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Stage IV NSCLC Adenocarcinoma with ALK genetic mutation

Posts: 4
Joined: Apr 2016

My sister-in-law has been diagnosed with cancer. She is 53 years old. It is Stage IV NSCLC Adenocarnioma. She had the genetic mutation ALK. She started on Xalkori last Thursday. I am looking for resources if any on the ALK genetic mutation. We have searched online and at a few local resources. Just wondering if anyone else on here has any suggestions or resources they could suggest?

Thank you,


Posts: 14
Joined: Mar 2016

Hi Keri,

I'm sorry to say I know nothing about the type of cancer your sister-in-law has. Good luck to you and your family!


Posts: 844
Joined: Mar 2011

There are many ALK patients on the boards at inspire.com also at LUNGevity.org.  If you are on FB there is a private ALK group.  I send hope that this works for a very long time. 

Posts: 4
Joined: Apr 2016

Thank you for sharing this information Denny!Smile


Posts: 4
Joined: Jan 2018

Keri, Have you found a good treatment? 

I have the same cancer and mutation and just started Alectinib.

Best wishes!

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