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    • Stage IV NSCLC Adenocarcinoma with ALK genetic mutation

    keri.lyne79
    keri.lyne79 Member Posts: 4
    in Lung Cancer #1

    My sister-in-law has been diagnosed with cancer. She is 53 years old. It is Stage IV NSCLC Adenocarnioma. She had the genetic mutation ALK. She started on Xalkori last Thursday. I am looking for resources if any on the ALK genetic mutation. We have searched online and at a few local resources. Just wondering if anyone else on here has any suggestions or resources they could suggest?

    Thank you,

    Keri 

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    Comments

    • Alot2live4
      Alot2live4 Member Posts: 14
      #2
      your sister-in-law

      Hi Keri,

      I'm sorry to say I know nothing about the type of cancer your sister-in-law has. Good luck to you and your family!

      Susan

    • dennycee
      dennycee Member Posts: 857 Member
      #3
      There are many ALK patients

      There are many ALK patients on the boards at inspire.com also at LUNGevity.org.  If you are on FB there is a private ALK group.  I send hope that this works for a very long time. 

    • keri.lyne79
      keri.lyne79 Member Posts: 4
      #4
      dennycee said:

      There are many ALK patients

      There are many ALK patients on the boards at inspire.com also at LUNGevity.org.  If you are on FB there is a private ALK group.  I send hope that this works for a very long time. 

      Thank You Denny!

      Thank you for sharing this information Denny!Smile

       

    • CancerAlk
      CancerAlk Member Posts: 4
      #5
      ALK gene mutation - Stage 4 Adenocarcinoma

      Keri, Have you found a good treatment? 

      I have the same cancer and mutation and just started Alectinib.

      Best wishes!

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