Stage IV NSCLC Adenocarcinoma with ALK genetic mutation

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keri.lyne79
keri.lyne79 Member Posts: 4
in Lung Cancer #1

My sister-in-law has been diagnosed with cancer. She is 53 years old. It is Stage IV NSCLC Adenocarnioma. She had the genetic mutation ALK. She started on Xalkori last Thursday. I am looking for resources if any on the ALK genetic mutation. We have searched online and at a few local resources. Just wondering if anyone else on here has any suggestions or resources they could suggest?

Thank you,

Keri 

Comments

  • Alot2live4
    Alot2live4 Member Posts: 14
    #2
    your sister-in-law

    Hi Keri,

    I'm sorry to say I know nothing about the type of cancer your sister-in-law has. Good luck to you and your family!

    Susan

  • dennycee
    dennycee CSN Member Posts: 857 Member
    #3
    There are many ALK patients

    There are many ALK patients on the boards at inspire.com also at LUNGevity.org.  If you are on FB there is a private ALK group.  I send hope that this works for a very long time. 

  • keri.lyne79
    keri.lyne79 Member Posts: 4
    #4
    dennycee said:

    There are many ALK patients

    There are many ALK patients on the boards at inspire.com also at LUNGevity.org.  If you are on FB there is a private ALK group.  I send hope that this works for a very long time. 

    Thank You Denny!

    Thank you for sharing this information Denny!Smile

     

  • CancerAlk
    CancerAlk Member Posts: 4
    #5
    ALK gene mutation - Stage 4 Adenocarcinoma

    Keri, Have you found a good treatment? 

    I have the same cancer and mutation and just started Alectinib.

    Best wishes!

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