Sep 16, 2010 - 4:17 pm
I had a visit with the Onc today. Since I just got done with Cyberknife a few weeks back I figured he would NOT want to do a CEA because I figured it would not be accurate with all them cancer cells dying off like that from the Cyberknife. When I told him that he just sat there staring at me.... LOL... I was like...WHAT??. He said why the heck would I think something like that? Well, because a lot of my peeps on the Cancer Board say that their docs tell them that dying tumors...dying cancer cells..can cause a rise in CEA. He told me that is absolutely NOT true. He siad when cancer cells are dying they have less or no CEA in them at all... They are DEAD. can't measure the antigen in something dead. He said when I had almost 20 tumers and chemo was killing them off one by one.... did my CEA keep on rising??? NOOOOOO.... it kept going down till I was NED. When CEA started rising... we did tests...and what did we find..... NEW cancer growth... MORE CEA!! ok.ok...I get it. I guess I just didn't really think about it when that statement was being said.
So...what about you all???? Why does your Onc tell you dying cancer makes CEA go up??? What is reasoning behind that? .... OR..does your Onc agree with mine??? What my Onc is telling me makes sense and the proof is in the puddin. Just something thats making me scratch my head and makes me go ..hummmmmmm.
As far as the rest of my visit...... He is not going to put me back on full force chemo... just maintenance. A 2 hour drip of 5FU every week for 3 weeks and then off 1 week. On weeks 1 and 3 I will also get Avastin. So YAY.... means no more CPT11 = HAIR!!!!! At the end of Sept I get a CT scan from the Cyberknife people to show how that progressed and if that is still showing nothing new then I will continue on maintenance chemo until I get PET/CT in Oct....and if that is clear that will mean NED and....VACATION CITY!!!! Watch out CP8..... Gonna be one hell of a party!!!!!