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stage 4 liver colon cancer

tina dasilva's picture
tina dasilva
Posts: 644
Joined: Sep 2010

My husband has stage 4 liver colon cancer he has had 3 chemo and now his tumor markers was at 44 6 weeks ago and now its at 54 do we still have hope

herdizziness's picture
herdizziness
Posts: 3642
Joined: Apr 2010

Of course you should still have plenty of hope, my tumor count started at 2154, after 8 chemos (I think) it's down to 9.5 at the moment.
Tumor counts go up, go down, etc., if it continues to climb at next cea test, ask about different chemos.
I'm stage IV, diagnosed in February 6th this year, plenty of hope left.
Winter Marie

John23's picture
John23
Posts: 2140
Joined: Jan 2007

Re:
"his tumor markers was at 44 6 weeks ago and now its at 54 do we still have hope "

The count could be up to one million and fifty-four, and you still have hope.

One thing your guy should make sure to do, is get other opinions
from other colorectal surgeons. He should get other colorectal surgeons
that are -not- of the same group or association, and even better if from
another town. Opinions can be wrong, and often are, so getting two or
three when you're dealing with a life or death event, is good sense.

There's a thread here regarding CEA markers and what they mean.
Read the posts, print out the thread, and take it along on visits to
the physician's office. A rising marker can be a good sign. People
die when mistakes in judgement are made by those making the
life-or-death decisions. Get other opinions. (I repeat myself, huh)

Good luck and better health!

John

tina dasilva's picture
tina dasilva
Posts: 644
Joined: Sep 2010

Thank you for hope line and as for going to see a other doctor we try to go see a doctor in toronto and they trued us down but we go for a ct scan on monday and I'm so hoping that the cancer has gotten smaller but with the markers gone up I'm worried .

AnneCan
Posts: 3692
Joined: Oct 2009

Welcome Tina. I am sorry that you need to be here, but this is a good site for info. + support. Do you live in Ontario? I live just outside of Toronto + am being treated in Toronto.

tina dasilva's picture
tina dasilva
Posts: 644
Joined: Sep 2010

yes i do i live in Brantford ont where do you live

AnneCan
Posts: 3692
Joined: Oct 2009

I live in Mississauga + grew up in Hamilton. Where in Toronto did you try to get a referral? Is your boyfriend being treated in brantford or Hamilton currently?

tina dasilva's picture
tina dasilva
Posts: 644
Joined: Sep 2010

he's being treated in Hamilton he's going to have a ct scan tomorrow he has one spot on his liver and its from the colon .i dont know what to think about all of this .what kind of cancer do you have ?

AnneCan
Posts: 3692
Joined: Oct 2009

If he is being treated at the Jurvanski Centre, that is a very good cancer centre from what I know. There are also good ones in Toronto, for second opinions. I have colon cancer with spread to my liver + possibly one of my ovaries. So far I have not been eligible for surgery; there was more than one spot on my liver + they wanted to reduce those as much as possible. I have had chemo + radiation the summer of '09 + have been on chemo since then. Every case is different. What treatment has your boyfriend undergone or will be undergoing?

tina dasilva's picture
tina dasilva
Posts: 644
Joined: Sep 2010

he just started his 4th cycle of chemo and tomorrow he will be going for his CT scan and right now that is all we have for treatment.

AnneCan
Posts: 3692
Joined: Oct 2009

Please wish your boyfriend all the best for his CT scans; I have my fingers crossed for good results from his treatments.

tina dasilva's picture
tina dasilva
Posts: 644
Joined: Sep 2010

Thank you so much and we wish the best for you too. did your tumor markers ever go up before they went down im asking because Jorge's was at 44 and last week they where at 54 im think the cancer is geting bigger .

Lori-S's picture
Lori-S
Posts: 1287
Joined: Sep 2010

I just wanted to welcome you and point you over to this thread which may have some information for you regarding his CEA levels??

http://csn.cancer.org/node/201101

Nana b's picture
Nana b
Posts: 3045
Joined: May 2009

Glad that he is a survivor and joining us in our journey to fight the beast!

tina dasilva's picture
tina dasilva
Posts: 644
Joined: Sep 2010

Thank you so very much

Go.Fight.Win's picture
Go.Fight.Win
Posts: 3
Joined: Sep 2010

I was just diagnosed with Stage IVa Colon Cancer...I'm a healthy 40 yr old.....Ive started Go.Fight.Win to make others aware of young people getting colon cancer... And do testing early...It can save your life.. I will share my story to safe others..... Please write me and I will share it.. Ive had colon surgery and am having liver surgery this week... Then I will have chemo for six months.... :)You can find Go.Fight.Win on facebook also.. Please "like" my page on FB Too....

tina dasilva's picture
tina dasilva
Posts: 644
Joined: Sep 2010

i wish you the very best of luck. how many spots on your liver did you have and all so your tumor markers did they go up before they went down im asking because Jorge's went up they were at 44 and last week we were told they went up to 54 i dont know want to think .tell how long have you been fighting the cancer thank you for your story

herdizziness's picture
herdizziness
Posts: 3642
Joined: Apr 2010

Just to let you know hon, I have mets to my liver, I had many "spots", numerous was how they worded it, after 8 chemo's, it's down to 2 that they can see, and those 2 have shrunk tremendously, I also have spots here and there in my body, as well as the original colon cancer tumor. I haven't had any surgery as of yet, just chemo, but my body is doing well and hanging in there quite nicely. I'm actually doing more then hanging in there, I'm fighting the cancer, it was a tug of war for awhile, but now I'm getting the best of it.
Don't go by tumor count only, okay? You have to give chemo a chance to work.
In particular, what type of chemo is Jorge on????
I was diagnosed in Feb 6th of 2010, I plan on being around for quite some time, my body feels quite well, I feel normal except for a few days after chemo.
Winter Marie

tina dasilva's picture
tina dasilva
Posts: 644
Joined: Sep 2010

He's on folfiri-beva and i think 5fu if thats not the same .im just so worried he's the love of my life .

maglets's picture
maglets
Posts: 2589
Joined: Jun 2006

Hi Tina I am in Owen Sound and was treated in both London and Owen Sound ontario....I am a going on 6 year colon/liver survivor.....my liver was a big mass of tumors and I had surgery in London before starting chemo.

the cancer came back to the liver and they did a second resection of the liver and another round of chemo....Tina there is always hope even when some docs tell you there is none.

hang in....hugs, mags

tina dasilva's picture
tina dasilva
Posts: 644
Joined: Sep 2010

omg thank you so much it makes me happy to hear that poeple do win and my heart and soul goes out to you i wish you all the best omg thank you again

maglets's picture
maglets
Posts: 2589
Joined: Jun 2006

there is a very agressive liver surgeon in London at the university hospital Tina.....3 other surgeons turned me down before he accepted me for resection.....there is always hope!!!!

maggie

tina dasilva's picture
tina dasilva
Posts: 644
Joined: Sep 2010

can you give me his name we have not seen a liver surgeon as of yet .

maglets's picture
maglets
Posts: 2589
Joined: Jun 2006

i will private message you tina....

peddodu
Posts: 2
Joined: Nov 2010

Hi,

I am in a shock and complete down for the last week because my father was diagnosed with Stage4 colorectal and his liver is infected. He is 63 years old.
I am really worried about the options that his oncologist and surgeon(s) suggested, that is just chemo at this point.
He was on his first chemo since past 3 days , we don't see any side effects. I have to find out on what medicines he is on in chemo.
Our whole family is so depressed to learn about my father condition.

I just found out about your discussions, if you don't mind can you please share surgeon's name. We want to approach him for his liver infection.

Regards

Lori-S's picture
Lori-S
Posts: 1287
Joined: Sep 2010

Your post in at the end of an older post so I'm sorry but, I missed it. I want to welcome you to the board. We have lots of people with big hearts and great experience to share here. My reply will help to bump you up so others can see you here.

I know this is a difficult time for your whole family. Take time to breathe. I am so sorry that he and your family is going through this. It is a very good thing that he isn't having chemo side effects. This will make it easier to treat him. Since he is a stage 4 they absolutely want to get the chemo going so they can stop and control any spread.

Where are you located? Where is his cancer located? If it is in his colon, has he had surgery to remove the colon tumor? Has your father gotten a second opinion yet? These are the kind of questions that will really help us with what information we have to share.

Again welcome and breathe. there are many stage 4s here that have some good time under their belt. I will send out some very good luck and best wishes to you.

peddodu
Posts: 2
Joined: Nov 2010

Thank you for your wishes.
I am located in USA but my dad is located in India.
He has cancer near colon, effecting lymphnodes and spread to his liver.

He got second opinion and was suggested just chemo at this point of time to control the spread.
As the treatment options in India are not good compared to USA and UK, I am worried.

pepebcn's picture
pepebcn
Posts: 6352
Joined: Aug 2010

you will be very welcome!
Hugs!

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