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Another update

Lou Ann M's picture
Lou Ann M
Posts: 996
Joined: Feb 2015

Today was supposed to be labs, dr.'s visit and infusion.  CT scan results were not what any,one wanted.  The tumor that sits between my spine and vena cave grew this time. It has grown partially into both.  My oncologist is hesitant about continuing on Keytruda because this is the second tumor that has grown.  We talked about several different option.  Including the MATCH clinical trials.  We filled out consent papers for that.  My husband asks about what we could do about the tumor in my vena cava and my oncologist was afraid of what radiation would do to it apparently wholes in such things aren't good.  He did say that he was going to talk to the radiologist and the tumor board to see if they had any ideas.  No infusion until some questions from the Match trials are answered.  We left, stopped at Walmart for a card and my oncologist called himself.  He had already talked to the radiologist and he said he thought that radiation would not be that hard to do.  That is the route we will take.  It will put of the MATCH application for awhile because hopefully there will not be enough tumor left to biops.  We will still have this as an option later.  Again, there is always hope.

Hugs and prayer, Lou Ann

CheeseQueen57's picture
CheeseQueen57
Posts: 906
Joined: Feb 2016

Prayers for you my dear sister. 

Kaleena's picture
Kaleena
Posts: 1980
Joined: Nov 2009

Lou Ann:

Thinking of you.

Hugs.

Kathy

janaes
Posts: 799
Joined: May 2016

Hoping for the best for you

love Janae

debbie000
Posts: 6
Joined: Mar 2017

be strong

Nellasing
Posts: 529
Joined: Oct 2016

So sorry you've had another round of what no one wants to hear!  I'm glad they didn't let any moss grow under their feet getting you some sort of answers and glad you have a direction to head.  You dear one are doing everything you can possibly do and doing it with so much grace and courage- THANK YOU for coming here and sharing your journey with all of us- for being a faithful sister in sharing the details good and bad and most especially sharing your faith that there is always HOPE!  Much love and prayers coming your way today and all days.  (((HUGS)))

Editgrl's picture
Editgrl
Posts: 903
Joined: Jun 2015

Lou Ann, I am so sorry to hear this. It surely looked like the Keytruda was going to do the job for you to for a while. But you have the best oncologist, always looking for the next option. You and he have my utmost admiration and respect. I always think of you with awe when I think of what you have handled with such courage and grace. I am full of hope for you.

Soup52's picture
Soup52
Posts: 903
Joined: Jan 2016

Hugs, hope, and prayers for you Lou ann! You are a true warrior!

Kvdyson's picture
Kvdyson
Posts: 789
Joined: Jan 2016

Stay hopeful, Lou Ann. You have a good plan in place and a good medical team. If the radiation doesn't work then the trial is a good plan B. Sending you positive toughts and wishing you strength for this next step.

Lou Ann M's picture
Lou Ann M
Posts: 996
Joined: Feb 2015

my friends, your encouragement, hopes and prayers me the,world to me.

Hugs and prayers, Lou Ann

Beebster
Posts: 20
Joined: Feb 2017

That's what we all hear - it's a marathon, not a sprint! Lou Ann, I'm one of your many avid marathon followers and am so pleased for you that your medical team works together on your options, and quickly, too. Courage and strength to you.

Onward. Beebster

ConnieSW's picture
ConnieSW
Posts: 1469
Joined: Jun 2012

You are my hero.

TeddyandBears_Mom's picture
TeddyandBears_Mom
Posts: 1632
Joined: Jun 2015

And my hero as well! So sorry to hear this news my friend.  I'm glad radiation is an option.

Sending you loads of support.

Love and Hugs,

Cindi

oldbeauty
Posts: 233
Joined: May 2012

Lou Ann, good to see you have an active provider.  Best of luck on your radiology consult.  Radiation has been a friend to me twice and I hope you can benefit also.  Oldbeauty

Lou Ann M's picture
Lou Ann M
Posts: 996
Joined: Feb 2015

He is pretty confident that he will,be able to,radiate the mass without a lot of problems.  He is more concerned about the part that is invading and nibbling on my spinal collumn.  I believes that,the vena cava will be ok scar tissue will,heal it up. Apparentl, when I had pelvic radiotion over four years ago they radiated up high enough that it got part of the the apine where this is now situated.  If he  re radiated my spine it cause paralysis.  He asked for an MRI so he had more info and clearer pictures to do his planning.  I had MRIs th y make my hip hurt so much while I am laying there.

Hugs and prayers, Lou Ann

TeddyandBears_Mom's picture
TeddyandBears_Mom
Posts: 1632
Joined: Jun 2015

Hey Lou Ann,  Do you think an extra large dose of Lorazapam could help with your hip pain while you are laying there so long? Just wondering if it might let you go to sleep so that you don't feel it???? If not, is there anything else they could give you to ease that pain? Seems like in this day and age, we should not have to endure any.... I'm so glad you have such wonderful doctors on your side!

Love and Hugs,

Cindi

Lou Ann M's picture
Lou Ann M
Posts: 996
Joined: Feb 2015

They gave me two Lorazapam tablets to take before and I doubled up on my oxicodon.. the Lorazapam, hymns and prayers got me through the claustrophobin, but even with the oxicodone, my hip hurt like crazy.  Very hard to hold still.

The rest will be a pice of cake.

Hugs and prayers, Lou Ann

Kvdyson's picture
Kvdyson
Posts: 789
Joined: Jan 2016

Lou Ann, can you do an upright MRI (where you stand) instead of one where you need to lay down?

Lou Ann M's picture
Lou Ann M
Posts: 996
Joined: Feb 2015

they did the MRI yesterday shortly after the CT scan. Had to take a short walk to the other side of the building. thats a good idea, but I don't think I could stand as still as they needed me.  A radiology therapist came along with me to make sure they lined me up exactoy the way my rad-onc wanted me.

Hugs and prayers, Lou Ann

janaes
Posts: 799
Joined: May 2016

Gosh my radiation doctor didnt want to radiate in an area that I already had done 23 years ago. Im not sure why just wouldnt do it though. 

Rubyshoes
Posts: 19
Joined: Feb 2017

Hugs and love and saying prayers for you.

cheerful
Posts: 255
Joined: Apr 2011

Hi LouAnn:  I wish you all the best in your treatment plan and will say some prayers for you. Please do remain hopeful.

Cheerful

a/k/a Jane

pgdaughter
Posts: 22
Joined: Jan 2017

LouAnn, you inspire so many of us on this forum. We're hopeful for you and I'm cheering you on! 

Hopeful162's picture
Hopeful162
Posts: 82
Joined: Sep 2014

Smile

LouAnn, you joined this site just a couple months after me, and I have been following your saga all this time, but seldom writing in. I certainly admire your optimism and upbeat spirit in the face of setbacks and pray that you will have many more good times to come. Thank you for your support for all of us here; I hope you feel our support for you!

Martha

NoTimeForCancer's picture
NoTimeForCancer
Posts: 2714
Joined: Mar 2013

Lou Ann, you are always in my thoughts and prayers.

sunflash's picture
sunflash
Posts: 197
Joined: Aug 2011

Dear Lou Ann, you're a remarkable lady! It sounds like you have a very resourceful doctor who is willing to try any and all options. Hang in there, dear one!

Sending bundles of love, prayers and good wishes for you.

derMaus's picture
derMaus
Posts: 561
Joined: Nov 2016

You have a great doctor, as well as your faith, your family and all of us pulling for you. From following your posts, I firmly believe that your medical team will get this situation under control. You are in my thoughts and prayers. 

henhill's picture
henhill
Posts: 123
Joined: Aug 2016

You are in my prayers for good health.  May God keep you near.

 

SandyD's picture
SandyD
Posts: 130
Joined: Oct 2015

You're in my thoughts and prayers. You inspire me!

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