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Beginning radiation for rectal tumor

MeAndMine
Posts: 50
Joined: Aug 2019

Hi, I'm beginning radiation along with Xeloda next week and am trying to make a list of things to do proactively to circumvent problems with the radiation and/or chemo. Has anyone that has been through this got any tips or tricks for me?

I really believe that I need to be putting a cream or ointment or something on daily now to build up my skin before radiation but the doctor says if a problem arises, we will handle it then. I am afraid of putting anything on before in case it causes a problem and have no idea what I need to do. I feel better not waiting until a problem arises though I'm not sure what I need to be doing.

Also, any diet tips? I have conflicting lists as to what I should be eating or not eating.

So far the only thing I have started is making a mouthwash with water, salt and baking powder. I read to start it now and swish/gargle with that each time you go to the bathroom to keep your mouth from having problems from the oral chemo.

I do better with a plan and wish I had things written out on paper to follow so I know I'm doing things I'm supposed to be doing. 

Thank you for your help!

Trubrit's picture
Trubrit
Posts: 4851
Joined: Jan 2013

I am sorry that you have found yourself here. 

You are wise to want to be proactive and prepared. 

Like most medical things, there are a slew of side effects that you may or may not get, depending on your reactions.  Some folks just breeze through chemo and radiation, some have serveral side effects and some run thruogh the whole gammut -that would have been me. 

While my reaction to radiation was on the extreme side, if you are interested, I would share. I won't start off with them, though. 

I don't think anything can prepare your delicate anal skin for the onslaught of radiation, but others here may disagree and share something that worked a charm for them.  When you actually go through treatment, there are several things that can help the burn. Again, it may depend on your personal makeup, what works best for you.  

One thing that I do think will come in handy is a Sitz Bath. You can get them at a fairly good price on Amazon and probably from a pharmacy. I swear I lived on mine throughout radiation. 

I also think a Bidet is a great idea. I wasn't able to have one during treatment, becasue I had to move to the big city and live away from home during radiation, but I have one here at home, and use it to this day - many times a day - it is a lifesaver for the delicate anal skin. 

I know some folks use a balm like ointment - I think its called Balmex, but there are probably several types. It is like babies Desitin. It didn't work well for me, but for others it has worked. 

I would get a bag of Depend Underwear.  I had uncontrolable diarrhea throughout radiation, and those things were a life saver - clothes saver - embarrasing moment saver. 

I also used Pure Organic Aloe Vera Gel. You have to keep it in the fridge, as it is in its pure form. It is also runny and not like the gels you are used to. It was an added bonus being in the fridge - nice and cold ahhhhhh!

Well, theres a start. I'm sure others will have great advice that differs from mine. 

I wish you all the luck in the world, and hope that you are one of the lucky ones who isn't bothered overly by the treatment. 

Oh, and I can't advice on Xeloda as I was on the FOLFOX infusion.  I do know that you need to keep your hands and feet well moisterized as the sores are terrible and once they start it is hard to get rid of them.   

I also agree that the baking soda/salt/warm water rinses are great. Mouth sores are nasty. 

Stick with us and we will help you through this trial. 

Tru

MeAndMine
Posts: 50
Joined: Aug 2019

Thank you Tru. I asked at my radiology appointment if I could begin using any kind of balm, lotion or ointment. They want to wait and fix it if you happen to get something. The doctor said that if I need something, we will adress it then. I asked about a sitz bath and the nurse said no, that's not a good idea. I've read so many people say it's wonderful so I can't imagine why she said that. Then I asked about using a peri-bottle/portable bidet. Again, she kind of looked at me like she'd never heard of it. This was the nurse. I will have to ask someone else when I go back next week. 

Today I'm beginning to think it might all be more than I can handle.

cinda
Posts: 33
Joined: Jul 2019

Hi meandmine. I did 24 treatment of radition and 5fu chemo bag at the same time. I didn't have any problems with burns,a few days of bladder irrations. You just take aso bought over the counter.My lower stomach hurt {more inside } and I was tired. But I didn't think it was to bad. I know your scared and I'm sorry . YOU CAN DO THIS.. I hope you believe in god. It helped a lot to not feel alone. In my case the people doing the treatment were really nice and theres a good chance your s will be also.You need to give it a try and if you can't handle it tell the doctors you just can't do it. I hope you have a good family support group. We will be here for you anytime you need us.  my thoughts and prayers are with you as you go forward.

                   cinds

;

 

MeAndMine
Posts: 50
Joined: Aug 2019

I really, really needed to hear that. Thank you so much!

Trubrit's picture
Trubrit
Posts: 4851
Joined: Jan 2013

It may or may not be pleasant - Cinda did well, and that could be you - but either way, you can do it. 

At the end of the day, it can feel like forever, but it does come to an end, and I sit here, Stage IV and FIVE years NED - No Evidence of Disease -  and even though it was all a Hellish experience, I do NOT regret going through it. LIFE IS GOOD! 

We are here for you.  The forum may not be popping like it was when I joined, but there are good, strong forum members here, who can help you in no end of ways.  All of us with a different story to tell. 

Tru

MeAndMine
Posts: 50
Joined: Aug 2019

You have no idea how hearing the words of you & Cinda have made me feel this evening. Thank you so much!

suzycruise76's picture
suzycruise76
Posts: 97
Joined: Mar 2019

Hi MeAndMine,I started same as you with radiation and Xeloda-both for 25 days/5 weeks. Regarding the radiation:on my first day of radiation at the hospital I was sent to Nursing station where I was given Proshield Plus (Dimethicone Ointment) for using on my tender skin after it starts itching/burning; they gave me bunch of flyers with many instructions and advices,among them was a recommendation to get a Sitz-Bath and start using it according to needs.And believe me,I needed it-it was very very helpful and soothing.

Xeloda:after eating the pills at home twice a day I lost my appetite completely-every food I looked at felt awful;I had known that I needed to eat,so I must had pushed myself to eat at least something....whatever felt least awful. Losing the appetite happened after first day of chemo.

As another side effect I became gradually tired to be completely exhausted and fatiqued;I had my radiation treatments at the hospital every day around noon,so I had naps every afternoon when I got home.

I did not have mouth sores,only very slight "hand and feet effect" on my 3 fingers tips in form of cracked skin.It appeared in last 2 weeks of treatment and gradually disappeared after the end of treatment.Wasn't pleasant but not too bad.

 

Looking back on those 5 weeks in early spring this year I think that I had been lucky with managable symptons.

I have to add that the nurses at radiation had been very very nice which helped me to feel relaxed and comfortable (almost ;-))

So,dear MeAndMine,do not worry and be strong! You really can and will do it!!!Smile

All the best,

Suzy

MeAndMine
Posts: 50
Joined: Aug 2019

Thank you Suzy! I already have no appetite and keep losing weight. I am trying really hard to put a stop to it and have been tracking my calories. I still am not eating enough but I did better today than yesterday.

I hope I will get some flyers or something when I start treatment. When I asked about ointment or sitz baths they seemed to think I was coming from left field. Maybe I asked the wrong person!

My surgeon did say that he would prescribe an ointment for me that is made up at a compound pharmacy that is mostly an antibiotic with soothing wax or something? I don't really know but he said I can pick it up next week. The radiation oncologist office said he wants me to use his protocol but if he's not going to give me anything, I'm going to use the surgeon's ointment daily after treatments and bathe everything off each morning before radiation. I feel like I have to do something instead of waiting to see what might happen.

I'm thankful for you guys. Seriously, I was having such a hard time today but you've given me a virtual hug and helped me feel so much better!

Trubrit's picture
Trubrit
Posts: 4851
Joined: Jan 2013

Moving this lower

SoCal42's picture
SoCal42
Posts: 57
Joined: Jul 2017

I had 25 radiation treatments with Xeloda in 2017.

The radiation made me feel tired right away, but that may have also been the Xeloda, plus I had to travel about an hour one-way to treatments every day.

The diarrhea problem is very real, but for me it wasn't too bad until closer to the end of treatment. I definitely used Desitin ointment to protect the sensitive area (seemed to last longer than just ointment) and sat in a warm bath a lot. When the diarrhea got worse, I switched to a very low fiber diet (can be found online) to slow down the GI tract. I even went to a clear liquid diet (like before colonoscopy) for a couple of days when it was really bad, and that was quite a relief. Also remember that the side effects can continue to get worse for a little while after your last treatment.

Many radiation therapy facilities have nurses and doctors who area available same-day during your visits to deal with problems, especially the skin problems. Better to treat problems as soon as you notice them even a little bit. I know my facility had all kinds of special skin preparations they used. 

MeAndMine
Posts: 50
Joined: Aug 2019

I think Desitin would be amazing but they've told me not to use it. I've read  you can use it but wash it off before your appointment.

My facility is half an hour away so it's a little closer. Still seems like such a trek to do every day but it's very doable.

annie4145
Posts: 98
Joined: Jul 2018

When you are first starting, the weeks seem so long to go through, but they do fly by and before you know it, you will be done with it.  My hospital didn't want me using anything but what they gave me, but they gave me everything I needed and lots of it.  (The only thing that I had to order off of amazon were diapers). I also bought at the store an extra soft toothbrush and special toothpaste before treatment started.  I also had a bidet installed at home, and I think that it was a good purchase. (You can get one that attaches from Amazon pretty cheap.)  I also bought little sitz baths, but I didn't use them that much.  I preferred to rest in the tub.  

(I had bad diarrhea at the end. I used baths alot in the week after treatment ended.  It sounds gross but would do my bit in the bathtub instead of the toilet because there was less burning).  My side effects were significant, but tolerable.  I was very tired, couldn't work, and lost 30 pounds.  Take your anti-nausea pills as scheduled.  The first night of chemo, my stomach was a little upset, and I decided to "sleep it off" as if it were an normal upset stomach.  That was not a good idea.  But after that, and I started taking my medicine, I had no real issues with nausea.  My hospital was very caring and supportive. 

If you have anything special that you need to do over the next 2 to 3 months, such as getting presents for people, or writing christmas cards, you can do it early and save them for when they are needed.  Anything to make your life easier over the next six to eight weeks.  It will be fine.  Keep us up to date if you feel up to it. 

MeAndMine
Posts: 50
Joined: Aug 2019

They haven't prescribed me any meds other than the chemo pills. That's what I worry about. Both the oncologist and the radiology oncologist seem to be like "let's wait and see how it goes". I'm going to call the oncologist today to ask if I can get some nausea meds ready in case I need them. I really don't understand the wait and see approach. I want to be ready for it.

I've already lost 30 pounds before even starting treatment. Mostly from nerves and maybe blockage from the tumor. It feels better to not eat but I know I have to eat.

Thank you for the reminder about presents. I need to do some birthday and holiday shopping but my mind is so busy I have forgotton. 

SandiaBuddy's picture
SandiaBuddy
Posts: 892
Joined: Apr 2017

Heading into chemo, it makes sense to me that you eat, eat, eat.  Eat what is palatable.  Eat what makes you fat.  Regaining a few of the pounds that you have lost will give you a little bit of reserve in case things get tough.  Best of luck to you.

MeAndMine
Posts: 50
Joined: Aug 2019

Thank you! I've been trying to eat more but have felt so bloated from it. Yesterday I was thinking I was doing more harm than good with all of the pressure I'm feeling from it, but I still tried to get the calories up there. Maybe after treatment starts tomorrow, the tumor will shrink enough for me to eat more even with the side effects I may have from it. 

Trubrit's picture
Trubrit
Posts: 4851
Joined: Jan 2013

Try some of those nutritional drinks like Ensure and Boost. Something to give you calories and protien but not bulk.  Or try juicing.  

When I first started on the forum, juicing was a huge topic, and many folks swore by it. 

Ice cream is also a big hit with folks - like me - who aren't worried about the sugars. 

When I was going through radiation I was scared to eat, becasue eating meant bowel movements and bowel movements were horrendously painful.

I was also told NOT to lose weight, because the radiation is so precise and they have either tattooed you or put stickers on you, and they don't want them to move.

It is all so hard, so just try your best.

Tru 

MeAndMine
Posts: 50
Joined: Aug 2019

I did super bad on calories and protein today. I didn't get half of what I'm supposed to. I start treatment tomorrow. I've got some high protein yogurt and some Ensure also. I will start drinking those tomorrow. I am going to have to set an alarm or make a food plan to eat on schedule or something. I simply do not want to eat and yes, I don't want to go to the bathroom either.

I think the first week or so is more bearable so I need to at least get started on the right track before I can't do more than that. 

It does seem insurmountable right now.

Trubrit's picture
Trubrit
Posts: 4851
Joined: Jan 2013

It does seem insurmountable right now.

Which will make you so proud of yourself when you're all done with treatment and out the other end. 

Tru

AnneO1965's picture
AnneO1965
Posts: 50
Joined: May 2019

First, ask your oncologist for the anti-neausea pills. You may not need them, but it's better to have them than not.

My doctor also gave me silverdine cream. Not sure on the spelling, but I ended up only needing it around the second to last treatment.

 

Advice I can give:

 

Take lots of warm baths.

Buy some of the flushable baby wipe type things. They will be a God send.

Drink lots of fluid.

Take it EASY... Get as much sleep as you possibly can.

 

Good luck and you WILL rock this!

MeAndMine
Posts: 50
Joined: Aug 2019

Thank you! I put in a request this morning for the nausea medicine but haven't heard back anything so far. 

I just trimmed down my nails and it feels strange! The nurse counselor for the Xeloda said I should do that to prevent accidental cuts or pokes. I made sure to leave a little nail so it's not too short. I've never heard of anyone doing that before but if it helps, why not. 

He also told me to wear shoes all of the time, even at home and I kind of laughed at that but since then I've stepped on something or hit my toe on something and I realize how that little thing might be a big thing while undergoing treatment so I understand.

MeAndMine
Posts: 50
Joined: Aug 2019

Day one is about done. I'm drinking an Ensure Enlive, trying to get some calories in. I got in lots of water earlier in the day but have been sleepy and trying to nap this afternoon and haven't had as much. I was measuring before I went but drank some glasses of water in the waiting room for radiation and lost count. I'm not sure how much I'm supposed to be drinking. Just "a lot". I've had at least 64 oz. but I used to drink more than that when active.

I didn't have any reaction from the Xeloda that I can tell but I think it accumulates and I've only had one dose. I will take the second this evening then of course daily until the end of treatment.

Radiation went well. It was a double appointment because they had to do one more set up type appointment before doing the actual radiation. It was hard to lay still for that long and my arms were falling asleep. It will be shorter after today, though.

I have the nausea meds but haven't had to take them yet. I don't have anything to put on my radiated skin. I really want to be proactive about that but they say they will cross that bridge when we come to it. I don't know what I can use that won't cause a problem. I'm afraid anything I put on will be hard to wash off when you're supposed to be delicate with your skin.

I asked for a peri-bottle and/or sitz bath information. I had asked at the last appointment and they acted like they hadn't heard such a request before. I figured I'd try today with different people. Again, they look like that is a question they've never heard before. They said I could get a bottle at Walmart probably. 

Maybe they really don't have issues at this facility. Maybe they use less radiation and no one has a problem or maybe they just let you figure it out on your own. 

Everyone was very nice and I like the people there though. I just wish they were more proactive in their treatments. 

Thanks again for everyone's help and ideas.

feckcancer
Posts: 93
Joined: Jun 2018

MeAndMine
Posts: 50
Joined: Aug 2019

Thank you! That does help and when it's big, it's easier to read. I appreciate you taking the time to post the lists.

leslyelaw
Posts: 11
Joined: Oct 2019

Thank you for these lists. I have a Partial blockage and have to eat low fiber. I use soy milk. High in protein which I need for surgery. I wonder why it’s on the avoid list. I also eat coconut yogurt. It’s made with coconut milk powder which is low in fiber. I wonder why coconut cream is on the avoid list. Any ideas why? I’m new at this. 

Thank you

feckcancer
Posts: 93
Joined: Jun 2018

I was told by my oncologists to use fatty emulsion cream on my skin but to make sure if was not on it before radiation. i used to smother my skin with it the rest of the time and my burns weren't to bad. only for use on your skin. when my lady bits and anus got sore i was given wound gels & lignocaine 2% gel (local numbing cream) . if it is painful to go to the bathroom use the lignocaine gel before you go ,use sopping wet (with water) cotton wool to wipe , then apply the wound gel and/or lignocaine. salt baths can help relieve pain. keep the area dry using a hair dryer on cool heat can help stop infections. i was told to try to avoid baby wipes, even fragrence free because of the chemicals in them. I was given loperamide for diarrhea. first sign of it take them. don't take vitimin C or smoke cigarettes because there is a theory that they may stop the radiation from working properly. if you have side effects they come on over time & can't be predicited so at the first sign of any side effects tell your doctors. Good luck. Hope it goes well & this is helpful for you.

MeAndMine
Posts: 50
Joined: Aug 2019

I'm using a cream on my feet and hands but so far have put nothing on the radiated area. They haven't said anything that I could use and I'm afraid to try things. 

I am not wanting to eat this morning. I don't feel nauseas so much except when I try to eat something. I know if I eat I will probably feel better but it's making me queasy to try. I tried toast. Now I'm drinking a protein drink. I need to eat to take the morning medicine. Hopefully the drink is enough food so my stomach can handle the pills okay. 

Thank you for the tips, I appreciate everything!

 

danker's picture
danker
Posts: 1187
Joined: Apr 2012

If you end up with a sore but,consider RADIA gel ( available at Walmart)  to soothe any butburn.  Good luck!!

MeAndMine
Posts: 50
Joined: Aug 2019

Thank you I will look that up!

Annabelle41415's picture
Annabelle41415
Posts: 6212
Joined: Feb 2009

Mine was rectal cancer also and what was recommended to me was calmoseptine (behind the pharmacy counter), but not a prescription.  It worked wonders for a barrier when you get the runs.  You might not feel any radiation burn right away, but as it progresses it will get worse.  A sitz bath works wonders, even if you were told no, my doctor gave me one to use.  Make sure you get a soft, but sturdy, toilet paper as it might hurt even to wipe.  Wishing you the best going forward.  I've been there and isn't always easy to get through, but it is doable.  We are always here to help you get through this.

Kim

MeAndMine
Posts: 50
Joined: Aug 2019

Thank you for your kind words. I'm already worried about what is to come. It's only been a few days and I'm already starting to feel a burn.

cinda
Posts: 33
Joined: Jul 2019

I noticed you we're getting the side effects other got.. I had 24 treatments and didn't get burns.. Now I wonder about my treatment. The machine was constantly under repair which is scary. On my follow up petscan my tumor was the same but did have radition damage.I had a urtrasound on it 3 weeks ago and haven't heard anything. I hope things go well for you. my thoughts and prayers are with you.

 

MeAndMine
Posts: 50
Joined: Aug 2019

Thank you Cinda. Everything about this is hard, right? We never know what to expect. 

Today they couldn't seem to get me in the right position. They kept moving me then when they went out and things got started, I noticed it was still for a long time then the table started bumping me up a little, back a little, then they came back in and moved me again. It seemed like a long time laying there before it could begin. 

I was super emotional today after treatment. I have no idea why but I started to tear up as I walked out the door. I had to stop at the bathroom. Then went I left I didn't want to talk to anyone and just went to the car. My husband asked if anything was different about today but it was just my mood I guess. Just a very down day. I was super tired and wanted to sleep but never did. I couldn't rest. 

Have you tried calling about your ultrasound? I had that problem with my MRI. I didn't hear anything for the longest and the hospital never put it online for me. The doctor who ordered it took his time in getting the report himself and never gave me any real information. Finally my surgeon called and got it himself and gave me the printout and explained it to me. 

I hope you get some information soon and things are going well. My thoughts and prayers are with you, also. I appreciate everyone here so very much!

cinda
Posts: 33
Joined: Jul 2019

I know its hard to go though ,you have people who care about  yet you  feel so alone. I got really depressed . This web site saved me. Once I found a group that really understood and was here to answer question . I felt so much better, I went on here everyday for a while. Didn't write anything but felt I found my people. I hope when your down you find storys of people that are doing well on the other side of you treatments. I need to start calling and find out whats going on. But they want me to have surgery and I'm so scared. 

AnneO1965's picture
AnneO1965
Posts: 50
Joined: May 2019

I have rectal cancer also, and I did 28 days of the Xeloda and radiation...  There were quite a few times I was laying on that damn machine and the tears just came pouring out.  It seemed that Tuesdays were my worst days. I feel so blessed that my radiation technologists were kind, caring women. 

Keep your chin up, it will all be behind you and you WILL be amazed at how stong you are.

Trubrit's picture
Trubrit
Posts: 4851
Joined: Jan 2013

I told my Radiation Oncologist once, 'when I cry for ten mintues its a pity party, when I cry for half an hour I'm in serious pain.' 

So go ahead and cry, you - and the rest of us - deserve to have a 'pity party' every now and again.  

Plus, with all of the chemicals and radioactive beams hitting us, its no wonder we are out of sorts. Its a cruel process. 

Tru

MeAndMine
Posts: 50
Joined: Aug 2019

It's not an easy process and I have so much more that has to be done. I've had 7 radiation treatments and 9 days of chemo pills. The bowels are starting to be loose and my bottom is stinging. But what can you do but keep on keeping on. I hate this so much. 

Hugs to you all.

MeAndMine
Posts: 50
Joined: Aug 2019

One day at a time

MeAndMine
Posts: 50
Joined: Aug 2019

I don’t know how I’m going to make it. I bought a sitz bath and ordered radiagel. Nothing seems to be enough at this point. 

I think I’ll have to work up to time on the sitz bath. It helps but sitting like that seems to make pressure where I can’t stand it after a few minutes. I may need to work on that, but I do believe it helped the burning after going to the bathroom to ease quicker. 

 

Trubrit's picture
Trubrit
Posts: 4851
Joined: Jan 2013

even if you have to lay on your side. Warm water will soothe your rear end.  I can't promise it will make it better though. 

At my worst, I had weeping, open sores. I used Witch Hazel at that point, and it worked wonders.  There is a company called Thayer's, and they have a Witch Hazel that has Aloe - that might help. 

I went through so many unctions trying to calm the burn, nothing cured, but some soothed. 

I feel your pain, becasue I have been there. 

Tru

Annabelle41415's picture
Annabelle41415
Posts: 6212
Joined: Feb 2009

Calmoseptine was my saving grace for the raw anus area.  You can only get it from behind the pharmacy counter, but don't need a prescription.  Someone told me a lot of nursing homes use it for patients that have incontinence.  It is a really heavy barrier of paste that you apply and even after several bouts of loose bowels the paste will stay on.  I'm sorry you are going through this.  Try little attempts at the sitz bath, even if it's a couple minutes at a time.  Your rear is raw and it doesn't take much for it to hurt. 

Kim 

AnneO1965's picture
AnneO1965
Posts: 50
Joined: May 2019

I was taking up to 4 or 5 baths a day. I feel you Me... Just remember that it will be over soon, and you CAN do this!

MeAndMine
Posts: 50
Joined: Aug 2019

I appreciate your help. I haven't been in the tub, just showers. I'm afraid it would be hard on my bottom to try to sit in there but then again, maybe I should give it a shot. I've only managed a couple of minutes on the sitz bath at a time but I do use it every time I go to the bathroom. I'll tell myself I'm going to do 15 minutes but after a minute or two, I'm like "nope, can't do this" and get back up. But the little I'm doing does help with the major pain at that point. 

I noticed a new mouth sore from the Xeloda. I'm swishing with magic mouthwash and using the bicarb/salt water in between. Not bad yet but things taste metalic.

Thank you all for the encouragement. It really helps when you are struggling and wondering if you can get through the day.

Trubrit's picture
Trubrit
Posts: 4851
Joined: Jan 2013

You don't need too long on the Sitz, I would be on it just long enough to clean and soothe. 

Like I said, try laying on your side in the bath, and wooshing the water.  And if you need to wash, kneel.  Its all so painful, I know. 

Tru

MeAndMine
Posts: 50
Joined: Aug 2019

Thank you. I just finished using it but only for 2 minutes at most. I will try the bath and laying on my side. Any and every little tip that we can share with each other is like the most amazing blessing. It's the little things that help along the way. 

AnneO1965's picture
AnneO1965
Posts: 50
Joined: May 2019

How ya holding up Me?  You good?

MeAndMine
Posts: 50
Joined: Aug 2019

I'm sorry, I haven't been on here much. I don't want to do anything but lay in the bed with a fan blowing on my rear. I'm hanging on but it's not fun. At all. I keep going each day, but each day I'm not sure if I can continue. But I do. I know you guys hung in there and got through so it gives me hope that I can, too. 

I keep thinking that if I don't eat, then I won't go to the bathroom so much and that's the worst part. But I know I can't lose any more weight and I know I have to have the protein to rebuild my cells. I'm not getting the required amount but I'm getting close. 

Thank you for thinking of me. Gives me a boost to know others that have been there are here for support and taking the time to post. This forum is wonderful.

danker's picture
danker
Posts: 1187
Joined: Apr 2012

When I was going through Chemo & radiation simultaneously I used RADIA gel from walmart to sooth my bun .

You might give it a try!

MeAndMine
Posts: 50
Joined: Aug 2019

Thank you! I will try that, too. Anything that can give me an edge, I'm all for! My radiologist was telling me to use different things throughout the day but not at the same time. I will still use things at the same time depending on the area because I might want the one with lidocaine in one area and the moisturizing one in another. At this point, I'll try any suggestions available. The doctor is good with what I'm using and just tells me not to use it before treatment and make sure everything is washed off.

ellend
Posts: 83
Joined: Apr 2016

I went through the same treatment in 2017. I did ok until towards the end of the 5 weeks. Oh boy, I didn't want to go to the bathroom because it hurt so bad. I really wished I had a bidet. The radiologist prescribed some suppositories that helped and I use Calmoseptine and Aquafor to soothe the burn and protect the skin. However, you do have to clean it off before the radiation treatment.

I didn't have much issue with the Xeloda, some skin cracking and mouth sores, but creams and a salt water rinse took care of them. I didn't have much trouble with nausea, but they prescribed me ondansetron when I started because they wanted me to keep ahead of the nausea.

My oncologist thought this was the toughest stage of the treatment. I don't know about that because surgery was no picnic either, but I survived both and have been NED for 2 years now.

Ellen

Annabelle41415's picture
Annabelle41415
Posts: 6212
Joined: Feb 2009

Yes, both of those were wonderful for me.  If it wasn't for that, it would hurt so bad to go the bathroom.  There were times when I'd dread having to go because the tears would roll down my face.  35 times a day wasn't unusual for me, so that came as some much needed relief.

Xeloda wasn't that hard on me either.  It was the FOLFOX that bothered me after about 5 treatments.

Congratulations on the 2 years.

Kim

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