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Lung metastasis

kristasplace
kristasplace Member Posts: 955
edited March 2014 in Colorectal Cancer #1
Well now there's spread to the lung. I have to get it CT'ed on Monday so they can get a better look at it, and figure out what to do about it. Surgery is a given, but the onc doesn't know what kind. He's taking it to the tumor board the day after the CT. I told him i don't want any more surgery...damn i'm sick of surgeries. I think i'd rather do chemo, but my onc says they no longer treat tumors with chemo until surgery has been done first. Whatever.

I feel like all the hard work i've been doing; changing my diet, drinking nasty pom juice, supplementing, has all been for naught. I'm telling myself that i just haven't been doing it long enough, and i need to give it more time, and be even more rigid with myself. There are days i don't drink the pom juice, and sometimes i forget my supplements. I need to do better. I feel i may not have the time i need. Four months ago, at my last PET scan, there was nothing on the lung. Now it's lit up like a Christmas tree. I said i wouldn't do chemo unless a tumor formed, but even though one has, i still don't want to do chemo. I feel fine, and healthy. By looking at me, you'd never know i have stage IV colorectal cancer. I feel better than i have in five years! If i start doing chemo, all of that will change. I'm very confused as to what to do. Any suggestions?

Comments

  • John23
    John23 Member Posts: 2,122
    Opinion?


    I'd do the surgery and see what happens. They've made great advances
    in surgical technique, and with the proficiency now, I'd opt for surgery
    regardless....

    But you'd want to make sure you have the best surgeon for the job;
    one with plenty of lung experience.

    Stay calm, and allow your instincts to point you to the best route.

    You're gonna' do fine!


    John
  • PhillieG
    PhillieG Member Posts: 4,866
    John23 said:

    Opinion?


    I'd do the surgery and see what happens. They've made great advances
    in surgical technique, and with the proficiency now, I'd opt for surgery
    regardless....

    But you'd want to make sure you have the best surgeon for the job;
    one with plenty of lung experience.

    Stay calm, and allow your instincts to point you to the best route.

    You're gonna' do fine!


    John

    OK, who are you?
    Where's John!!!!
    Just busting you John, surgery's one thing, chemo's another...
  • PhillieG
    PhillieG Member Posts: 4,866
    Lung Mets
    Hi Krista,
    I've been dealing with lung mets for over 4 years by now. I've had a three wedge resections and I've also had RFA done. The RFA was a walk in the park, the lung operations were not horrible but they were not a lot of fun either. Moat of those that I've had were highly successful, stuff grew in other areas. Now we are just doing RFAs due to scar tissue issues. IF they do lung surgery, ask about "muscle sparing technique". That is a bit easier on the muscles but it is a little harder for the doctor. they shouldn't give you a hard time about it, if they really balk then maybe he (if she) is not your surgeon...
    -phil
  • Annabelle41415
    Annabelle41415 Member Posts: 6,712 **
    Sorry
    Sorry about your news. Hope that whatever decision that you make, it is the right one for you and that you are comfortable with it. Maybe your oncologist can give you some options that will help your decision. Keep us informed when you get a chance.

    Kim
  • idlehunters
    idlehunters Member Posts: 1,787

    Sorry
    Sorry about your news. Hope that whatever decision that you make, it is the right one for you and that you are comfortable with it. Maybe your oncologist can give you some options that will help your decision. Keep us informed when you get a chance.

    Kim

    Hey Krista
    I too have been battling lung mets since the beginning. I originally had 15 mets scattered throughout both lungs. Chemo killed them all...AND 4 in the liver. I was NED 7 months (on vacation I prefer to think of it as) and then was hit with recurrance (5 mets but only 2 lit up)... went back on chemo... just 2 rounds... took out 4 of them suckers.... this Tuesday I am having the biggest and oldest tumor cyberknifed (this tumor we THOUGHT was dead from the first chemo...NOT..fooled us!) so this time I ain't waiting on chemo cause this one is stubborn..... IT just don't realize (YET) than I am a bigger beotch!!!! I hate chemo too but it HAS been successful.... BUT.... not totally....otherwise the crap would not be back. I am finding the cost (not dollar wise) of chemo is just not for me and have decided when I go on vacation this time...... I will find ALTERNATIVES....... why not??? If the crap comes back.... I will figure that out then.... You let us know what happens and take care!

    Jennie
  • Hey Krista
    I too have been battling lung mets since the beginning. I originally had 15 mets scattered throughout both lungs. Chemo killed them all...AND 4 in the liver. I was NED 7 months (on vacation I prefer to think of it as) and then was hit with recurrance (5 mets but only 2 lit up)... went back on chemo... just 2 rounds... took out 4 of them suckers.... this Tuesday I am having the biggest and oldest tumor cyberknifed (this tumor we THOUGHT was dead from the first chemo...NOT..fooled us!) so this time I ain't waiting on chemo cause this one is stubborn..... IT just don't realize (YET) than I am a bigger beotch!!!! I hate chemo too but it HAS been successful.... BUT.... not totally....otherwise the crap would not be back. I am finding the cost (not dollar wise) of chemo is just not for me and have decided when I go on vacation this time...... I will find ALTERNATIVES....... why not??? If the crap comes back.... I will figure that out then.... You let us know what happens and take care!

    Jennie

    This comment has been removed by the Moderator
  • This comment has been removed by the Moderator
  • serrana
    serrana Member Posts: 163
    lung mets
    Hi Krista
    Do I recall you are at Moores?
    I've had 3 lung met surgeries and prefer surgery to chemo anyday....
    Not fun but considering the whole body effects ....my preference
    If you are at Moores get an appt w/ the cardiothoracic surgeon Anthony Perricone, MD
    and tell him "Judy" sent you.....he did all my surgeries and has lots of experience w/ lung mets vs. chemo etc.
    I am 6 weeks post the third lung surgery and feel fabulous, NED right now
    All the best
    Serrana
  • Aud
    Aud Member Posts: 479
    Nothing practical to offer.
    Nothing practical to offer. Just holding you in the Light for strength to make the decision that's right for you, and for healing.
    And don't beat yourself up for not doing "enough." You've done great and know that you are healthier today from taking care of yourself, and in better shape to battle this beast.
    ~Audrey
  • tootsie1
    tootsie1 Member Posts: 5,036
    Sorry,Krista
    I don't have the experience to give you any good advice. Just praying you find the right choice for YOU.

    *hugs*
    Gail
  • idlehunters
    idlehunters Member Posts: 1,787
    unknown said:

    This comment has been removed by the Moderator

    Hey Kathy!
    I had the exact same thing the second time around..... Folfiri with Avastin... Take care

    Jennie
  • geotina
    geotina Member Posts: 2,111
    Krista:
    Bummer. You did everything you could and was right for you to prevent this so please, don't second guess yourself. I'm learning this disease has a mind of its own. Listen to what your docs say then make an informed decision doing what is best for you. George has lung mets and after Folfox is now on maintenance chemo which seems to continue to do its job. Will his mets ever be gone, who knows, many of them are gone and the rest are significantly smaller. He has never had surgery or radiation for them combined with the liver mess he just wasn't a candidate but who knows.

    Take care and come back and let us know what you decide.

    Tina
  • AnneCan
    AnneCan Member Posts: 3,673
    Sorry Krista
    Hi Krista,

    I am sorry for the lung met. You are fighting hard + deserve a break. Please let us know what you decide after the CT. Take good care!
  • mom_2_3
    mom_2_3 Member Posts: 952
    Shoot
    I am so ticked that you got this news. I just hate hate hate cancer. I don't have any opinion as to what path you should follow but I am thinking of you and I pray that you find the way that is best for you.

    Amy
  • sasjourney
    sasjourney Member Posts: 395
    You'll get through this!
    Krista,

    I'm so sorry to hear the news but I know you will make the right decision for you and you will get through this. You are in my prayers.

    Hugs,
    Sara
  • pf78248
    pf78248 Member Posts: 209
    Oh, Krista, I hate this news
    Krista,

    I can't give advice to you because I have no clue what to do, but I know whatever course you choose will be the right one. And be grateful you are doing so well, aside from the lung mets, as it has to make your recovery better because of how otherwise well you are doing!

    Whatever it is, know that we are here to support you and send you best wishes and prayers for success.

    Hugs and Healing,
    Priscilla
  • Sonia32
    Sonia32 Member Posts: 1,071
    Hey Krista
    I'm so sorry for your latest setback :-( Whatever you decide we are behind you all the way.

    Hugs
  • HollyID
    HollyID Member Posts: 946
    Krista...
    I'm so sorry about this setback. I don't have any experience with mets, but I just wanted you to know that I'm thinking of you and sending positive thoughts and prayers your way.

    Love and Hugs,

    Holly
  • angelsbaby
    angelsbaby Member Posts: 1,165
    HollyID said:

    Krista...
    I'm so sorry about this setback. I don't have any experience with mets, but I just wanted you to know that I'm thinking of you and sending positive thoughts and prayers your way.

    Love and Hugs,

    Holly

    Krista
    this stuff just never ends, i wish you strength in what ever you decide to do. take care

    hugs

    michelle
  • lisa42
    lisa42 Member Posts: 3,625
    hugs
    Hi Krista,

    Hugs and prayers to you- I can imagine how disappointed you are that the lungs are "lighting up like a Christmas tree". I don't know what to tell you about taking chemo or not. I know how lousy it is and how determined you are to not take it. I'd do the surgery first and then evaluate. My first thought is that the chemo could give it the one-two punch that it needs to get knocked back again. I just would hate for it to take off growing in you and get to the out of control point- please entertain thoughts of doing the chemo again. Sorry- that's just my gut instinct.

    Praying for you right now-
    Lisa
  • kristasplace
    kristasplace Member Posts: 955
    You guys are all so inspirational
    I really don't know what i'd do without you guys. I've felt so scared since the news, i wake up every morning in tears. If i didn't have you guys here to tell me you understand, and to give me the cherished advise i trust a thousand times more than my doctors', i would be curled up in a ball somewhere, just waiting for it all to end. I see what all of you have been through, and you continue to fight, knowing you'll survive this, and many of you are surviving.

    I see my oncologist on Sept. 1st to discuss all the options, then on Sept. 3rd, i'm going to another water park to have fun until the sun goes down, no matter what. I know if i keep my spirits high, and my love for life alive, it will only help me.

    Thank you so much for the support!

    Serrana, i am at Moores. My oncologist is Dr. Paul Fanta. Is that where you go? Lisa, have you started a trial yet? I know we're all very busy, but i would like to get together with you guys sometime. Do either of you go to the GI cancer support group at Moores?

    Hugs,
    Krista
  • kristasplace
    kristasplace Member Posts: 955
    pf78248 said:

    Oh, Krista, I hate this news
    Krista,

    I can't give advice to you because I have no clue what to do, but I know whatever course you choose will be the right one. And be grateful you are doing so well, aside from the lung mets, as it has to make your recovery better because of how otherwise well you are doing!

    Whatever it is, know that we are here to support you and send you best wishes and prayers for success.

    Hugs and Healing,
    Priscilla

    So sorry...
    I'm so sorry about David, Priscilla. You work hard enough to kill the beast only to succumb to the treatments. It happens too much. It's such a difficult cancer to kill. That's why i'm afraid of doing any more treatments. So much of it has irreversibly damaged me already. It took a great deal out of my quality of life, and It's taken two years of hard work just to be able to get out of the house again comfortably. I'm not ready for that to end, and this time maybe for good. I think that's a greater fear than dying for me. I can totally understand David's decision not to try anything else.

    My thoughts and prayers are with you both.

    Krista
  • kristasplace
    kristasplace Member Posts: 955
    serrana said:

    lung mets
    Hi Krista
    Do I recall you are at Moores?
    I've had 3 lung met surgeries and prefer surgery to chemo anyday....
    Not fun but considering the whole body effects ....my preference
    If you are at Moores get an appt w/ the cardiothoracic surgeon Anthony Perricone, MD
    and tell him "Judy" sent you.....he did all my surgeries and has lots of experience w/ lung mets vs. chemo etc.
    I am 6 weeks post the third lung surgery and feel fabulous, NED right now
    All the best
    Serrana

    Dr. Perricone
    YES! That's the doctor Dr. Fanta has referred me to. He said he's an excellent surgeon. Oh, i'm glad you have him! It's always better to get a referral from a patient than a doctor who hasn't gone through it.
  • lisa42
    lisa42 Member Posts: 3,625

    You guys are all so inspirational
    I really don't know what i'd do without you guys. I've felt so scared since the news, i wake up every morning in tears. If i didn't have you guys here to tell me you understand, and to give me the cherished advise i trust a thousand times more than my doctors', i would be curled up in a ball somewhere, just waiting for it all to end. I see what all of you have been through, and you continue to fight, knowing you'll survive this, and many of you are surviving.

    I see my oncologist on Sept. 1st to discuss all the options, then on Sept. 3rd, i'm going to another water park to have fun until the sun goes down, no matter what. I know if i keep my spirits high, and my love for life alive, it will only help me.

    Thank you so much for the support!

    Serrana, i am at Moores. My oncologist is Dr. Paul Fanta. Is that where you go? Lisa, have you started a trial yet? I know we're all very busy, but i would like to get together with you guys sometime. Do either of you go to the GI cancer support group at Moores?

    Hugs,
    Krista

    PM coming
    Hey Krista,

    I'm sending you a PM...

    Lisa
  • herdizziness
    herdizziness Member Posts: 3,624
    Suggestions
    I haven't read past your post, there is 24 according to the discussion board.
    Suggestions? I haven't none.
    Hope? That I have plenty of. My dear, your photo is so beautiful, your smile, it makes the world smile with you, so contagious.
    As for the "so called" "natural path", I'm never going there, and I'm sorry that you drank those horrible drinks and tried it and it didn't work. Sometimes John can scare you into things you wouldn't ordinarily think of, if it wasn't him, it was others that made you make that choice.
    Don't blame that however for your discouragement. Just blame plain ordinary life on it.
    None of us ever expected to hear the word cancer, never, especially not colon cancer. What a freaking surprise to be delivered.
    Since my diagnosis, my liver became more active, not in a good way. The reason??? Who knows, but I changed my ways, became more nutritious, and since that point made it worse. LOL. So I'm just going to be who and what I was. I'm going to take that chemo, expect the best and try my hardest to live. So what, pom pom juice can kiss my arse, give me my cranberry back, no red meat?, heck, bring on that steak.
    But that's just me, being me, trying to do the best I can to survive in a way that makes a difference.
    But, whatever you do, don't lose that beautiful smile, and do everything you can do to survive medically speaking.
    Honey, we like looking at your picture, your perfect smile and wishing you the best that life has to give, keep HOPE alive, always there is hope.
  • CherylHutch
    CherylHutch Member Posts: 1,375
    Lung Mets
    Hey Krista,

    So sorry to hear you got this news and now here we go again. From someone else who is in the Lung Mets category, I'm on chemo (Xeloda) to see if that will get rid of two of them that we are concerned with an a growth in the kidney which we aren't sure is colon cancer spread or a new primary Kidney cancer. We will know if it responds to the Xeloda, but if it doesn't, we will probably just zap it with an RFA procedure. Meanwhile, I am keeping my fingers crossed that the Xeloda does a number on the mets in the lungs... some of them so small and they haven't grown in almost 3 years, but 2 of them that have started growing.

    I really don't mind the chemo (Xeloda). The only complaint I have about it is that it is attacking the nerve-endings on my feet, which is a real pain (was serious pain but we up'ed my Lyrica med and that seems to be taking the edge off of it). I get my first CT scan since starting the Xeloda and that will be the key to tell us if it's working or not.

    I'm surprised that your onc told you that they no longer treat tumours with chemo until surgery has been done first. That is NOT true. In some cases, they would prefer to try chemo first to avoid any kind of invasive surgery. It can really depend on the chemo and how you react to it. I would much prefer doing the Xeloda than invasive surgery... mind you, if all RFA procedures were as easy as the ONE I had done on a tumour in my lung, then I would prefer RFA for removing all tumours :)

    Cheryl
  • biglaur
    biglaur Member Posts: 72
    I also had treatment at Moore's
    If you have time, I'd suggest you try and see Dr. Arno Mundt...radio-oncologist at Moores. A super guy, brilliant, thinks waaaay outside the box, he may have suggestions for some alternative treatments. I passed on surgery and chose gamma knife radiation instead. So far so good! Good luck
    Laurie
  • serrana
    serrana Member Posts: 163
    biglaur said:

    I also had treatment at Moore's
    If you have time, I'd suggest you try and see Dr. Arno Mundt...radio-oncologist at Moores. A super guy, brilliant, thinks waaaay outside the box, he may have suggestions for some alternative treatments. I passed on surgery and chose gamma knife radiation instead. So far so good! Good luck
    Laurie

    Moores
    Yes Krista I have your onc and I agree w/ Laurie that rad onc might also be a possibility
    Lung mets are extremely common and really they can take out alot of lung with no effect on your life.........I have two lobes missing after three lung surgeries and breathe better today than ever before at age 70. The surgeon I referred you to is a saint, he did all three surgeries; does heart and lung transplants ( you won't need one) and is very very well known
    I always ask his opinion about everything lung wise as he has seen it all.
    Keep me posted, a pm is great, and yes we do need to get together.
    I am doing some activities at SanDiegoCancerCenter ( free ) you might like....Mindfulness, Acupuncture, and Tibetian SOund Healing. Call them if you are interested or go to their website.
    Best prayers
    Serrana
  • trishisintune
    trishisintune Member Posts: 5
    I'm so sorry. Hang in
    I'm so sorry. Hang in there.

    Before you turn down the surgery, keep in mind that surgery cures better than chemo. If the tumor is operable, you can still be cured.

    Good luck!

    Trish
  • Buzzard
    Buzzard Member Posts: 3,043

    I'm so sorry. Hang in
    I'm so sorry. Hang in there.

    Before you turn down the surgery, keep in mind that surgery cures better than chemo. If the tumor is operable, you can still be cured.

    Good luck!

    Trish

    Krista.........
    If its a tumor.get it out...They can look at it on the table, it needs to be out of the body where it does no more harm...Surgery, lung surgery, sucks, plain and simply sucks, but in 4 days it starts getting much better and now its fine...VATS for a met tumor Sept 7th surgery back to work now and doing fine , no nodes, all clear margins...I consider it my Vandy weight loss program..I lose about 1/2# every time I go....still kicking though so all is well.....get the surgery and if necessary do the chemo...it may be that TCM doesn't work for everyone....Im not discounting it, but it may be like CEA as an indicator, whats great for some may be mute for others.....in any instance, you will be fine.....Love to you, Clift