Our appointment went well at Sloan today!

Ruthmomto4
Ruthmomto4 Member Posts: 708 Member
edited March 2018 in Colorectal Cancer #1

Dr Kingham wanted an mri so we have to do that before his appointment. I am not a huge fan of NYC or getting up early so tomorrow will be great fun lol  the nurse said his tumor was in a difficult spot so I don’t know if we will get surgery. i feel no matter what they will want an HAI Pump which is good. If anyone reads this and has had one side effects? and did you have to go into NY to have it filled? Just wondering about that, I like to know what’s coming our way. think good thoughts for us please! I am 48 years old and we have been together since I was 16 I am not sure how to be me without him. :(

*************

 

so I really did not think they were going to do it, after speaking with the fellow. The dr came in he was so nice, not rushed at all. In fact we got there for a 10:00 appointment and we were done by noon. It was quick for the most part and everyone was very nice. So he came in and said he was going to open him up, put in an HAI pump, and resect everything he could, which might include rebuilding his bile duct with part of his intestine. He might have a drain for 2-3 months also. It’s a very risky surgery. We go back Monday for a follow up and pre surgery physical. My husband is all for it, doing lifetime chemo is not something he is willing to do so basically this is his only option to buy him more time, or if he can get everything a cure. Especially because the areas it keeps coming back in will be gone. I will stand by with whatever he decides, no matter what he will be getting an HAI pump to treat what is there. 

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Comments

  • Annabelle41415
    Annabelle41415 Member Posts: 6,742 Member
    #2
    Good Luck Tomorrow

    This is going to be a long and tiring day but I'm hoping that you finally get some of those answers that you are so  looking desperately for.  Praying for you both.  You are a wonderful wife and caregiver.  Let us know how he does.

    Kim

  • Marley1983
    Marley1983 Member Posts: 16
    #3
    Sending prayers

    Sending prayers and strength for your husbands appointment tomorrow.

    ~Traci

  • BRHMichigan
    BRHMichigan Member Posts: 368
    edited March 2018 #4
    Praying for good news and hope!

    I'm not a surgical candidate right now and I know how upsetting it can be.  And logistics of just getting to these appointments must be crazy for you. 

    Please don't lose hope. 

  • PamRav
    PamRav Member Posts: 348 Member
    #5
    Good luck

    today. Sending prayers and positive energy your way.  

    Pam

  • airborne72
    airborne72 Member Posts: 303 Member
    edited March 2018 #6
    Overwhelming, but hopeful...

    This is good news, even though it sounds complicated.  More important however is that it provides hope.

    I wish both of you, and your children, strength and endurance as you progress through yet another situation presented by CRC.

    Jim

  • Ruthmomto4
    Ruthmomto4 Member Posts: 708 Member
    #7
    airborne72 said:

    Overwhelming, but hopeful...

    This is good news, even though it sounds complicated.  More important however is that it provides hope.

    I wish both of you, and your children, strength and endurance as you progress through yet another situation presented by CRC.

    Jim

    Jim!

    what are you doing on here? Didn’t you have surgery today? How are you? Did all go ok? I hope so! I was telling my husband about you and how I was hoping you did well today!

    thank you for  kind words! I am so nervous!  It’s not even me having  the surgery but it sounded like a major big deal, not that any are easy but this sounds a bit tricky. I will get more details next week.

    rest and recover!!! 

  • Mikenh
    Mikenh Member Posts: 777 Member
    #8
    airborne72 said:

    Overwhelming, but hopeful...

    This is good news, even though it sounds complicated.  More important however is that it provides hope.

    I wish both of you, and your children, strength and endurance as you progress through yet another situation presented by CRC.

    Jim

    You're supposed to be resting

    You're supposed to be resting.

  • Mikenh
    Mikenh Member Posts: 777 Member
    #9
    I know a lady with a husband

    I know a lady with a husband that did a lot of resections in one day and it was a long day. Best wishes on results.

  • Annabelle41415
    Annabelle41415 Member Posts: 6,742 Member
    #10
    Great

    I'm so happy that they have a plan for him and he is willing to go with it.  Just hope for the best and go.  It sounds to me that he has been given a reason for hope.  Cut out what they can and put that pump in and get this out of him.  Thanks for the update.

    Kim

  • ron50
    ron50 Member Posts: 1,723 Member
    #11
    You are still in the fight

      and who knows what can happen, the will to survive is everything and fight to get the treatment you need. Hugs to both of you, good luck, Ron.

  • Canadian Sandy
    Canadian Sandy Member Posts: 784 Member
    edited March 2018 #12
    Hugs and prayers for both of

    Hugs and prayers for both of you.

  • Ruthmomto4
    Ruthmomto4 Member Posts: 708 Member
    #13
    Annabelle41415 said:

    Great

    I'm so happy that they have a plan for him and he is willing to go with it.  Just hope for the best and go.  It sounds to me that he has been given a reason for hope.  Cut out what they can and put that pump in and get this out of him.  Thanks for the update.

    Kim

    Kim!

    I love the new picture you are looking good! So pretty I would whistle if I could ;)

     

  • Ruthmomto4
    Ruthmomto4 Member Posts: 708 Member
    #14
    Mikenh said:

    I know a lady with a husband

    I know a lady with a husband that did a lot of resections in one day and it was a long day. Best wishes on results.

    Thank you

    Mike!!!!

  • Ruthmomto4
    Ruthmomto4 Member Posts: 708 Member
    #15
    ron50 said:

    You are still in the fight

      and who knows what can happen, the will to survive is everything and fight to get the treatment you need. Hugs to both of you, good luck, Ron.

    Thank you

    Ron!! I don’t give up easy :)

  • Ruthmomto4
    Ruthmomto4 Member Posts: 708 Member
    edited March 2018 #16
    Canadian Sandy said:

    Hugs and prayers for both of

    Hugs and prayers for both of you.

    Thank you Sandy!

    I hope you are recovering well!

  • Lily Flower
    Lily Flower Member Posts: 260 Member
    #17
    That's great news to hear

    That's great news to hear Ruth. What a difference a trip to another hospital could make huh?! Your glimmer of hope is shinning through. Best to you guys. If you ever need anything, just give me a holler! 

  • Trubrit
    Trubrit Member Posts: 5,804 Member
    #18
    I like the sound of your hubby

    He sounds like he's got it together and knows what he wants. 

    Tru

  • Annabelle41415
    Annabelle41415 Member Posts: 6,742 Member
    edited March 2018 #19
    Ruthmomto4 said:

    Kim!

    I love the new picture you are looking good! So pretty I would whistle if I could ;)

     

    Thanks

    Thanks but I'm not able to whistle either - never could.  So glad that things are hopeful for you both.  Beautiful picture you have too.  Looks like a place to be during the winter months. Praying for you always.

    Kim

  • plsletitrain
    plsletitrain Member Posts: 252 Member
    #20
    Yipee!

    That sounds like a good start.  I know your husband is a strong fellow so with the right amount of science plus his attitude, I think he can beat this!

  • Ruthmomto4
    Ruthmomto4 Member Posts: 708 Member
    #21
    Annabelle41415 said:

    Thanks

    Thanks but I'm not able to whistle either - never could.  So glad that things are hopeful for you both.  Beautiful picture you have too.  Looks like a place to be during the winter months. Praying for you always.

    Kim

    I took that last summer

    my daughter, my best friend who is also my cousin went on a very special girls trip to Turks & Caicos. We went to Beavhes there and we had our own private butlers. It was a gift from my husband it was simply amazing the best trip I have ever had. 

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