a very happy birthday! I just turned 2 UPDATED got cea 45 ouch !

pete43lost_at_sea
pete43lost_at_sea Member Posts: 3,900 Member
edited June 2012 in Colorectal Cancer #1
2 is my colorectal age.
it also reflects my english and grammar skills.

i was diagnosed on 3 june 2010, the day the old big peter died and the new healthy stronger pete was born.

I am into my 3rd year in this game.

I am enjoying the game, enjoying my days.

I went out with friends on saturday and sunday lunch and dinner and yumcha.

mostly steamed vegetable options that were delicious and a couple of prawn dumplings that were sensational.

saturday night we went german and i had steamed veg, sauerkraut and red cabbage. my old drinking friend ordered a 1 litre beer, so i did as well. except i said to leave the yeast and the hops out. so all i got was the filtered water. alas. I miss the bad habits of the old days, but i like my health and life today so much more.

i just wanted to mark the occaision. i am doing my markers tomorrow and a ct in a few weeks.

I am back to my diet, meditation, exercise and supplements and treatments. even got some IV C today. getting iv c tomorrow and wednesday as well. i have missed a few weeks.

hugs,
pete

ps i am reading a great book "the brain that changes everything" that i got for myself as a little present while doing the gawler adventure survival course.

UPDATED 6th of May.
thanks for the kind wishes.
kim said the terrible two's , well i think she maybe right.

got my CEA back 3pm today 45, that a 15 point increase in a month.
the biggest increase so far.

i really need to toughen up. i am contemplating what this means for my treatment strategy but i am gutted and disappointed that the lifestyle treatments i have been trying are not influencing the marker. in fact i have dropped iv vit c while travelling and doing retreats. i am wondering if its involved in the rise. when i had stability for a couple of months while on it.

doing some more meditation trying to find that elusive peace of mind. told my wife. told my confidant and expressed

hugs,
Pete

ps i hate bringing bad news to our lovelly forum, so this is actually good news because i am alive and typing and it could have been higher.
«1

Comments

  • jjaj133
    jjaj133 Member Posts: 867 Member
    #2
    Happy second
    Happy second birthday!!!!
    Hugs, Judy
  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    #3
    jjaj133 said:

    Happy second
    Happy second birthday!!!!
    Hugs, Judy

    thanks judy
    I have always been childish, i prefer child like. remember jesus comment about the kingdom of heaven. well i am happy to think of myself as 2. if i live another 41 years i will get to 43. my age at diagnosis, that was the day that big Peter died for all intensive purposes. not a bad goal.

    hugs,
    pete

    ps i have lost 52Kg of fat since diagnosis and put on a couple of kgs of muscle.
  • PhillieG
    PhillieG Member Posts: 4,866 Member
    #4
    Wow
    You don't look a day over 3 Pete!
    Congrats!
    -p
  • Annabelle41415
    Annabelle41415 Member Posts: 6,742 Member
    #5
    Happy Happy Birthday
    Glad you got to go out and celebrate. Wishing for many more to come. Just don't get stuck in those "terrible twos". :)

    Kim
  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    #6
    Annabelle41415 said:

    Happy Happy Birthday
    Glad you got to go out and celebrate. Wishing for many more to come. Just don't get stuck in those "terrible twos". :)

    Kim

    not to bad kim
    its funny how a smile can travel half way around the world in the beat of a heart.
    hugs,
    pete
  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    #7
    PhillieG said:

    Wow
    You don't look a day over 3 Pete!
    Congrats!
    -p

    thanks phil
    i feel safe saying the same about you.
    hugs,
    pete
  • tommycat
    tommycat Member Posts: 790 Member
    #8
    pete43lost_at_sea said:

    not to bad kim
    its funny how a smile can travel half way around the world in the beat of a heart.
    hugs,
    pete

    Hey Pete, I'm older than you :)
    I'm 2 and a half and hope to be 3 this October.
    The oncologist said two years is pivotal as most mets happen within that time so we have a lot to celebrate!
    Also, according to him, five years is the golden standard---if there are no reoccurances by then, chances are very very good there won't be any.
    Here's to more happy healthy years.
    Signed,
    Your Older Sister
    ****Wait, I was dx in June 2009 but didn't have the big surgeries until Oct of that year. Does that make me 3?????
  • steveandnat
    steveandnat Member Posts: 886
    #9
    good way to think
    Happy birthday to you!! Just think get to have two parties. Pray you have lots of birthdays. Jeff
  • annalexandria
    annalexandria Member Posts: 2,571 Member
    #10
    Happy number two, Pete!
    And if that sounds like a bathroom joke, it was completely by accident! Shoot, that sounds like another...better stop while I'm ahead.
  • smokeyjoe
    smokeyjoe Member Posts: 1,425 Member
    #11
    annalexandria said:

    Happy number two, Pete!
    And if that sounds like a bathroom joke, it was completely by accident! Shoot, that sounds like another...better stop while I'm ahead.

    Happy Happy Pete!!!
    Happy Happy Pete!!! Tommycat, your onc. told you this about reoccurrence?? I've heard it said before somewhere. Is this for stage 3's or all stages. Wonder does this time start when you finish chemo. or does it start from time of diagnosis surgeries??
  • Cathleen Mary
    Cathleen Mary Member Posts: 827 Member
    #12
    smokeyjoe said:

    Happy Happy Pete!!!
    Happy Happy Pete!!! Tommycat, your onc. told you this about reoccurrence?? I've heard it said before somewhere. Is this for stage 3's or all stages. Wonder does this time start when you finish chemo. or does it start from time of diagnosis surgeries??

    Celebrate!

    Enjoy life! It is an anniversary well worth celebrating, Congrats!

    Cathleen Mary
  • ron50
    ron50 Member Posts: 1,723 Member
    #13
    Happy Birthday
    From a teenager :) Ron.
  • tommycat
    tommycat Member Posts: 790 Member
    #14
    ron50 said:

    Happy Birthday
    From a teenager :) Ron.

    :)
    nice Ron!
    Smokey Joe, yes, that's what the onc said.....
  • steved
    steved Member Posts: 834 Member
    #15
    A reason to celebrate
    We all need reasons to celebrate along this journey so enjoys yours.

    I did wonder with the rising CEA are you still having any regular scans, scopes to ensure no other signs indicative of recurrence? Appreciate CEA is a fairly useless marker for many of us but rises need to be noted and considerationa s to whether they indicate the need for further checks?

    Enjoy your foray into the non-vegan world (those prawn dumplings sure sound great)- will raise a toast to your second birthday here in the UK,

    steve
  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    #16
    steved said:

    A reason to celebrate
    We all need reasons to celebrate along this journey so enjoys yours.

    I did wonder with the rising CEA are you still having any regular scans, scopes to ensure no other signs indicative of recurrence? Appreciate CEA is a fairly useless marker for many of us but rises need to be noted and considerationa s to whether they indicate the need for further checks?

    Enjoy your foray into the non-vegan world (those prawn dumplings sure sound great)- will raise a toast to your second birthday here in the UK,

    steve

    thanks heaps steve
    hi steve,

    and cheers back to you in the UK.
    got another ct this week, its been 2 months since the last.

    started on gcmaf yesterday, got a runny nose.
    $170 dollars aud a week , planning for a 30 weeks program. we are stuffed financially but i have no will power when more alternative doctor smiles and says this is worth a shot.

    i need to sell assets but so far wife not agreeing.

    its only money i keep telling myself. the compound interest on the credit cards is about as scary as the rate of cea rise.

    its taking a while to get the emotions of fear, frustration and dissapointment under control.

    anyway thats life downunder. i am questioning many aspects of the alternative program i am on.

    the only good news is that my gut dysbios is back big time, that my over zealous enemas may have upset my gut bacteria. certainly got some symptoms leakage, gas etc etc recently. that i should have realised was a problem with gut bacteria. so maybe these are somehow related to my rising cea.

    still sticking to the vegan diet, but its on a short leash.

    my peace of mind has deserted me momentarily, like my mobile phone for 24 hours.

    i think loosing my phone and my contacts, recordings and photos was as stressful the cea rise.

    how a test result can tip my world upside down is intriuging for me. i need to realise is still am well, have no symptoms and great health. to let a test result dampen my mood is kind silly, i don't want to ignore the result, just deal with the result appropriately.

    i am going to have to come up with a good framework for coping with "setup backs", thats what the alternative crowd call normal tumour progression.

    just a few randon thoughts here, soon the peace of sleep, it can come a minute to soon.

    hugs,
    pete
  • tommycat
    tommycat Member Posts: 790 Member
    #17
    pete43lost_at_sea said:

    thanks heaps steve
    hi steve,

    and cheers back to you in the UK.
    got another ct this week, its been 2 months since the last.

    started on gcmaf yesterday, got a runny nose.
    $170 dollars aud a week , planning for a 30 weeks program. we are stuffed financially but i have no will power when more alternative doctor smiles and says this is worth a shot.

    i need to sell assets but so far wife not agreeing.

    its only money i keep telling myself. the compound interest on the credit cards is about as scary as the rate of cea rise.

    its taking a while to get the emotions of fear, frustration and dissapointment under control.

    anyway thats life downunder. i am questioning many aspects of the alternative program i am on.

    the only good news is that my gut dysbios is back big time, that my over zealous enemas may have upset my gut bacteria. certainly got some symptoms leakage, gas etc etc recently. that i should have realised was a problem with gut bacteria. so maybe these are somehow related to my rising cea.

    still sticking to the vegan diet, but its on a short leash.

    my peace of mind has deserted me momentarily, like my mobile phone for 24 hours.

    i think loosing my phone and my contacts, recordings and photos was as stressful the cea rise.

    how a test result can tip my world upside down is intriuging for me. i need to realise is still am well, have no symptoms and great health. to let a test result dampen my mood is kind silly, i don't want to ignore the result, just deal with the result appropriately.

    i am going to have to come up with a good framework for coping with "setup backs", thats what the alternative crowd call normal tumour progression.

    just a few randon thoughts here, soon the peace of sleep, it can come a minute to soon.

    hugs,
    pete

    :(
    Very very sorry to hear this Pete. You are stronger now than last time so that has to work in your favor.
    Tommycat
  • smokeyjoe
    smokeyjoe Member Posts: 1,425 Member
    #18
    tommycat said:

    :(
    Very very sorry to hear this Pete. You are stronger now than last time so that has to work in your favor.
    Tommycat

    So, when do you have scans
    So, when do you have scans next?? If they show nothing then I suppose you have something other than cancer making this number go up.
  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    #19
    smokeyjoe said:

    So, when do you have scans
    So, when do you have scans next?? If they show nothing then I suppose you have something other than cancer making this number go up.

    thanks tommy and smokeyjoe
    ct scan this week, i like your logic i pray your are correct. any other cuase of the cea rise would be welcome.
    time will tell.

    getting lots of great care, here, at home and by my doctors alt and conventional.

    and tommy, yes stronger mentally, spiritually and physically and biologically.

    my liver readings are amazing. some cellular tests said i had the cellular metabolism of an olympic athlete. so maybe the vegan experiment has had some benefits, if not stoppingthe cea rise. who knows. i feel great, not so worried now, just amazed at the challenges life keeps on throwing me, i guess throwing all of us.

    smile girls its a beautiful winters day here, off to the park with the kids.
    my 10 year old girl hang out the washing this morning with the 6 year old. i am training them to help mum if i go back for surgery.

    hugs,
    pete
  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    #20
    smokeyjoe said:

    So, when do you have scans
    So, when do you have scans next?? If they show nothing then I suppose you have something other than cancer making this number go up.

    thanks tommy and smokeyjoe
    ct scan this week, i like your logic i pray your are correct. any other cuase of the cea rise would be welcome.
    time will tell.

    getting lots of great care, here, at home and by my doctors alt and conventional.

    and tommy, yes stronger mentally, spiritually and physically and biologically.

    my liver readings are amazing. some cellular tests said i had the cellular metabolism of an olympic athlete. so maybe the vegan experiment has had some benefits, if not stoppingthe cea rise. who knows. i feel great, not so worried now, just amazed at the challenges life keeps on throwing me, i guess throwing all of us.

    smile girls its a beautiful winters day here, off to the park with the kids.
    my 10 year old girl hang out the washing this morning with the 6 year old. i am training them to help mum if i go back for surgery.

    hugs,
    pete
  • jjaj133
    jjaj133 Member Posts: 867 Member
    #21
    Pete, I am so sorry to
    Pete, I am so sorry to "hear" this. I admire your stamina, fortitude & just down right determination. Will be praying it is something else raising the CEA.
    Hugs,
    Judy

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