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Serous Carcinoma

sissa60
Posts: 27
Joined: Apr 2018

I was just diagnosed with Endometrial cancer 10 days ago. It hit me like a ton of bricks. Just did a CT scan and results are not in yet. Getting ready for hysterectomy on May 2. I do not know the stage yet. So I am in that scary beginning stage dealing with this emotionally. Just joined to benefit from those who may have faced the same issue. Any insight about what to expect would be appreciated.  

Abbycat2's picture
Abbycat2
Posts: 641
Joined: Feb 2014

both for support and answers to your questions. I am sorry to “meet” you under these  circumstances. In my experience, the worse part of this journey was the very beginning, when I had no clue what the cancer grade or stage was and if it had spread. I didn’t have a Cat scan until after my hysterectomy. In hindsight, knowing what I know now, I would have wanted the Cat scan results before surgery and I would have asked for a CA 125 cancer tumor marker blood test. Unfortunately, I didn’t get the CA 125 until a month after my surgery.

I recommend: writing all your questions down and bringing the question list with you to each appointment. Bring someone with you, too, as a second set of ears. Get the important records: biopsy results, surgery report and most important, the pathologist’s report following your surgery and the examination of the removed tissues. That's when you will be told what grade, stage and type of Uterine cancer you have. Will your doctor be removing lymph nodes and doing a pelvic wash? You may want to ask about this. Have you been told what grade the doctor suspects it is? Are you being treated by a gyn oncologist?

I hope all goes well with your surgery.

sissa60
Posts: 27
Joined: Apr 2018

Thank you, Abbycat2, for your response and insight. I will add these to my questions for the doctor. Take care.

Jairoldi's picture
Jairoldi
Posts: 194
Joined: May 2017

Welcome. My surgery was May 1, 2017. The time before surgery was the hardest for me. It was all much easier to think about once I knew the plan and started working it. Whew, it sure is an emotional roller coaster. I will say, just about 1 year out, that it's better. Once in a while I even forget I have cancer. Abbycat gave you good advice. Write things down or record the conversations if you can. It's hard to remember everything especially when you are scared. Best wishes for a good surgery and recovery.

sissa60
Posts: 27
Joined: Apr 2018

I feel like i am not alone.

Thank you very much and i will keep in touch.

gbazyl's picture
gbazyl
Posts: 23
Joined: Feb 2018

Good evening...Serous also..My hysterectomy was a breeze.   I felt great right after and never took a pain pill.  Lucky to be stage 1....getting ready for chemo and bracky   Honesty I am scared but I feel good and I do believe a positive outlook is a must.

 

Good luck to you!

\

sissa60
Posts: 27
Joined: Apr 2018

Good evening Ms gbazy,

Was yours also serous Carcinoma? Hope mine will be also stage 1.  I am also scared to but all we can do is hope for the best.  I will keep in touch with you as i got more IFo.

Have a great evening.

 

pinky104
Posts: 574
Joined: Feb 2013

Mine was also serous carcinoma (UPSC).  I had stage IVb back in 2010 with a recurrence in 2017.  I had some tough surgeries.  Chemo wasn't bad except for the low blood counts it caused.  Everyone is different with their results, so don't automatically assume the worst.

Good luck to you.  Be sure to go out and get a wig or some other head covering as you'll most likely lose your hair less than two weeks after your first chemo, assuming they give you the combination of Carboplatin and Taxol (Paclitaxel) which are the standard drugs for our cancer.  A few people don't mind being bald and don't wear anything on their heads, but most do.

gbazyl's picture
gbazyl
Posts: 23
Joined: Feb 2018

Yes Sissa60..I was serous carcinoma and a serous adenocarcinoma.     I had the surgery on March 15..Next week starts 6 cycles of chemo and also staring brachytherapy (radiation) at the same time. Had the port put in yesterday and feel pretty good.   

 

So nice to have a great group of women to go through this with..A nice support system for all those unknowns...

 

Gail

Dmont0703
Posts: 11
Joined: Apr 2018

Hi everyone,

Thank you all for posting and sharing. I am 2 weeks post hysterectomy. I was not expecting a cancer diagnosis because I had a D % C in December 2017 with a biopsy of the mass in my uterus that was negative.  I'm pretty angry at the OB/GYN who failed to tell me that there was still a large mass in the uterus that needed to be watched.  Hindsight, I am preaching to all women to insist on a CT scan when they have a uterine mass and to get a referral to an oncology gyn immediately.  At my post op appointment I found out that I am stage IIIc UPSC with 8-% of the pelvic nodes cancerous.  I have my first consult with the oncologist tomorrow.  I'm expecting 6 chemo treatments, 5 weeks of radiation plus brachytherapy.  I'm scared but I intend to kick the cancer's butt!  I am seeing a lot of survivors of this type of cancer.  Any positive thoughts or stories would be greatly appreciated. I intend to share my personal journey as I gol  My daughter got us wrist bands at http://www.fightlikeagirlfoundation.org/

 

NoTimeForCancer's picture
NoTimeForCancer
Posts: 2526
Joined: Mar 2013

Dmont0703 - it is ok to be scared - because this is scary!  So good to hear you are working with a gyn onc - and your 'plan' sounds similar to a lot of us here, so don't hesitate to ASK.  

sissa60
Posts: 27
Joined: Apr 2018

 

Hello all- thank you very much for sharing your experiences with me and giving me some good advices.

The fear I had on the first day that I was diagnose with Serous Carcinoma (1A) is back.

I started having spots of blood again after over two month of full hysterectomy (May 3, 2018). I had chemo (carboplatin/ Taxol) twice so far. I vested my oncologist/gynecologist last Monday, July 9. He checked and told me there is an open wound, probably it might be from the chemo effect and he will check it two weeks after my last chemo which will be on July 23, 2018.   

 

Does anyone in board has any suggestion what this might be?  I am scared I don’t know if the cancer, UPSC is reoccurring or not, because he told me previously that he is doing chemo just for protection.

 

Any suggestion will be appreciated, any questions that might be appropriate that I can ask my doctor? I am glad I am not alone.

 

My prayer for all.

sissa60
Posts: 27
Joined: Apr 2018

Hello all- thank you very much for sharing your experiences with me and giving me some good advices.

The fear I had on the first day that I was diagnose with Serous Carcinoma (1A) is back.

I started having spots of blood again after over two month of full hysterectomy (May 3, 2018). I had chemo (carboplatin/ Taxol) twice so far. I vested my oncologist/gynecologist last Monday, July 9. He checked and told me there is an open wound, probably it might be from the chemo effect and he will check it two weeks after my last chemo which will be on July 23, 2018.   

 

Does anyone in board has any suggestion what this might be?  I am scared I don’t know if the cancer, UPSC is reoccurring or not, because he told me previously that he is doing chemo just for protection.

 

Any suggestion will be appreciated, any questions that might be appropriate that I can ask my doctor? I am glad I am not alone.

 

My prayer for all.

 

sissa60
Posts: 27
Joined: Apr 2018

Hello All, 

Thank you very much for sharing your experiences with me, gving me some good advices.  The fear i had on the first day i was diagonse with Serous Carcinoma (1A) is back. I started having sopts of blood again after over two month of full hysterectomy (May 3, 2018). i had chemo (carboplatin/Taxol) twice so far.  I vested my oncologist.gynecologist last Monday July 9. He checked, told me there is an open wound, probably it might be from the chemo effect and he will check it two weeks after my last chemo which will be on July 23, 2018.

Does anyone in the board has any suggestion what this might be? I am scared, I don't know if the cancer (UPSC) is reoccurring or not, beccasue the doc told me previously that he is doing chmo just for protection.  

Any Suggestion or any questions that might will be appropriate to ask my doctorer will be appreciated.  I am glad i am not alone.

My prayers for all.

Wannabeatit
Posts: 97
Joined: Dec 2017

I never had any bleeding when my hysterectomy healed. Could it be that some stitches are compromised?

sissa60
Posts: 27
Joined: Apr 2018

Hi All,

I was not getting response lately for some reason, I was told by my doctor that i am free of cancer and I posted it I don’t know if you ladies got it or not. I have another appointment coming up on Monday, in which he will determine if I need radiation or not. Do any one of you had radiation after you were cleared? 

Your suggestion will be greatly appreciated.

sissa60
Posts: 27
Joined: Apr 2018

Hello all, are you ladies able to read my message?

sissa60
Posts: 27
Joined: Apr 2018

Hello Ladis!

Are you getting my emails now?

Jairoldi's picture
Jairoldi
Posts: 194
Joined: May 2017

Hi Sissa, I'm not sure which emails you are referring to. There are a lot of replies under your original message. 

sissa60
Posts: 27
Joined: Apr 2018

I am talking about the email that i sent Julu 14, 2018.

 

hope you get it, i was having trouble sending it.

 

 

sissa60
Posts: 27
Joined: Apr 2018

Hello all,

I ninished chemo and i was told i am cleared, but i still have smal spoting.  Does any one have that kind of experience?

Thank you for all your support

barnyardgal
Posts: 185
Joined: Oct 2017

I had spotting the first few weeks after surgery, but none since. It's likely not a big deal,but it is one of the things my oncologist said to look for and call immediately if you see any spotting or blood. So I would call your Dr to be sure.

sissa60
Posts: 27
Joined: Apr 2018

Thanks everyone for your insights. I received a bit of good news yesterday: CT scan showed it did not spread beyond the uterus. I am hoping that means it is in the first stage or so. Like DMONT0703, I was told by a GYN in January that I was negative for cancer when I was still experiencing post menopause bleeding. Worse, he sent me back to work overseas where I was deployed. I am glad I decided to fly right back home in a month for a second opinion. I am still upset with that GYN. Surgery is on May 3. I am keeping my fingers crossed.   

Tamlen's picture
Tamlen
Posts: 192
Joined: Jan 2018

I'll be sending good thoughts your way on May 3, sissa60. Thank goodness you were a good advocate for yourself and by doing so, you've caught things in an early stage.

My (now retired) well-respected gyn told me twice that I had "come back out of menopause" after a year with no periods, then getting "periods" again. My gyn onc later said, "There is no such thing as coming out of menopause." I can't help but wonder how different my path would have been if my cancer had been caught two or three years ago. As I've relayed my story to friends, so many of them have also been told they've "come back out of menopause." It does make you wonder how up to date some of these supposedly well-respected gyn's are.

Good luck and please come back to the forum and let us know how you're doing.

sissa60
Posts: 27
Joined: Apr 2018

I had my surgery on May 3. They removed everything- uterus, ovary,  floppian tubes, lymph nodes. The gyn-Onc surgeon said we would know the stage for sure after the pathology results come back, but he said the lymph node tissue he saw during surgery were "clean of cancer". I don't know what that means but I hope it means it is in an early stage. I have a follow up appointment and hoping for some good news. Thanks again for all your support and insights. 

Tamlen's picture
Tamlen
Posts: 192
Joined: Jan 2018

Glad that's over with for you, sissa60, and that the early news is promising. It must be a relief to have that behind you. Keep us posted once you know the pathology report results. Keeping my fingers crossed for you.

MugsBugs
Posts: 103
Joined: Jan 2018

I know you are glad to get this part of the journey behind you.  I pray that the pathology report comes back as Grade 1 and this will be the end of your journey, except for monitoring.  Let us know when you get the pathology report.

jeschenck
Posts: 1
Joined: May 2018

Hello Amazing Person!, Pinky 104  !!!!    

I had a hysterecomy and all other femine organs PLUS :-( peritonuem removed April 18, 2018; and have just had my 1st chemo today May 11, 2018, Carbo & Taxol.   Reading your details of a Stage IV (mine too) diagnosis in 2010, a recurrence so much later -- 2017---   These years are the first real and fantastic news!!!

I have to strive so hard to believe I'll have onemore Christmas, let alone sooo many more dear experiences with loved ones....

Are your docs astonished?

Abbycat2's picture
Abbycat2
Posts: 641
Joined: Feb 2014

that your surgeon thinks your lymph nodes removed are clear of cancer. I think if there was cancer in your nodes that would indicate stage IIIC. Hopefully, your pathology report will show that you have an early stage of this cancer. Glad to see that your surgery is over with and you are recovering. 

 

Warm Wishes,

Cathy

sissa60
Posts: 27
Joined: Apr 2018

Thanks to all and happy mother's day.

Harmony09's picture
Harmony09
Posts: 75
Joined: Aug 2017

Hi Sissa60 :)

Welcome and I am glad you are sharing with us! The ladies here are amazingly supportive and genuinely interested in each and every person who joins.

My histology contained serous and clear cells. My lymph nodes and omentum were all clear too. The surgeon told me that is typical of our cancer. However, mine had marched out of my uterus and into my cervix and vagina, and then wrapped around my bladder. It infiltrated the muscle tissue, but didn't make it into my bladder. It was ALL gone according to the last PET/CT Scan. My suggestion is stay off the internet sites that discuss this cancer. Remember that statistics are dated. They have to be in order to be compiled and analyzed. If you read through the posts here, you will see women who have our type...living much longer than the numbers. I had forgotten about that just last week, and I regret it. I truly believe, and a very knowledgeable, experienced nurse told me that 90% of this battle is in our heads. Staying positive has REAL effects on our bodies! 

So, you're recovering from the surgery, getting ready to embark on the chemo and radiation? It wasn't as tough as I thought it would be. The beginning was actually harder. It's amazing what your body will get used to. I thought radiation would be a "break" from chemo, but it was a bit more taxing than the chemo. I was more nauseous and tired, and I gained weight, because the only thing that seemed appetizing at all  was ice cream with peanut butter. I justified it because of the protein. However, It was doable, A Day At A Time ;)

Best wishes! Stay in touch!

pinky104
Posts: 574
Joined: Feb 2013

I asked my GYN/onc. way back if he had any other stage IV survivors.  He told me he had plenty of them.  But after my recurrence, he told me I was really lucky that my cancer returned in one big spot and not in multiple small areas like most womens' recurrences do.  Because of that, it made the surgery possible.  He did hint to me that he expected my cancer would come back again, maybe in another five years or so.  I wasn't too thrilled to hear that!

Dmont0703
Posts: 11
Joined: Apr 2018

Happy belated mother's day to all!  An update from my journey.  Great news about lymph nodes being clear!  I had one set (aortic) that had 90% evidence of UPSC.  My oncologist says that UPSC is aggressive BUT is also very susceptible to chemo.  I had a medi-port placed this morning to aide with chemo.  My first of 6 chemo treatments is tomorrow.  I have a kitchen table full of medication to assist with possible side effects.  I'm going this afternoon with my husband and daughter to a chemo class.

I'm super nervous but hopeful that my experience with chemo will be bearable.

I have become very verbal with female friends and co-workers about uterine symptoms. My uterine mass was embedded in the myometrium.  This was a very important piece of information that could not be known without a CT scan.  Since I was only given a sonogram, it delayed knowing the size and location of the mass.  I recommend to all that they insist on a CT as it is much more diagnostic.

Thank you all for continuing to post your stories!  I find strength in the strength of all of you!

Harmony09's picture
Harmony09
Posts: 75
Joined: Aug 2017

Thinking about you and hoping your chemo went well. I hope you have a restful night:)

Dmont0703
Posts: 11
Joined: Apr 2018

I'm on my second day after first chemo treatment.  So far so good.  I'm tired but the anti nausea meds are working well. I'm so glad I got a medi-port. It can be used for the chemo infusions and to draw blood to check my blood count.  I'm mostly struggling with how to feel as "normal as possible".  I'm usually pretty physically active.  Any suggestions?

SF73
Posts: 251
Joined: Oct 2017

Continue being physically active. Funny enough it is the best thing you can do for fatigue. I walked a ton in the parks away from crowds and I think it helped me tolerate the chemotherapy.

Dmont0703
Posts: 11
Joined: Apr 2018

Thanks for that suggestion.  I've been trying to move as much as possible.  The pain in my bones from the neulasta felt better while walking.  I'm 6 days out now and I feel pretty good.

NoTimeForCancer's picture
NoTimeForCancer
Posts: 2526
Joined: Mar 2013

sissa, I might have missed it, but can you tell us how you are doing and what they diagnosed for you?

sissa60
Posts: 27
Joined: Apr 2018

I am doing well except bloating and constipation problems. You haven't missed anything, my appointment with my surgeon will be tomorrow. Hope to hear good news and as soon as i hear something I will post it.

 

Thanks,

 

 

 

 

 

sissa60
Posts: 27
Joined: Apr 2018

I had a visit with my oncologist today to get the the pathology results. He gave me the first good news in so many days: it is in the earliest stage it could be; he said it is even earlier than stage 1A. He said it was confined to only one polyp spot in my uterus. He recommended three sessions of chemo due to the type of cancer (Serous Carcinoma), which he said is aggressive, and then just close monitoring after that. He said the chemo will be Taxol and what sounded like Carboplatin. I am a little terrified of the chemo side effects, but it shall pass. I am counting my blessings. My husband and I celebrated the good news and went out to dinner tonight. Thank you all for your support and prayers.   

 

SF73
Posts: 251
Joined: Oct 2017

Sissa, that is such great news! Don't worry about the rest. Chemo is definitely doable. You got this! 

Dmont0703
Posts: 11
Joined: Apr 2018

That is great news Sissa! This type of cancer can spread very quickly. It sounds like you were able to catch it pretty fast.  I just had that same cocktail of chemo for my first round. You will get medication to help with symptoms.  They are totally managable.

I have the same diagnosis but stage IIIc2 so will need 6 treatments plus radiation.  Keep us posted on when you will start treatment.

MugsBugs
Posts: 103
Joined: Jan 2018

This is the best news you could have hoped for!!!  Good luck with the Chemo -- hopefully you should whizz right through it!

sissa60
Posts: 27
Joined: Apr 2018

Hi All. Had my first chemo yesterday morning. 24 hours later, no side effects yet. I will have the second on July 2, and the third and last one  three weeks later. Will keep you posted. 

Thanks to all.

Northwoodsgirl
Posts: 498
Joined: Oct 2009

Glad to hear the good news!!! Sounds like your first chemo went well. Each day you are closer to being NED. No evidence of disease. Take good care of yourself and listen to your body. Peace and grace to you. 

Lori

hopeful56's picture
hopeful56
Posts: 73
Joined: Jul 2017

Hi Sissa,

That is great news.  I also am stage 1A UPSC.  Mine was microscopic,  dr told me I was in my "own class."   I too had 3 rounds of carbo/taxol and so far 2 checkups with my 3rd coming up the end of this month.  It is good you came back to get that 2nd opinion.  

My best to you,

Sandra

sissa60
Posts: 27
Joined: Apr 2018

Hello ladies,

I am not getting any response, are you getting my posting? Let me know if you do.

V/R

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Jairoldi
Posts: 194
Joined: May 2017

I can see this post ☺

sissa60
Posts: 27
Joined: Apr 2018




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I was not getting response lately for some reason, I was told by my doctor that i am free of cancer and I posted it I don’t know if you ladies got it or not. I have another appointment coming up on Monday, in which he will determine if I need radiation or not.  Do any one of you had radiation after you were cleared?

Your suggestion will be greatly appreciated.

 

Sisso

sissa60
Posts: 27
Joined: Apr 2018

Hi All,




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I was not getting response lately for some reason, I was told by my doctor that i am free of cancer and I posted it I don’t know if you ladies got it or not. I have another appointment coming up on Monday, in which he will determine if I need radiation or not.  Do any one of you had radiation after you were cleared?

Your suggestion will be greatly appreciated.

NoTimeForCancer's picture
NoTimeForCancer
Posts: 2526
Joined: Mar 2013

sissa - I see it too!  We haven't seen you in awhile so it is good to hear from you

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