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Pls recommend surgeons!!! Anyone knows Dr. Paul Russo?

HeatherHa
Posts: 22
Joined: May 2011

Pls let us know who the best doctors in the US for partial nephrectomy are? Needed for removal of a large mass. Does anyone know of Dr. Russo from Sloan Kettering?

icemantoo's picture
icemantoo
Posts: 2639
Joined: Jan 2010

The bio for Dr. Russo speaks well of his qualafications. He did his fellowship in this specialty at a top institution and continues to practice with that institution. Generally partials are done with small tumors (4 to 6 cm or less) so your question of the best Doctor to do a partial on a large mass may not have an answer. I know Cleveland Clinic has a large Kidney Cancer program and if you go on line you can obtain for free their book of a 100 questions about Kidney Cancer. My surgery 9 years ago was by an oncokogist urologist who had just completed his fellowship at Baylor where he had done 150 Laproscopic removals in one year and now 9 years later is the head of Urology at a medium sized hospital. they were not doing partials back then. Nepherectomys have been around for years but the partials and laproscopic removals are much more recent and the doctors doing these tend to be much younger.

HeatherHa
Posts: 22
Joined: May 2011

Thanks for you response. From Dr. Russon's bio he is indeed excellent, but as you stated, I am not sure of his experience with laparascopic. The situtaiton is difficult, since fast recovery is required for oncology treatment for the original cancer (for which treatment is successful but for the kidney, for the past years). With open surgery recovery is much tougher, longer, and weakens the body...Cleveland has a big clinic, but even there we want a reocmmendation for the top srugeon for the surgery needed, which we don't have...

icemantoo's picture
icemantoo
Posts: 2639
Joined: Jan 2010

Laproscopic like partials are both limited to smaller tumors. If you choose a place like Cleveland Clinic, Sloan Kettering, Mayo Clinic etc. they will do the intake and determine the best procedure for you and may suggest one or more options as well as the most appropriate Doctor for the surgery. I do not believe it is in your interest to tell them what procedure you want and don't want before you are examined by them. Nor is everything black and white. The procedure chosen may change during the procedure. Additionally you and the Doctor will want to discuss options with whichever Doctor or hospital you choose. These are my thoughts and others are free to agree or disagree.

Jamie1.3cm's picture
Jamie1.3cm
Posts: 188
Joined: Jan 2011

As desperately as we all want the lapro surgery, sometimes it isn't the best option, depending on the size, type, and location of the mass. If I were you, I'd be open to whatever is best medically, even considering your other chemo therapy. The assumption that all lapro is better, just isn't true. Similarly, a partial isn't always the best option. If it means that all the cancer wasn't removed, then what was the point?

Excellent films will tell you a lot, but the doctors never know for sure until they get in there.

Looking for a large, teaching hospital is a good idea. They will be knowledgeable and experienced in the latest surgical procedures. They are also most likely to be familiar with other medical issues involved.

VeryAnxious
Posts: 67
Joined: Sep 2010

Don't know where you are, but Johns Hopkins does all typpes and see everything .

dbr70
Posts: 4
Joined: Jun 2011

When I was diagnosed with a kidney tumor a few months ago, my surgeon said that laproscopic radical nephrectomy was required because of the tumor's central position, not because of its size (4cm). I sought a second opinion and that surgeon also agreed. I really wanted to hear that laproscopic partial nephrectomy was possible. The second opinion surgeon told me only a few surgeons anywhere might have the skills to do the partial nephrectomy but with an open procedure. He specifically mentioned Dr. Russo at Sloan Memorial in Manhattan. He also mentioned Cleveland Clinic. In the end, I chose the laproscopic radical nephrectomy to ensure no complicatons. I stayed at the hospital for two nights. Recovery went smoothly. I only struggled with lifting myself out of bed for a while and with walking very slowly to avoid pain. I missed 2.5 weeks of work. Almost 100% back to health after 6 weeks now.

Best wishes with your search.

nm7824
Posts: 3
Joined: Aug 2017

Can I ask your age ?

nm7824
Posts: 3
Joined: Aug 2017

Can I ask your age ?

agood1999
Posts: 2
Joined: Jun 2011

Hi<

I had a open partial nephrectomy with Dr. Russo on 3/23/11. I had a very positive experience. He does not do laproscopic procedures and feels strongly it is not the right procedure for kidney surgery. Some of his reasons. The kidney is very vascular, its important to maintain function, when he does it open he can freeze the tissue and see and feel the organ. Something you cannot do as well with lap procedure. My incision was only 4 inches, I had no drain, came home in 3 days and had an excellent recovery. My hospital stay at Sloan was excellent. and I have been hospitalized at a lot of NY hospitals, for cancer (I am a 3 time survivor).

Not only does he know his stuff, he has an excellent bedside manner, is a straight shooter. It takes a while to get in to see him. He is swamped.

My tumor was 2cm, on the day of my surgery the patient before me had a 14cm tumor he was operating on. He operates at least 3 days a week. He is the only one that opens and closes you, he does not let his residents do it. He specifically said to me he is the only one that operates on you.

I had a great experience, the follow up has been top notch. There is pain after the procedure and you're sore deep inside for a while. This is my third month out and I still have muscle pain, but its getting better every week.

HeatherHa
Posts: 22
Joined: May 2011

Hi,
I was wondering if you could email me. I have some questions to ask about Dr. Russo.

agood1999
Posts: 2
Joined: Jun 2011

Hi<

I had a open partial nephrectomy with Dr. Russo on 3/23/11. I had a very positive experience. He does not do laproscopic procedures and feels strongly it is not the right procedure for kidney surgery. Some of his reasons. The kidney is very vascular, its important to maintain function, when he does it open he can freeze the tissue and see and feel the organ. Something you cannot do as well with lap procedure. My incision was only 4 inches, I had no drain, came home in 3 days and had an excellent recovery. My hospital stay at Sloan was excellent. and I have been hospitalized at a lot of NY hospitals, for cancer (I am a 3 time survivor).

Not only does he know his stuff, he has an excellent bedside manner, is a straight shooter. It takes a while to get in to see him. He is swamped.

My tumor was 2cm, on the day of my surgery the patient before me had a 14cm tumor he was operating on. He operates at least 3 days a week. He is the only one that opens and closes you, he does not let his residents do it. He specifically said to me he is the only one that operates on you.

I had a great experience, the follow up has been top notch. There is pain after the procedure and you're sore deep inside for a while. This is my third month out and I still have muscle pain, but its getting better every week.

HeatherHa
Posts: 22
Joined: May 2011

Do you know anyone who had partial nephrectomy with Russo although he had a large tumor?

donna_lee's picture
donna_lee
Posts: 761
Joined: Feb 2009

Altho when I had my "big" surgery and the second one, Dr. Mitchell Sokoloff was teaching/practicing at Oregon Health and Sciences University. In 2008, he took a position at the University of Arizona/Med School in Tucson. His specialty is urology-oncology-surgery. Look him up on the internet.
Donna

jgrove
Posts: 5
Joined: Mar 2011

Hi Heather,

I had an open partial neph, on my right kidney on Sept. 2010. Tumor was 12cm, with a seperate blood source, not the Renal artery.

It has been 10 months, still going through post op pains.

My surgeon is Dr. Derweesh at UC San Diego. Did a great job. Three scans, No Evidence of Desease.

Good luck.

Jim W.

acuellar75
Posts: 5
Joined: Jun 2013

Dear Jim,

I have a question in regards to Dr. Derweesh, my mother has a large tumor above the kidney, all indicating that is coming from the adrenal gland. This is the second recurrence after having her other kidney removed 13 years ago from another cancer tumor (in a different clinic). She is currently being treated by Dr. Derweesh at UCSD, he put her on sutent for 2 months to reduce the tumor (it was 12 cm), and now it has been reduced by 50%. The doctor is very positive about this, even though he cannot promise he can save her only kidney, he seems however more optimistic. It has been very scary to hear all of the possible dangers of the surgery, as he states it is of high risk, this has been a major cause of anxiety to my mother and all of us. He might have to reconstruct the vena cava and adjacent vessels, so he is doing this procedure together with Dr. Hemming as an open surgery. Dr. Hemming mentioned he specializes in live-transplant, and mentioned if it was necessary they might take out the kidney, clean from the dissease and place it back. My mother is 67 and this seems extremely scary.

Hearinig your story has been of great help, if possible we would like to hear more details about your case and the kind of care you received during surgery at UCSD.

Thank you for your time.

Best,

Adriana

nyc_girl
Posts: 27
Joined: Apr 2012

I would highly recommend Dr. Paul Russo.

Texas_wedge's picture
Texas_wedge
Posts: 2803
Joined: Nov 2011

Maybe a trifle late for an urgent enquiry a year ago?

nyc_girl
Posts: 27
Joined: Apr 2012

Our newly diagnosed pre-surgical brothers and sisters search these forums, too.

BarbAnn50
Posts: 1
Joined: Jul 2012

Hi, Saw your post. Dr. Russo is my surgeon. A terrific doctor, very personable, very caring, as is the entire staff. I'm having a partial nephrectomy done in August. When the subject of laproscopy came up, Dr. Russo indicated he is not a fan of it, and doesn't practice it. Good luck with your procedure.

nyc_girl
Posts: 27
Joined: Apr 2012

BarbAnn,
Dr. Russo did my open partial nephrectomy in January. He and his staff are wonderful. The surgery went well and he saved about 90% of my affected kidney. I'm having my 6 month follow-up in a few weeks. Hoping for good news. Good luck with your surgery. Give yourself plenty of time to recover. Let me know if you have any questions.
Wishing you well,
nyc_girl

nm7824
Posts: 3
Joined: Aug 2017

Can I ask yout age ?

Positive_Mental_Attitude's picture
Positive_Mental...
Posts: 379
Joined: Jul 2014

Another patient of Dr. Paul Russo.  Surgery July 2014 when I was 47 years old.  I had a complicated situation.  A "hostile" abdomen from a massive surgery on my intestines as  a newborn made laparascopic surgery not advisable.  Location of my tumor was difficult too, and first doctor I saw said I would need a radical (total removal) nephrectomy.  Dr. Russo, whos is also a wonderful, warm and caring man, preserved 95% of my kidney.  Recovery was a breeze for me.  The only downside of seeing Dr. Russo is that the wait time in the waiting room can be a bit long, but this is a small price to pay for being under the care of a fabulous surgeon and person.

nyc_girl
Posts: 27
Joined: Apr 2012

I was 43 at the time of my surgery in 2012.  Finding Dr. Russo was a blessing.

APny's picture
APny
Posts: 1497
Joined: Mar 2014

nm7824, this thread is from 2011 and 2012 so I don't think nyc_girl will see this and respond. Or at least I haven't seen her around the forum. I also had Dr. Russo for a partial neph in 2014 so if you're thinking of him as your surgeon I could answer questions you may have.

bmickowski
Posts: 7
Joined: Sep 2017

Who did you use as your medical oncologist. Need to make an appointment ASAP

APny's picture
APny
Posts: 1497
Joined: Mar 2014

I don't see one only Dr. Russo. He's a urologic oncologist and so far met all my needs and hopefully won't need anyone else. Many medical oncologists won't see you unless you have active cancer, or at least so I've heard. If you find one at MSK please let me know!

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