CSN Login
Members Online: 8

You are here

DIET Post removed !!

Scambuster's picture
Scambuster
Posts: 973
Joined: Nov 2009

Wow,

Someone (Joseph) posts his success story which he thinks was primarily due to diet with a mention of a clinic that will support alternative treatments and diet, and he gets attacked, abused and now run of the board. The post was intended to have people investigate the benefits diet may offer to their winning this battle.

Shame shame shame on the shallow small minded people on this board for their pathetic behavior.

The isolation of his use of 2 different survival percentages (the 5% & 20%) used as lethal ammunition on the guy. Here's a news flash sherlocks, that is what his 'Doctors' said. that's right folks, Doctor's'. More than one person was quoted. A bit hard to figure that one for some of you perhaps. I personally had 4 or 4 different 'guesses' by my DoctorS about my possible survival percentage. I won't post those numbers here in case some of you get confused.

If the post was flagged, the only one who should have flagged it was Joseph himself for the shameful abuse that was hurled at him.

While there exists a division on these boards between mainstream treatments offered, and other options, we should be tolerant of such material within reason, and limit comment to sensible responses.

Those who made these vicious attacks maybe need to broaden their scope of reading material and actually learn something about what Joseph's post was about. You might even get a nice surprise.

Scam

geotina's picture
geotina
Posts: 2117
Joined: Oct 2009

The sponsor of this board, The American Cancer Society, removed his post. Get your facts straight. No one on this board removed the post. His post was deemed inappropriate and I agree 100% that it was inappropriate. He said he could CURE cancer with his protocol then directed people to a facility in Florida and Arizona.

If you don't like it take it up with the proper people and do not come on this board, The Colorectal Cancer Board, and bash our members.

We have several members who do/did alternative treatments and they are very well respected here. They do not say they can CURE cancer but offer their experiences with alternatives, supplements and the like and are very, very willing to help everyone.

Shame on you for your most inappropriate post.

Tina

herdizziness's picture
herdizziness
Posts: 3642
Joined: Apr 2010

Thank you, you said it well!!!

John23's picture
John23
Posts: 2140
Joined: Jan 2007

Wait a min.... Let's not be too harsh with those that complained...

Joe just started off on the wrong foot, and I posted my thoughts
regarding that, prior to the thread being pulled.

(I woke up this morning, and the thread was gone!)

Joe made an outrageous claim, that he "knows what turns cancer
on, and what turns cancer off", and with that one statement alone,
a mob-scene was generated.

Cancer is a very sensitive subject once one has a diagnosis of it.
And the methods used to fight cancer seem to become somewhat
religious in nature; no-one wants to hear that they're not using the
right method. No-one wants to hear someone tell them that
"my God is better than your God", and that was essentially what
poor ol' Joe communicated.

I fell into that same hole when I first logged into this forum. I came
out strong, too strong, in favor of TCM over chemo, radiation, etc.

The fact is, anything that works for any individual to stop cancer
and lengthen life, is what should be used. We're all different, and
we all require different remedies.

Joe missed the mark of pointing that out, and ran into a big brick wall.

Personally, I do not believe diet has a whole helluva' lot to do with
it, and eliminating sugar can leave normal cells starving while cancer
eats away at all the glucose it can steal from good cells. If you try
to starve cancer, you'll starve good cells first. The phenomena
is sometimes referred to as "cancer cachexia".

We need red meat, we were designed to eat meat, poultry, fish,
veggies, fruits, and greasy Big-Macs (ok, ok, maybe not the Big-Macs),
but we can survive the storm better with a well-rounded diet, than
a diet that our body was never designed to survive on.

I use TCM and am an avocado for it; for me, my wife, and a
few hundred billion people, it works well, just as it has for nearly
four thousand years.

Is it right for everyone? Possibly, maybe not... I don't have the answer
to that, but I won't post here as I did years back, denouncing chemo
at every turn, while promoting TCM.

Each science has it's place, it's benefits, and it's limitations. Each
science is of value to someone, for one thing or another.

The Hippocratic Oath suggests that "First, do no harm", yet
physicians will use radiation where they know that it will leave
their patient severely damaged beyond repair. They are willing
to pump carcinogenic chemicals into an already weakened
body, knowing that it may leave that patient with permanent
damage that can be worse than the cancer itself.....

Chemo and radiation can be used for many cancers successfully,
but when physicians prescribe for the sake of prescribing, leaving
the patient in harm's way, I get mad....real mad.

They refuse to look at any other medical sciences, but the
patient shouldn't leave themselves so limited; life only goes by
once, try to make it last!

There are other ways to fight cancer; you are not limited!

I wish Joe said it better, but alas.... Hopefully, he'll be back.

(bring beer, Joe)

John

PhillieG's picture
PhillieG
Posts: 4888
Joined: May 2005

If someone comes here claiming to know how to turn cancer off and on and has all of the answers, doesn't that raise a flag for you? "I know how to turn cancer on and off with the food I eat. I know what feeds it what halts it and what kills it naturally." Every other sentence began with I did this, I know that, or Follow MY protocol and I will...
Come on now, who's kidding who?

"While there exists a division on these boards between mainstream treatments offered, and other options, we should be tolerant of such material within reason, and limit comment to sensible responses."
I agree 100%. There is no one size fits all cure for cancer. What works for me may not work for you. What works for you may not work for me. If he had posted things in a manner where he doesn't come off as Mr Know-it-all-and-buy-this-stuff-I'm-directing-you-to it might have had a different ending.
But he didn't.

It has been a while since I joined this site but I'm pretty sure I had to check off that I read and understood the Terms and Conditions of this site. I have little doubt that he will be back under a new name as is so often the case...

herdizziness's picture
herdizziness
Posts: 3642
Joined: Apr 2010

He came off as a scam artist and you being mr. scambuster should have seen that. His post wouldn't have been removed if he hadn't, enough said.

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3908
Joined: Nov 2010

i was interested in what joe said but not the how he said it.

so a valuable argument was lost in the manner and style of communication.

he did not intro himself, he did not comment on other posts.

in a sense that not wise, we all deserve respect and we should give it.

basically the over the top claims i just ignored.

i believe he is genuine. i'll miss his vegan recipes.

if he is a scam, he failed to sell anything to anyone. after all whats a vegan gonna sell a meat eater. a gold carrot for $1000. not much money in the vegan business, i'd say.

vegan style cancer centers are quiet common here, i had no issue with him
giving example. anyway this post has been flagged also , i just noticed.

maybe the referree can ring the bell, and we can all go to our respective corners until
the next round.

life to short to stress ... joe will cope ...

pete

Scambuster's picture
Scambuster
Posts: 973
Joined: Nov 2009

Dear Jospeh,

Please come back and repost your experince with less zeal and NO GUARANTEES OF CURE and maybe don't mention the clinics. People can PM you if they want to find these places.

I am curious to learn more about what possibly 'Switches cancer on or off'. I know Dr. T Colin Campbell's studies (The China Study) demonstrated the effect that Casein ingestion had on his subject lab rats where when they were fed a diet with 20% milk protein (Casein) their tumors all progressed. When they switched it back to 5%, the cancer progress stopped or reversed. This is one very strong argument for not consuming dairy produce.

It is also a bit scary to know that some of the nutritional supplements offered by cancer centres are packed with this stuff (Casein). Head and Neck Cancer sufferers (that was me) often rely 100% for months or longer on these products as we cannot eat, so when your intake is 100% Nutritional supplements with a high content of Casein, then this cannot be good.

I approached my Oncologist about it and even brough him the Book. When I confronted him, he admitted that's what they feed us and and then he mumbled, shifted nervously in his seat and then quickly changed the the subject and had to finish up and see his next 'patient' (.. I almost wrote victim!).

CASEIN (from Latin caseus, "cheese") is the name for a family of related phosphoprotein proteins (αS1, αS2, β, κ). These proteins are commonly found in mammalian milk, making up 80% of the proteins in cow milk.

Should not this be brought to our attention ? This is something that is known to Switch On Cancer, and yet Cancer patients all over are being fed this stuff.

As for the 'switching off', that may refer to the diet related to Anti-Angiogenesis and that is certainly worth considering. These food have been shown to inhibit the development of new blood vessels which a tumor requires to survive and progress. Cancer cells have learned to somehow bypass this switch and can trigger Angiogenesis develop their own blood/food supply, which is a bad thing.

ANTI-ANGIOGENESIS

There is also a very good online lecture by Dr. William Li which has been posted previously. DR. WILLIAM LI on Anti-Angiogenesis

Do people want to know about these ? Are these possibilities worthy of further investigation ?

Scam

Buckwirth's picture
Buckwirth
Posts: 1272
Joined: Jun 2010

"Casein (from Latin caseus, "cheese") is the name for a family of related phosphoprotein proteins (αS1, αS2, β, κ). These proteins are commonly found in mammalian milk, making up 80% of the proteins in cow milk"...

Proper ettiquite does call for an ellipses if you are going to cut a quoted passage short though.

"... and between 60% and 65% of the proteins in human milk.[1] Casein has a wide variety of uses, from being a major component of cheese, to use as a food additive, to a binder for safety matches.[2] As a food source, casein supplies essential amino acids as well as some carbohydrates and the inorganic elements calcium and phosphorus.[3]"

Can we take this to mean you oppose breast feeding?

Interesting that Wiki has no mention of it being a carcinogen. Maybe you could add that to the entry?

lisa42's picture
lisa42
Posts: 3661
Joined: Jul 2008

Re. Buckwirth's question to Scam "Can we take this to mean you oppose breast feeding?" FYI, cow's milk is sooo much different than human breast milk. Studies have shown that a huge number of people have lactose intolerance problems with cow's milk. I don't have any study before me, so I don't have any specific numbers or statistics, but I have read this from several sources. The big "Got Milk?" push has been challenged- cow's milk proves to interfere with the digestion of many people- many who are even unaware that their gas problems, runny noses, etc. are actually being caused by milk and milk products. Some people have resorted to switching to goat's milk. Rice milk and almond milk have also recently become popular substitutes.
Human breast milk was made specifically for humans and it is a rare baby who has reactions to it (except that babies do react to certain things the mother has eaten or drank, as what a mother eats/drinks definitely affects the content of her breast milk.
So the issue is cow's milk (which by the way, is often from cows fed corn and growth hormones. It is now possible to find milk in almost all the stores that states it is not from cows fed human growth hormone.

Lisa

Buckwirth's picture
Buckwirth
Posts: 1272
Joined: Jun 2010

Casein, an ingredient in both, and in Scam's world of Head & Neck cancer one that is often an additive in the supplements they use when treatment prevents eating.

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3908
Joined: Nov 2010

dear scam and all,

we are all here to share our knowledge and beliefs and experience.
Now joe got his beliefs across too forcefully and against the rules of csn.
His over zealous presentation was matched by the zealous response.
I am glad the post is gone because my friend's peace is my number one
guide not diet.

Maybe i should have pm'd him to tone the post down rather then just
asking a few questions. I suspected the result. What he said had some merit. Not how he said it. He is free to voice his experience his conclusions for himself but not preach.
At least not to the unconverted.

If i see this type of post again. Even though i am agreeable to its content. I would at pm him to tone it down and give him a suggestion.

So whats the point of saying stuff if its that in peoples faces they don't get the message.
To me i learnt alot from joe's post. Not about vegan but about all our sensitivities and clearly what works here and what does not.

I hope joe comes back.

Now we are all alive and we learn everyday especially about community life.
I am trying not to be sad today.

Lets just give joe and each other a break.

Enjoy your day. Have a carrot. Or a steak or burger in peace.

Or you could have nothing. That would be a fast. Just whatever you want.

Today is extra special. I look up at the sky and smile. Another friend is gone.

Look down around here through kind eyes, all around the world we have friends with crc.

Hugs.
Pete

PhillieG's picture
PhillieG
Posts: 4888
Joined: May 2005

He certainly could have presented himself better, especially since this was basically his introduction to the forum. "basically the over the top claims i just ignored." Pete, you've been around the block a few times so you know how to sort out info. Unfortunately, newbies may just start on this site and may think what this guy is pushing - the center in Florida (along with specific recipes that probably border on giving medical advice) is what they HAVE to do to CURE cancer. It's BS (and I don't mean Bean Sprouts!)

Anyone who makes claims like that is a danger to us all.
Thankfully he was flagged and sorted out (for now) and if he does return, he will be a bit wiser with how he dispenses information.

SisterSledge's picture
SisterSledge
Posts: 342
Joined: Feb 2011

I am saddened to see once again people here acting like******...or pit bulls...beating people up and chasing down their every word. Meanness so unbecoming from those who we expect to find kindness and understanding from. I think many are over-reacting. Please take a step back and think about how these issues could be handled in a better way.
Janine

herdizziness's picture
herdizziness
Posts: 3642
Joined: Apr 2010

That you think allowing someone to come on here and make impressionable claims to desperate people, someone that claims they know exactly how to turn off the cancer, shouldn't be censored and those of us that point it out you are calling******. Thanks for the name calling, that surely was the way to "take a step back and think about how these issues could be handled in a better way"
Sincerely,
An ***(per SisterSledge),
Winter Marie

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3908
Joined: Nov 2010

dear winter and janine.

Call me an *** anytime. Goddammit we all got crc.

Its the one thing we all got in common. The ***. I think its incredibly funny
from my perspective.

Think about it. Its such an ironic name to label crc.

Hugs.
Pete

lisa42's picture
lisa42
Posts: 3661
Joined: Jul 2008

Janine,

I do agree with you that some people here are just so quick to jump on anyone who has ideas that differ from their own. Now, I do also agree that Joe should not have claimed he had a cure. I think it would have been fine to just share what he did and let anyone know that he'd give out more info in a pm if they were interested in hearing more. I felt kind of sorry for him afterwards, as I believe he was genuinely trying to be helpful in sharing what he did, but his way of stating that was a bit too strong/over the top. I personally am interested in what he had to say. As soon as I read his post I knew a couple of people would jump on him immediately & I was right.
I wish people would realize that, although rules need to be adhered to and I think CSN/Greta would probably have said something, but when people jump on someone's post so harshly it creates a very compative and negative feeling on CSN. I think that scares people away far more than a post like Joe's would.
Come on people- let's be kind to others, PLEASE!!

Lisa

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3908
Joined: Nov 2010

half way around the world and thinking similar thoughts.
Hugs.
Pete

Erinb
Posts: 295
Joined: Apr 2010

I agree Lisa. I enjoy reading other people's opinions and life experiences, but I hesitate sharing because of the negativity others have experienced.
Erin

PhillieG's picture
PhillieG
Posts: 4888
Joined: May 2005

I also believe that reviving a post that caused a lot of controversy and was pulled is possibly worse than the post that was pulled. All it does is to start it all over again. It's obvious the DIET post was removed. So now we have to discuss and dissect why it was removed? Much of the commentary is by people who didn't even see the original post!

What if this post gets removed? Should we start this up again by asking "What happened to the DIET post that commented on the DIET post being removed???"

Joe had some good points that were unfortunately presented as the truth.
Right there it's a potential time-bomb. I think we all know that there is no guaranteed 100% cure for cancer (unless of course you die from something else). I, for one, jumped at the opportunity to point that out. Was it a good move? Looking back I'd say "no". My response could have been better, maybe suggesting to him in a PM that he take out the "I know how to do _____ to cancer" since there is no one who knows how to do the impossible and its only going to start THIS.
We are beating a dead horse people...

geotina's picture
geotina
Posts: 2117
Joined: Oct 2009

I am shocked and saddened by your response. Did you read the original post that was pulled by CSN? Keep in mind who pulled the post, it was not the people on this board but the board administrater.

Congratulations that you can afford to go to that place in Florida, I'm sure the private cottage, jacuzzi, swimming pool, nature walks, oxygen therapy along with a raw/vegan diet will "CURE" your cancer. Will it help those who are in remission regain strength, probably, but "CURE" your cancer, I doubt it.

Guess like Winter Maire, I fall into the *** category by your standard. At least I know I am in good company.

Tina

PGLGreg's picture
PGLGreg
Posts: 741
Joined: Jul 2006

What I don't understand is this idea that if you disagree with a post, you have a right to prevent other people from reading it.

--Greg

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3908
Joined: Nov 2010

greg.
But then we could flag the flag. And where would it stop.
Its easier to let csn be the umpire.

I have crossed a few lines. Some posts stay some go. Thats life. Its cool

I could rewrite joes post as a story and pullout hot spots. His was a good story and its not that uncommon. I saved it offline as i knew it would go.

I just wish all these cancer surviving vegans would stay and post here. If we had 50 scouty.s or emily how much more proof would people need. The proof is not just in the books or peoples claims its in the pudding. For me its meeting real life success stories on csn or in person.

Hugs.
Pete

Where are all the vegan crc survivors ? They would be welcome here.

Anonymous user (not verified)

This comment has been removed by the Moderator

2bhealed's picture
2bhealed
Posts: 2085
Joined: Dec 2001

Graci,

I didn't see the original post, but from the description it sounds like the place that Kris Carr went to for help in healing from her incurable cancer. She has the most powerful testimony and wrote a book about it called Crazy Sexy Cancer Tips. It's a wonderful read, funny and inspiring and full of good info. Check it out.

Having been on these boards for the better part of 9 1/2 years, I can venture to say that there is a consistent element that feels threatened by alternative medicine. Those of us who use it can often come across as evangelical (and obnoxious) in presentation because we are passionate about health and healing and get so despondent from the destruction (and dying) that happens with this disease and its medicines.

Those of us who weather the (fire)storms remain for the greater good. For me personally it's not the pitbulls who scare me off, it's the depth of sadness of losing too many friends on here over the years. And losing friends make some of us even more determined to point in another direction, giving hope to those who may have reached a dead end and who may want to take their journeys down an alternate route.

peace, emily

herdizziness's picture
herdizziness
Posts: 3642
Joined: Apr 2010

It is apparent you didn't read the post, and no, I don't think he was directing us to this wonderful utopia place, he was directing people to a Doctor that had lost his license and had a cocaine habit, that to this day you don't know if he still has the same habit, a doctor that the State of Arizona is trying to figure out how in the world they licensed him in their state.
I have never said a thing against Pete's, yours or John23's postings, to each their own and sure it doesn't hurt to look at the other side of the coin. I've gone into discussions with John23, none of which were derogatory on my part I don't believe (can you back me up here John?) I read each of your stuff with interest, someday there maybe something I want to try.
So I find it disheartening that you come on and accuse us who DID READ the post that promised to cure cancer of being a consistently scared element threatened by alternative medicine, I'm just not into cow food etc., and have NEVER said anything before about your choices. The post that was on, was a post that was inappropriate, it's a shame you didn't read it before commenting on our reaction to it.
Winter Marie

John23's picture
John23
Posts: 2140
Joined: Jan 2007

I love ya' kid! You know that!

You can call me an *** anytime!
(I long to be in good hands!)

(by the way... oh, never mind)

My best, of course!

John

herdizziness's picture
herdizziness
Posts: 3642
Joined: Apr 2010

Love you too, hun, your know your in good hands when.... Oh never mind.

scouty's picture
scouty
Posts: 1976
Joined: Apr 2004

My first thought was that I couldn't believe it hadn't been flagged but so many were bashing it. I chose to ignore it and moved on.

But to now see you Winter Marie, acting like it was all about his thread and references I just have to ask you something. If your comments were really all about "what Joseph said" then why did you throw in your usual bit about your neighbor who ate all "the right things" and still died of cancer?

Lisa P.

herdizziness's picture
herdizziness
Posts: 3642
Joined: Apr 2010

Do you really think you have a "gotcha" moment? Because the man claimed through his PROTOCOL, his DIET, you would turn your cancer off, and I used those two as an example of two people doing the healthy and yes they did the alternative stuff as well, they both didn't make it, that they both couldn't turn their cancer off through diet, so the idea that it was diet alone makes it pretty slim pickings, his whole point was HIS PROTOCOL of foods and the clinics. And I said it because it's a 50/50 don't you think? One died the other lived, if it had just been the one that had cancer and was on the vegan diet that lived, he could have claimed it was the diet that saved him. If it was only one that had the cancer and died and was on the vegan diet, then the other side (us meat eaters)would say, see the vegan diet killed her. But both had cancer, both were vegan, both did the exercising, both led healthy lifestyles. Diet didn't do it for both, the cancer's make a difference, the stages make a difference, the onc's make a difference, the ODDS make a heck of a difference, sometimes your the lucky one and no matter what you do, YOU MAKE IT, you become the long time survivor, but you can claim your diet did it, just as if I become a long time survivor would you really think it was my diet, bet not, because I eat meat, I have a drink a day and I don't do veggies, but if I was vegan you'd probably say it was my diet. Do you see my point? Statistics can be skewed to mean what you want them to mean. That's all Lisa. That's why I pointed it out. I've never put down your diet or your supplements or what ever means you use (I'm not sure what you do or use) to each their own. One lived, one died, I don't think their diet alone had everything to do with it. I don't think you should try to make people feel bad if they do one or the other, each person does what they think is BEST FOR THEM, which is why I don't comment on any person's personal diet, I've even said I might even take up juicing (a rather healthly alternative I don't do because, well, I like food that's usually bad for me, not because I don't believe in it)someday. I had some vegan food on Virgin Airlines and commented to my husband, I might have to start trying this Vegan thing, it tastes pretty good.

2bhealed's picture
2bhealed
Posts: 2085
Joined: Dec 2001

WM,

My comment was directed to Graci in sharing with her a book that was very helpful to me. Me Accusing You? No. Sorry. You can't put that in my mouth with which to stir the pot. I wasn't even engaging in a conversation with you.

I said right out that I hadn't read the post. Your sarcasm toward me is really unwarranted.

Did I even make reference to any comment you've made to me? No. So why bring that into the mix other than to pick/perpetuate a fight.

My sharing with Graci was simply passing on some info that may have been helpful to her to gather more info on the place that Joe had posted about that she seemed interested in, and perhaps shed some light on how those of us in the alternative realm can sometimes come across as obnoxious in our excitement--especially to those who feel threatened.

Normally I would just ignore such a nasty reply as yours, but reading through your posts that followed mine, I couldn't remain silent to your mean-spirited posts all the way down to the end.

herdizziness's picture
herdizziness
Posts: 3642
Joined: Apr 2010

Peace back at you.

Buckwirth's picture
Buckwirth
Posts: 1272
Joined: Jun 2010

An inspirational story. According to Scientific American she went to Dana-Farber. Is there another place your thinking of?

There is also a TV movie Crazy Sexy Cancer available on Netflix DVD for those who want to watch it.

scouty's picture
scouty
Posts: 1976
Joined: Apr 2004

It took many trips to many doctors for her to even find out what was wrong with her. When she did and it was a very rare cancer with no known treatments she knew she had to do things a little differently. Dr. Oz actually spent a few days with her to see what she "did" while he was still on Oprah's show.

Lisa P.

2bhealed's picture
2bhealed
Posts: 2085
Joined: Dec 2001

www.hippocratesinst.org is the place I was thinking of that she went to. She's quite charming and full of good info.

tootsie1's picture
tootsie1
Posts: 5056
Joined: Feb 2008

Hey, Emily.

I just want to say that you're one of the kindest people I've met on here.

*hugs*
Gail

2bhealed's picture
2bhealed
Posts: 2085
Joined: Dec 2001

Wow, that means a lot. Truly. Thank you. That softens the blows from a rather rude spanking....

geotina's picture
geotina
Posts: 2117
Joined: Oct 2009

He was not a new poster. He joined last December. Before his post was pulled I tried to look up his old posts and they were all gone. If I am not mistaken, and I may be, the only people who can delete discussion groups is CSN.

Tina

scouty's picture
scouty
Posts: 1976
Joined: Apr 2004

can remove their own and the entire thread will go........

I actually watched one of our own let many people here think Greta had removed a thread a few years ago when he did it himself. I lost a great deal of respect for that guy with that move.

Lisa P.

PhillieG's picture
PhillieG
Posts: 4888
Joined: May 2005

is to flag the post for the administrators. They decide what is or is not allowed, not us. We have no control over that at all. I don't think it's good to let every post stay up when it's not something that is completely true. I would like to think Joe was well-intentioned but when a post is presented as his was (he can turn cancer off and on, he knows how to cure cancer, go to this place...) that's very misleading.

I could write a post telling everyone to do exactly what I've done and that will cure them but that's not how cancer treatments work. One size does not fit all and I understand that. I don't try to persuade people to do what I do. If they ask what I've done, I tell them, warts and all.

Pete and John23, I'd also like to see others who have taken Scouty and Emily's route with dealing with their cancers. I don't know why (or if) there are others. I would imagine there are. Why they are not posting is open for speculation.

I could see a point where if what I've been doing stopped working or if things took a turn for the worse that I'd explore other options. For the time being, I can't see possibly breaking something that's not broken so I'm keeping with my protocol.
-p

2bhealed's picture
2bhealed
Posts: 2085
Joined: Dec 2001

Coming on these boards and sharing our "alternatives" because of this exact type of reaction...maybe that's why there are not more of "us" posting.

Just a thought.

peace, emily

PhillieG's picture
PhillieG
Posts: 4888
Joined: May 2005

Anyone who would come here and says they know how to turn cancer off and on, whether it's by "Western Medicine" or "Alternatives" would be questioned by me the same way. It's not possible to do that with cancer. I think that the people who have been here a while can tell the difference but we get quite a lot of new people on a weekly basis it seems and it can be very misleading to say the least if misinformation is passed on as fact. People often come here very desperate.

I could have handled it a bit differently (sans-sarcasm) but people who claims to "know the truth about _______" really get to me. One can not know what can not be known.
(or something like that - ask Rummy how that goes...)

I've noticed that many people who are no longer in treatment or are past this cancer phase of their lives just move on and rarely come back to post. Maybe they don't want to be reminded of it.

Just another thought.
peace,
-phil

scouty's picture
scouty
Posts: 1976
Joined: Apr 2004

But Phil, I think you would be surprised at how many don't come here anymore due to the negative energy and bickering. From both sides of the sprectrum I might add.

Lisa P.

CessnaFlyer's picture
CessnaFlyer
Posts: 110
Joined: Aug 2009

"I've noticed that many people who are no longer in treatment or are past this cancer phase of their lives just move on and rarely come back to post. Maybe they don't want to be reminded of it."

Two years ago I was much more active in this group than I am now. At the time, I had a tumor the size of an orange removed from my ascending colon. The doctor said it was one of the largest he had ever seen, and during that period and during my chemo I frequently visited this board. I didn’t always post, but I read the messages. As time has gone by I’ve noticed that some people who were having a difficult time are no longer here, and it is hard to take. I try to return and post positive things when I can, but the longer I am cancer free the harder it is to return to the board. I know that’s selfish, but cancer is something I would like to forget about, but with my regular CT scans and with the knowledge this cancer can reoccur it’s not easy to forget about it. Anyway, my wife finally pointed out that it might be best if I tried focusing on other things and not spend so much time on this board, and so I guess I have moved on, but all of you are in my heart and I still care about you all.

SisterSledge's picture
SisterSledge
Posts: 342
Joined: Feb 2011

I never got to see the post that started this all. I did see mamy mean things written afterwards and mentions of what came before. And I saw how scambuster got treated over his black salve stuff...sad.

I'll admit calling an *** an *** is harsh...there are only a few****** here and you know who you are and you know what you did was asshatness without me saying so. What I'm saying bluntly is that it should stop. I've only been coming to csn for about three months and this is at least the third time I"ve encountered major unpleasantness here. Can't we be better than this???

herdizziness's picture
herdizziness
Posts: 3642
Joined: Apr 2010

Well, I'm thinking not, as long as you keep calling people****** on here. Please don't do that anymore, if you must you can pm those of us who you deem****** and I consider that more acceptable, and then you wouldn't come across as mean spirited and judgmental.

SisterSledge's picture
SisterSledge
Posts: 342
Joined: Feb 2011

Ha! Not even close...judgmental? perhaps...at least, once my large supply of tolerance has been abused. The stuff going on here is ruining csn for what is meant...bringing people with cancer together for our betterment. After posting a comment here, I went back to the list and what do I see? A post that Roger has died...and I can't feel sympathy without also thinking of how much help Roger got here and perhaps others won't because they'll be scared away by the craptacular reception some people get if they say the wrong thing. And then I see a post from a newbie introducing themselves and I see others welcoming her and assuring what a great bunch of people they'll find here...and again I think, yeah, til they say the wrong thing. Tolerance, patience, kindness...less judging...I'm not the only one being judgmental.

herdizziness's picture
herdizziness
Posts: 3642
Joined: Apr 2010

Not going to respond any further to your mean spiritedness.

John23's picture
John23
Posts: 2140
Joined: Jan 2007

That is not only great coined verbiage,
it describes my marriage perfectly!

Hey... seriously....

Joe's initial post was really, really grating. It sounded like an ad,
not just helpful advice. I read it and wondered if CSN was accepting
infomercials to raise some cash...

On one hand, I feel bad for poor 'ol Joey, but on the other hand
it was not a very good attempt to be helpful.

I logged on CSN years back, and didn't post again for quite some time.
I got a real whooping, just like Joey.

But a guy here, that is more like a long-lost brother now, had given me
some insight regarding just how insulting my "help" appeared to most
others here.

We all believe that what we are doing in our fight against cancer is the
"best way". That's part of human element; the psychology. But we all
also have serious doubts about our choices. The last thing we want to
read, is someone denouncing what we are doing, or especially our belief
in what we are doing.

The really odd part that most here fail to comprehend, is that those of us
that had the courage to make our own choices, rather than accept the
cancer industries choices, have been thrashed unmercifully in the past.

I'd like to believe that I had some sort of a role in bringing people out
of the closet regarding all alternative choices. Both Emily (2bhealed),
and Lisa (scouty) have taken time to join discussions where individuals
ask what else there is, besides chemo and radiation.

Joe started his own thread, and came out too strong. He raised the wrath
of most everyone here, with exception to those of us that understand the
delicate nature of what can, and can not be said without being castrated.

The fuss and anger wasn't totally without warrant, and the administrator
apparently agreed. That actually, should be the proof of the pudding.

I guess you would have to read the original thread to fully see what
happened. That's not possible now, so if you would..... trust me...
the mob scene wasn't totally ill-founded. (BTDT)

Best of health to youse all!

John

SisterSledge's picture
SisterSledge
Posts: 342
Joined: Feb 2011

Funny you mention trust, John...you see, I think much of my response to the "mob" mentality shown here today is that I like to think that csn is a safe place...somewhere we can come and be with our own kind, where we'll be understood, put up with, you know...like family. Yet, in my family abuse was rampant...physical, verbal, sexual...it was all there and very painful to live through. I hate having trust violated...and I do want to trust y'all...I really do :(

herdizziness's picture
herdizziness
Posts: 3642
Joined: Apr 2010

give me a break

Pages

Subscribe to Comments for "DIET Post removed !!"