Update on my husband

jen2012
jen2012 Member Posts: 1,607 Member
in Colorectal Cancer #1

i posted a month ago that he would be starting lonsurf aka tas102.  He did one round ( or half a round?...first two weeks out of the month) he was supposed to start again yesterday.  his blood counts and calcium tanked.  Been going for infusions and transfusions weekly and feeling lousy.  Friday he went in for calcium and ended up being admitted with a 102 temp.  They spend the weekend drawing blood cultures, trying to find infection.  Finally determined tumor fever and all other issues related to cancer progression,  his onc said the best chance he has to get the cancer under control is to restart oxaliplatin.  He had a reaction so they had stopped it.  So she wanted to do desensitization while he was in the hospital.  thst happened today, over about 7 hours. No issues.  Now is the waiting game to see if it works.  He is in so much pain and pretty much out of it from the pain meds.

have to postpone his big 50th birthday party this weekend :(

This is all so tiring, frustrating and depressing.

Comments

  • Trubrit
    Trubrit Member Posts: 5,804 Member
    #2
    So very sorry, Jen

    How hard it is for your husband and yourself.

    I know what it's like to battle the beast, but not to sit by and watch, and I have to wonder if your part is not as painful, albeit emotionally, thought I bet you can feel physically sick also. 

    My thoughts and prayers are with you both. 

    Sue - Trubrit

  • vtspa6
    vtspa6 Member Posts: 172 Member
    #3
    Boy, not the best way to

    Boy, not the best way to bring in a new year!  Pray that the treatment works for him.  Tell him we said happy birthday!

  • JanJan63
    JanJan63 Member Posts: 2,478 Member
    #4
    What a battle. I'm so sorry

    What a battle. I'm so sorry he didn't get good news. It's tough for both of you. Hugs for you both.

    Jan

  • Fight for my love
    Fight for my love Member Posts: 1,522 Member
    #5
    Jen, very sorry to hear

    Jen, very sorry to hear what's happening. As a wife and a caregiver, I truly understand how you feel. I am actively looking for clinical trials now, because we are running out of options, sometimes it just goes down there muh quicker than what we thought... You and your families are in my prayers. Take care.

  • Cathleen Mary
    Cathleen Mary Member Posts: 827 Member
    #6
    Fight for my love said:

    Jen, very sorry to hear

    Jen, very sorry to hear what's happening. As a wife and a caregiver, I truly understand how you feel. I am actively looking for clinical trials now, because we are running out of options, sometimes it just goes down there muh quicker than what we thought... You and your families are in my prayers. Take care.

    Jen, I am so sorry for all

    Jen, I am so sorry for all that you and your husband are going through. I really hope that you get good news soon and can begin treatment anew.

    Everyone should be blessed with a 'Jen' by their side.

    hugs,

    CM

  • lizard44
    lizard44 Member Posts: 409 Member
    #7
    So sorry

    So sorry you are both going through this.  It is so hard to watch someone you love suffer, and so frustrating to  not be able to do much to help. Please  take care of yourself and get as much rest as you can,whenever you can, so you'll have the strength to keep on doing what you have to do for both of you. I hope he is able to go home   and that he can  enjoy the birthday party, even if it's a little late.

  • annalexandria
    annalexandria Member Posts: 2,571 Member
    #8
    You know I'm thinking of you.

    Big hugs from me.

  • LindaK.
    LindaK. Member Posts: 506 Member
    #9
    Postponing Birthdays

    Hi Jen, we postponed my husband's 60th birthday party until he was done with Folfox.  His birthday is in March and we surprised him with a party in December.  I'm so glad my kids pushed me to do it.  He was so surprised, had a great evening and we got lots of good pictures and videos. Sadly, he passed away within the year so we treasure memories of that evening.

    Have a little celebration this weekend wherever he is, I'm sure he will appreciate it.  It's tough to see our loved ones suffer so, especially when "treament" makes them worse.

    Linda

  • janderson1964
    janderson1964 Member Posts: 2,215 Member
    #10
    I am so sorry to read this

    I am so sorry to read this Jen. It is a horrible disease. Sometimes I can see the toll it is taking on my wife mentally and physically and it makes me cry. I never wanted to hurt her like this. I am sure your husband is feeling the same way. It is so hard on the patient and caregiver/spouse.

  • maglets
    maglets Member Posts: 2,576 Member
    #11
    janderson1964 said:

    I am so sorry to read this

    I am so sorry to read this Jen. It is a horrible disease. Sometimes I can see the toll it is taking on my wife mentally and physically and it makes me cry. I never wanted to hurt her like this. I am sure your husband is feeling the same way. It is so hard on the patient and caregiver/spouse.

    so so sorry

    oh Jen I am so so sorry for all the suffering both you and husband are enduring.  It is beyond me what you caregivers have to endure. Like you Jeff the toll on loved ones makes me cry.

    mags

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