CSN Login
Members Online: 4

You are here

a very happy birthday! I just turned 2 UPDATED got cea 45 ouch !

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3908
Joined: Nov 2010

2 is my colorectal age.
it also reflects my english and grammar skills.

i was diagnosed on 3 june 2010, the day the old big peter died and the new healthy stronger pete was born.

I am into my 3rd year in this game.

I am enjoying the game, enjoying my days.

I went out with friends on saturday and sunday lunch and dinner and yumcha.

mostly steamed vegetable options that were delicious and a couple of prawn dumplings that were sensational.

saturday night we went german and i had steamed veg, sauerkraut and red cabbage. my old drinking friend ordered a 1 litre beer, so i did as well. except i said to leave the yeast and the hops out. so all i got was the filtered water. alas. I miss the bad habits of the old days, but i like my health and life today so much more.

i just wanted to mark the occaision. i am doing my markers tomorrow and a ct in a few weeks.

I am back to my diet, meditation, exercise and supplements and treatments. even got some IV C today. getting iv c tomorrow and wednesday as well. i have missed a few weeks.

hugs,
pete

ps i am reading a great book "the brain that changes everything" that i got for myself as a little present while doing the gawler adventure survival course.

UPDATED 6th of May.
thanks for the kind wishes.
kim said the terrible two's , well i think she maybe right.

got my CEA back 3pm today 45, that a 15 point increase in a month.
the biggest increase so far.

i really need to toughen up. i am contemplating what this means for my treatment strategy but i am gutted and disappointed that the lifestyle treatments i have been trying are not influencing the marker. in fact i have dropped iv vit c while travelling and doing retreats. i am wondering if its involved in the rise. when i had stability for a couple of months while on it.

doing some more meditation trying to find that elusive peace of mind. told my wife. told my confidant and expressed

hugs,
Pete

ps i hate bringing bad news to our lovelly forum, so this is actually good news because i am alive and typing and it could have been higher.

jjaj133's picture
jjaj133
Posts: 869
Joined: Mar 2011

Happy second birthday!!!!
Hugs, Judy

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3908
Joined: Nov 2010

I have always been childish, i prefer child like. remember jesus comment about the kingdom of heaven. well i am happy to think of myself as 2. if i live another 41 years i will get to 43. my age at diagnosis, that was the day that big Peter died for all intensive purposes. not a bad goal.

hugs,
pete

ps i have lost 52Kg of fat since diagnosis and put on a couple of kgs of muscle.

PhillieG's picture
PhillieG
Posts: 4912
Joined: May 2005

You don't look a day over 3 Pete!
Congrats!
-p

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3908
Joined: Nov 2010

i feel safe saying the same about you.
hugs,
pete

Annabelle41415's picture
Annabelle41415
Posts: 6692
Joined: Feb 2009

Glad you got to go out and celebrate. Wishing for many more to come. Just don't get stuck in those "terrible twos". :)

Kim

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3908
Joined: Nov 2010

its funny how a smile can travel half way around the world in the beat of a heart.
hugs,
pete

tommycat's picture
tommycat
Posts: 790
Joined: Aug 2011

I'm 2 and a half and hope to be 3 this October.
The oncologist said two years is pivotal as most mets happen within that time so we have a lot to celebrate!
Also, according to him, five years is the golden standard---if there are no reoccurances by then, chances are very very good there won't be any.
Here's to more happy healthy years.
Signed,
Your Older Sister
****Wait, I was dx in June 2009 but didn't have the big surgeries until Oct of that year. Does that make me 3?????

steveandnat's picture
steveandnat
Posts: 887
Joined: Sep 2011

Happy birthday to you!! Just think get to have two parties. Pray you have lots of birthdays. Jeff

annalexandria's picture
annalexandria
Posts: 2573
Joined: Oct 2011

And if that sounds like a bathroom joke, it was completely by accident! Shoot, that sounds like another...better stop while I'm ahead.

smokeyjoe
Posts: 1428
Joined: Feb 2011

Happy Happy Pete!!! Tommycat, your onc. told you this about reoccurrence?? I've heard it said before somewhere. Is this for stage 3's or all stages. Wonder does this time start when you finish chemo. or does it start from time of diagnosis surgeries??

Cathleen Mary
Posts: 827
Joined: May 2011

Enjoy life! It is an anniversary well worth celebrating, Congrats!

Cathleen Mary

ron50's picture
ron50
Posts: 1729
Joined: Nov 2001

From a teenager :) Ron.

tommycat's picture
tommycat
Posts: 790
Joined: Aug 2011

nice Ron!
Smokey Joe, yes, that's what the onc said.....

steved
Posts: 835
Joined: Apr 2004

We all need reasons to celebrate along this journey so enjoys yours.

I did wonder with the rising CEA are you still having any regular scans, scopes to ensure no other signs indicative of recurrence? Appreciate CEA is a fairly useless marker for many of us but rises need to be noted and considerationa s to whether they indicate the need for further checks?

Enjoy your foray into the non-vegan world (those prawn dumplings sure sound great)- will raise a toast to your second birthday here in the UK,

steve

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3908
Joined: Nov 2010

hi steve,

and cheers back to you in the UK.
got another ct this week, its been 2 months since the last.

started on gcmaf yesterday, got a runny nose.
$170 dollars aud a week , planning for a 30 weeks program. we are stuffed financially but i have no will power when more alternative doctor smiles and says this is worth a shot.

i need to sell assets but so far wife not agreeing.

its only money i keep telling myself. the compound interest on the credit cards is about as scary as the rate of cea rise.

its taking a while to get the emotions of fear, frustration and dissapointment under control.

anyway thats life downunder. i am questioning many aspects of the alternative program i am on.

the only good news is that my gut dysbios is back big time, that my over zealous enemas may have upset my gut bacteria. certainly got some symptoms leakage, gas etc etc recently. that i should have realised was a problem with gut bacteria. so maybe these are somehow related to my rising cea.

still sticking to the vegan diet, but its on a short leash.

my peace of mind has deserted me momentarily, like my mobile phone for 24 hours.

i think loosing my phone and my contacts, recordings and photos was as stressful the cea rise.

how a test result can tip my world upside down is intriuging for me. i need to realise is still am well, have no symptoms and great health. to let a test result dampen my mood is kind silly, i don't want to ignore the result, just deal with the result appropriately.

i am going to have to come up with a good framework for coping with "setup backs", thats what the alternative crowd call normal tumour progression.

just a few randon thoughts here, soon the peace of sleep, it can come a minute to soon.

hugs,
pete

tommycat's picture
tommycat
Posts: 790
Joined: Aug 2011

Very very sorry to hear this Pete. You are stronger now than last time so that has to work in your favor.
Tommycat

smokeyjoe
Posts: 1428
Joined: Feb 2011

So, when do you have scans next?? If they show nothing then I suppose you have something other than cancer making this number go up.

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3908
Joined: Nov 2010

ct scan this week, i like your logic i pray your are correct. any other cuase of the cea rise would be welcome.
time will tell.

getting lots of great care, here, at home and by my doctors alt and conventional.

and tommy, yes stronger mentally, spiritually and physically and biologically.

my liver readings are amazing. some cellular tests said i had the cellular metabolism of an olympic athlete. so maybe the vegan experiment has had some benefits, if not stoppingthe cea rise. who knows. i feel great, not so worried now, just amazed at the challenges life keeps on throwing me, i guess throwing all of us.

smile girls its a beautiful winters day here, off to the park with the kids.
my 10 year old girl hang out the washing this morning with the 6 year old. i am training them to help mum if i go back for surgery.

hugs,
pete

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3908
Joined: Nov 2010

ct scan this week, i like your logic i pray your are correct. any other cuase of the cea rise would be welcome.
time will tell.

getting lots of great care, here, at home and by my doctors alt and conventional.

and tommy, yes stronger mentally, spiritually and physically and biologically.

my liver readings are amazing. some cellular tests said i had the cellular metabolism of an olympic athlete. so maybe the vegan experiment has had some benefits, if not stoppingthe cea rise. who knows. i feel great, not so worried now, just amazed at the challenges life keeps on throwing me, i guess throwing all of us.

smile girls its a beautiful winters day here, off to the park with the kids.
my 10 year old girl hang out the washing this morning with the 6 year old. i am training them to help mum if i go back for surgery.

hugs,
pete

jjaj133's picture
jjaj133
Posts: 869
Joined: Mar 2011

Pete, I am so sorry to "hear" this. I admire your stamina, fortitude & just down right determination. Will be praying it is something else raising the CEA.
Hugs,
Judy

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3908
Joined: Nov 2010

i appreciate the admiration, our light only shines amongst our friends and not in a vaccum.
i was sorry for a bit, but now am happy, i am breathing and smiling and making vegan rumballs in the kitchen with wife.

test results have a use, but well i am looking forward to the rumballs and the evening.

i do wonder where my determination has come from, often, i have had lots of challenges to get me ready for the current challenge.

a little appreciation goes along way, so does praise and simple thanks.

so thanks again judy for sharing the highs and the lows.

hugs,
pete

pepebcn's picture
pepebcn
Posts: 6352
Joined: Aug 2010

Hope your scans become much better ! I will pray for that!
Hugs.

JayhawkDan's picture
JayhawkDan
Posts: 206
Joined: Apr 2012

Pete -- you're an inspiration and I appreciate your thoughts, fears and hopes. Since my original devastating dx, all my tests and scans (I'm a baby, 18 weeks) have been positive, but I know there will ups and downs. What I read from you and the other great people on this board help me understand and prepare for what lies ahead. Best wishes to you, my friend. Dan

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3908
Joined: Nov 2010

devastating is a good word for our dx's.

bit like the iceberg and titanic.

i guess some of sink fast and some of us make it to port for repairs.

i pray we are all the latter.

i started meditation seeking a cure, for its curative benefit based on alkternative studies and theories.

of course i still want this dearly, but it gives me a new insight into my life and all that that means. i my own way i am seeking a deeper spirituality, i would call it enlightenment.

so your a zero, i am a two year old and craig is an eight year old.

your experience is a valuable as mine, as craigs all for different reasons.
you have alot to offer us all. its a steep learning curve and our journeys are different but i would encourage you to seek out all the positives you can find, often in the most unlikely places and of course, their is no day better than today.

time heals and protects, our memories of pain and fear and of hope.

i should reminisce more the life before dx, my imaginery immortality. now that was an illusion waiting to be smashed. like i guess most of ours was at dx. i am smiling, my biggest problem was either what pizza to order or where to go diving.

now i contemplate what world have i contributed to.

its late and my chick peas are boiling.

hugs,
pete

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3908
Joined: Nov 2010

we have done many many miles together.
now the prayer i appreciate, i know god understands spanish.

at mass this morning my priest asked how i am.
i said great but need a miracle.
he just smiled, i think he has ordered one just for me.

i aim to start every meditation with a prayer.

telling my god my troubles and dreams gets them out of my heart and into the universe.

i wonder if anyone was ever healed if they did not ask for it ?

i will also remember you this week pepe.

hugs,
pete

Phil64's picture
Phil64
Posts: 837
Joined: Apr 2012

Pete, I hope your CT Results show you doing well! God Bless. Phil

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3908
Joined: Nov 2010

me too

hugs,
pete

Kenny H.'s picture
Kenny H.
Posts: 503
Joined: Aug 2010

Happy birthday Pete, (Im just a month ahead of you) Sorry to hear of the cea climb after all that healthy lifestyle. But its all a roller coaster ride.

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3908
Joined: Nov 2010

At least another playmate in the terrible 2s.

I could call iit the terrible number twos, because I am right now in the bath after destroying another nappy.

Its a great day to be here.

Hugs,
Pete

janie1
Posts: 753
Joined: Apr 2011

I follow what you do with great interest and hope. While some of the things you do don't seem like they can hurt (and may be very beneficial in this fight against this damn disease), the one thing that worried me about what you were doing were the enemas.

It sounded like you were doing those routinely for a while. Curious what any of the alternative docs thought or recommended about enemas. Were they ok with doing those so much, or did you decide more for yourself how much of those to do.?

In my elementary explanation, I know that enemas mess with the electrolyte balance of the body. Also, would seem then, that that would mess-up the immune function, which is the very thing you are trying to rev-up.

If the GI tract is important for immune function, that is the last thing I would be trying to regulate. I know you are thinking of enemas as a de-tox, but I think there are better, milder detoxes (i think sweating is a great one). It seems like enemas clearly would change the "eco-system" of your immune system.
And you know what happens when you play with mother natures' eco-system.
(Although, I can see where probiotics could be beneficial, especially after antibiotics, and even chemo, but enemas??? No way.)

I'm still thinking your Cea reflects way too much stress and confusion to your body. Hang in there, meditate, and please "no more enemas"......pretty please. :)

Subscribe to Comments for "a very happy birthday! I just turned 2 UPDATED got cea 45 ouch !"