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Editgrl (Chris) Update

derMaus's picture
derMaus
Posts: 559
Joined: Nov 2016

I just spoke to Ron, Editgrl (Chris's) boyfriend. As some of you know, in August Chris came home from treatment in Germany with her cancer in check but not entirely eliminated, especially the lymph nodes in her neck. Her October PET scan showed new activity in her lymph nodes and lungs, resulting in severe pleural effusion. She had a tumor assay and was prescribed 6 weekly rounds of taxol, which was increased to 9 treatments when the tumors continued to grow. Shortly after chemo started she had a drain put in her right lung. She tolerated the chemo well, despite having to drain nearly a liter of pleural fluid every 36-48 hours. Unfortunately, now both lungs are so compromised that they can no longer be drained, and she's in the hospital and on oxygen. She texted me that she will not come home. Per Rod, she's lucid and pain free but it's only the equipment that is breathing now. Sometime in the next day or so, she'll decide to turn off the machinery and will drift away.

Chris's 65th birthday was December 29. She spent it with friends, happy and having champagne. Please pray for her in whatever way you are able as she begins her homeward journey. I will pray too, but right now I'm too busy crying. I'll keep you posted as I hear more. B

Editgrl's picture

evolo58
Posts: 293
Joined: Dec 2017

Oh, no .... I am so sorry to read this. She has been a source of strength to so many of us.

barnyardgal
Posts: 212
Joined: Oct 2017

I am so sorry.

NoTimeForCancer's picture
NoTimeForCancer
Posts: 2585
Joined: Mar 2013

derMaus, thank you for sharing this most difficult news with us.  Thank you for posting her picture so we can see her beautiful, smiling eyes.

Chris was such a blessing to all the women here.  Her spirit was incredible and she loved life.  We all should be so lucky we were blessed to know her.  I pray God holds her in his loving hands.  May He bless her family and all of us.  

Wannabeatit
Posts: 97
Joined: Dec 2017

My thoughts are with her and her family. I will be thinking of you also derMaus through this difficult time. 

 

MAbound
Posts: 863
Joined: Jun 2016

Thanks for checking up on her. It's been so long since she posted that I suspected that she was in a battle, but still hoping for better news at some point. This is so disheartening to hear. She had such a calm and gentle touch with her posts and was always so willing to help anyway she could. I'm glad she's not in pain, but this is hard to hear. Praying that her passing is gentle. She is and always will be missed. Thank you Chris for being here. It was an honor to know you. This is really hard to accept!!

CheeseQueen57's picture
CheeseQueen57
Posts: 805
Joined: Feb 2016

I hate this. She is fighting so hard. We still have a Words with Friends game going on. God please be with Chris and hold her in your mighty arms and comfort her. 

ConnieSW's picture
ConnieSW
Posts: 1442
Joined: Jun 2012

Chris has shared so much with us, not just this awful disease,  but bits and pieces of her life outside cancer.  She is very real to me and I'll carry her memory alongside those of so many others on this board.  I am so sorry. 

 

HorseLvr's picture
HorseLvr
Posts: 102
Joined: Nov 2017

I'm so sorry to hear this. My thoughts are with her and her family.

Soup52's picture
Soup52
Posts: 902
Joined: Jan 2016

Oh no! I’m so very sorry. Chris went to all lengths to fight the beast. She was so brave. My heart aches for her and her family:( 

EZLiving66's picture
EZLiving66
Posts: 1346
Joined: Oct 2015

I am just sick.  The last time she messaged me she sounded so hopeful that the new chemo was going to help her.  She had her hysterectomy about six weeks before me in 2015 and she was such a support to me especially when I was going through chemo hell.  I was so hoping the treatment in Germany would work.  On January 17th, she sent me this:

"Hi, Eldri.  I wish I was taking a break from cancer.  My cancer exploded a couple of months ago.  My last post described my "game plan" which was a biopsy to send to the Nagourney Institute for live tumor testing.  I am on a weekly regimen of taxol right now, with a week break every 3 weeks.  So far, I've done 2 cycles. I have pleural effusion and have had to had fluid drained from my pleural sac on the left side 3 times in the ER.  I now have a catheter so I can do the draining myself.  The cancer in the lymph nodes in my lungs has also compromised my breathing to the point that I am on oxygen 24/7.  A huge pain.  Almost overnight I have turned into a couch potato.

Before treatment, my CA125 had skyrocketed to 898.  After two weeks, it went down to 850.  On Monday, it dropped again to 742.  At least it is going in the right direction, but it seems a long way from 35. My doc and I are also talking about Avastin and some other targeted drugs to add to our arsenal, but I think she wants to see what the CA125 is after the next round. My blood counts remain good, though I am slightly anemic, not surprising.

I am sometimes tired, but aside from that, and mild constipation, I am weathering the chemo well again.  No nausea.  My hair is thinning, but I'm not sure it's going to all fall out this time.

It's been hard finally "feeling sick" because for the last 2 1/2 years, I really haven't felt bad at all, so it's almost like getting diagnosed all over again.  But I'm not giving up!"

I am glad to hear she's not in pain but I had so hoped this would have turned out differently.

Love,

Eldri

henhill's picture
henhill
Posts: 123
Joined: Aug 2016

I am so sad to hear this.  I remember thinking how courageous she was to have gone all the way to Germany to try herself on that treatment.  Sh was good to keep us the details, too.  

God keep Chris near on her passing.

rcdeman
Posts: 256
Joined: Aug 2016

I am so saddened. Chris was one of the first people who reached out to me when I came on this board. She has been such an encouragement to me and my family. She was one of the few who took the initiative to travel far and wide to Germany to test out a new type of treatment, and I was hoping for so much. To hear that she is not doing well breaks my heart. I am praying fervently for her. May God grant her peace. I am just praying for a miracle right now.

My heart hurts...

Rebecca

 

cmb's picture
cmb
Posts: 360
Joined: Jan 2018

I didn't begin reading this site until after I finished my treatment last September. Some of the past posts that I read were from Editgrl (Chris) since she was initially diagnosed with uterine carcinosarcoma/MMMT (the same as me). Her posts were always informative and supportive to others, And because she was so gifted at writing and expressing herself, her personal interests and views really came through in what she posted.

Although I didn't spend "real time" with her on this board the way others did, I still feel incredibly sad at this outcome, despite her valiant efforts to fight her cancer. Such a vibrant woman will be sorely missed by her family, friends and even people like me who never had the privilege of communicating with her directly.

SF73
Posts: 264
Joined: Oct 2017

What a wonderful individual. If she made this big of an impression on me over the last few months without ever meeting me I cannot imagine the pain her friends and family must be going through. Sending my thoughts and prayers to all of them.  

Angelapo
Posts: 24
Joined: Oct 2016

This makes me so very sad. Chris was one of the first people to answer my questions about this cancer. She’s been such a ray of light on this site and she never stopped fighting. I will pray for her. Thank you for updating us. 

txtrisha55's picture
txtrisha55
Posts: 684
Joined: Apr 2011

So sorry to hear this about Chris.  She had a lot of advice and was always so positive.  Praying for her and her family. Trish

saltycandy13
Posts: 167
Joined: Dec 2017

I am new so I don't know this lady, but that makes no difference.  I am so heartbroken.  I hate to read things like this.  I am at a loss for words.

My priest gave me this prayer when I was in the hospital.  If anyone is non-religious, please do not be offended.  This is just me expressing how I feel for this lady:

Blessed are the poor in spirit, for theirs is the kingdom of Heaven

Blessed are the meeK for they shall posses the earth

Blessed are those who mourn, for they shall be comforted

Blessed are those who hunger and thirst for justice, for they shall be satisfied.

Blessed are the merciful, for they shall obtain mercy

Blessed are the clean of heart for they SHALL SEE GOD.

i AM MORE THAN SORRY.  

Karen

JinVa's picture
JinVa
Posts: 29
Joined: Dec 2017

For being you. For inspiring us, informing us and mist of all for comforting us. May you feel our gratitude over your pain and our love forever. 

Red Corvette
Posts: 105
Joined: Jan 2016

Tears and prayers for a kind and courageous women who has meant so much to all of us on this Board. Mrs. Red and I pray for Chris and her family and thank God for allowing us the opportunity to share life with Chris. She will be greatly missed and may her memory be a blessing for all.

ckdgedmom's picture
ckdgedmom
Posts: 166
Joined: Oct 2017

My heart hurts for her and for all of us...it's hard to lose a fellow warrior and hard to know she is suffering so much...

she, and all of us, will be in my prayers...her strength, optimism and bravery will long be remembered...

TeddyandBears_Mom's picture
TeddyandBears_Mom
Posts: 1535
Joined: Jun 2015

B, Thanks for letting us know. Chris and I were chemosabe partners. We went through surgery, chemo and radiation together. Started and finished within a couple of weeks and shared our journey on the Ladies Going Through Chemo thread. While we never want to wish this horrible disease on anyone, it is comforting to have someone right there with you to compare notes. She has had and will always have a very special place in my heart.  I was so sad last night after reading this I had to wait to post. 

Sending loving thoughts and prayers to her friends and family. I know they have a huge void hanging over them.

I love you Chris. Get your wings and we know you will be watching over us.

Heartbroken.

Cindi

MrsBerry
Posts: 102
Joined: Dec 2017

I am wishing peace and comfort to Chris and all who have been touched by her presence. 

Abbycat2's picture
Abbycat2
Posts: 644
Joined: Feb 2014

I have been thinking about her and hoping that her condition was not deteriorating, though in my heart, I suspected that was the case. She was exactly one month younger than me- too young in my mind for this to happen. Her cancer stage was just a little bit more advance then mine, and really, I don’t know why I am still alive. As time goes by, I find it more and more difficult to read about the loss of another fine person from this evil disease. Simply put, it rips my heart out.

I remember how much Chris loved her horse and how sad she was when it became more and more difficult for her to ride her horse and spend time with him. My heart goes out to all of you, Chris, her boyfriend, friends and family, as well as her beloved horse.

MAbound
Posts: 863
Joined: Jun 2016

I think she posted something about having to put down her horse before (but not because of) she went to Germany, so that happened maybe a year ago.

jodil
Posts: 42
Joined: Nov 2017

I just joined this board in november so clearly don't know Chris like many of you. Her diagnosis parallelled mine so I was very interested in her insights and suggestions and her progress.She always put SO much care, thought and genuineness into her responses. The board seemes to be very quiet today, lots of reflection on chris and what she and her family are going thru. Makes one appreciative of NOT having to face this level of hurt.........

takingcontrol58
Posts: 238
Joined: Jan 2016

Chris was such a nice woman who fought so hard to deal with her situation. As Abbycat said, it is
difficult to read when someone isn't triumphing over this disease.  But when things don't make sense,
I always go back to the fact that God is in control.  Chris is in God's hands.

I wish for peace for her family.

Takingcontrol58

Hopeful162's picture
Hopeful162
Posts: 82
Joined: Sep 2014

i was so sorry to learn of this news today as I had high hopes that Chris was going to make it with all her plans of attack. But alas, it seems not to be. She was such a cheerful and encouraging warrior, and a wonderful friend and contributor to this forum.

derMaus's picture
derMaus
Posts: 559
Joined: Nov 2016

I just spoke to Rod. Chris died this morning. She was at peace with what was coming; in fact yesterday she looked at Rod and told him to get the doctor 'cause she wanted to get this over with. Pure Chris to the end. I don't have any information about services yet, will post that when I get it.

Godspeed, Editgrl. Thank you for all you gave to me and others on this board. I'll miss our emails, rumination about supplements, and sharing political insights (i.e. trash talking).

txtrisha55's picture
txtrisha55
Posts: 684
Joined: Apr 2011

 

Rest in Peace Chris.  Another beautiful warrior lost from this terrible disease.  Prayers for her husband, her family and friends. trish

 

ncg007
Posts: 132
Joined: Nov 2015

I am crushed...prayers out to Chris and to all of you.

EZLiving66's picture
EZLiving66
Posts: 1346
Joined: Oct 2015

Rest in peace, Chris. You will be missed. Cry

Love, 

Eldri 

evolo58
Posts: 293
Joined: Dec 2017

I had hoped for a miracle until the very end. It was not to be.

My condolences to Ron and to her other loved ones. She was a classy, wonderful lady.

Fran

Northwoodsgirl
Posts: 529
Joined: Oct 2009

Oh no.....Chris was such a beautiful person in so many ways. Heartfelt sympathy to Ron and Chris’s family and to her friends and to all of us who continue to survive and will miss her.  We honor and celebrate her life and how she helped so many other women fighting gynecolgical  cancer.  

Lori

Charissa's picture
Charissa
Posts: 124
Joined: May 2016

Rod was kind enough to send me an e-mail of Chris passing, this morning. It caught me by surprise, as she had just e-mailed me last week with the same information shared above.  However, I remained optimistic with her numbers dropping and wanted to believe the treatment had finally started working. Her messages were always filled with optimism, even when going through rough challenges.

Although I never met Chris personally, she was dear to my heart. I met Chris on here, a year and a half ago. She was instrumental in sharing her progress with alternative and innovative treatments and always encouraging each of us with her light-hearted, joyful and optimistic spirit and determination.

Due to me living in Lodi, she was the first to offer to meet me in Roseville to fit my wig.  As we got to know each other better, we found out we shared the love of horses and talked about riding together in the future.  It was a sad day, when she informed me she had to put Petey down, due to his own health complications.  But, also a huge relief on her behalf, as she knew she could no longer give him the attention he needed, due to all the personal care she was having to put into herself.

We both set up a strong treatment team, with myself also doing the mistletoe injections, along with some of the other alternative diets, vitamins, and minerals she was trying. We would often share what was and was not working - even in the intimacy department. She was so encouraging and helpful, in a very tactful manner.

It was fun traveling with her virtually to Germany. She was so generous, even when not feeling up to par, in capturing the beauty and sharing all its details with us. Her writing was suburb, always making us feel as though we were by her side.  We all remained optimistic that her treatment was going to be the once and for all cure. 

Chris never complained, even when given challenging and disappointing news. She just kept taking the next step in marching forward to slay this evil beast.  She never looked back, just kept her eyes on the goal she was eagerly pursuing. Her strong belief in overcoming the diagnosis never wavered, which in turn led us all to believe she would conquer this one way or another.

She remained committed to doing everything possible to build her immune system to remain NED.  It was a sad day, when she announced it was again detected.  Ugh!!! She is my inspiration, as well as many others who are on her same road. She was a determined warrior, set out to win.  She will be forever remembered as a dear friend.

I pray her friends and family find comfort, at this most difficult time.  She will be dearly missed. Again, my heart is so sad and heavy. We all lost a very sweet and dear friend. Cry

saltycandy13
Posts: 167
Joined: Dec 2017

Embarassedso sad, but she is in peace.  I guess she was needed up there.  A better place than here.  Rest In Peace.

CheeseQueen57's picture
CheeseQueen57
Posts: 805
Joined: Feb 2016

I vital part of our community has left us with all the beautiful ladies who have gone before her. I’m so sad how unfair this disease is despite our best efforts, it’s a crap shoot. I never met Chris in person but feel she was my friend and am feeling a terrible loss right now. We just don’t understand God’s plan but I can only try to believe he has one for Chris. Fly high angel. You made a tremendous difference far and wide while on this earth. My heart is broken for your friends and family as well as for myself. 

Lou Ann M's picture
Lou Ann M
Posts: 996
Joined: Feb 2015

Chris has been fighting so hard.  I was hoping for a much different out come.  My prayers are with you Chris.

Hugs and prayers to you.  Keep fighting

janaes
Posts: 762
Joined: May 2016

I was womdering about my good friend etgirl since she hasent been on this board lately. I dont know what to say. She was one of the first to respond to my post when i first came here. She was very influential in mjy desision for treatment. She welcomed me encouraged me and didnt give up on me.  I think i am in shock. I will deeply miss my wonderful and amazing friend. May she find happiness in heaven. 

ConnieSW's picture
ConnieSW
Posts: 1442
Joined: Jun 2012

can you find out if there are any charities designated to give to in Chris's name?

derMaus's picture
derMaus
Posts: 559
Joined: Nov 2016

I see what I can find out and let  you know. Bobbi

janaes
Posts: 762
Joined: May 2016

I will miss you chris. I know you are not with us any more but i believe you can here us. Thank you for all you did for me and everyone on this board. You wont be forgotten

Love your friend Janae. 

oldbeauty
Posts: 191
Joined: May 2012

It is so affecting to hear about Chris and to read the outpouring of sadness from so many who obtained important information and support from Editgirl.  That such a galllant, vital, gifted and warm person is gone makes no sense to me.  What a loss.  My heartfelt condolences to her partner, family, friends, and us on this board who continue to fight the battle against this disease.  Best wishes to all, Oldbeauty 

MAbound
Posts: 863
Joined: Jun 2016

Knew it was coming, but still can't wrap my head around it. The world is a sadder place today.

NoTimeForCancer's picture
NoTimeForCancer
Posts: 2585
Joined: Mar 2013

What another terrible loss for us all.  We all have visions of what the afterlife will be, I pray Chris is riding her horse in open fields surrounded by all the beauty.  God bless her.  God bless Rod and her family. 

henhill's picture
henhill
Posts: 123
Joined: Aug 2016

God rest her soul, now.  Praying for her, her family, and all of us facing the incredible tsunami that greets some people here on a daily basis.  

 

Jairoldi's picture
Jairoldi
Posts: 206
Joined: May 2017

It is hard to hear this news. May Chris's family's fond memories carry them through this difficult time.

SF73
Posts: 264
Joined: Oct 2017

This is such a terrible loss. Sending my thoughts to her family and friends including the virtual ones she made on this forum. 

cheerful
Posts: 244
Joined: Apr 2011

I am so sorry and saddened to hear of Chris (Editgirl's passing) and I will keep her in my thoughts and prayers.  She was such a nice woman.   There are a good number of  women that have passed away from our cancer over the past several years.  Hopefully, a cure will come for this terrible disease we all have gone through.

Cheerful

a/k/a Jane

hopeful56's picture
hopeful56
Posts: 73
Joined: Jul 2017

So sorry to read this.  My prayers for her eternal peace and comfort during this difficult time for her loved ones.

Sandra

MoeKay
Posts: 207
Joined: Feb 2004

I am so sorry to hear this terribly sad news.  Chris was a shining star on this board and she will be fondly remembered by all who had the privilege of knowing her.  Deepest condolences to her family and friends at this most difficult time. 

 

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