CSN Login
Members Online: 5

You are here

The Latest

Chris17's picture
Chris17
Posts: 175
Joined: Oct 2010

Had surgery the 19th last Thursday, surgeon did a video assisted surgery, when he went in he said that the one area that has been giving me a bad time wasnt a tumor but possible Sarcoidosis, as if i dont have enough going on, he finally reached a tumor and got a good biopsy, i am happy about that, i have at least 4-5 tumors in my chest now, in my nodes, hope to get results back soon so i can move on and get a handle on this demon who has controlled my life for 7 ys, im in a lot of pain,got home from hospital yesterday, typing one handed sucks as my whole right side has some stitches, will post more when i get results back, please keep  me in your prayers, as i am running out of patience.

Anonymous user (not verified)

wish I could say something to help. Best I can do is to say do it one day at a time. I wish you the best. Please don't give up regardless of how tired you get.

Chris17's picture
Chris17
Posts: 175
Joined: Oct 2010

Thank you GKH i will never give up!

jimwins's picture
jimwins
Posts: 2111
Joined: Aug 2011

I haven't been posting much lately but wanted you to know you are in my thoughts.  Hang in there as you have for so long. 

Big hugs,

Jim

Chris17's picture
Chris17
Posts: 175
Joined: Oct 2010

Thank you Jim, hope you are doing well.

Jeff148's picture
Jeff148
Posts: 184
Joined: Apr 2014

I'm praying for you every day...you are on my list!! Remember there is power in the name of Jesus.

Chris17's picture
Chris17
Posts: 175
Joined: Oct 2010

Thanks for the prayers Jeff i need all the help i can get right now.

Max Former Hodgkins Stage 3's picture
Max Former Hodg...
Posts: 3446
Joined: May 2012

Chris,

My sister-in-law was diagnosed five years ago with highly advanced Sarcoidosis. It is one of the only diseases that looks virtually identical to lymphoma on a CT.  It took several specialists over a year to get her a firm diagnosis.  Because I had lymphoma when she was first checked (due to her extreme shortness of breath) the family was calling my wife and I all the time, discussing test results, and I became interested in the disease.  The doctors initially believed it to in fact be lymphoma.

Both of her lungs are full of the stuff, but she does NOT have any cancer. The most intensive involvement is usually in and around the lungs and center-chest, but it can be nearly anywhere.

Because it gums up the lymph nodes, it frequently causes swelling in the extremities. She recently had an acute episode and had to go on oxygen fora bout two weeks.  The WebMD overview:

http://www.webmd.com/lung/arthritis-sarcoidosis?page=2

Scarcoidosis is incurable, but it is hardly ever fatal.  Some remedies minimize symptoms.  Prednisone is one of the most common treatments. Praying for you like almost everyone here,

max

.

Chris17's picture
Chris17
Posts: 175
Joined: Oct 2010

Thank you all so much, Max thanks for the article, and thanks to all who replied to my post, i am not going to give up i have come too far, i just lose patience and i can not stand the biopsy results waiting game, you would figure after all these years it would not bother me, but it really does. Max it sounds like your wife has been through so much, and i know it takes a toll on you and the family as well, i will keep her in my prayers along with all of you who are dealing with the demon, will keep you posted when the results come in.

                                              Chris

Subscribe to Comments for "The Latest"