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New Life Threatening Disease From Radiation

kat2013's picture
kat2013
Posts: 20
Joined: Sep 2013

Hi everyone. I am trying to find people who were treated for cancer with chemo and radiation and went into remission....then developed a new issue from that treatment. In my case, the radiation fried my bladder, and I had to have a radical cysectomy. This led to me having to have stents placed to keep the ueters open. Sadly, these stents are bacteria magnets, and I have CVID (immune system trouble).....so I constantly have UTIs and kidney infections. So many that now most antibiotics do not work, and all this has led to stage 4 kidney disease. I will likely need kidneys removed and dialysis (sp?) soon. I REALLY need someone to talk to that has exchanged one deadly disease for another like me lol. I am doing antibody infusions now to try to stegthen my immune system and hopefully lessen the frequency of these infections. It is very scary knowing soonno antibiotic will work. Anyway, I hope I find someone who knows what I am talking about. Most people have never even heard of the type of cancer I had (even some doctors)....so finding people that can relate isn't easy. It's pretty rare. Hope to hear from someone soonLaughing

jane283
Posts: 39
Joined: Feb 2013

Hi,Did you find help?

 

My dad has same issues.Stent and one kidney gave up alreadyand he is in stage 5 ckd(chronic kidney disease)

frequent utis and antibiotic resistance.

 

What are you trying out now?He isnt a great candidate for dialysis owing to opening up on infection points with canulas.He has had sepsis twice and surived at 69 but he isnt doing too well.

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