IL2 blog

thaxter
thaxter Member Posts: 124
in Kidney Cancer #1

Spent yesterday getting scanned and ported and got my first dose about six hours ago. No nasty side effects but I am told these will come with subsequent doses. Staff have all been great and my wife is here sleeping in a chair. Really didn't need any help yesterday but I am sure that will change too. this protocol is for 12 doses but doc says almost no one gets that many--average is between 5 and 10. He also says that how many doses you tolerate us not important as long as they see the level of toxicity they want. More later

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Comments

  • garym
    garym CSN Member Posts: 1,647
    #3
    thaxter said:

    Skipping 9 am dose

    Doc says my kidney numbers are not great so we are skipping this dose and waiting for 5 pm

    Hang in there...

    Eye on the prize!  YOU CAN DO THIS!

  • foxhd
    foxhd CSN Member Posts: 3,181 Member
    #4
    garym said:

    Hang in there...

    Eye on the prize!  YOU CAN DO THIS!

    Go get 'em Thax

    Your protocol sounds more like mine. I don't know how some people tolerate a dozen doses of this stuff. Remember that no matter how tough you are, the body has a different agenda. Here's hoping you get plenty of this nasty stuff. I was incredibly sick from it, but now I'm incredibly well. Do us proud. Make me look like a wimp. I'm so fortunate that I had the chance to go thru this. You will be too.

  • Jojo61
    Jojo61 CSN Member Posts: 1,310 Member
    #5
    Hang in there, Thax! Thinking

    Hang in there, Thax! Thinking about you!

    Hugs,

    Jojo

  • CommuterMom
    CommuterMom Member Posts: 120
    #6
    thaxter said:

    Skipping 9 am dose

    Doc says my kidney numbers are not great so we are skipping this dose and waiting for 5 pm

    Be well we are all thinking
    Be well we are all thinking of you and praying for you.
  • one putt
    one putt Member Posts: 72
    #7
    Doses

    Don't be concerned about the number of doses. I took all 14 doses the first time and 11 doses the second time  but my results  didn't warrant continuig. Others, like Fox, have gotten great results with fewer doses. It's time for you to join Fox and the others getting great results.

  • danbren2
    danbren2 Member Posts: 311
    #8
    one putt said:

    Doses

    Don't be concerned about the number of doses. I took all 14 doses the first time and 11 doses the second time  but my results  didn't warrant continuig. Others, like Fox, have gotten great results with fewer doses. It's time for you to join Fox and the others getting great results.

    It will get better!

    Thax,

         Just concentrate on the end result, hoping and praying for the best! You can do this!!

                                  Love and prayers for good health!

                                   Brenda

  • NewDay
    NewDay CSN Member Posts: 272
    #9
    danbren2 said:

    It will get better!

    Thax,

         Just concentrate on the end result, hoping and praying for the best! You can do this!!

                                  Love and prayers for good health!

                                   Brenda

    You Can Do It

    Hang in there.  One day at a a time, one dose at a time.  

    Kathy

  • Darron
    Darron Member Posts: 310 Member
    #10
    thaxter said:

    Skipping 9 am dose

    Doc says my kidney numbers are not great so we are skipping this dose and waiting for 5 pm

    Keep the faith

    You know the end will justify the means. Be confident it is working And it will work.

  • todd121
    todd121 CSN Member Posts: 1,448 Member
    #11
    thaxter said:

    Skipping 9 am dose

    Doc says my kidney numbers are not great so we are skipping this dose and waiting for 5 pm

    Wishing you well Thax

    You're on my mind. Hope you get great results with this. Please keep us updated. It will be over before you know it.

    Todd

  • thaxter
    thaxter Member Posts: 124
    #12
    Now I know about the rigors

    So I got a second dose at 6pm yesterday and thought I was not going to have strong side effects but after almost three hours I started to shake. The warm blankets and Demerol had the desired effect and I slept after a while. Skipped the 1 am dose. BP was low and pulse high, oxygen low so they were checking on me most of the night. Managed to get the BP back above 90 so they did not put me on medicine. Waiting to see if the doc will order the 9 am dose, he just came in and we are go despite creatinine of 3.1

  • Jojo61
    Jojo61 CSN Member Posts: 1,310 Member
    #13
    thaxter said:

    Now I know about the rigors

    So I got a second dose at 6pm yesterday and thought I was not going to have strong side effects but after almost three hours I started to shake. The warm blankets and Demerol had the desired effect and I slept after a while. Skipped the 1 am dose. BP was low and pulse high, oxygen low so they were checking on me most of the night. Managed to get the BP back above 90 so they did not put me on medicine. Waiting to see if the doc will order the 9 am dose, he just came in and we are go despite creatinine of 3.1

    This is amazing to have you

    This is amazing to have you tell us step by step as things are moving along. Hang in there, Thax! It will be worth it.

    Hugs,

    Jojo

  • DMike
    DMike Member Posts: 259
    #14
    Mid-week battles

    Thaxter,

    Good luck. One of my favorite quotes is "the only way through it is through it," that fits IL2 treatment to a T. Keep fighting!

    David

  • thaxter
    thaxter Member Posts: 124
    #15
    So we are still doing take one, skip one

    Side effects are pretty predictable now. I get rigors about 2 hours and 45 minutes after each dose. No nausea or diarrhea yet and iv've got that pink glow all over. I am actually eating ok but the food is pretty bad. My daughter picked up some great pulled pork sandwiches tonight. One side effect I hadn't heard about is my mouth is sore and my tongue is coated and splotchy. So it looks like six doses for me and check out Saturday

  • Srashedb
    Srashedb CSN Member Posts: 482 Member
    #16
    thaxter said:

    So we are still doing take one, skip one

    Side effects are pretty predictable now. I get rigors about 2 hours and 45 minutes after each dose. No nausea or diarrhea yet and iv've got that pink glow all over. I am actually eating ok but the food is pretty bad. My daughter picked up some great pulled pork sandwiches tonight. One side effect I hadn't heard about is my mouth is sore and my tongue is coated and splotchy. So it looks like six doses for me and check out Saturday

    ****:
    how incredible that you

    ****:

    how incredible that you are able to post but glad that you are; hang in there! My only thought is if you enjoy pulled pork and might get sick later, don't eat it now.

    just hang in there...

    Sarah

  • foxhd
    foxhd CSN Member Posts: 3,181 Member
    #17
    Srashedb said:

    ****:
    how incredible that you

    ****:

    how incredible that you are able to post but glad that you are; hang in there! My only thought is if you enjoy pulled pork and might get sick later, don't eat it now.

    just hang in there...

    Sarah

    Hang in there buddy

    My rigors were at 3 hours. Predictable. Demoral works quick. Glad you can eat. The little food I ordered that I couldn't eat still turns my stomach thinking of it. I mentioned to my wife this week that I picked up a water bottle and it makes me sick. I guess I'm not really over it yet. 6 doses sound good. Keep up the good work.

  • GSRon
    GSRon CSN Member Posts: 1,303 Member
    #18
    foxhd said:

    Hang in there buddy

    My rigors were at 3 hours. Predictable. Demoral works quick. Glad you can eat. The little food I ordered that I couldn't eat still turns my stomach thinking of it. I mentioned to my wife this week that I picked up a water bottle and it makes me sick. I guess I'm not really over it yet. 6 doses sound good. Keep up the good work.

    Thaxter... I have been

    Thaxter... I have been reading your posts... you are another amazing person around the IL2 world ..  hope it works for you...!!

    Ron

  • thaxter
    thaxter Member Posts: 124
    #19
    GSRon said:

    Thaxter... I have been

    Thaxter... I have been reading your posts... you are another amazing person around the IL2 world ..  hope it works for you...!!

    Ron

    Last night's dose

    Worst rigors yet and they had to give four shots of demerol. Other SEs have been high pulse, low BP and a fever after each dose. No nausea and I am still eating ok but the breakfasts are lousy. Yesterday lunch came just as I was about to rigor but I wolfed most of it down.

    another dose at 5 today and then maybe only one more tomorrow. Creatinine peaked at 3.1 but held steady which helped the doc decide to proceed with the dose last night 

  • nsb748
    nsb748 Member Posts: 89
    #20
    thaxter said:

    Last night's dose

    Worst rigors yet and they had to give four shots of demerol. Other SEs have been high pulse, low BP and a fever after each dose. No nausea and I am still eating ok but the breakfasts are lousy. Yesterday lunch came just as I was about to rigor but I wolfed most of it down.

    another dose at 5 today and then maybe only one more tomorrow. Creatinine peaked at 3.1 but held steady which helped the doc decide to proceed with the dose last night 

    Hang in there Thaxter. 
    Very

    Hang in there Thaxter. 

    Very cool how you are providing the play by play, as this will help someone else get through the same scenario in the future.

    Is it wierd that mentally I am picturing you getting your treatments as a Rocky style training montage?

     

  • danbren2
    danbren2 Member Posts: 311
    #21
    nsb748 said:

    Hang in there Thaxter. 
    Very

    Hang in there Thaxter. 

    Very cool how you are providing the play by play, as this will help someone else get through the same scenario in the future.

    Is it wierd that mentally I am picturing you getting your treatments as a Rocky style training montage?

     

    Amazing!

    Thax,

         Thanks for the amazing posts! Stay strong and I wish you nothing but great results!

                                                           Love and prayers of good health!

                                                            Brenda

  • Darron
    Darron Member Posts: 310 Member
    #22
    nsb748 said:

    Hang in there Thaxter. 
    Very

    Hang in there Thaxter. 

    Very cool how you are providing the play by play, as this will help someone else get through the same scenario in the future.

    Is it wierd that mentally I am picturing you getting your treatments as a Rocky style training montage?

     

    Yo Adrian!!!!

    I like the analogy. I see the version where he fighta Drago. Thax, hope you are not in a Russian barn!

    Keep fighting, aounds like you are taking it well.

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