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Results not favourable

Trubrit's picture
Trubrit
Posts: 4900
Joined: Jan 2013

Sceduled appointements with my Onc and Rad Onc, and my results were not favourable.  Back to the big city next week for scans. 

I find it interesting that, no matter how many times you play games in your head, imagining what your reaction will be if the Doctor has bad news, that nothing, absolutely nothing, prepares you for it. Still like someone hit you hard in the gut. 

Hoping for good scans, if not, onward and upward.

Tru

abita's picture
abita
Posts: 658
Joined: Dec 2017

What us not favorable? Bloodwork? Scanxiety is stressful. Praying you get good results. 

Trubrit's picture
Trubrit
Posts: 4900
Joined: Jan 2013

starting to go up. 

CEA has always been a good indicator for me. 

Right now it has not jumped, just risen, so maybe just a glitch. Hopefully just a glitch. My last episdoe, it jumped and jumped again, so maybe this is nothing. Hopefully this is nothing. 

Thank you for your prayers.  

This forum is wonderful! With all of the problems we each experience, we are always there to help and encourage others; and my oh my, how that encouragement helps. 

Tru

plsletitrain
Posts: 253
Joined: Jul 2017

I sometimes wish we could command on one click our brains or something like a chip that whenever we tell our minds not to think about it, we really don't think about it but the truth is no matter how we tell ourselves not to get worried, we really do.  So I just hope for good scans and hopefully this is just nothing (probably just some other factors affecting CEA).  I see you as one of the invincibles here, something tells me this is nothing.

Canadian Sandy's picture
Canadian Sandy
Posts: 520
Joined: Jul 2016

Praying for good scans Tru. You are our rock and we won’t allow anything else but good.

Annabelle41415's picture
Annabelle41415
Posts: 6247
Joined: Feb 2009

Sorry you didn't get better news and it is just a lab error.  Praying for good scan outcome.  It's so hard waiting.  You've been through a lot and wishing the best.

Hugs!  Kim

abrub's picture
abrub
Posts: 2098
Joined: Mar 2010

due to other factors.  But you have support here regardless of the cause.  Sending hugs and a squeeze of your hand.

Alice

beaumontdave's picture
beaumontdave
Posts: 1006
Joined: Aug 2013

Damn scanxiety time again. Sorry Tru, rising numbers don't tell the story, but that moment you hear would rattle anyone's cage. I hope it's "other than", but either way, that you get back to the feisty, but serene presence of nedness here on the blog.........................................Dave

Cindy225's picture
Cindy225
Posts: 172
Joined: Feb 2017

Tru - So stressful to get the CEA feedback and now wait for the scan and results.

Keeping you in my thoughts and sending positive energy your way. 

Cindy 

SandiaBuddy's picture
SandiaBuddy
Posts: 912
Joined: Apr 2017

Ugh.

myAZmountain
Posts: 281
Joined: Apr 2018

So sorry to hear this! Praying for you and wish I could give you a great big hug!

BRHMichigan's picture
BRHMichigan
Posts: 368
Joined: Jul 2017

Tru, 

You just HAVE to be okay. These situations affect us, there's just no getting around it. Praying you can busy yourself with positive things until you get some clarity. Whatever happens we know you will address it in the best way for you!!

Much love from Beth

JanJan63's picture
JanJan63
Posts: 2482
Joined: Sep 2014

Oh crap. You have to be okay. You're one of the stage four people that gives us all hope. Praying for you that it's just a blip. 

Hugs,

Jan

karyns_dad's picture
karyns_dad
Posts: 24
Joined: Oct 2015

This sucks.  So much.  Prayers for you Tru!

karyns_dad's picture
karyns_dad
Posts: 24
Joined: Oct 2015

Hopefull all is well.  Prayers for you Tru.  Your words are wise, I wish I had some for you as you have for us all.

Ruthmomto4's picture
Ruthmomto4
Posts: 638
Joined: May 2013

i saw your Facebook video and my heart sank, I figured I would come and see. I am hoping it was just a glitch! I know you said worrying won’t change it and you are correct, but darn it!! Xoxo

Joan M's picture
Joan M
Posts: 390
Joined: Oct 2016

I am so sorry to hear about the CEA going up, I sure hope and pray that you don't have an actual tumor or recurrence.  My cousin was cured of prostrate cancer 5 years ago and his markers went up on his last visit but the scans did not pick up any tumors. 

Praying you don't have a recurrence!

 

Kazenmax's picture
Kazenmax
Posts: 363
Joined: Feb 2016

Sending positive thoughts your way. Hope it's something simple like an undetectable infection and it returns to normal.

K

Mikenh's picture
Mikenh
Posts: 777
Joined: Oct 2017

Hopefully unrelated to cancer as there’s other stuff that can cause it to rise as it did for me.

NewHere's picture
NewHere
Posts: 1117
Joined: Feb 2015

I bopped by and saw a post where someone could not spell favorable properly ;)  Sorry, had to joke a little, but when I saw the spelling I knew before even before noticing the name.

I am so sorry to see this news Tru.  But all my thoughts are with you that it is just a glitch and you get good news quickly. 

Trubrit's picture
Trubrit
Posts: 4900
Joined: Jan 2013

We do like to put a U in our words. Favour. Saviour. Behaviour. Tomato. 

Its good to see you here, New. I sent a reply to your message, telling you just in case you didn't get a notification. 

 

NewHere's picture
NewHere
Posts: 1117
Joined: Feb 2015

Did I do that correctly? :)  

 

Trubrit's picture
Trubrit
Posts: 4900
Joined: Jan 2013

Chuffed means pleased.   It works!

 

JanJan63's picture
JanJan63
Posts: 2482
Joined: Sep 2014

We Canadians use it, too.

 

MAliceR's picture
MAliceR
Posts: 98
Joined: Mar 2015

Sorry to hear your tests are coming back not what you hoped. Don't give up! I just went through a similar scare and after just about every test imaginable came back clear. Sometimes it can feel overwhelming so hold on. I know it is hard when we have done this so many times. I am very much a planner and analyze everything to death. I think it helps to have a plan A, B and even C but it can also really mess with your head. Try to remember to breathe.My prayers will be with you. Sending positive thoughts.

MALice

Lovekitties's picture
Lovekitties
Posts: 3330
Joined: Jan 2010

So sorry to hear that the latest blood work has some questionable areas.  Good news is that you will get scan soonest to determine what is happening, and that your onc did not just say wait and see next results.

If past history is any indicator, then hopefully this is just a blip on the radar since not a big jump.

You always have prayers coming your way...this time just a bit more forcefully to get the best news.

Hugs,  Marie who loves kitties

Twinzma
Posts: 216
Joined: Jan 2018

I am so sorry Tru! It's easy for me to say not to worry yet because I am not in your shoes. But you KNOW that cea levels can change becuase of labs, infection, heck if the wind blows wrong! I am praying for you love. I hope it is just a fluke! Hugs.

 

PamRav's picture
PamRav
Posts: 252
Joined: Jan 2017

Hoping and praying the lab test is scaring you for no good reason.    i am l counting on to you to always be well 

peace, love and healing to you

pam 

Phil64's picture
Phil64
Posts: 835
Joined: Apr 2012

Sending up prayers that this is a glitch and that you may find peace even during turbulent times. (((Hugs)))

Watersprite3
Posts: 31
Joined: Sep 2017

You are one of our stalwarts, Tru.  I am hoping for the best for you.

Eileen

Phoenix_66's picture
Phoenix_66
Posts: 118
Joined: Jun 2017

Tru, I am praying for good scan results. Stay positive. 

betula's picture
betula
Posts: 83
Joined: Mar 2017

Tru,

I don't come here alot due to life being too busy but I know that you have such strength and grit and love your positivity.  Praying for calm during this waiting time and good results for you!  Keep us posted

zx10guy
Posts: 213
Joined: Dec 2013

Don't know what your CEA numbers are, but as others have stated, it could be anything causing the rise.

I've been living with abnormal CEA numbers for almost 2 years now.  It'll be 2 years this March.  Since the huge jump in my CEA numbers in March of 2017, my CEA numbers have been as follows: 15.6, 16.7, 14.2, 11.9, 15.2, 20.2, 14.3, and 17.7.  My "normal" baseline had been around 5.2 to 5.6.  Since the jump, I've had pretty much all the tests one can get.  CT, PET, MRI, colonoscopy, and upper endoscopy.  So far nothing has come up.  I have my next check up in November and have been on 6 months follow up since November of last year.  My oncologist feels if this was cancer related, my CEA numbers wouldn't be bouncing around like they have and we should have seen something by now on scans plus being symptomatic.

I also found an medical article about a woman that was just treated for metastic spread to her ovaries.  Her CEA spiked up to the 1500s and dropped to a low of the 60s.  Adjuvant chemo didn't have any affect on her CEA numbers.  They tracked her for 5 years with CT scans and never found anything.

Semira's picture
Semira
Posts: 378
Joined: Mar 2012

All fingers crossed for you.

Big hugs
Petra

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