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Nuelasta shot and almost done

ncg007
Posts: 136
Joined: Nov 2015

I received my first Nuelasta shot today and hope all goes well with it.  My wbc and hemaglobin hit bottom and landed me in the hospital for 4 days to get me pumped up with antibiotics and also have blood transfusions.  Unfortunately i had a reaction to second transfusion and didn't complete it.  Chemo got delayed a week and my counts finally hit the minimums for me to receive chemo yesterday.  Only one more chemo treatment to go and hopefully I'm done!  28 radiation treatments, 2 Cisplatin and 4 carboplatin/paclitaxel is enough for me! (stage IIIc1, grade 3) 

wishing you all well!

Nancy

Lou Ann M's picture
Lou Ann M
Posts: 996
Joined: Feb 2015

Sorry you had a rather hard time there, Hope every thing goes well now.  If you haven't, start taking Claritin right awaY and for a few days.  It really does help with the bone pain caused by the Nuelasta shot.  Hugs and prayers, Lou Ann

TeddyandBears_Mom's picture
TeddyandBears_Mom
Posts: 1748
Joined: Jun 2015

Nancy, I hope all goes well with your treatment this time.  Only one more to go now! You can do this.

Sorry for the issues though.  Hoping all of that is behind you for good!

Love and Hugs,

Cindi

ncg007
Posts: 136
Joined: Nov 2015

Lou Ann, I am taking Claritin.  So far not feeling any bad side effects from Nuelasta but sure am not feeling any better with this 5th round of chemo, so exhausted and weak.  Hoping this gets better in a day or two and my blood gets the boost from the Nuelasta.

Nancy

 

ncg007
Posts: 136
Joined: Nov 2015

Last chemo tommorrow, can't wait to be done with this!  The last round was the roughest so far, took me two weeks to bounce back some.  I had no problems with the first dose of Nuelasta, but it barely got my wbc above the minimums.  So it was good I had the shot or wbc probably would have hit bottom again.  My rbc and hemoglobin remains extremely low and continues to make me very weak, so I am anticipating another blood transfusion.

peace and love

Nancy

ConnieSW
Posts: 1547
Joined: Jun 2012

good luck tomorrow.  Just think, you'll be feeling better and spring will arrive about the same time.

TeddyandBears_Mom's picture
TeddyandBears_Mom
Posts: 1748
Joined: Jun 2015

Just think.... 3 weeks from now you will be celebrating big time!  It is such a relief to get to the end. So congrats to you!

Now, be patient with yourself. It takes time to rebuild your strength.  (Easy to say but hard to do!)

I am two months out from my last chemo and I am starting to feel a bit more normal. Breathing is finally much better.

You will get there!

Love and Hugs,

Cindi

Gardena
Posts: 102
Joined: Jan 2016

Good luck w your last chemo! I'm very excited for you. I too had a rough 5th chemo followed by a transfusion.  I'm supposed to have my final chemo this Wednesday but will find out for sure after a blood draw/check Tuesday.  I am fully anticipating the after affects of my 6th chemo to be the roughest of all - each time my chemo hole (as I call it) has gotten deeper and taken longer to get out of and bounce back. I'm hoping we're both gonna knock it out of the park this last time and get our strength back soon! Congratulations on your endurance and perseverance!!

ncg007
Posts: 136
Joined: Nov 2015

Congratulations to you too!  I'm hoping all goes well for you on your final round and you quickly recover.

Nancy

TeddyandBears_Mom's picture
TeddyandBears_Mom
Posts: 1748
Joined: Jun 2015

For me, chemo #6 was one of my "easier" ones. Not that any of them were easy.

I hope you are able to get your chemo on Wednesday. But, if not... It will happen and be behind you soon.

Positive energy coming your way!

Love and Hugs,

Cindi

Gardena
Posts: 102
Joined: Jan 2016

I'll take all the positive energy I can get! I hope I'll be lucky and have an easier time on the 6th, but regardless of hard or less hard, I am going to power thru and never look back! It's my hope never to need chemo again. :-)

ncg007
Posts: 136
Joined: Nov 2015

Thank you all for your comments.  But no luck with getting that final round of chemo today, all counts too low. So disappointed, but not surprised as I could feel myself getting weaker over the weekend.  Plan now is to get that blood transfusion I was anticipating tomorrow and hopefully get the final chemo next week.  Nervous about the transfusion since I had an allergic reaction on the second unit during the last transfusion.  At this point I'm ready to say forget the final chemo and run away to Florida to get out of the deep freeze here in MI!

EZLiving66's picture
EZLiving66
Posts: 1471
Joined: Oct 2015

Bummer on the low blood counts but I love your idea of running away to Florida.  It's been so cold here in Wisconsin - I would love the warm breezes of Florida and the white sand of the gulf between my toes.

Hopefully you make it through the transfusion without incident!!

Love,

Eldri

TeddyandBears_Mom's picture
TeddyandBears_Mom
Posts: 1748
Joined: Jun 2015

Nancy,

You WILL get there. In the overall scheme of things, a delay will not mean a thing a month down the road.

Take the time to build your strength and "enjoy" the extra week off. If nothing else, maybe you can eat something that you haven't been able to enjoy!

Take care and I hope your transfusion goes well.

Love and Hugs,

Cindi

ConnieSW
Posts: 1547
Joined: Jun 2012

Cindi's first sentence is exactly what I was gonna say.  You'll get there.

Gardena
Posts: 102
Joined: Jan 2016

Hi Nancy,  sorry your counts are too low this week,  but when you think of what your body has been through it seems reasonable.  Unlike you, I have not yet gone through radiation. I'm totally beat up by chemo alone; you and all the ladies who have have done both inspire me to keep going. I'm living on the strength of others!  I hope you get the rest and nutrition you need this week to tackle chemo next week.  Wishing you well~

Editgrl's picture
Editgrl
Posts: 903
Joined: Jun 2015

Sorry your counts are down, but next week will be here before you know it.  You WILL get there and be done.

Red Corvette
Posts: 114
Joined: Jan 2016

Hang in there Nancy. Try and enjoy the time off and know we're with you all the way.

Red

ncg007
Posts: 136
Joined: Nov 2015

Happy to report I was able to get my final chemo treatment yesterday.  Besides getting Nuelasta later today, I am hopefully done!  Last weeks blood transfusion boosted my hemaglobin/RBC, but neutrophil/WBC remain low so I need the Nuelasta again.  Took exactly 6 months to complete treatment; from hysterectomy, 2 rounds of Cisplatin with 28 rounds of radiation and then completed with 4 carbol/taxol.  I'll follow up with Onc in 6 weeks to discuss ongoing monitoring; it was already commented that there will be no scan as I have had already been exposed to so much radiation with treatments and previous scans, so no need to add more.  Makes sense with tumors being removed with surgery so none to monitor and sure would hope no new would have developed during all this treatment.  I'm anxious to discuss this further as I've seen much discussion on scan vs no scan.  Now it's time to book a trip to FL in April for some real R&R before returning back to work.

Nancy

ConnieSW
Posts: 1547
Joined: Jun 2012

You have a new red letter day to put on your calendar.  Mine is 8/15 and we celebrate every year.

EZLiving66's picture
EZLiving66
Posts: 1471
Joined: Oct 2015

I'm so happy for you - to be done and looking forward to a trip to Florida!!

Keep us updated!

Love,

Eldri

TeddyandBears_Mom's picture
TeddyandBears_Mom
Posts: 1748
Joined: Jun 2015

So glad that you were able to finish. Now, get through the side effects and then celebrate! Life does get back to some kind of normal fairly quickly... For me, about 2 months or so. Smile  Not 100% but way better than while going thru all the stuff.

Love and Hugs,

Cindi

Kvdyson's picture
Kvdyson
Posts: 789
Joined: Jan 2016

So glad to hear that your treatments are done! It gives me hope that I can make it through the rest of mine, too. Have a great trip and enjoy yourself!

Anonymous user (not verified)

From one Nancy to another, enjoy your freedom from the infusion/radiation room.  Hugs Nancy

Soup52's picture
Soup52
Posts: 906
Joined: Jan 2016

My friend just asked me if I had had this shot and I said no. Do people usually get this when their blood counts are low?

NoTimeForCancer's picture
NoTimeForCancer
Posts: 2885
Joined: Mar 2013

Soup, I thought there was a thread on this at one time.  The shot can have side effects too, everything can, as some of the women here will tell you.  Like anything, you should find out if it is for you.  When I had a BENIGN lump in my breast the surgeon wanted me to take tamoxifen!!!!!  WTH?!  WHY would I take a drug that can CAUSE uterine cancer?  It turns out I didn't need any help in that department!!  

I see it being advertised on TV pretty heavily now, and it helps some people, but everyone has to decide the best course for them.  

TeddyandBears_Mom's picture
TeddyandBears_Mom
Posts: 1748
Joined: Jun 2015

I believe the discussion regarding Neulasta fell into the Ladies going thru chemo Thread.

Lou Ann M's picture
Lou Ann M
Posts: 996
Joined: Feb 2015

The Nuelasta shot is only for white blood cells and does nothing for platelets and red blood,cells.  I get it have have had no problems with it. It has kept my wbc up. Low platelets have caused me delays several times.  Hugs and prayers Lou Ann

NoTimeForCancer's picture
NoTimeForCancer
Posts: 2885
Joined: Mar 2013

Ahhhh...Lou Ann, thank you for your imput.  

What was said to me during all my treatment was "push the protien".  

Anonymous user (not verified)

I talked with my doctor yesterday after they reluctantly aggreed to give me my 4th chemo with platelets count at 95 (they cut off at 100).  He said they don't want the chemo to kill me, just kill any stray cancer cells left after surgery.  He also said there is nothing but time that will bring up platelet counts.  I asked about Neumega and he said NO, that is only to be used if it was critical that you receive chemo, and he also said that drug should be archived, because of the nasty and life threatening side effects.  He also said ibuprofen is ok with moderation, because the only thing ibuprofen does to affect your platelets is if it causes gastro bleeding.  He said nothing that I can eat or drink or do will increase platelets at a increased count.  Last he said (at least for me) my chemo is adjuvant chemo, he thinks the surgery got everything active, and delaying chemo for 2 weeks is just fine.  He did say if I had to be delayed over 2 weeks, he will then check into the low platelet count and see why it isn't coming up.  Mine increased by 1 from wednesday to friday and that's why he allowed chemo yesterday.  I also got a reduced dose of chemo yesterday to help with the nerves and the low platelet count.  Hugs Nancy

TeddyandBears_Mom's picture
TeddyandBears_Mom
Posts: 1748
Joined: Jun 2015

I delayed my chemo for two weeks when I switched from weekly to the every 3 week full dosage. And my chemo was also adjuvant.

I hope your counts start building so that you can continue plus start to feel better!

Take care Nancy and I'm glad you got some answers from you doctor.

Love and Hugs,

Cindi

EZLiving66's picture
EZLiving66
Posts: 1471
Joined: Oct 2015

I know you were worried about delaying the chemo so I'm glad you got it even if it was a reduced dosage.  My doctor said the same thing about using food to raise my red blood count but the dietician gave me a list of things to eat to do just that.  I got some very confusing information when I was going through chemo - chemo nurse said to eat bland food like white bread; dietician said no white bread, just whole grain bread.  There were a lot of things like that now that I think of it.  It would have been nice to get all these people in the same room and hash it out - LOL Wink

Love,

Eldri

pinky104
Posts: 574
Joined: Feb 2013

About a month ago, I saw a list of 10 foods you shouldn't eat because they cause cancer (there are many different such lists on the Internet).  I noticed this one particularly because I had recently asked the PA at my family physician's office to recommend a snack for me.  He came up with several things that didn't appeal too much to me, and I said to him "I mean something with flour in it."  He point blank told me he didn't want me eating any flour.  I was too stunned to ask why.  When I saw the 10 foods list, white bread was number one on the list.  It said that (white) flour is sprayed with a chlorinating gas to make it more appealing to the eye (in other words, it's bleached it to make it white).Who wants to be eating that chemical?  I know white bread is high on the glycemic index (it raises your blood sugar and then drops it quickly so it makes you hungry faster than whole grain bread would). Whole grains are usually considered healthier in general, so I would think that should be your choice as long as your gut doesn't have too much of a problem with fiber.

Incidentally, my mother had celiac disease, so it's possible my PA had seen that in my record and ruled out my having any flour in case I developed the same disease.  It tends to run in families.

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