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Tired

AnneCan
Posts: 3692
Joined: Oct 2009

Hi guys,

I am tired. The last 2 rounds of chemo I have been especially tired (I have had ~ 25 rounds of folfiri + avastin). During the last 2 rounds I also had an annoying ear plug (never had one before in my life!) and I am now on antibiotics for an infection. The ear plug took awhile to get fixed, because my family doctor wanted me to soften it for a week before they blasted it. Before I had it removed, my ear was sore, I was tired, my hearing was impaired and I felt nauseated ... + of course my mind went to scary places. Then I got this infection + I continue to be exhausted. Then I read that side effects of this drug are tiredness, weakness, etc. I am starting to feel a little more energetic. And the good news - when my my husband was discussing my ear symptoms with my onc a couple weeks ago, my onc emphasized how well I was doing on this drug cocktail. :) Also I now have a great family doctor; wouldn't go back to my old one because she misdiagnosed me for awhile.

herdizziness's picture
herdizziness
Posts: 3642
Joined: Apr 2010

Of course you're tired, seeing what you have been through, would leave me exhausted, actually THINKING about what you've been through leaves me exhausted!!!
Can you hear me now? Oh, sorry, LMAO couldn't help but use the tired Verizon slogan there. Hoping truly you can hear well now.
I'm so glad to see you are doing well on your drug cocktail.
I hope your energy gets continues, you really have been through so much chemo.
Winter Marie

AnneCan
Posts: 3692
Joined: Oct 2009

I just want to be not tired! and I can hear wonderfully right now; what a relief! BTW, shouldn't you live in a more northern climate with the name "Winter Marie"? Thanks for the encouragement.

feniks's picture
feniks
Posts: 33
Joined: Mar 2009

IT's normal to be tired after 25 rounds of anything.Do you try some immune booster,like AHCC or ricebran arabynoxilan compound.It will give you some energy and appetite.Maybe even fell better with chemo?Google it.
Take care,Alex.

AnneCan
Posts: 3692
Joined: Oct 2009

I am not taking any immuno booster, but I will google those you mentionned. Thank-you for taking the time to respond; I know your life must be very busy right now + I am thinking of you.

herdizziness's picture
herdizziness
Posts: 3642
Joined: Apr 2010

Raised in Alaska, 1/4 Alaska Native, my mother full, my departed Grandmother full Alaskan Native, hence, Winter Marie, we don't have reservations, we have instead corporations, I belong to the Cook Inlet Region Corporation, the 13th region. LOL

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Nana b
Posts: 3045
Joined: May 2009

Don't give up Annie! I know you are tired! I wish, I wish that I could carry some of the weight/crap for you. This is when it gets tough for me! Although, I can't feel your pain, my heart aches for your hurt.

Hugs. Raquel.

Nana b's picture
Nana b
Posts: 3045
Joined: May 2009

Don't give up Annie! I know you are tired! I wish, I wish that I could carry some of the weight/crap for you. This is when it gets tough for me! Although, I can't feel your pain, my heart aches for your hurt.

Hugs. Raquel.

mommyof2kds's picture
mommyof2kds
Posts: 522
Joined: Mar 2009

hang in there, your body is going through alot, when you feel tired, that is a sign that your body needs rest. It is normal to feel that way, chemo takes its toll. Petrina

AnneCan
Posts: 3692
Joined: Oct 2009

I know you are right; it is just frustrating.

AnneCan
Posts: 3692
Joined: Oct 2009

I won't give up - I am too stubborn for that! I really appreciate your kind thoughts. Hugs back to you!

herdizziness's picture
herdizziness
Posts: 3642
Joined: Apr 2010

should read my mother 1/2 Native

pepebcn's picture
pepebcn
Posts: 6352
Joined: Aug 2010

i have also a ear pug, how enoying it is!.
i hope everything goes better very soon!, 25 rounds of folfiri must be really hard!
did they say when to stop it ? , how are the results for that?
Hugs dear friend!

tina dasilva's picture
tina dasilva
Posts: 644
Joined: Sep 2010

Anne i don't what your feeling as i'm just a caregiver but i so hope you feel better soon you are an awesome person.lots of hugs Tina

AnneCan
Posts: 3692
Joined: Oct 2009

You are very kind!

AnneCan
Posts: 3692
Joined: Oct 2009

I will stay on this unless it stops working; then I would switch to something else. So far my onc is very pleased; it is keeping the cancer under control. Hugs back to you!

AnneCan
Posts: 3692
Joined: Oct 2009

I love the name Winter Marie, thanks for explaining!

Kerry S's picture
Kerry S
Posts: 607
Joined: Dec 2009

Ann darlin,
I well remember that damn chemo tiredness. It sucks. Please do your best to fight it and keep moving. Hell, if you were near here I would get your butt out cutting logs with me.

Maybe I should make the farm a chemo rehab bed and breakfast. I would get all my firewood that way.

Kerry

AnneCan
Posts: 3692
Joined: Oct 2009

Although I am a city girl, I have to admit to some log splitter envy when you talk about it - I can tell it energizes you, so your chemo rehab bed + breakfast might be a good idea. You probably would have so much wood you'd have to sell some. Who is going to do the cooking?

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Lovekitties
Posts: 3341
Joined: Jan 2010

Glad the drugs are doing their job, but sorry that it has got you so tired.

Hope the infection is soon gone and you regain your strength.

Marie

AnneCan
Posts: 3692
Joined: Oct 2009

I think the infection is basically gone. I finish the antibiotics today.

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Lori-S
Posts: 1287
Joined: Sep 2010

I think it's be expected for you to be tired with all you're going through. We will give you permission to be tired but, you have to rest too. I have such a hard time doing that. My head says one thing and my body says another and then my body convinces my head to join in and then I'm just plain exhausted. I make these great lists in my head of all the things I'm going to get done and then ... well about 2 or 3 days before chemo again, I start reorganizing my priorities and start to do things in spurts so I at least get somethings done. I have chemo this morning and I'm already fatigued just from trying to play catch on all the things I was too sick or tired to do the last 2 weeks. Can you say vicious cycle?

I hope that you feel better once you get your ear taken care of. It has to be just adding insult to injury to have an infection along with the chemo and drugs. I'm glad that you're doing well with your current cocktail. Big HUGS to you Ann.

AnneCan
Posts: 3692
Joined: Oct 2009

I have been resting a lot, + I feel guilty. I too make lists of what I want to get done. Some days I am lucky if I get one thing knocked off the list. Big hugs back to you! I hope chemo goes well for you.

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msccolon
Posts: 1956
Joined: Oct 2004

I'm sorry you are feeling so tired, it really is a vicious cycle! I'm glad your onc believes you are doing well, but I also know that it doesn't help when somebody who HASN'T been there, done that, says something like that when you are feeling like crap! I hope your infection clears up quickly, I'm sure that is just an additional drain on your energies that you do NOT need right now! Are they going to hold off on the Avastin while giving your body a chance to fight the infection? My daughter has problems with was in her ears and has to have it blasted every once in a while as well. She's always amazed at how well she can hear once the plug is cleared! She says the hearing loss from the plug is so gradual she doesn't realize she's losing it until the plug is gone and she can hear again. Of course, initially everything is so loud it's uncomfortable! :) Glad to hear you are so happy with your family doctor, they can definitely be worth their weight in gold (or coal if they suck!)!
mary

AnneCan
Posts: 3692
Joined: Oct 2009

Mary, thanks for your caring + thoughts. I am supposed to see my onc on Wed., chemo on Friday, so I will see what she says about all this. I am taking my last antibiotic tonight; + am hoping some of the tiredness disappears after that. The change in my ear since it got fixed is unbelievable - I could hardly hear at times + now it is perfect.

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plh4gail
Posts: 1238
Joined: Oct 2010

Hi Anne, I hope you are feeling better and more rested today and I hope your ear is doing better too. I know how that just adds more discomfort you don't need.

Gail

AnneCan
Posts: 3692
Joined: Oct 2009

I think I am a little better today. The ear is 100%.

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geotina
Posts: 2118
Joined: Oct 2009

George had the same thing a few months ago. Couldn't hear a thing. Quite scary. Flushing it helped and then the doc gave him some kind of pills to take for a week and it cleared up and hasn't come back. When I say couldn't hear a thing, he even had he closed caption on the TV set on because he couldn't even hear the TV. Once it cleared up, no problems, hearing fine.

Take care - Tina

AnneCan
Posts: 3692
Joined: Oct 2009

I think I actually read that cancer patients often have more ear wax - aren't we special? I could hear out of one ear but not the other. All my best to you + George.

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KathiM
Posts: 8077
Joined: Aug 2005

I'm so sorry you have such troubles!!!

You are my light...and always ready with a warm comment!!!

Please take care of you...I always used the word 'weary'...a bit more significance for me than tired...

BIG hugs,dear soul!

Hugs, Kathi

AnneCan
Posts: 3692
Joined: Oct 2009

I can feel those arms around me; it feels good! Hugs back to you, Kathi.

Annabelle41415's picture
Annabelle41415
Posts: 6440
Joined: Feb 2009

Can imagine you are tired after going through all you have been going through. Glad your energy level is getting back up there. Hope you feel better soon.

Kim

AnneCan
Posts: 3692
Joined: Oct 2009

I really appreciate your support! I am feeling a bit better tonight - I rested most of today.

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Sundanceh
Posts: 4408
Joined: Jun 2009

Tired? You bet you're tired - and sometimes you've just go to say so:)

You are a chemo warrior - I have to pass my sword on down to you now, don't think I could take what you have gone through, darlin'. You are made of iron and steel:)

-Craig

idlehunters's picture
idlehunters
Posts: 1792
Joined: Apr 2009

Even tho you are tired...and have been tired for a while.... it does not stop you from ALWAYS passing a nice word...an encouraging word...being supportive...sending hugs and just always there for everyone. Here's a {{{{GROUP HUG!!!}}}} We all love you!!!

Jennie

AnneCan
Posts: 3692
Joined: Oct 2009

Thanks so much for your your lovely comments. Thanks for the group hug - I needed that! I love your spirit!

AnneCan
Posts: 3692
Joined: Oct 2009

Hey, I did grow up in a "steel town"! I really appreciate these kind generous comments!

Luv2lunch
Posts: 272
Joined: Aug 2010

Anne,
I'm so sorry you are feeling so crummy. Mom has been where you are and actually still gets more winded and tired than she used to.
Hang in there. I know things will get better for you. I'm on the board but Mom is not, however, all I have to do is say a name and what the problem is and Mom is busy at work with her prayer cards, lol. So you are being prayed for to feel better by Mom.
Hope it helps :) Feel better.
Linda and Ellie

AnneCan
Posts: 3692
Joined: Oct 2009

Thanks so much for all the kind thoughts + prayers. I know it will get better too.

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