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Good News/Bad News - CHEMO DONE!!! Chemo Not Working

NewHere's picture
NewHere
Posts: 1205
Joined: Feb 2015

The good news is I am done with FOLFORI 

The bad nes is I am done with FOLFORI

K-rap.  What I thought was happening last scan has happened.  It stopped working.  More mets and the bad boys have started growing again, one pushing 6 cM.  Yay.  Looking for trials now and then at other possible chemos if there is no trial or the trail fails.  

Joan M's picture
Joan M
Posts: 411
Joined: Oct 2016

My oncologist said it usually only works for about 3 months so thought I was lucky it worked for a year and a half.  

I'm on Oxaliplatin and xeloda again  and ended up in hospital for 3 days over the weekend.  I seriously thought the crap was going to kill me.  The hospital doctor told me to hold off on xeloda until nausea is better,  I'll probably try taking it tomorrow,  Of course this throws me off their desired 3 week schedule.  It will be more like 4 weeks between oxaliplatin infusions.  The 3 week xelox schedule was recommended by my oncologist at Mayo clinic.  I am going to call him and see if I should even still be taking it.  He said there were a coupld other things I can try such as regorafiv and nivolumab combo.  and possible trials at mayo.  Although he thought my best optoin for now was the oxaliplatin due to higher response rate.   trials are uncertain as we know.

 

Where is your main clinic?  I'd like to know if they have any better options for you. or that I can try.  

NewHere's picture
NewHere
Posts: 1205
Joined: Feb 2015

Will let you know if I come across any trials.  The one they think works for me is a Phase I.  My oncologist was not very positive about II or IIIs out there based on my situation.  But she says I can ask her anyting at anytime.  She is awesome.  It was a tough conversation for her to have with me, i could see it in her face.  

Trubrit's picture
Trubrit
Posts: 5222
Joined: Jan 2013

Not good news.  I am sorry to hear it. 

May you find the trial that works.  '

'You have My sword - My bow - My axe' - yes, I am a Lord of the Rings fan. 

Tru

feckcancer
Posts: 123
Joined: Jun 2018

From the land of the Lord of the Rings to you...

Trubrit's picture
Trubrit
Posts: 5222
Joined: Jan 2013

I would have loved to visit NZ.  

Tru

NewHere's picture
NewHere
Posts: 1205
Joined: Feb 2015

Packing my Frodo doll and will head to the airport :)

Joan M's picture
Joan M
Posts: 411
Joined: Oct 2016

Enjoy your time regardless of the prognosis.  Be it six months or sixty years!

feckcancer
Posts: 123
Joined: Jun 2018

Will pick you up from the airport 

NewHere's picture
NewHere
Posts: 1205
Joined: Feb 2015

Granted it is not the greatest scenario and I know what this probably means, but I am not giving up Tru.  To use your phrase, stiff upper lip.  Urg, this stinks

Kazenmax's picture
Kazenmax
Posts: 424
Joined: Feb 2016

I freaking hate this cancer! I'm so sorry. I hope you find a trial soon. 

K

NewHere's picture
NewHere
Posts: 1205
Joined: Feb 2015

As I kind of joke around - after almost 5 years of this, I am kind of seeing why cancer and chemo have a bad rep.  Still trying to joke right now, but it is a tougher day to do it....

feckcancer
Posts: 123
Joined: Jun 2018

Kia kaha, kia maia, kia manawanui ~ Be strong, have courage, be patient.

I pray you will find a trial soon, much aroha being sent your way.

 

abrub's picture
abrub
Posts: 2132
Joined: Mar 2010

I guess that's why I'm only scheduled for 9 cycles with Folfiri; then just 5FU and Avastin.  Who's your onc at MSK?  I hope that they can find something for you.  Sending a hug.

Alice

Annabelle41415's picture
Annabelle41415
Posts: 6549
Joined: Feb 2009

I'm sorry to hear that is no longer working for you, and hopefully you can find a trial soon that will give some results.  I'm sure that you have given thought to another opinion, however it's good to hear that you like your doctor.

Kim

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