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Any old timers still around?

just4Brooks's picture
just4Brooks
Posts: 988
Joined: Jun 2009

Good morning fellow Cancer peeps, most of you don't know me but my name is Brooks (username Just4Brooks) and I was  diagnosed in 2009. I was A very active member back in the day and knew almost everybody on CSN. I thought I'd log on and see who's if any of us old timers are still around. So please stop in and say hello, and give a short update on how things are going. 

abrub's picture
abrub
Posts: 2094
Joined: Mar 2010

Still here, still healthy, still happy.  Life is good.  9 yrs post-dx.

Alice

Jaylo969
Posts: 827
Joined: Jan 2010

Hey Brooks!  I am not here very often anymore but I am still very involved locally with Rumpshakers, ACS, TOUCH, and Hope Lodge. So glad I checked in tonight and saw your post.

I am going on 7 yrs. diagnosis. Have lots of permanent side effects ( neuropathy, chemo brain, strictures, etc. ) but I am still kicking. I recently took an early social security as I finally realized that going back to work was really not an option.

I read your other post re: "Neuropathy" and I am sorry to hear that it is causing you such grief. I have learned to adapt somewhat after multiple falls and accidents. Opiates don't even touch the pain that I have but believe it or not Meloxicam ( Mobic ) does. It is awfully harsh on the stomach but sometimes it is worth it to get a little relief from the foot/leg/hand/arm pain :) Good to see you and Alice both. I miss Y'all. Maybe we should think about coming back more often....

-Pat aka jaylo ....Yikes, My profile picture is gone!

 

mukamom's picture
mukamom
Posts: 402
Joined: Oct 2010

too.  Robert, DH, dx in 12/08 IV.  Still in active treatment.  Taking Lonsurf at the moment.  Pretty rough on him. Fatigue, nausea, vomiting. Nothing like FOLFOX or FOLFRI.  He has the neuropathy, too, 18 months out from Folfox.  Getting ready for SIRT procedure on his liver tumors later this month.  

Best to all

Angela

ron50's picture
ron50
Posts: 1721
Joined: Nov 2001

   !8 years and five months post stage 3c crc, Cheers Ron.

danker's picture
danker
Posts: 1183
Joined: Apr 2012

based on age, I am an old-timer!!! LOL  I was dxed in 2009 and with treatment became NED in 2010.  Been NED ever since. Lucky me! Today is my birthday. just turned 84!!!

Betsydoglover's picture
Betsydoglover
Posts: 1254
Joined: Jul 2005

Diagnosed Stage 4 in May 2005.  Sigmoid resection.  Xeloda/oxy/avastin.  NED by 12/2005.  Lung resetion due to recurrence in 4/2009.  NED since.  I don't come here much more as treatments may have changed and I don't know so many people.

 

Good luck all!

Betsy

annalexandria's picture
annalexandria
Posts: 2573
Joined: Oct 2011

If so, I'm around, just not commenting as often.

Dx'ed stage 4 in 2009, I'm glad to be able to say that through sheer luck I'm still NED, going on 5 years.

PhillieG's picture
PhillieG
Posts: 4885
Joined: May 2005

Dx Feb 2004. Still undergoing treatment for lung mets but doing well overall. I recently bought my third kayak. While I've lost a good chunk of my lung capacity it doesn't really affect my kayaking. 

I'm not on this site often but it was helpful for a time. 
Unfortunately we've lost many of the old timers...

 

impactzone's picture
impactzone
Posts: 531
Joined: Aug 2006

Still here doing well. Dx almost 10 years ago  ( august 2006) stage 4.

minibull
Posts: 56
Joined: Oct 2009

i sometimes wonder how you're doing.  I remember you were the first to reach out to me when I got diagnosed in Sept. 2009.  I was so scared and your friendship and advice were really appreciated.  I've been doing really well except for neuropathy in my feet and a little in my hands but I consider that to be a small price to pay for my life. It's been so depressing for me to see that a lot of the people I "grew up" with are now gone so I rarely post although I read the posts fairly often.  My onc told me that if I have 1 more good CEA reading, he was going to cut me loose. What a happy day that will be! I don't think about cancer so often these days but pray that it never returns. It was nice seeing you again.  Take care and keep in touch.

Laureen

 

impactzone's picture
impactzone
Posts: 531
Joined: Aug 2006

Very glad I was of some help. Congratulations and all my best

Chip

swimmer22
Posts: 60
Joined: Oct 2011

Just had scans and labs last week and I am in year 5 since end of all treatments and still happy to report No Evidence of Disease- from an initial Stage IV diagonisis with rectal cancer and three lung mets.  Best of luck and prayers to everyone currently in this fight. Wishing all the best.

traci43's picture
traci43
Posts: 775
Joined: Jul 2007

 /Diagnosed in 2007, and in remission 2 years now.  Going strong and hoping to stay clear for many moons now.  Traci

Joy1216's picture
Joy1216
Posts: 293
Joined: Mar 2006

I was diagnosed with stage I colon cancer in March of 2006. I had a resection to remove the tumor in my cecum. No further treatment since then, but I have had six colonoscopies. I don't check in here very often as it breaks my heart to lose members of this board. I have been NED since surgery 10 years ago. I am doing well although I still have colon issues occasionally. Cancer messes with your mind and definitely changed my attitude toward life in general. Last fall my husband and I moved to Florida without knowing a soul, but we felt that God was leading us here. Moving halfway across the country was not anything I would have even considered before cancer but we did it and couldn't be happier.

maglets's picture
maglets
Posts: 2589
Joined: Jun 2006

Still here and still kickin......on my fourth go round with the beast......after three bouts of colorectal I developed breast cancer last Dec.  Lovely to see some "old" friends on this thread.....thanks Brooks

maggie

Trapbear's picture
Trapbear
Posts: 109
Joined: Sep 2009

I'm still here. Will soon be two years since my sweet husband passed. I still check in to see how everyone is doing.

Bill 

Trubrit's picture
Trubrit
Posts: 4831
Joined: Jan 2013

I've thought of you, over the past few years. 

SUE

Helen321's picture
Helen321
Posts: 1388
Joined: May 2012

I'm more of a newbie 2012 but glad to see you still here from 2009.  I came on when a lot of people from your group were saying goodbye and that was ROUGH!  I miss them, they were fantastic people.  It's good to see all of you who did make it through.  Hope eternal.

beaumontdave's picture
beaumontdave
Posts: 993
Joined: Aug 2013

I've had the stuff since Sep. '07, but didn't sign in until 2013. Even then, I've seen enough come and go to know this place is great support and a heartbreak. Such is life, giving with one hand and taking with the other.........................Dave

marbleotis's picture
marbleotis
Posts: 696
Joined: Mar 2012

Well I guess that counts as an old-timer.  Was stage 3b signet cell. 

greybeard64's picture
greybeard64
Posts: 254
Joined: Mar 2010

It was nice to see some familiar faces here. Made my heart smile.

 

biglaur's picture
biglaur
Posts: 72
Joined: Apr 2010

Don't log on very often any more.  Dxed Sept '06...finished ALL treatment August '09.  Stage IV...enjoying life everyday!

2bhealed's picture
2bhealed
Posts: 2085
Joined: Dec 2001

Funny, something compelled me to pop in here this morning, and I saw your post. I can chime in to say I'm still on this earth after 15 years since my Stage III mets to lymph dx, but I'm no longer on this site and have not been for about 5 years. As an "old-timer" I wanted to encourage others who are newer to this cancer gig, so I posted. Back in the day in 2001 when I began posting and seeking out cancer comaraderie, it was just Ron50 and me! These boards were a lifesaver back then because no one I knew was going through what I was. I was only in my 30s when I was diagnosed! Amongst the tears and fears on here, there was also a lot of laughs and love.

Best wishes to all and for you Americans on here, have a safe and happy 4th!

peace, emily

 

ron50's picture
ron50
Posts: 1721
Joined: Nov 2001

   Good to see you again .Ron.

morningstar4
Posts: 15
Joined: Jan 2008

Started my journey in 2006... Been NED since 2008 after my last surgery. Had my last blood work and CT scan 2 weeks ago still NED :) Next check up June 2017. Sending Best Wishes to all.

dmdwins
Posts: 453
Joined: Aug 2008

Something must have promted us old timers to check in!! My prompting unfortunately was a co-worker/friend being diagnosed last week.

I am glad to see Ron/Em/ Phil/ Mags/Chip all posted. You all were my encouragement when I came to the board in 2007. I am grateful to say that I have been NED since 2008. Stage 4 with mets to the ovaries. Stay encouraged... there are oldtimers!!!

Dawn  

impactzone's picture
impactzone
Posts: 531
Joined: Aug 2006

Congrats! Enjoy life and may all your scans be clean

Chip

RickMurtagh's picture
RickMurtagh
Posts: 584
Joined: Feb 2010

said in Wilson's (Tim the Tool-man Tayloy's neighbor) over the fence drawl.  

Brooks, Maggie, Ron, Helen, Emily, Chip AND everyone else I can't recall atm (chemo or old age?  I don't remember) who I see adding to this post - so glad to see you all still kickin' around.

thingy45's picture
thingy45
Posts: 633
Joined: Apr 2011

hi All, I'm still around also. Great to see many familiar names. I'm not on often, I have moved to be closer to my sick daughter, she has Trigiminial Neuralgia a very painful neurological decease. I still have some cancer related problems, but so do we all. 

So happy to see you all, marjan

 

 

wolfen's picture
wolfen
Posts: 1320
Joined: Apr 2009

Watching over all of you and wishing the best for everyone. It is a rough road for sure. Today would have been Johnnybegood's 52nd birthday.

Luv,

Wolfen

traci43's picture
traci43
Posts: 775
Joined: Jul 2007

Wolfen, It's good to see you post, you were a great addition to the board.  Sorry it's such a sad time for you.  I hope all is well with you.  Traci

sharpy102's picture
sharpy102
Posts: 370
Joined: Apr 2009

Hey Wolfen,

Sorry to hear that you're so down but...listen, try to celebrate your loved one's birthday...don't grieve because your loved one is way better off than staying here suffering. I know, it's easier sad than done...but that's what I realized on my own. My Mom would've became 39 on the 26th of July and every year that day I buy a potted flower and take care of it for her. She has now 7 of them, since it's been odd 7 years that she is gone. But I know this is good for her this way. Think about that, and live your life in a way that will make your loved one smile, instead of feeling so guilty that they left you. I wish you strength!!!

tanstaafl's picture
tanstaafl
Posts: 1292
Joined: Oct 2010

Still here, plugging away at research for information and new improvements.  

coloCan
Posts: 1956
Joined: Oct 2009

Would have responded earlier but needed to see CEA results at lung doc last week as prior CEA at onc in April was highest its ever been since Tx.(A few days before i saw onc  i found out from skin doc that i had shingles;there's really no research on impact of shingles on CEA except a posting on Colon Club site-which i don't as a rule go to. As shingles is a type of inflammation,that's why i thought CEA had gone up....Back in Sept had false scare from CT that was cleared up in a Dec followup scan but time between was nervewracking)

Remember "the good old days" of oxi? You were about a month or so ahead of me;Clift was about a year ahead of us. We could log on here at four in the morning because we couldn't sleep and there'd be others to join in,a whole bunch of us!!

Still painting rocks?......(Painting rocks? What are these idiots talking about?)

See onc and radiologist every six months; assume i'll get another CT this year. My lung doc takes CEA for me between onc visits. Main problems now are prostate,back pain,poor sleep. Try to eat "healthy",exercise-recently hurt right forearm -still reading CRC research (whether i understand it or not,plus my retention sucks-chemo brain still in effect);neuro not that bad-probably cos i got used to it and walk with a cane Without help from girlfriend,i wouldn't be here

Hope all's well with you,your wife and kids,

 

scouty's picture
scouty
Posts: 1976
Joined: Apr 2004

Nice to see some familiar names on here! Brings back memories of lots of smiles, knowledge, joy, and sorrow shared on this site. 12 years for me now (stage IV), dxed in 2004. Ironically I started canning stuff back when I was in the fight 1) to keep me busy and not thinking about cancer and 2) to preserve fresh produce that could be enjoyed all year around knowing exactly where it came from and what was in it. July and August are my busiest time for it too. Came on here for the first time in a long time today as I take a break from the canner. Thanks for the warmth everyone, enjoy your summer.

Trubrit's picture
Trubrit
Posts: 4831
Joined: Jan 2013

What a great inspiration you are. I read your profile page. Thank you so very much for popping on and posting. You are an inspiratoin to me, and to all of us. 

SUE

ron50's picture
ron50
Posts: 1721
Joined: Nov 2001

To see all of my old friends again. Ron.

scouty's picture
scouty
Posts: 1976
Joined: Apr 2004

WHO YOU CALLING OLD! Hi handsome, so good to see so many semi-colon friends on this thread; you, Betsy, Chip, Em, Phil, Maggie, Dawn, Rick, Wolfen, Alan, and Steve just to name a few. Thanks for doing this Brooks!

John23's picture
John23
Posts: 2140
Joined: Jan 2007

Very glad to see YOU here to enjoy seeing your friends.

Wishing you well, Ron!!

John

 

scouty's picture
scouty
Posts: 1976
Joined: Apr 2004

Love your avatar John!

John23's picture
John23
Posts: 2140
Joined: Jan 2007

Juicy thoughts!

Great to see you again Lisa! It's been awhile!

Your info regarding the Champion Juicer and juicing in general has been needed here.

Stay well!!!

John

 

very worried husband
Posts: 88
Joined: Feb 2011

So nice to see all of you old timer. My wife was diagnosed with 3B in January,2 011. You all helped us immensely. We had a scare in Aug,2013 with lung spots, which thank God disappeared. I am happy to say that my wife gave birth to a beautiful daughter last year in June. DD is 13 months old. 

I have no words to thank you all for what you did for us.....

sharpy102's picture
sharpy102
Posts: 370
Joined: Apr 2009

So good to see all you old timers here!! I was wondering actually about the same thing the other day. I don't come here much, and there are soooo many new people here (unfortunately) yet, it always make me wonder if you guys are not around, or what has happened with you all since I've been up here. I used to lurk around here much more, especially back in 2009 when my Mom was going through the troubles of cancer, but then I sort of faded away here. I hope all of you are doing relatively well!!! I am definitely very happy to see you all here!!!! I wonder how you are all doing....and the big reason I tend to avoid this site as I'm afraid to find out who is gone. :( Back in 2009 people here became sort of my family and I greatly appreciated that...All the best, people!!! I miss you all and wish you all the very best!!!!

jjaj133's picture
jjaj133
Posts: 869
Joined: Mar 2011

Hi all, been a long time, so glad to see so many old friends. Ive been just fine for almost 5 years. a nodule discovered in 2014  has been stable, it starts our 1 cm and now it 3.2 cm. waiting for an appt. with the surgeon. the glitch is its going into the diaphragm. they called it a subdiaphramatic nodule. I call it a pain in the a---.so here i am again, but tickled to see you all.

beaumontdave's picture
beaumontdave
Posts: 993
Joined: Aug 2013

Mine was a 3.2cm met to the liver,merging with the diaphram. The hole they left allowed fluid up into the lung sac and forced 2 needle aspirations, but I'm clear for 2 years as of Labor Day. I hope it comes out well for you.................................Dave

jjaj133's picture
jjaj133
Posts: 869
Joined: Mar 2011

Thanks, for letting me know Dave, Ive had a liver resect twice before, but the diaphragm is new. A bit nervous about that. My surgery is scheduled for the 21st of this month. Be glad when its over!!! May I ask is your breathing capacity has changed at all?  Thanks Judy

 

ellend
Posts: 83
Joined: Apr 2016

It's great to see so many long time survivors. On the flip side, it is sad to hear of your friends from the board who have since passed on. Those of you who have survived this long give me hope for the future.

Hugs,

Ellen

aggie0053's picture
aggie0053
Posts: 110
Joined: Mar 2011

sorry i haven't been on in awhile. my wife came down with pancreatic cancer last year. passed dec 21, mines still in tack, go every 4 months for test. i just have a hard time on this sorry

Trubrit's picture
Trubrit
Posts: 4831
Joined: Jan 2013

I am so very sorry to hear about your wife.  Damn this Cancer! It just won't let up, will it. 

I am happy to hear that you are staying well, as far as your Cancer goes. 

I wish I could take your pain away.  

SUE

fedester
Posts: 757
Joined: Jul 2004

Great to see alot of members that i can call family. We were in the fight and we cried and we laughed and we always showed respect and love for each other.

yes we have lost alot of our family to the beast, but we have to go on for them and help the newbies. I owe alot to the members here and will never forget them.

God bless all of you. Never, ever give up !!!

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