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Stage IV NSCLC Adenocarcinoma with ALK genetic mutation

keri.lyne79
Posts: 4
Joined: Apr 2016
Apr 18, 2016 - 5:40 pm

My sister-in-law has been diagnosed with cancer. She is 53 years old. It is Stage IV NSCLC Adenocarnioma. She had the genetic mutation ALK. She started on Xalkori last Thursday. I am looking for resources if any on the ALK genetic mutation. We have searched online and at a few local resources. Just wondering if anyone else on here has any suggestions or resources they could suggest?

Thank you,

Keri 
Alot2live4
Posts: 14
 Joined: Mar 2016
Apr 18, 2016 - 9:04 pm

Hi Keri,

I'm sorry to say I know nothing about the type of cancer your sister-in-law has. Good luck to you and your family!

Susan
dennycee
Posts: 841
 Joined: Mar 2011
Apr 23, 2016 - 5:04 pm

There are many ALK patients on the boards at inspire.com also at LUNGevity.org.  If you are on FB there is a private ALK group.  I send hope that this works for a very long time. 
keri.lyne79
Posts: 4
 Joined: Apr 2016
Apr 27, 2016 - 6:19 pm

Thank you for sharing this information Denny!Smile

 
CancerAlk
Posts: 4
 Joined: Jan 2018
Jan 22, 2018 - 6:32 pm

Keri, Have you found a good treatment? 

I have the same cancer and mutation and just started Alectinib.

Best wishes!
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