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Prayers please ...... Amy_Jo

Amy_Jo's picture
Amy_Jo
Posts: 69
Joined: Apr 2018

I had an open neph on 3/8/18. My pathology showed clear margins. Two weeks later I had another scan which found blood clots in my lung. April 15 I began having excruciating back pain, after report to the ER I was told my scan showed lesions on my spine liver and lungs. I had a pet scan and biopsy of my liver yesterday doctors are confused because my scans prior to my surgery showed no other lesions I was told I was cancer free after my surgery. I start radiation treatment for my back Monday. My oncologist is going to meet with me once my liver biospy results return to determine the plan of attack. It's so frustrating because I had began to feel better and was looking forward to living my life now I'm back to square one. Please pray for my family I am a mother of 4 ages 2,5,13,16. ImI ready to fight for my life - if any of you have any advice please share. Thank you for all your thoughts and prayers so far. I am in NC so far my treatment has been at Forsyth if anyone has suggestions I'm open. At this point my oncologist are sure if my renal cell spread or if this a different cancer. I should know more by Tuesday. 

steelr66's picture
steelr66
Posts: 23
Joined: Mar 2018

Prayers for both strength and courage. 

Retcenturion's picture
Retcenturion
Posts: 240
Joined: Mar 2017

Sorry for the new findings. Hope you get quick results for your tests.sending you positive thoughts for you and your loved ones.

Bryn1108's picture
Bryn1108
Posts: 74
Joined: Jul 2017

Praying hard for you.  May God give the doctors the answers needed. And you have a long,  blessed, pain free life. 

Canadian Sandy's picture
Canadian Sandy
Posts: 459
Joined: Jul 2016

Prayers going your way. Keep up the faith and positive thinking Amy.

Cinnamongirl's picture
Cinnamongirl
Posts: 199
Joined: Jan 2018

Amy Jo,  I will be praying that you find answers and peace. Being a mother of 4 myself I know you are a fighter.

Can I ask your pathology staging? Was your cancer an aggressive grade?

It must be frustrating and very frightening to be on such a roller coaster right now.

Sending you love and prayers.

Cin

Angiebby75's picture
Angiebby75
Posts: 177
Joined: Aug 2017

i have six children so I understand. I will keep you in my prayers. Blessing to you.

APny's picture
APny
Posts: 1883
Joined: Mar 2014

No advice; you're in my thoughts and prayers. I'm sure your doctors will come up with a plan of treatment. Wishing you all the very best!

stub1969's picture
stub1969
Posts: 756
Joined: Jul 2016

Sorry to hear about your situation, Amy.  My only advice is to hold on until your oncologist receives your biopsy and is able to make a plan for you.  If you are being cared for by an RCC specialist then he/she will know the plethera of possible routes to take...I'm sure you are in good hands.  The other piece of advice I'd give you is to become a member of smart patients.  Tell your story to the group.  There are a few of those members that are being treated in NC and can give you some pointers.  

Wishing the best outcome for you!  

Stub

icemantoo's picture
icemantoo
Posts: 3160
Joined: Jan 2010

Sending good karma

 

 

icemantoo

Steph85's picture
Steph85
Posts: 155
Joined: Feb 2018

Sending big hugs and positive thoughts for you and your family. I'm soo sorry you have to be going through this. Wish I had advice but.. I don't . be strong,  with a Mom of 4 kids, I know you are strong!

Stephanie

foxhd's picture
foxhd
Posts: 3183
Joined: Oct 2011

I have seen, me included, people who went from the "We got it all" to having 20 mets in only weeks. It seems the mets were always there like seeds. The primary tumor (mother ship)  restrains them from growth at this sage. With the primary tumor re moved, the secondary tumors grow un restricted. Bam! out of control.

There is good news. And it worked for me. The tumors exhibited that they were controlled by some chemical signal. It made me a good candidate for both immunotherapies and tki's.I've had to change drugs every so often, but I  am working on my 8th year now. It is much better than my summer 2012 life expectancy.

And radiation has done wonders in eliminating bone met pain.

Enter your treatments believing you can do this because so many of us have done it. Pull from our karma.

Amy_Jo's picture
Amy_Jo
Posts: 69
Joined: Apr 2018

I was started on opdivo and yervoy. My attitude is positive even though my energy level is low. I'm still trying to be me and that's an active mom of 4. 

kutzi17
Posts: 17
Joined: Apr 2018

I wish you well! Sending you prayers and positive vibes!

Gtngbtr58 @aol.com's picture
Gtngbtr58 @aol.com
Posts: 203
Joined: Oct 2017

Sending good wishes your way!°

lobbyist0724's picture
lobbyist0724
Posts: 372
Joined: Sep 2016

Sending you prayer for positive results!

Glidergal365's picture
Glidergal365
Posts: 93
Joined: Feb 2018

I hope you're doing ok. Sending hugs and positive thoughts <3 

MelBlessed's picture
MelBlessed
Posts: 67
Joined: Aug 2017

for you and your family.  You can fight it!!

Jan4you's picture
Jan4you
Posts: 1305
Joined: Oct 2013

Amy Jo we're here for YOU! Know that we'll be along side you if you want while you fight this battle.

I have heard of amazing work using your own DNA, I want to say that identifies and creates an exact treatment for you as an individual.

https://www.sciencedaily.com/releases/2012/04/120401134929.htm

and the one for liver is:

https://www.radiologyinfo.org/en/info.cfm?pg=radioembol

 

Sending you HEALING HUGS of HOPE and CARE!

Jan

jazzgirl's picture
jazzgirl
Posts: 125
Joined: Nov 2017

Amy Jo may you have peace and less pain this night.  Praying for you and your family every day.  

foroughsh's picture
foroughsh
Posts: 771
Joined: Oct 2014

Praying for you and your family 

May you have a long cancer free life after treatment

 

JoeyZ's picture
JoeyZ
Posts: 190
Joined: Mar 2018

More good wishes....Hope you are doing ok.

winter007
Posts: 2
Joined: May 2018

i am a 3 years old mom。we will be all ok 

AnnissaP's picture
AnnissaP
Posts: 617
Joined: Sep 2017

Amy_Jo...we are all here with you. I am sure once the results are available they will give you the best treatment possible. Fox gave you a great message up there!! Keep on movin forward and living to the fullest my friend xoxo

paintergrl's picture
paintergrl
Posts: 47
Joined: May 2018

Praying for you and your family!!

Nanaof10's picture
Nanaof10
Posts: 47
Joined: Nov 2017

for healing and for your family. *hugs*

ZVM's picture
ZVM
Posts: 21
Joined: Mar 2017

Prayers that your meds are working...just as foxhd said they could! 

MudMan's picture
MudMan
Posts: 23
Joined: Jul 2018

Prayers for your family and you. Your strength is a great positive, keep it going. 

EBFRCC
Posts: 23
Joined: Jun 2018

Thinking of you and your family.

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