Good News/Bad News - CHEMO DONE!!! Chemo Not Working

NewHere
NewHere Member Posts: 1,429 Member
in Colorectal Cancer #1

The good news is I am done with FOLFORI 

The bad nes is I am done with FOLFORI

K-rap.  What I thought was happening last scan has happened.  It stopped working.  More mets and the bad boys have started growing again, one pushing 6 cM.  Yay.  Looking for trials now and then at other possible chemos if there is no trial or the trail fails.  

Comments

  • Joan M
    Joan M Member Posts: 409 Member
    #2
    Good luck

    My oncologist said it usually only works for about 3 months so thought I was lucky it worked for a year and a half.  

    I'm on Oxaliplatin and xeloda again  and ended up in hospital for 3 days over the weekend.  I seriously thought the crap was going to kill me.  The hospital doctor told me to hold off on xeloda until nausea is better,  I'll probably try taking it tomorrow,  Of course this throws me off their desired 3 week schedule.  It will be more like 4 weeks between oxaliplatin infusions.  The 3 week xelox schedule was recommended by my oncologist at Mayo clinic.  I am going to call him and see if I should even still be taking it.  He said there were a coupld other things I can try such as regorafiv and nivolumab combo.  and possible trials at mayo.  Although he thought my best optoin for now was the oxaliplatin due to higher response rate.   trials are uncertain as we know.

     

    Where is your main clinic?  I'd like to know if they have any better options for you. or that I can try.  

  • NewHere
    NewHere Member Posts: 1,429 Member
    #3
    Thanks Joan

    Will let you know if I come across any trials.  The one they think works for me is a Phase I.  My oncologist was not very positive about II or IIIs out there based on my situation.  But she says I can ask her anyting at anytime.  She is awesome.  It was a tough conversation for her to have with me, i could see it in her face.  

  • Trubrit
    Trubrit Member Posts: 5,804 Member
    #4
    It was a tough conversation period, I think

    Not good news.  I am sorry to hear it. 

    May you find the trial that works.  '

    'You have My sword - My bow - My axe' - yes, I am a Lord of the Rings fan. 

    Tru

  • Kazenmax
    Kazenmax Member Posts: 463 Member
    #5
    I freaking hate this cancer!

    I freaking hate this cancer! I'm so sorry. I hope you find a trial soon. 

    K

  • feckcancer
    feckcancer Member Posts: 189 Member
    #6
    Kia kaha, kia maia, kia

    Kia kaha, kia maia, kia manawanui ~ Be strong, have courage, be patient.

    I pray you will find a trial soon, much aroha being sent your way.

     

  • feckcancer
    feckcancer Member Posts: 189 Member
    #7
    Trubrit said:

    It was a tough conversation period, I think

    Not good news.  I am sorry to hear it. 

    May you find the trial that works.  '

    'You have My sword - My bow - My axe' - yes, I am a Lord of the Rings fan. 

    Tru

    From the land of the Lord of

    imageFrom the land of the Lord of the Rings to you...

    image

  • Trubrit
    Trubrit Member Posts: 5,804 Member
    #8
    feckcancer said:

    From the land of the Lord of

    imageFrom the land of the Lord of the Rings to you...

    image

    Lovely!

    I would have loved to visit NZ.  

    Tru

  • NewHere
    NewHere Member Posts: 1,429 Member
    #9
    Trubrit said:

    It was a tough conversation period, I think

    Not good news.  I am sorry to hear it. 

    May you find the trial that works.  '

    'You have My sword - My bow - My axe' - yes, I am a Lord of the Rings fan. 

    Tru

    I LOVE LOTR

    Granted it is not the greatest scenario and I know what this probably means, but I am not giving up Tru.  To use your phrase, stiff upper lip.  Urg, this stinks

  • NewHere
    NewHere Member Posts: 1,429 Member
    #10
    feckcancer said:

    From the land of the Lord of

    imageFrom the land of the Lord of the Rings to you...

    image

    Time For A Road Trip

    Packing my Frodo doll and will head to the airport :)

  • NewHere
    NewHere Member Posts: 1,429 Member
    #11
    Kazenmax said:

    I freaking hate this cancer!

    I freaking hate this cancer! I'm so sorry. I hope you find a trial soon. 

    K

    Thanks

    As I kind of joke around - after almost 5 years of this, I am kind of seeing why cancer and chemo have a bad rep.  Still trying to joke right now, but it is a tougher day to do it....

  • Joan M
    Joan M Member Posts: 409 Member
    #12
    NewHere said:

    Time For A Road Trip

    Packing my Frodo doll and will head to the airport :)

    Road Trips are the best!

    Enjoy your time regardless of the prognosis.  Be it six months or sixty years!

  • feckcancer
    feckcancer Member Posts: 189 Member
    #13
    NewHere said:

    Time For A Road Trip

    Packing my Frodo doll and will head to the airport :)

    Will pick you up from the

    Will pick you up from the airport 

  • abrub
    abrub Member Posts: 2,174 Member
    #14
    That stinks!

    I guess that's why I'm only scheduled for 9 cycles with Folfiri; then just 5FU and Avastin.  Who's your onc at MSK?  I hope that they can find something for you.  Sending a hug.

    Alice

  • Annabelle41415
    Annabelle41415 Member Posts: 6,742 Member
    #15
    Trial

    I'm sorry to hear that is no longer working for you, and hopefully you can find a trial soon that will give some results.  I'm sure that you have given thought to another opinion, however it's good to hear that you like your doctor.

    Kim

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