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Chris17
Chris17 Member Posts: 175
edited February 2015 in Lymphoma (Hodgkin and Non-Hodgkin) #1

Had surgery the 19th last Thursday, surgeon did a video assisted surgery, when he went in he said that the one area that has been giving me a bad time wasnt a tumor but possible Sarcoidosis, as if i dont have enough going on, he finally reached a tumor and got a good biopsy, i am happy about that, i have at least 4-5 tumors in my chest now, in my nodes, hope to get results back soon so i can move on and get a handle on this demon who has controlled my life for 7 ys, im in a lot of pain,got home from hospital yesterday, typing one handed sucks as my whole right side has some stitches, will post more when i get results back, please keep  me in your prayers, as i am running out of patience.

Comments

  • Unknown
    Unknown
    #2
    Hang in there Chris

    wish I could say something to help. Best I can do is to say do it one day at a time. I wish you the best. Please don't give up regardless of how tired you get.

  • jimwins
    jimwins Member Posts: 2,107
    #3
    Hi Chris

    I haven't been posting much lately but wanted you to know you are in my thoughts.  Hang in there as you have for so long. 

    Big hugs,

    Jim

  • Jeff148
    Jeff148 Member Posts: 184
    #4
    Stay strong!!

    I'm praying for you every day...you are on my list!! Remember there is power in the name of Jesus.

  • Max Former Hodgkins Stage 3
    Max Former Hodgkins Stage 3 Member Posts: 3,819 Member
    #5
    Sarcoidosis

    Chris,

    My sister-in-law was diagnosed five years ago with highly advanced Sarcoidosis. It is one of the only diseases that looks virtually identical to lymphoma on a CT.  It took several specialists over a year to get her a firm diagnosis.  Because I had lymphoma when she was first checked (due to her extreme shortness of breath) the family was calling my wife and I all the time, discussing test results, and I became interested in the disease.  The doctors initially believed it to in fact be lymphoma.

    Both of her lungs are full of the stuff, but she does NOT have any cancer. The most intensive involvement is usually in and around the lungs and center-chest, but it can be nearly anywhere.

    Because it gums up the lymph nodes, it frequently causes swelling in the extremities. She recently had an acute episode and had to go on oxygen fora bout two weeks.  The WebMD overview:

    http://www.webmd.com/lung/arthritis-sarcoidosis?page=2

    Scarcoidosis is incurable, but it is hardly ever fatal.  Some remedies minimize symptoms.  Prednisone is one of the most common treatments. Praying for you like almost everyone here,

    max

    .

  • Chris17
    Chris17 Member Posts: 175
    #6
    Max Former Hodgkins Stage 3 said:

    Sarcoidosis

    Chris,

    My sister-in-law was diagnosed five years ago with highly advanced Sarcoidosis. It is one of the only diseases that looks virtually identical to lymphoma on a CT.  It took several specialists over a year to get her a firm diagnosis.  Because I had lymphoma when she was first checked (due to her extreme shortness of breath) the family was calling my wife and I all the time, discussing test results, and I became interested in the disease.  The doctors initially believed it to in fact be lymphoma.

    Both of her lungs are full of the stuff, but she does NOT have any cancer. The most intensive involvement is usually in and around the lungs and center-chest, but it can be nearly anywhere.

    Because it gums up the lymph nodes, it frequently causes swelling in the extremities. She recently had an acute episode and had to go on oxygen fora bout two weeks.  The WebMD overview:

    http://www.webmd.com/lung/arthritis-sarcoidosis?page=2

    Scarcoidosis is incurable, but it is hardly ever fatal.  Some remedies minimize symptoms.  Prednisone is one of the most common treatments. Praying for you like almost everyone here,

    max

    .

    Thank you so much

    Thank you all so much, Max thanks for the article, and thanks to all who replied to my post, i am not going to give up i have come too far, i just lose patience and i can not stand the biopsy results waiting game, you would figure after all these years it would not bother me, but it really does. Max it sounds like your wife has been through so much, and i know it takes a toll on you and the family as well, i will keep her in my prayers along with all of you who are dealing with the demon, will keep you posted when the results come in.

                                                  Chris

  • Chris17
    Chris17 Member Posts: 175
    #7
    Jeff148 said:

    Stay strong!!

    I'm praying for you every day...you are on my list!! Remember there is power in the name of Jesus.

    Thanks Jeff

    Thanks for the prayers Jeff i need all the help i can get right now.

  • Chris17
    Chris17 Member Posts: 175
    #8
    jimwins said:

    Hi Chris

    I haven't been posting much lately but wanted you to know you are in my thoughts.  Hang in there as you have for so long. 

    Big hugs,

    Jim

    Thanks Jim

    Thank you Jim, hope you are doing well.

  • Chris17
    Chris17 Member Posts: 175
    #9
    unknown said:

    Hang in there Chris

    wish I could say something to help. Best I can do is to say do it one day at a time. I wish you the best. Please don't give up regardless of how tired you get.

    Thanks GKH

    Thank you GKH i will never give up!

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