Two weeks post-op today!

Options
New here, so a bit of background. I am 54 and on February 14th went in for my annual mammogram. (Great way to "love myself", right?)

On the 15th I got the callback. I've had those several times for this and that, so really was not terribly concerned, but when I went in the radiologist showed me the pictures - calcifications were definitely something that had never before been mentioned. So, more imaging on the 16th, a stereotactic biopsy on the 20th, and on the 22nd, "We found cancer. I'm so sorry."

Wow. Cancer. Me? They must have the wrong patient. They mixed up the records. This can't be happening. Yet, there were the nurse, the radiology tech, both coming over to hold and hug me, the radiologist holding my hand, the looks of compassion in their eyes.

I heard, "It's an early stage. If you have to have breast cancer, this is the one to have." I'm thinking, "What - like being a little bit pregnant?"

I didn't cry. I got dressed (had been there to try to drain a large hematoma that had developed during the biopsy), drove myself home, called my man-friend, whom I was living with at the time, and tried to process what I'd heard.

The next month was a whirlwind. The relationship with "John" deteriorated. I had to tell my children, including my daughter, who is pregnant with their third child (that was the hardest!). I missed my husband terribly (after 34 years together, he'd suffered a sudden heart attack in 2007 and passed away). My son and daughter-in-law wanted me to come to stay with them for a time - I knew that I would need the help, I knew the relationship with "John" was unsustainable, so I packed up my things and left to move from relatively rural Wisconsin to Minneapolis. In the process, my DIL, an RN, urged me to seek a second opinion.

So glad that I did that! At the Piper Breast Center, they took another look at my mammogram images and found several additional areas of suspicious calcification. An MRI showed another lesion on the other side of the breast. The "lumpectomy" that the Wisconsin surgeon I'd seen one time would not be happening; I needed a mastectomy.

It was DCIS - yes, if one has to have breast cancer, that's the one to have. Grade 3, though, and rather widespread, which meant that they really wanted to get things moving quickly.

I had to make the very difficult decision to find a new home (and I found a fabulous one!) for the springer spaniel puppy I'd gotten for Christmas. He was only 5 months old and very much still a puppy - I knew I could not care for him, complete his training, etc. with all I'd be going through. He needed more than I could give. It was heartbreaking, but his new dad stays in daily touch, sends lots of photos and videos, has promised to bring him back for a visit when I'm up for it... and I am invited there, as well, to visit Gabriel anytime. His new dad is planning to train Gabriel as a therapy dog. He'll make a great one!

I spent the next couple of weeks scrambling around to change insurance companies, making the usual round of appointments - Internal Med doc for the pre-surgical consult, surgeon who would perform the mastectomy, plastic surgeon, coordinators, an MRI of my lower back because of ongoing pain (found a torn and herniated disk plus a little fracture in the sacrum; I fell in January), a bone scan. In the process, I ended up opting for bilateral mastectomy. Turned out to be a wiser choice than I'd thought when the final pathology reports came back - in addition to the DCIS, they found LCIS. I have no regrets about that.

And I waited. For this test result, for that test result. It was maddening, all of that waiting.

On March 16th, I had the surgery. Everyone was wonderful at the hospital. I went home the 18th. The first week was pretty brutal (in retrospect, I wish I'd not tried to be so stoic and taken the pain pills more regularly, but I don't like the things). My family was as supportive as can be - I had a built-in private nurse in my RN daughter-in-love, and another dear RN friend came to stay for a few days to give Amanda a break when she had to return to work. Another son came from Madison to stay as well and was there while I was in the hospital. I have to say I have wonderful children!

Things are going well. I think I will be getting the drains out today. Having been on estrogen for 8 years since a hysterectomy with ovary removal, naturally that had to be suddenly stopped, so I am going through a rather sudden menopause-like experience, but that has been fairly mild.

I chose to start reconstruction (I will have implants) immediately. The tissue expanders are in place and hopefully within a couple of weeks I'll start the fill process. (The PS did fill them a bit during the initial procedure, so I'm not totally flat, but not quite an "A" and I was a "C-" before).

There have been a couple of bumps in the road - some problems from the antibiotics, a bit of an infection at one of the drain sites, and some I brought on myself by trying to be Superwoman - but all in all I think I'm doing great, physically.

Emotionally - it varies from day to day. Some days I feel strong, have a sense of humor about the whole thing, and other days I spend crying and don't even feel like getting dressed. I suppose all of the recent losses and chaos, plus aftereffects of the surgery, plus hormonal changes, plus some depression I've had for years... well, I guess I'm doing well in the emotional realm as well, considering.

There's still a lot ahead, and I hope to find friends here to share the journey with. I have big shoulders and a big heart and I'm sure you do, as well, so none of us has to be alone.

Icefishinglady (yes, I really do fish through holes in ice, and fish for muskies and bass in the summertime, and am a pretty good shot, too, LOL)
«1

Comments

  • Melaniedoingwell
    Melaniedoingwell Member Posts: 80
    Options
    ice fishing - BRRR!
    Thus speaks a Florida girl!!

    Hang in there! This whole breast cancer thing is SUCH a gordian knot!!

    I had bilateral mastectomy Feb 16th 2011. Thus far I have chosen not to have reconstruction.

    I had Invasive Ductal Carcinoma - stage 3A on the right and questionable "shadow" on the left. I chose bilat because I am NOT going through this again!!! Chemo, radx - ooh fun!

    I was triple positive - with very high numbers for receptors and I have one more Herceptin infusion to go.

    There will be plenty of ups AND downs ahead of you. Look for the good - I don't mean to sound like Pollyanna and nonetheless - I have found many blessings while walking down this difficult path. You will too!!

    God bless

    Melanie
  • disneyfan2008
    disneyfan2008 Member Posts: 6,583 Member
    Options
    funny you say: best one to
    funny you say: best one to have! My Dr told me over the phone his exact words were:
    "not GOOD but not Bad DCIS" that was it..I got off phone got online and saw the words CANCER....!

    Denise
  • disneyfan2008
    disneyfan2008 Member Posts: 6,583 Member
    Options
    DCIS: did you have
    DCIS: did you have lumpectomy? I see you stayed over?

    Sorry going through all this...and of your loses etc...

    you have found the right place to vent , share and make friendships

    oppps I re read and see 2nd opinion..

    Denise
  • icefishinglady
    icefishinglady Member Posts: 15
    Options

    DCIS: did you have
    DCIS: did you have lumpectomy? I see you stayed over?

    Sorry going through all this...and of your loses etc...

    you have found the right place to vent , share and make friendships

    oppps I re read and see 2nd opinion..

    Denise

    Disneyfan2008 - re: DCIS
    Had I stayed in Wisconsin, they WERE going to do a smallish lumpectomy with wire localization. VERY thankful that I got that second opinion!!! To go through this again, even though I know I have it VERY easy compared with some - no, thank you; I'd much rather not ;-). They may or may not have caught it through margins that weren't clean when the path results were in (in Wisconsin) - but very likely it would have meant total mastectomy anyway within a short period after the original "small lumpectomy".

    Thanks, everyone! Going in to get those drains removed this afternoon. Then I get to to pick up my car from the $hop, where they will take many of my dollars, but at least I'll have it back AND be able to drive again. (The PS said absolutely no driving 'til the drains are out - funny, to me, how disparate different doctors are in their prohibitions and allowances.)
  • icefishinglady
    icefishinglady Member Posts: 15
    Options

    ice fishing - BRRR!
    Thus speaks a Florida girl!!

    Hang in there! This whole breast cancer thing is SUCH a gordian knot!!

    I had bilateral mastectomy Feb 16th 2011. Thus far I have chosen not to have reconstruction.

    I had Invasive Ductal Carcinoma - stage 3A on the right and questionable "shadow" on the left. I chose bilat because I am NOT going through this again!!! Chemo, radx - ooh fun!

    I was triple positive - with very high numbers for receptors and I have one more Herceptin infusion to go.

    There will be plenty of ups AND downs ahead of you. Look for the good - I don't mean to sound like Pollyanna and nonetheless - I have found many blessings while walking down this difficult path. You will too!!

    God bless

    Melanie

    @Melaniedoingwell
    I'm so sorry that you have to go through all of that. I know that my journey is so easy compared to yours...

    And yes, I have already seen many blessings. I've always had a belief system that things happen for a reason, and it is for my ultimate good and growth that they happen. That does NOT stop me from getting the "whine me's" at times ;-). I suppose we all do that.

    If nothing else, it forced me to see just how bad that relationship was. When the first words out of his mouth once I said I had cancer and would need (as I thought at the time) lumpectomy and radiation were, "Don't expect me to use all of MY vacation time running you around for surgery and appointments!" - well, that was it for me. The End. (For the record, I never ASKED him to run me around, went for the biopsy alone, was alone on the day they gave me the path results and had someone else go to see the Wisconsin surgeon too...) (guess I knew he'd never be there for me, but to SAY that? GRRRR!)

    Then he said, "It's not like you're having an arm or a leg cut off!", when I started to cry...

    That is a blessing, though I still feel like he ran a hot poker through my very soul. And some anger. He called a few times after the surgery - twice a day, then once a day, then every other day, and now - nothing for two days. Some of my things are still at his place and I need to get them out - then I will go "no contact".
  • epark
    epark Member Posts: 339
    Options

    Disneyfan2008 - re: DCIS
    Had I stayed in Wisconsin, they WERE going to do a smallish lumpectomy with wire localization. VERY thankful that I got that second opinion!!! To go through this again, even though I know I have it VERY easy compared with some - no, thank you; I'd much rather not ;-). They may or may not have caught it through margins that weren't clean when the path results were in (in Wisconsin) - but very likely it would have meant total mastectomy anyway within a short period after the original "small lumpectomy".

    Thanks, everyone! Going in to get those drains removed this afternoon. Then I get to to pick up my car from the $hop, where they will take many of my dollars, but at least I'll have it back AND be able to drive again. (The PS said absolutely no driving 'til the drains are out - funny, to me, how disparate different doctors are in their prohibitions and allowances.)

    Hello...I just wanted to
    Hello...I just wanted to welcome you...this is an awesome form with wonderful women and men.....if you have questions or just want to talk you found the right place.

    Take care and God bless
    Eva
  • icefishinglady
    icefishinglady Member Posts: 15
    Options
    epark said:

    Hello...I just wanted to
    Hello...I just wanted to welcome you...this is an awesome form with wonderful women and men.....if you have questions or just want to talk you found the right place.

    Take care and God bless
    Eva

    Thank you, @epark!
    Thank you for the welcome. Much appreciated!
  • eihtak
    eihtak Member Posts: 1,473 Member
    Options

    Thank you, @epark!
    Thank you for the welcome. Much appreciated!

    Hi icefishinglady....
    So great to hear your story, but also sorry at the same time! I also live in Wisconsin and in Feb. was diagnosed with a rare "secretory carcinoma" of the breast. This after one year out of treatment (chemo/rad) for Stage 3 Anal Cancer. The news of the breast cancer came as I was told I was NED (no evidence of disease) on the Anal cancer. Talk about a rollercoaster. I had a double mastectomy 1.5 weeks ago and just had my drains out yesterday. I am sore also, and still dealing with some long-term side effects from anal cancer, but as you have some good days along with the bad. I'm glad you made the move to a new place and new doctor. It's so important to have a trusting relationship with the hand that holds the knife!!!! I am lucky, I checked out doctors with my earlier cancer and had time to develop a good team, and now feel safe with their recommendations. Can I ask, who or at least where you were first seen in Wisconsin?? I hope you find the support and advice at this site as helpful as I have. There are people here to come to who have been there and done that and not only read about it in a medical journal. Welcome, and as all you are in my prayers for a long healthy life!
  • jessiesmom1
    jessiesmom1 Member Posts: 915 Member
    Options
    Welcome to the Club
    Welcome to the club that no one really wants to join. I joined a little over 2 years ago when I was diagnosed with breast cancer - Stage IIa, grade 3, triple negative. I had an an axillary dissection, right mastectomy with tissue expander placed, a port implanted/removed, 16 rounds of chemo and two reconstruction surgeries. So as you see I have a little experience in the realm of breast cancer. I am married and my children were 17 and 19 at the time of my diagnosis. Your children sound absolutely wonderful. Not everyone on this board has the kind of family support you (and I) were so lucky to have. Sounds to me like you were well rid of that "significant other." As others have said, this discussion board is a great source of information and support. No matter what your issue may be, someone here has some sort of relevant experience that they can share with you.

    Please post again and let us know how you are doing.

    IRENE
  • susie09
    susie09 Member Posts: 2,930
    Options
    epark said:

    Hello...I just wanted to
    Hello...I just wanted to welcome you...this is an awesome form with wonderful women and men.....if you have questions or just want to talk you found the right place.

    Take care and God bless
    Eva

    I'd like to welcome you also
    I'd like to welcome you also to the club that no one wants to join. But, you've found an amazing group of pink sisters that will surround you with love and support.

    Good luck to you!
  • cinnamonsmile
    cinnamonsmile Member Posts: 1,187 Member
    Options
    Popping in here to say hi to
    Popping in here to say hi to the other Wisconsin ladies! I am a central Wisconsin lady here. And I love ice fishing, too. This past winter was the first time I could go since last winter was full of cancer crap. We fish mainly walleyes and bass in the spring, summer and fall! This year the weather was bad around here for ice fishing, but I got to go a few times. Anyway, here's a Go Pack Go for WI!!!(We did spend five or six nights at a friend's shack up in northern WI, of course that was the week that was below zero up there and I had to use the outhouse with no heat!!! Talk about taking care of business fast lol).
  • Alexis F
    Alexis F Member Posts: 3,598
    Options
    epark said:

    Hello...I just wanted to
    Hello...I just wanted to welcome you...this is an awesome form with wonderful women and men.....if you have questions or just want to talk you found the right place.

    Take care and God bless
    Eva

    Saying hi and throwing the
    Saying hi and throwing the welcome mat out to you.


    Hugs, Lex
  • laughs_a_lot
    laughs_a_lot Member Posts: 1,368 Member
    Options
    Wow
    I love your name. I haven't been ice fishing since my dad took me at age 9. I am a Michigander and we would go up north. He would watch the temperatures for a week and determine if he could take the station wagon out on the ice to get to the shanty. I am the same way about watching the temperatures for a week to decide if I can go on the local lakes and ponds for ice skating.

    I am almost exactly a year ahead of you in the journey. I only had to have a lumpectomy. I have had some minor scares along the way. I had some calcifications that were taken out in Jan of this year that turned out to be merely scar tissue. I also had a thikening of the lumpectomy breast but the surgeon examined it and stated that this was from the radiation therapy and it was not out of the ordinary.

    I understand about the depression. Just being up north with less sunshine is a factor that can exacerbate this. Family history and life circumstances can also have some bearing on the issue. Then if you throw in breast cancer well that is a major psychological blow to deal with. If you are currently on medication for this and it is not working well be sure to ask for a med change rather than just deciding not to take medication. You can probably tell by now that I work in mental health. I never used to believe in medication but was more on the side of counselling however, I have changed my mind over the years as I can see that for some it makes a big difference.

    I was fairly stoic myself. It seems to come from my upbringing. When I cry it is in the car. Not the big boo hoo sort of crying. More like the leaking of tears crying. This is a good thing since I am driving after all. I have always seen myself as "the little engine that could" like the kids book that Captain Kangaroo used to read on his show.

    Wishing you a hearty welcome and hoping you can continue to bear up well, as it seems you already have done fairly well. It sounds like you are a gal that rolls with the punches.
  • laughs_a_lot
    laughs_a_lot Member Posts: 1,368 Member
    Options
    Wowsers
    Reading through some of the other replies I realized we have a lot of northern gals on this site. I thought there might only be one other one. Perhaps some time we can get together for a northerner gals lunch. Think it over ladies and see what you think. Once the weather is good is what I mean.
  • icefishinglady
    icefishinglady Member Posts: 15
    Options
    eihtak said:

    Hi icefishinglady....
    So great to hear your story, but also sorry at the same time! I also live in Wisconsin and in Feb. was diagnosed with a rare "secretory carcinoma" of the breast. This after one year out of treatment (chemo/rad) for Stage 3 Anal Cancer. The news of the breast cancer came as I was told I was NED (no evidence of disease) on the Anal cancer. Talk about a rollercoaster. I had a double mastectomy 1.5 weeks ago and just had my drains out yesterday. I am sore also, and still dealing with some long-term side effects from anal cancer, but as you have some good days along with the bad. I'm glad you made the move to a new place and new doctor. It's so important to have a trusting relationship with the hand that holds the knife!!!! I am lucky, I checked out doctors with my earlier cancer and had time to develop a good team, and now feel safe with their recommendations. Can I ask, who or at least where you were first seen in Wisconsin?? I hope you find the support and advice at this site as helpful as I have. There are people here to come to who have been there and done that and not only read about it in a medical journal. Welcome, and as all you are in my prayers for a long healthy life!

    @eihtak -
    I was in Eau Claire, Wisconsin when the cancer was discovered and being seen at the Marshfield Clinic facility there.

    Congratulations on the NED designation, but I am so sorry that you got this double whammy. I'm two weeks and a day out from surgery now. Tired a lot. Happy to have those drains out yesterday. Want to feel better and have my energy back NOW, LOL (patience is a virtue, but I'm not very good at it).
  • icefishinglady
    icefishinglady Member Posts: 15
    Options

    Welcome to the Club
    Welcome to the club that no one really wants to join. I joined a little over 2 years ago when I was diagnosed with breast cancer - Stage IIa, grade 3, triple negative. I had an an axillary dissection, right mastectomy with tissue expander placed, a port implanted/removed, 16 rounds of chemo and two reconstruction surgeries. So as you see I have a little experience in the realm of breast cancer. I am married and my children were 17 and 19 at the time of my diagnosis. Your children sound absolutely wonderful. Not everyone on this board has the kind of family support you (and I) were so lucky to have. Sounds to me like you were well rid of that "significant other." As others have said, this discussion board is a great source of information and support. No matter what your issue may be, someone here has some sort of relevant experience that they can share with you.

    Please post again and let us know how you are doing.

    IRENE

    @jessiesmom1
    Yes, I am very blessed by friends and family who have been my "rocks".

    And well rid of the SO, though I have yet to tell him finally that this is completely OVER. I hate to do it via phone or e-mail, yet it may be some time before I am able to do it in person. He seems to think that he can charm his way back in (EXTREMELY charming man, on the outside - anyone who does not know him well sees him as the nicest man in the world).

    It's going to be hard, and I feel more than a little vulnerable in that area right now!
  • icefishinglady
    icefishinglady Member Posts: 15
    Options

    Popping in here to say hi to
    Popping in here to say hi to the other Wisconsin ladies! I am a central Wisconsin lady here. And I love ice fishing, too. This past winter was the first time I could go since last winter was full of cancer crap. We fish mainly walleyes and bass in the spring, summer and fall! This year the weather was bad around here for ice fishing, but I got to go a few times. Anyway, here's a Go Pack Go for WI!!!(We did spend five or six nights at a friend's shack up in northern WI, of course that was the week that was below zero up there and I had to use the outhouse with no heat!!! Talk about taking care of business fast lol).

    @cinnamonsmile
    Central Wisconsin! I have likely been wherever you live. Spent a lot of time in Madison over the past year ;-).

    Since I lived in the more northern area of Wisconsin I was able to get out ice fishing a few times. A new puppy in December (who had terrible motion sickness problems!) meant that I was not able to fish too much, but I certainly enjoyed those times I was able to get out. The fish did not cooperate well, though.

    In the summer I fished nearly every weekend. The former SO had a boat, and we fished bass, muskie, catfish on the Chippewa and Flambeau Rivers. Loved it. Got a 40-lb, 40-inch cat last year and a 48-inch muskie!

    Outhouse in below-zero weather? That sounds fun... LOL

    But then, ice fishing presents its own unique challenges in that area! Normally one is surrounded by men (do they realize how lucky they are to be able to pee somewhat discreetly?) and three layers of long underwear, insulated jeans and two sets of coveralls are NOT easy to get out of... not to mention holding said garments out of the way so that one doesn't inadvertently get 'em wet.
  • icefishinglady
    icefishinglady Member Posts: 15
    Options

    Wow
    I love your name. I haven't been ice fishing since my dad took me at age 9. I am a Michigander and we would go up north. He would watch the temperatures for a week and determine if he could take the station wagon out on the ice to get to the shanty. I am the same way about watching the temperatures for a week to decide if I can go on the local lakes and ponds for ice skating.

    I am almost exactly a year ahead of you in the journey. I only had to have a lumpectomy. I have had some minor scares along the way. I had some calcifications that were taken out in Jan of this year that turned out to be merely scar tissue. I also had a thikening of the lumpectomy breast but the surgeon examined it and stated that this was from the radiation therapy and it was not out of the ordinary.

    I understand about the depression. Just being up north with less sunshine is a factor that can exacerbate this. Family history and life circumstances can also have some bearing on the issue. Then if you throw in breast cancer well that is a major psychological blow to deal with. If you are currently on medication for this and it is not working well be sure to ask for a med change rather than just deciding not to take medication. You can probably tell by now that I work in mental health. I never used to believe in medication but was more on the side of counselling however, I have changed my mind over the years as I can see that for some it makes a big difference.

    I was fairly stoic myself. It seems to come from my upbringing. When I cry it is in the car. Not the big boo hoo sort of crying. More like the leaking of tears crying. This is a good thing since I am driving after all. I have always seen myself as "the little engine that could" like the kids book that Captain Kangaroo used to read on his show.

    Wishing you a hearty welcome and hoping you can continue to bear up well, as it seems you already have done fairly well. It sounds like you are a gal that rolls with the punches.

    @laughs_a_lot
    I lived in the UP for a time!

    Me, I always have been one to cry - tears of happiness, tears when I see something extraordinarily beautiful, sad tears, angry tears, you name it and I can cry at it.

    Strong family history of depressive illness here. I managed to avoid it 'til 1994 then fell off the face of the earth - suddenly and without any warning. It was very hard - I'd had a great career going, a real dynamo, I was. To be knocked down like that - I still don't understand how that could happen. The human brain is an amazing thing...

    Meds have helped, but I wish I could find something that worked better than what I am on now. I've learned to live with a certain amount of depression and recognize that when things look very bleak it is the illness... not me... and I had good support. Have not had the time since moving to the cities to even begin to look for a new doctor, but that is on the list, though I understand that there are few accepting new patients and it may involve a long wait.
  • icefishinglady
    icefishinglady Member Posts: 15
    Options

    Wowsers
    Reading through some of the other replies I realized we have a lot of northern gals on this site. I thought there might only be one other one. Perhaps some time we can get together for a northerner gals lunch. Think it over ladies and see what you think. Once the weather is good is what I mean.

    @laughs_a_lot
    My son is looking at taking a pastorate in Michigan. I may end up moving with them depending upon where life goes between now and when (if) that happens. I believe the name of the town is Wakefield. I loved the UP, except for the weather, LOL.
  • eihtak
    eihtak Member Posts: 1,473 Member
    Options

    @laughs_a_lot
    My son is looking at taking a pastorate in Michigan. I may end up moving with them depending upon where life goes between now and when (if) that happens. I believe the name of the town is Wakefield. I loved the UP, except for the weather, LOL.

    Up North ( but wishing for ocean breeze)
    I am in Central Wi. but would love to smell the ocean again soon. We used to travel a lot but have not been able so much lately. I'd for sure be in on a get together wherever later this summer maybe. Its funny, I appreciate fishing, hunting, snowmobiling, ect. but don't do much of any of it. My family does, but I'm kind of the organizer, cook, driver, cleaner, do-all except person. Right now just want to feel healthy again soon! As always, all in my prayers!