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Cancer is now causing me severe pain **UPDATED**

abrub's picture
abrub
Posts: 2131
Joined: Mar 2010

**UPDATE**

Surgery is now scheduled at Sloan Kettering for July 28.  The feeling is that chemo won't do much, but they still want me to complete 4 cycles (1 down, 3 to go) before surgery.  Plus I need 8 weeks off Avastin (had it 2 weeks ago; discontinued as of now).  Surgery would be sooner, but my surgeon is going on vacation July 19-26, and doesn't want to do surgery and run.  Meanwhile, pain is increasing.  I'm also on Gabapentin now, though that doesn't seem to be helping.

 

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Original post:

The tumors in my belly have grown and are now pressing on nerves, causing severe lower right quadrant pain, especially when I walk.  Also, more tumors have appeared.  Not operable right now; going back on Folfiri this week, hoping to shrink the tumors that are pressing on nerves.  This is the first time that the cancer itself has caused pain.  Up until now, all the discomfort and pain has been due to treatment.

Are we having fun yet?

Alice

 

Gail E's picture
Gail E
Posts: 19
Joined: May 2020

I was off chemo and having pain that sent me to ER and eventually 24-7 morphine. Back on chemo and pain and morphine gone! I still hate chemo but not As much. I hope It works for you.

abrub's picture
abrub
Posts: 2131
Joined: Mar 2010

I was just started on Gabepentin, and it seems to be helping somewhat.  Meanwile, chemo for now.  Surgical options still possible.

Djspareme's picture
Djspareme
Posts: 22
Joined: Mar 2019

Im glad the gabapentin seems to be working.  I used it for a few months and developed Parkinson like side effects.  Shaking and jaw tremors.

SnapDragon2's picture
SnapDragon2
Posts: 304
Joined: Nov 2019

Oh abrub,  I hate to hear about this!  I hope you get pain relief and soon.  You are strong from everything I've read from you!

Canadian Sandy's picture
Canadian Sandy
Posts: 626
Joined: Jul 2016

Sorry to hear this abrub. Gabopentin is good for nerve pain. Take care.

AnneO1965's picture
AnneO1965
Posts: 148
Joined: May 2019

Oh Alice... I'm so sorry to read this... Gabapentin has helped me alot.. I also have the tylenol with codein for when things get really bad. Maybe ask your doc about that?  Anyway, I'm thinking about you and I hope things ease up soon.  Virtual hugs!

abrub's picture
abrub
Posts: 2131
Joined: Mar 2010

However, the tramadol doesn't do much for the pain.  Codeine makes me sick, so I like to avoid it.  However, I am finding the gabepentin to be helpful.

Alice

Ruthmomto4's picture
Ruthmomto4
Posts: 659
Joined: May 2013

I was going to suggest gabapentin I am glad it's helping. I hope the chemo shrinks things and gives you more relief. 

Annabelle41415's picture
Annabelle41415
Posts: 6510
Joined: Feb 2009

I'm so sorry to hear that.  You have been through so much these past years, and hopefully the doctor can give you something to help with the discomfort if the gabapentine doesn't quite do the trick.  Wishing you the best.

Kim

Kazenmax's picture
Kazenmax
Posts: 416
Joined: Feb 2016

That sucks. Sorry to hear this. I hope you get a break soon. Sending love and strength.

k

Trubrit's picture
Trubrit
Posts: 5175
Joined: Jan 2013

but I am glad you are getting some relief from Gabapentin.  

But it is hard hearing about the new tumours.  Here's hoping that the Folfiri does the job and knocking them down and getting them under control.   Will they be able to do surgery in the future? 

Thinking of you. 

Tru

abrub's picture
abrub
Posts: 2131
Joined: Mar 2010

My surgeon is looking into options.  I think he'll convince my med onc that surgery is the way to go (with possible rads as one tumor may be dangerous to remove in terms of quality of life.  However, the radiation onc says that implanting radioactive beads in that tumor should work fine.  Fingers crossed!  

I absolutely agree with my surgeon's thinking.  Chemo didn't shrink these tumors before; why should it now?

Alice

beaumontdave's picture
beaumontdave
Posts: 1053
Joined: Aug 2013

I'm sorry Alice, it's tough to have any quality of life with that pain, I'm sure. I'm sort of busy one day and off my feet the next, due to the ''bone on bone'' nature of my ankles/feet. I take the Tramodal too, and it's effects are minimal, but I'm not doing opiates again. Neither Lyrica nor Gabapentin do anything for me, so it's reading and binge watching shows/movies, and using my time well tomorrow, while I'm up and able. Still it's small potatoes compaired with your fight.  I wish they'd invent something that blocks nerve pain better, so we can keep on trucking and doing the fun things. Hang tough......................................Dave

Capox Dude's picture
Capox Dude
Posts: 77
Joined: May 2019

had a song about an illegal smile.  Talk to your doc about all options

abrub's picture
abrub
Posts: 2131
Joined: Mar 2010

I will bring it up!

abrub's picture
abrub
Posts: 2131
Joined: Mar 2010

See main post

Trubrit's picture
Trubrit
Posts: 5175
Joined: Jan 2013

But I will be thinking of you before, hoping that you are able to get the pain under control. 

Cyber hugs!

Tru

myAZmountain's picture
myAZmountain
Posts: 335
Joined: Apr 2018

Hope so much you can get some kind of relief as you wait for your surgery--and hope that it goes well and you heal quickly!

danker
Posts: 1247
Joined: Apr 2012

It is bad enough that cancer can kill us!!  Does it also have to cause pain? Hopping for the best for you!!!

Annabelle41415's picture
Annabelle41415
Posts: 6510
Joined: Feb 2009

Hopefully once the surgery is completed then you will have some relief from the pain.  It's too bad they can't give you more of a pain reliever at this time as when you are in pain, that date seems like forever.  Hoping that the pain doesn't get any worse while you wait.  Wishing you the best.

Kim

belsam
Posts: 25
Joined: Jun 2020

.....had my ascending colon removed 1 yr ago because of Stage 1 cancer.  Got it early with no chemo or radiation follow-up.  My question, since my surgery i have pain on my right side where my colon was removed. Some days no pain........some days a nagging pain.  l can push around on the area and there's no tender areas.  Again, it's seems to be more of a nagging pain....if i'm non-symptomatic l can raise the pain when l start squatting like when l'm washing the car or gardeing.  This is a great site to ask such questions.  Cool

Trubrit's picture
Trubrit
Posts: 5175
Joined: Jan 2013

Can I suggest you re-post this in a brand new thread. That way, folks can answer and not run up Abrubs original post.  Here is the link to the forum home page  https://csn.cancer.org/forum/128 - if you have any problems, just let us know. 

Tru

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