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Current plans with radiation
 |
Sep 11, 2012 - 8:17 pm
....Damn, I just lost a half hour of typing. I was so eloquent too. Excellent Star Trek references. Can't do it twice. Met with my Dr. today to finalize my plans for radiation to my rib and T6 spine.... I have had fantastic results from MDX-1106. It has devoured more tumors than anyone should ever get. Only a couple left in my soft tissue but we'll kick their ass also. Even had bone mets get destroyed. But somehow a couple of newer invaders have taken up space in my left lower rib and T6 spine. My oncologist said "It's time to get rid of them too." So I have had more scans. I've been tattooed for reference points. The first radiation will be on the rib. 5 sessions. Once a day. Weekends not included. Then the spine for 3 sessions, every other day. It should start thursday. I had hoped to ride my motorcycle today to my appt. But was unable to lift my leg to use the brake. (due to pain). I decided riding wouldn't be a good idea, so I drove. Here's hoping that I don't have to do that again. Infusion tomorrow. Maybe zometa too. My bod will be in an ass kicking mood. Thank your lucky stars that you aren't my cancer! I'll post updates as I go along. FLY! |
Joined: Aug 2012
Inspiration
Fox....best of luck and thank you for the perspective. relatively new here and have enjoyed
your outlook and perspective. It's refreshing and serves to remind some of us newer folks that the future begins today.
Kick some ass tomorrow. CC
Joined: Oct 2011
Future begins today
CC, Thanks. Yeah, you may be newer but that does not carry less weight around here. I feel like a quarterback. Now you know the game plan. Any questions? No? Good. Now GO GET THEM!!!
Joined: May 2012
And kick *** you will!
Fox,
Clearly cancer doesn't know who he's dealing with. I have no doubt you can do this. Be sure to keep us posted.
Kathy
Joined: Oct 2011
Kick ***.
Thanx Kathy. Of course we kick ass. I know a guy who would just lie down and wait to die. It would be too much effort to fight. That doesn't happen around here. We do this together. Fox.
Joined: Dec 2011
Fox~
You are on my mind. I am still waiting to hear from SCRI about the anti-PD1 trial that I am supposed to get in. They should call me sometime this week to set up a time for me to go to Nashville. I can only hope and pray that my results are as good as yours. It's a shame the Inlyta did not work for me, but I believe everything happens for a reason and this will allow me to participate in the clinical trial.
I hope and pray the radiation zaps the crap out of your mets! Keep us informed. I'm cheering you on. You are my role model.
XO Paula
Joined: Oct 2011
And I think of you
Thanx Paula. I agree that maybe the Inlyta didn't work for the long term because if it did, you would have missed out on something that works better and is more tolerable. I wish I could find something closer to home for you. In the meantime, We're gonna ZAP the CRAP out of me. Thanks. Love you Paula. Now you do well. Fox.
Joined: Mar 2012
anti-P1 trial
Paula - Really hope that call comes and you join Fox's AllStar team. What happened to the pic you had up earlier? He is beautiful!
Joined: Dec 2011
Thanks Alice!
Heard today that Sara Cannon has all my records and will call me in the next day or so. While I sit here and think about what's going on in my body while I'm taking no meds, I am focusing on beating the crap out this disease in the clinical trial. I will be honored to join Fox's AllStar team and only hope and pray this drug works as well for me as it has for him and your husband!
The beautiful young man in the picture with me is my 4 year old grandson, Hunter. He and his 6 year old sister are my reason for wanting to fight like the dickens.
Joined: Mar 2012
Hunter and his sister
That picture speaks volumes; what a wonderful reason to fight! We all have your back, so use us as this gets closer. Will be waiting patiently for you you to receive that call.
Joined: Sep 2012
Waiting to get on the anti PD-1 Trial in Canada
Hi Paula,
This is my first day on this site. We met with my 45yo brother's oncologist last week have been given the option to wait until October for a possible spot in the MDX1106 + Sutent/Votrient Trial. I'm thinking you may be waiting for the same trial? It's not clear to me if they are moving into Phase2 or if there will be spaces added to the Phase1. Either way, we are keeping our fingers crossed for you and for anyone waiting.
Let us know how you make out...
Joined: Nov 2011
Good Luck
I hope when you are done with these latest treatments you will be able to resume a much less hectic life for a long time you deserve a nice long break,good luck Fox.
Joined: Jan 2010
Keep the Harley running
Fox,
May this be just a slight delay in your riding days ahead.
Icemantoo
Joined: Oct 2011
Ice
Thanx. I rode quite alot this year already. A little break doesn't hurt. Stay on board so all of us can see that we too can live to a hundred like you. We all really appreciate you hanging out here with your experience and knowledge. You prove that kidney cancer is not a death sentence. Fox.
Joined: Oct 2011
Less hectic life?
Limelife, I have to admit that I have had an easy go of this. It's one of these things where I feel guilty for just not having too tough a time of all this. I may change my mind after radiation. But I doubt it. Thanx. Fox.
Joined: Nov 2009
Kicking it...
Foxy,
Now that's a couple tattoos worth getting, wear them with pride as a reminder of when you kicked cancer's ass!! As reported by others here, radiation has proven effective on bone mets, multiply that by the power of MDX and I see NED in your future. Fall is a great time to ride and you should be back in the saddle in plenty of time for a color tour.
Hang tuff,
Gary
Joined: Oct 2011
Hey Buddy
Oh, I'll be riding shortly. We have a ride planned to the Berkshires where we get a rueben that is so big it is served on an open plate. Plus it is at a brewhouse. Just down the street from Alice's restaurant. ( not too many members here will be familiar with Arlo's thanksgiving anti war protest song.) Besides, I don't want a pickle, .just want to ride my motorsickle." Thanx Gary. Fox.
You know, if I ever get a tattoo, maybe it will be "x's" at my radiation sites. Good idea.
Joined: Nov 2009
You can get ...
anything you want, at Alice's Restaurant...What I want is a healthy fox for another 30 years or so, we'll take a year at a time after that. Save a bite of that sandwich for me, I love ruebens.
Good luck today,
GAry
Joined: Feb 2012
Good luck
Fox,
Good luck and continue to kick butt. Then you can gt back on the bike.
Ed
Joined: Oct 2011
Damn yeah
Ed, I'll ride within a week. Maybe 2 at the most. What do you think about permanent tatts on the radiation marks? Like 6-8 black X's. That would get people wondering. Thanx.
Joined: Jul 2012
Tats
Hi there Fox;
re; your post dated Wed, 09/12/2012 - 4:09pm.
Like the idea of the X's over the radiation sites, or even little skull and cross bones. Keep up the inspirational attitude and give that disease hell!
Today, we are going to our Dr's for treatment options, and will definately be asking him about the MDX trials. It sounds soo much more palatable than the IL-2 program. Stay tuned.
Gary
Joined: Oct 2011
Skull and crossbones
Gary, thats a GREAT idea! Let us know about your visit today.
Joined: Mar 2012
Game Plan
Okay Clint - "MAKE OUR DAY". Stomp it!
Did I ever tell you your attitude is AWESOME?
Joined: Apr 2012
Fox
It sounds like your mind is right Fox, now go kick a little ASS!!
Joined: Oct 2011
My mind alright?
Well tacyarts, my mind is missing a few cells but I haven't missed them.It makes for a good excuse. Just can't stand the ECHOES! My 7 yo granddaughter came up to me last week. She held a piece of paper next to one of my ears. Me, my wife and my daughter wondered what the heck she was doing. Then she blew into my other ear. She then tweaked the paper as if the wind went right though. That was really funny! Thanks for the motivation. Fox.
Joined: Nov 2011
My mind
Fox the poster boy, Fox the entertainer - nobody like him, and we all know that ELF.
Joined: Oct 2011
AWESOME
Alice, you're embarrassing me. "pshaw.". I hope you got my last pm. I'm so impressed with your support to me and all of us here. I consider you a close friend. Now we have to "spice" up your dirty jokes a little. Thanx for being here. Good luck John. You know John has a special wife. I know how fortunate he is. My wife is special also. Actually, Today is our 37th anniversary! Love you. Fox.
Joined: Nov 2011
AWESOME Alice
You're absolutely right (except that we can't have our sophisticated Alice getting too risqué).
Congratulations on your Anniversary Foxy; we're 2 years behind you. Have a great day!
Joined: Nov 2011
Good Luck!
As I've said before, you are our resident RCC badass! Best of luck to you. KICK ASS!
--David
Joined: Jul 2012
Kick butt....
...like you need me/ us to remind you to do that ;)
BEST!
Joined: Oct 2011
Reminders
Thanks adman. We all need reminders. Now we need others to post more so we can share the support.
Joined: Oct 2011
Badass?
Probably not. It's just my Harley talking. I get a little jealous when I see you on your bike. I used to live for my bike. But through the years as time got less available, I parked my bike and ran more. I miss my bike. Anyway, thank you. Fox.
Joined: Jan 2012
SENDING LUCK
I am keeping you in my prayers as you have been such an inspiration to everyone on this site. I am amazed every time I read your posts. It is apparent to all of us that CANCER PICKED THE WRONG PERSON when it picked you. Keep us posted on your progress. We have all grown quite attached to you Fox.
Joined: Oct 2011
Thank You Jackie.
I have been very lucky. My up to now success has little to do with me. I have an excellent medical team who have the right skills. I'm just the dummy who never saw this coming. Now us bikers need to band together and "represent". Kidney cancer can go find some other whimps. We snear, snarl, and give the skink eye to cancer. I'm in a fighting mood now. Thanx Jackie. FLY.
Joined: Jun 2011
you'll kick it!
Hi Fox. This is just another bump in the road. I know you'll kick butt. I'm thinking of you and sending good, healing thoughts your way....
Jennifer
Joined: Feb 2009
Power UPppppp
Looks like you've got the gang cheering for you. Eyeryone concentrate your good wish messages to Fox.
But at least you could take your car to the Doc...think what would happen if a dog couldn't lift his leg.
Donna :)
Joined: Oct 2011
You've got me beat.
Donna, you are so far ahead of me in spitting in cancers eye. I'm only slopping up a good snot wad but you have launched and grind it in cancers face all the time. I'm sure we could share some good laughs at a "kegger". People would think we were nuts. And right they would be. My ability to cope uses you as an inspiration. You are as tough as they come. To some, I tip my hat. To you, I lift my leg. Love ya. Fox.
Joined: Oct 2011
Bump in the road?
Bikers don't like bumps. They get in our way. But they don't slow us down. Thanx Jenn. I aappreciate you sharing your motivation and healing thoughts. We do this together. Fox.
Joined: Oct 2011
thankx again
For some reason not all my responses posted in a proper order. I do want to thank you all individually. FLY!
Joined: Oct 2010
Shining
Attitude! You simply radiate positivity! I expect to hear some more glowing reports.
Seriously you rock!
Rae
Joined: Nov 2011
Posting
"....Damn, I just lost a half hour of typing. I was so eloquent too. Excellent Star Trek references. Can't do it twice."
We've all been here before, Fox. [But \\ //] Shucks, it pains me to think I'll never be able to see that Star Trek episode!
A while ago I posted some advice on not losing postings - so frustrating if one has taken time and trouble to write at length - but I overlooked the fact that what applies on a Mac doesn't necessarily work on a mere Windows PC. Now that I'm temporarily condemned to working on a machine with a Micro$oft OS perhaps I can remedy my earlier advice.
In Windows 7 (which many of us currently use) it's easy to avoid the disaster you (and, as a result, the rest of us Trekkies) suffered. When composing your posting, simply right click on your text and from the menu that comes up, select "Select All" - that should highlight your text in blue - then right click on that highlighted text again and this time select "Copy". That will save a copy (invisibly) to your 'clipboard'. If, when you post your comment, you're unlucky enough to lose it, you've got a copy ready. All you need to do is open the reply box again and right click in the empty space and select the "Paste" option. This will copy your posting back from the clipboard. BINGO!!
The clipboard can only hold one item at a time - it overwrites whatever is already there. So, if you're writing a long post, keep doing the same operation (it only takes a second or so and is so well worth it). For instance, I've just clipboarded this posting after "BINGO!!" and will do so again when I've finished writing this post to ensure I've saved the final full version.
Since the clipboard can only hold one item, if you have occasion to use this method of resurrecting a lost post, you'll need to type your subject title back in - if you saved the text and then, as an afterthought, went up and copied your title, you'd lose your copy of your text - ouch!!
Fox, since we all value your posts highly I'd be grateful if you could confirm that this works for you. If so, we can all rest easy and relax knowing we won't miss any more Star Trek refs or other pearls that you cast before your fans.
Joined: Oct 2011
copying
Tex, I've learned to copy all my texts to avoid losing them. It has saved many a post. But in this case I was responsible for hitting the back button or some such thing and I erased all my writing. I had Scotty beaming those buggers to Romulus and just about ready to have Worf kick ass. Those damn Ferrangis. Can't be trusted.
Joined: Nov 2011
copying
Yeah! Hitting the back button to check something or hitting the Post comment button at a bad time, before you've saved your message is fatal (unless you're using a Mac!). You have to get into the habit of always saving before you do anything else. Do you save it the way I suggested above? It's the quickest and easiest way, I believe.
Joined: Nov 2011
Shining/radiating
Good luck today Fox with the infusion and perhaps the zoledronic acid. Incidentally, did you ever drop acid? I can imagine it. I see the rebel getting out. You as The Wild One - Mildred asks Johnny what he's rebelling against and gets the unforgettable reply "Whaddya got?" Hell, you even look like the (young) Marlon Brando!
[Amazing to think that the actress (Mildred), Peggy Maley, had a bit part only 2 years later in the totally different, sublime, smuggling movie "Moonfleet" shot in sumptuous colour and set in 18C Dorset (S.W. coast of England) by one of my favourite film directors, Fritz Lang. Great cast, incl. Stewart Granger (forced to change his real name of James Stewart, for obvious reasons, by Hollywood), the always suave and dangerous George Sanders, the ever-bewitching Joan Greenwood, Viveca Lindfors, the delightful young Jon Whiteley and astonishingly way out of his familiar wild west outlaw roles, good old Jack Elam!
I suppose The Wild One and Moonfleet have one thing in common - pondering the character, morality and springs to action of anti-Establishment characters, whether 18C English smuggler or 20C biker gangleader. Maybe both, charisma aside, somewhat far-removed from a loving, caring, 21C Little Rock PT - ?]
Joined: Oct 2011
The colors man
Wow, the colors man. The colors. Gee, this food tastes sooo..good. Wow, the colors man.. We don't expose too much about the late 60's and 70's on the internet. But like they say, "If you remember the seventies, you probably weren't there." "Watch cha got?" love that line.
Joined: Oct 2011
Thanx Rae-Rae
Positivity or delusional? I just want to live to be as old as the Iceman and Wedgie. I can't imagine having been here long enough to have known Fred Flintstone on a first name basis. In my case I want to see Justin Beiber collect social security.