CSN Login
Members Online: 8

You are here

Our appointment went well at Sloan today!

Ruthmomto4's picture
Ruthmomto4
Posts: 662
Joined: May 2013

Dr Kingham wanted an mri so we have to do that before his appointment. I am not a huge fan of NYC or getting up early so tomorrow will be great fun lol  the nurse said his tumor was in a difficult spot so I don’t know if we will get surgery. i feel no matter what they will want an HAI Pump which is good. If anyone reads this and has had one side effects? and did you have to go into NY to have it filled? Just wondering about that, I like to know what’s coming our way. think good thoughts for us please! I am 48 years old and we have been together since I was 16 I am not sure how to be me without him. :(

*************

 

so I really did not think they were going to do it, after speaking with the fellow. The dr came in he was so nice, not rushed at all. In fact we got there for a 10:00 appointment and we were done by noon. It was quick for the most part and everyone was very nice. So he came in and said he was going to open him up, put in an HAI pump, and resect everything he could, which might include rebuilding his bile duct with part of his intestine. He might have a drain for 2-3 months also. It’s a very risky surgery. We go back Monday for a follow up and pre surgery physical. My husband is all for it, doing lifetime chemo is not something he is willing to do so basically this is his only option to buy him more time, or if he can get everything a cure. Especially because the areas it keeps coming back in will be gone. I will stand by with whatever he decides, no matter what he will be getting an HAI pump to treat what is there. 

Annabelle41415's picture
Annabelle41415
Posts: 6547
Joined: Feb 2009

This is going to be a long and tiring day but I'm hoping that you finally get some of those answers that you are so  looking desperately for.  Praying for you both.  You are a wonderful wife and caregiver.  Let us know how he does.

Kim

Marley1983's picture
Marley1983
Posts: 16
Joined: Jan 2018

Sending prayers and strength for your husbands appointment tomorrow.

~Traci

BRHMichigan's picture
BRHMichigan
Posts: 368
Joined: Jul 2017

I'm not a surgical candidate right now and I know how upsetting it can be.  And logistics of just getting to these appointments must be crazy for you. 

Please don't lose hope. 

PamRav's picture
PamRav
Posts: 282
Joined: Jan 2017

today. Sending prayers and positive energy your way.  

Pam

airborne72's picture
airborne72
Posts: 278
Joined: Sep 2012

This is good news, even though it sounds complicated.  More important however is that it provides hope.

I wish both of you, and your children, strength and endurance as you progress through yet another situation presented by CRC.

Jim

Ruthmomto4's picture
Ruthmomto4
Posts: 662
Joined: May 2013

what are you doing on here? Didn’t you have surgery today? How are you? Did all go ok? I hope so! I was telling my husband about you and how I was hoping you did well today!

thank you for  kind words! I am so nervous!  It’s not even me having  the surgery but it sounded like a major big deal, not that any are easy but this sounds a bit tricky. I will get more details next week.

rest and recover!!! 

Mikenh's picture
Mikenh
Posts: 777
Joined: Oct 2017

You're supposed to be resting.

Mikenh's picture
Mikenh
Posts: 777
Joined: Oct 2017

I know a lady with a husband that did a lot of resections in one day and it was a long day. Best wishes on results.

Ruthmomto4's picture
Ruthmomto4
Posts: 662
Joined: May 2013

Mike!!!!

Annabelle41415's picture
Annabelle41415
Posts: 6547
Joined: Feb 2009

I'm so happy that they have a plan for him and he is willing to go with it.  Just hope for the best and go.  It sounds to me that he has been given a reason for hope.  Cut out what they can and put that pump in and get this out of him.  Thanks for the update.

Kim

Ruthmomto4's picture
Ruthmomto4
Posts: 662
Joined: May 2013

I love the new picture you are looking good! So pretty I would whistle if I could ;)

 

Annabelle41415's picture
Annabelle41415
Posts: 6547
Joined: Feb 2009

Thanks but I'm not able to whistle either - never could.  So glad that things are hopeful for you both.  Beautiful picture you have too.  Looks like a place to be during the winter months. Praying for you always.

Kim

Ruthmomto4's picture
Ruthmomto4
Posts: 662
Joined: May 2013

my daughter, my best friend who is also my cousin went on a very special girls trip to Turks & Caicos. We went to Beavhes there and we had our own private butlers. It was a gift from my husband it was simply amazing the best trip I have ever had. 

Annabelle41415's picture
Annabelle41415
Posts: 6547
Joined: Feb 2009

That sounds like a wonderful vacation and what a thoughtful husband to gift that to you.  Once in a Lifetime vacation that you can cherish forever.  It's easy to see why that would be the best trip.

Kim

ron50's picture
ron50
Posts: 1729
Joined: Nov 2001

  and who knows what can happen, the will to survive is everything and fight to get the treatment you need. Hugs to both of you, good luck, Ron.

Ruthmomto4's picture
Ruthmomto4
Posts: 662
Joined: May 2013

Ron!! I don’t give up easy :)

Canadian Sandy's picture
Canadian Sandy
Posts: 652
Joined: Jul 2016

Hugs and prayers for both of you.

Ruthmomto4's picture
Ruthmomto4
Posts: 662
Joined: May 2013

I hope you are recovering well!

Lily Flower's picture
Lily Flower
Posts: 253
Joined: Jul 2017

That's great news to hear Ruth. What a difference a trip to another hospital could make huh?! Your glimmer of hope is shinning through. Best to you guys. If you ever need anything, just give me a holler! 

Ruthmomto4's picture
Ruthmomto4
Posts: 662
Joined: May 2013

Lily! I kept thinking to myself while I was there I wonder how far Lilay is! Lol 

Trubrit's picture
Trubrit
Posts: 5218
Joined: Jan 2013

He sounds like he's got it together and knows what he wants. 

Tru

Ruthmomto4's picture
Ruthmomto4
Posts: 662
Joined: May 2013

he drives me crazy but he will do anything for us, which means this surgery.

plsletitrain
Posts: 253
Joined: Jul 2017

That sounds like a good start.  I know your husband is a strong fellow so with the right amount of science plus his attitude, I think he can beat this!

Ruthmomto4's picture
Ruthmomto4
Posts: 662
Joined: May 2013

he has been pretty tough through all of this! It’s been amazing not sure I would have been that strong.

Phil64's picture
Phil64
Posts: 835
Joined: Apr 2012

Sending you and your husband oodles of positivity!

You are a good wife and your fighting along with your husband is a wonderful thing to see.

May Love and Light shine down on both of you today! And may you find maximum effectiveness in this treatmeant.

Ruthmomto4's picture
Ruthmomto4
Posts: 662
Joined: May 2013

i hope you are feeling well!!

Phil64's picture
Phil64
Posts: 835
Joined: Apr 2012

Feeling well enough here. Prayers once again for you and your husband.

Cindy225's picture
Cindy225
Posts: 172
Joined: Feb 2017

Ruth - You and your husband are so fortunate to have each other fighting together.  Thoughts and prayers...

Cindy 

Ruthmomto4's picture
Ruthmomto4
Posts: 662
Joined: May 2013

I really appreciate your well wishes!

Subscribe to Comments for "Our appointment went well at Sloan today! "