Tired

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AnneCan
AnneCan CSN Member Posts: 3,673 Member
edited March 2014 in Colorectal Cancer #1
Hi guys,

I am tired. The last 2 rounds of chemo I have been especially tired (I have had ~ 25 rounds of folfiri + avastin). During the last 2 rounds I also had an annoying ear plug (never had one before in my life!) and I am now on antibiotics for an infection. The ear plug took awhile to get fixed, because my family doctor wanted me to soften it for a week before they blasted it. Before I had it removed, my ear was sore, I was tired, my hearing was impaired and I felt nauseated ... + of course my mind went to scary places. Then I got this infection + I continue to be exhausted. Then I read that side effects of this drug are tiredness, weakness, etc. I am starting to feel a little more energetic. And the good news - when my my husband was discussing my ear symptoms with my onc a couple weeks ago, my onc emphasized how well I was doing on this drug cocktail. :) Also I now have a great family doctor; wouldn't go back to my old one because she misdiagnosed me for awhile.
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Comments

  • herdizziness
    herdizziness CSN Member Posts: 3,624 Member
    #2
    Dearest Anne
    Of course you're tired, seeing what you have been through, would leave me exhausted, actually THINKING about what you've been through leaves me exhausted!!!
    Can you hear me now? Oh, sorry, LMAO couldn't help but use the tired Verizon slogan there. Hoping truly you can hear well now.
    I'm so glad to see you are doing well on your drug cocktail.
    I hope your energy gets continues, you really have been through so much chemo.
    Winter Marie
  • AnneCan
    AnneCan CSN Member Posts: 3,673 Member
    #3
    herdizziness said:

    Dearest Anne
    Of course you're tired, seeing what you have been through, would leave me exhausted, actually THINKING about what you've been through leaves me exhausted!!!
    Can you hear me now? Oh, sorry, LMAO couldn't help but use the tired Verizon slogan there. Hoping truly you can hear well now.
    I'm so glad to see you are doing well on your drug cocktail.
    I hope your energy gets continues, you really have been through so much chemo.
    Winter Marie

    Thanks Winter Marie
    I just want to be not tired! and I can hear wonderfully right now; what a relief! BTW, shouldn't you live in a more northern climate with the name "Winter Marie"? Thanks for the encouragement.
  • feniks
    feniks Member Posts: 33 Member
    #4
    AnneCan said:

    Thanks Winter Marie
    I just want to be not tired! and I can hear wonderfully right now; what a relief! BTW, shouldn't you live in a more northern climate with the name "Winter Marie"? Thanks for the encouragement.

    I think
    IT's normal to be tired after 25 rounds of anything.Do you try some immune booster,like AHCC or ricebran arabynoxilan compound.It will give you some energy and appetite.Maybe even fell better with chemo?Google it.
    Take care,Alex.
  • herdizziness
    herdizziness CSN Member Posts: 3,624 Member
    #5
    AnneCan said:

    Thanks Winter Marie
    I just want to be not tired! and I can hear wonderfully right now; what a relief! BTW, shouldn't you live in a more northern climate with the name "Winter Marie"? Thanks for the encouragement.

    Northern Climate
    Raised in Alaska, 1/4 Alaska Native, my mother full, my departed Grandmother full Alaskan Native, hence, Winter Marie, we don't have reservations, we have instead corporations, I belong to the Cook Inlet Region Corporation, the 13th region. LOL
  • Nana b
    Nana b CSN Member Posts: 3,030 Member
    #6
    herdizziness said:

    Northern Climate
    Raised in Alaska, 1/4 Alaska Native, my mother full, my departed Grandmother full Alaskan Native, hence, Winter Marie, we don't have reservations, we have instead corporations, I belong to the Cook Inlet Region Corporation, the 13th region. LOL

    Don't give up Annie! I know
    Don't give up Annie! I know you are tired! I wish, I wish that I could carry some of the weight/crap for you. This is when it gets tough for me! Although, I can't feel your pain, my heart aches for your hurt.

    Hugs. Raquel.
  • Nana b
    Nana b CSN Member Posts: 3,030 Member
    #7
    herdizziness said:

    Northern Climate
    Raised in Alaska, 1/4 Alaska Native, my mother full, my departed Grandmother full Alaskan Native, hence, Winter Marie, we don't have reservations, we have instead corporations, I belong to the Cook Inlet Region Corporation, the 13th region. LOL

    Don't give up Annie! I know
    Don't give up Annie! I know you are tired! I wish, I wish that I could carry some of the weight/crap for you. This is when it gets tough for me! Although, I can't feel your pain, my heart aches for your hurt.

    Hugs. Raquel.
  • mommyof2kds
    mommyof2kds Member Posts: 519
    #8
    Nana b said:

    Don't give up Annie! I know
    Don't give up Annie! I know you are tired! I wish, I wish that I could carry some of the weight/crap for you. This is when it gets tough for me! Although, I can't feel your pain, my heart aches for your hurt.

    Hugs. Raquel.

    hang in there, your body is
    hang in there, your body is going through alot, when you feel tired, that is a sign that your body needs rest. It is normal to feel that way, chemo takes its toll. Petrina
  • herdizziness
    herdizziness CSN Member Posts: 3,624 Member
    #9
    herdizziness said:

    Northern Climate
    Raised in Alaska, 1/4 Alaska Native, my mother full, my departed Grandmother full Alaskan Native, hence, Winter Marie, we don't have reservations, we have instead corporations, I belong to the Cook Inlet Region Corporation, the 13th region. LOL

    darn
    should read my mother 1/2 Native
  • pepebcn
    pepebcn CSN Member Posts: 6,331 Member
    #10
    herdizziness said:

    darn
    should read my mother 1/2 Native

    Anne, l feel so sorry for your synthoms
    i have also a ear pug, how enoying it is!.
    i hope everything goes better very soon!, 25 rounds of folfiri must be really hard!
    did they say when to stop it ? , how are the results for that?
    Hugs dear friend!
  • tina dasilva
    tina dasilva CSN Member Posts: 641
    #11
    pepebcn said:

    Anne, l feel so sorry for your synthoms
    i have also a ear pug, how enoying it is!.
    i hope everything goes better very soon!, 25 rounds of folfiri must be really hard!
    did they say when to stop it ? , how are the results for that?
    Hugs dear friend!

    Dear Anne
    Anne i don't what your feeling as i'm just a caregiver but i so hope you feel better soon you are an awesome person.lots of hugs Tina
  • Kerry S
    Kerry S CSN Member Posts: 606 Member
    #12
    I well remember that damn chemo tiredness
    Ann darlin,
    I well remember that damn chemo tiredness. It sucks. Please do your best to fight it and keep moving. Hell, if you were near here I would get your butt out cutting logs with me.

    Maybe I should make the farm a chemo rehab bed and breakfast. I would get all my firewood that way.

    Kerry
  • Lovekitties
    Lovekitties CSN Member Posts: 3,364 Member
    #13
    Glad for good news
    Glad the drugs are doing their job, but sorry that it has got you so tired.

    Hope the infection is soon gone and you regain your strength.

    Marie
  • Lori-S
    Lori-S CSN Member Posts: 1,277 Member
    #14
    Sorry you're tired
    I think it's be expected for you to be tired with all you're going through. We will give you permission to be tired but, you have to rest too. I have such a hard time doing that. My head says one thing and my body says another and then my body convinces my head to join in and then I'm just plain exhausted. I make these great lists in my head of all the things I'm going to get done and then ... well about 2 or 3 days before chemo again, I start reorganizing my priorities and start to do things in spurts so I at least get somethings done. I have chemo this morning and I'm already fatigued just from trying to play catch on all the things I was too sick or tired to do the last 2 weeks. Can you say vicious cycle?

    I hope that you feel better once you get your ear taken care of. It has to be just adding insult to injury to have an infection along with the chemo and drugs. I'm glad that you're doing well with your current cocktail. Big HUGS to you Ann.
  • msccolon
    msccolon CSN Member Posts: 1,917 Member
    #15
    (((((((HUGS)))))))
    I'm sorry you are feeling so tired, it really is a vicious cycle! I'm glad your onc believes you are doing well, but I also know that it doesn't help when somebody who HASN'T been there, done that, says something like that when you are feeling like crap! I hope your infection clears up quickly, I'm sure that is just an additional drain on your energies that you do NOT need right now! Are they going to hold off on the Avastin while giving your body a chance to fight the infection? My daughter has problems with was in her ears and has to have it blasted every once in a while as well. She's always amazed at how well she can hear once the plug is cleared! She says the hearing loss from the plug is so gradual she doesn't realize she's losing it until the plug is gone and she can hear again. Of course, initially everything is so loud it's uncomfortable! :) Glad to hear you are so happy with your family doctor, they can definitely be worth their weight in gold (or coal if they suck!)!
    mary
  • plh4gail
    plh4gail CSN Member Posts: 1,238 Member
    #16
    Anne
    Hi Anne, I hope you are feeling better and more rested today and I hope your ear is doing better too. I know how that just adds more discomfort you don't need.

    Gail
  • AnneCan
    AnneCan CSN Member Posts: 3,673 Member
    #17
    feniks said:

    I think
    IT's normal to be tired after 25 rounds of anything.Do you try some immune booster,like AHCC or ricebran arabynoxilan compound.It will give you some energy and appetite.Maybe even fell better with chemo?Google it.
    Take care,Alex.

    Thank you Alex!
    I am not taking any immuno booster, but I will google those you mentionned. Thank-you for taking the time to respond; I know your life must be very busy right now + I am thinking of you.
  • AnneCan
    AnneCan CSN Member Posts: 3,673 Member
    #18
    herdizziness said:

    Northern Climate
    Raised in Alaska, 1/4 Alaska Native, my mother full, my departed Grandmother full Alaskan Native, hence, Winter Marie, we don't have reservations, we have instead corporations, I belong to the Cook Inlet Region Corporation, the 13th region. LOL

    Wow, that is interesting!
    I love the name Winter Marie, thanks for explaining!
  • AnneCan
    AnneCan CSN Member Posts: 3,673 Member
    #19
    Kerry S said:

    I well remember that damn chemo tiredness
    Ann darlin,
    I well remember that damn chemo tiredness. It sucks. Please do your best to fight it and keep moving. Hell, if you were near here I would get your butt out cutting logs with me.

    Maybe I should make the farm a chemo rehab bed and breakfast. I would get all my firewood that way.

    Kerry

    Thanks Kerry!
    Although I am a city girl, I have to admit to some log splitter envy when you talk about it - I can tell it energizes you, so your chemo rehab bed + breakfast might be a good idea. You probably would have so much wood you'd have to sell some. Who is going to do the cooking?
  • AnneCan
    AnneCan CSN Member Posts: 3,673 Member
    #20
    Lovekitties said:

    Glad for good news
    Glad the drugs are doing their job, but sorry that it has got you so tired.

    Hope the infection is soon gone and you regain your strength.

    Marie

    Thanks Marie!
    I think the infection is basically gone. I finish the antibiotics today.
  • AnneCan
    AnneCan CSN Member Posts: 3,673 Member
    #21
    Lori-S said:

    Sorry you're tired
    I think it's be expected for you to be tired with all you're going through. We will give you permission to be tired but, you have to rest too. I have such a hard time doing that. My head says one thing and my body says another and then my body convinces my head to join in and then I'm just plain exhausted. I make these great lists in my head of all the things I'm going to get done and then ... well about 2 or 3 days before chemo again, I start reorganizing my priorities and start to do things in spurts so I at least get somethings done. I have chemo this morning and I'm already fatigued just from trying to play catch on all the things I was too sick or tired to do the last 2 weeks. Can you say vicious cycle?

    I hope that you feel better once you get your ear taken care of. It has to be just adding insult to injury to have an infection along with the chemo and drugs. I'm glad that you're doing well with your current cocktail. Big HUGS to you Ann.

    Thanks Lori
    I have been resting a lot, + I feel guilty. I too make lists of what I want to get done. Some days I am lucky if I get one thing knocked off the list. Big hugs back to you! I hope chemo goes well for you.

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