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Update on my husband

jen2012
Posts: 1607
Joined: Aug 2012

i posted a month ago that he would be starting lonsurf aka tas102.  He did one round ( or half a round?...first two weeks out of the month) he was supposed to start again yesterday.  his blood counts and calcium tanked.  Been going for infusions and transfusions weekly and feeling lousy.  Friday he went in for calcium and ended up being admitted with a 102 temp.  They spend the weekend drawing blood cultures, trying to find infection.  Finally determined tumor fever and all other issues related to cancer progression,  his onc said the best chance he has to get the cancer under control is to restart oxaliplatin.  He had a reaction so they had stopped it.  So she wanted to do desensitization while he was in the hospital.  thst happened today, over about 7 hours. No issues.  Now is the waiting game to see if it works.  He is in so much pain and pretty much out of it from the pain meds.

have to postpone his big 50th birthday party this weekend :(

This is all so tiring, frustrating and depressing.

Trubrit's picture
Trubrit
Posts: 5487
Joined: Jan 2013

How hard it is for your husband and yourself.

I know what it's like to battle the beast, but not to sit by and watch, and I have to wonder if your part is not as painful, albeit emotionally, thought I bet you can feel physically sick also. 

My thoughts and prayers are with you both. 

Sue - Trubrit

vtspa6
Posts: 172
Joined: Aug 2015

Boy, not the best way to bring in a new year!  Pray that the treatment works for him.  Tell him we said happy birthday!

JanJan63's picture
JanJan63
Posts: 2482
Joined: Sep 2014

What a battle. I'm so sorry he didn't get good news. It's tough for both of you. Hugs for you both.

Jan

Fight for my love
Posts: 1530
Joined: Jun 2009

Jen, very sorry to hear what's happening. As a wife and a caregiver, I truly understand how you feel. I am actively looking for clinical trials now, because we are running out of options, sometimes it just goes down there muh quicker than what we thought... You and your families are in my prayers. Take care.

Cathleen Mary
Posts: 827
Joined: May 2011

Jen, I am so sorry for all that you and your husband are going through. I really hope that you get good news soon and can begin treatment anew.

Everyone should be blessed with a 'Jen' by their side.

hugs,

CM

lizard44's picture
lizard44
Posts: 409
Joined: Apr 2015

So sorry you are both going through this.  It is so hard to watch someone you love suffer, and so frustrating to  not be able to do much to help. Please  take care of yourself and get as much rest as you can,whenever you can, so you'll have the strength to keep on doing what you have to do for both of you. I hope he is able to go home   and that he can  enjoy the birthday party, even if it's a little late.

annalexandria's picture
annalexandria
Posts: 2573
Joined: Oct 2011

Big hugs from me.

LindaK.
Posts: 506
Joined: Apr 2013

Hi Jen, we postponed my husband's 60th birthday party until he was done with Folfox.  His birthday is in March and we surprised him with a party in December.  I'm so glad my kids pushed me to do it.  He was so surprised, had a great evening and we got lots of good pictures and videos. Sadly, he passed away within the year so we treasure memories of that evening.

Have a little celebration this weekend wherever he is, I'm sure he will appreciate it.  It's tough to see our loved ones suffer so, especially when "treament" makes them worse.

Linda

janderson1964
Posts: 2215
Joined: Oct 2011

I am so sorry to read this Jen. It is a horrible disease. Sometimes I can see the toll it is taking on my wife mentally and physically and it makes me cry. I never wanted to hurt her like this. I am sure your husband is feeling the same way. It is so hard on the patient and caregiver/spouse.

maglets's picture
maglets
Posts: 2596
Joined: Jun 2006

oh Jen I am so so sorry for all the suffering both you and husband are enduring.  It is beyond me what you caregivers have to endure. Like you Jeff the toll on loved ones makes me cry.

mags

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