
Joined: Feb 2018

Thank you for letting us know!  Praying.

EZLiving66's picture
EZLiving66
Posts: 1467
Joined: Oct 2015

Miracles can happen and I'm praying for one right now. 

Love,

Eldri

NoTimeForCancer's picture
NoTimeForCancer
Posts: 2863
Joined: Mar 2013

Thanks, MA.  

Dear God in heavean, hold our lovely friend in Your loving hands.

barnyardgal
Posts: 272
Joined: Oct 2017

Praying for Susan.

Tamlen's picture
Tamlen
Posts: 294
Joined: Jan 2018

We're holding you close and sending prayers and our most loving thoughts your way. Please know how much we care about you and thank you for all your contributions here.

jan9wils's picture
jan9wils
Posts: 150
Joined: Mar 2017

Praying for you CQ

CheeseQueen57's picture
CheeseQueen57
Posts: 936
Joined: Feb 2016

I’m sorry I’ve not updated my loved ones but as Willie said, it’s been a rough and rocky road. I’ve been in the hospital 4 times for various reasons once for medications all messed up.  I didn’t know who I was a couple times. I have to say, our healthcare system sucks.  You’re lucky if it doesn’t kill you. Angelo has now taken control and is a great advcocate

I’ll not be too long here can things are still rough. We’re beginning immunotherapy once again. We’ll see how it goes.  I’ll try to keep you posted.  My biggest problem is keeping ahead of the pain of ascites.  

Please keep your prayers coming.  Really need them now. And I think of you all past and present often.  Sure is a bumpy journey. 

Donna Faye's picture
Donna Faye
Posts: 430
Joined: Jan 2017

We are all so glad to hear from you but hearts are heavy that you are having such a rough time. Know if prayers and love can help, you are getting it in tons. Keep being the fighter you are.

Kaleena's picture
Kaleena
Posts: 2053
Joined: Nov 2009

I am not sure whether you have answered this or not so I apologize if you have.   Have you had a paracentesis yet or Have you gotten a drain for your ascites?  if your fluid is building up quickly that may help.  

Sending you hugs!

Kathy

Fridays Child
Posts: 203
Joined: Jul 2019

Praying for you and hoping things improve and you feel better soon.

MAbound
Posts: 1101
Joined: Jun 2016

You always seem to have such a rough time with any kind of treatment. You and Eldri.

When you went quiet, I was kind of afraid that things were not going well for you and as you can see I wasn't the only one worried. Thank God for Angelo and whomever else you got looking out for you! Invite them to come here if they need any support, too! We're all with you and them as you keep up your fight and have arms enough to give virtual hugs to all if needed. 

Stay feisty, my friend! Italy is still calling!

alicia2020
Posts: 90
Joined: Sep 2020

I'm pretty new around here, but I wanted to let you know that I, too, am praying for you and hoping you can get much better soon. You are very well-loved and the more prayers the better!

xo,

Alicia

TeddyandBears_Mom's picture
TeddyandBears_Mom
Posts: 1734
Joined: Jun 2015

Cheese, If wishing would take away your pain; it would be GONE! So sorry you are having to deal with this. Thank you for taking the time and energy to check in. We all know you have a lot on your plate right now. I hope and pray things start getting better for you. You are loved and missed here for sure.

Take care my friend.

Love and Hugs,

Cindi

Armywife's picture
Armywife
Posts: 452
Joined: Feb 2018

Oh, what a blessing it was to see your beautiful cheese queen picture show up on the board today.  Praying for you daily.  Thank you, thank you, thank you for writing to us today - it means so much to see your words. 

CheeseQueen57's picture
CheeseQueen57
Posts: 936
Joined: Feb 2016

I'm now on the K/L regime only 10mg of L. Who knows if it will work. Quite upset when my doc brought up hospice. Not quite there yet. Have that Italian wedding next summer....

LisaPizza's picture
LisaPizza
Posts: 336
Joined: Feb 2018

I hope it works for you, and isn't too rough on you.  It's nice that we've had a few threads about this combo for real world information. Although none if us are in control, I have read many times that having a goal is one of the things that makes a big difference. And of course, as has been mentioned a few times, dedicated palliative care can do a great deal for quality of life, and can be involved even while still pursuing treatment.

EZLiving66's picture
EZLiving66
Posts: 1467
Joined: Oct 2015

(((Susan))) I am so sorry with all the pain and suffering you have had to endure. I agree that our health care system sucks - from doctors to insurance companies to health care facility! I am hoping and praying this works for you, my friend, because after all, you are expected in Italy!

Sending you all my love and prayers!

Love,

Eldri

MAbound
Posts: 1101
Joined: Jun 2016

Nope! Don't hear no fat lady singing for you yet! You have other plans! I like CMB's suggestion to Donna about palliative care vs. hospice. Whatever tools work to get you where you want to be! Hang in there, kiddo!

NoTimeForCancer's picture
NoTimeForCancer
Posts: 2863
Joined: Mar 2013

and you KEEP kickin' it Susan!  Hugs and cheering you on.

Theskinnyscot's picture
Theskinnyscot
Posts: 31
Joined: Dec 2019

So nice to see you on here. Hoping this regime will work well for you. y. 

ConnieSW
Posts: 1545
Joined: Jun 2012

Than the last time you were here.  I hope so.  You know I am rooting for you.  You have been so strong.

Donna Faye's picture
Donna Faye
Posts: 430
Joined: Jan 2017

there is a way and if anybody can keep on keeping on, it is you. Hoping the L/K works well at keeping the beast at bay and indeed gives you all the time you desire. df

pato58's picture
pato58
Posts: 119
Joined: Jun 2018

You are in my thoughts my dear Cheese!

Yeo's picture
Yeo
Posts: 27
Joined: Nov 2019

Sending, hugs, prayers and love your way.

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