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weirdest chemo side effect??? add yours

tesslee's picture
tesslee
Posts: 97
Joined: Apr 2010

mine is my voice. it's low and shaky.

ketziah35
Posts: 1154
Joined: Jun 2010

My mom had that. It went away.

idlehunters's picture
idlehunters
Posts: 1792
Joined: Apr 2009

I have often wondered HOW to bring this up but you just opened the door so I'm gonna just say it..... uhhhhhh... crud...better not...it's sexual and I don't want to offend anyone... Dang! oh well..... sorry, never mind... :)

Jennie

ktlcs's picture
ktlcs
Posts: 360
Joined: Jan 2010

come on Jennie, tell

Kathy

jams67's picture
jams67
Posts: 927
Joined: May 2006

I got a milkshake on the way home from chemo and the cold froze my tongue. Needless to say that I was having a lot of trouble talking. Freaked me out to not be able to talk.
Jo Ann

breezie
Posts: 22
Joined: Jul 2009

Can't quite explain it except it was like biting on a lemon or something sour. It didn't always happen and it could be something sweet, something salty or even just a piece of bread. The second bite was better and it happened more often while I was on chemo but have been off it for 8 months and I still get the sensation although not nearly as often.....weird.

Annabelle41415's picture
Annabelle41415
Posts: 6510
Joined: Feb 2009

Oh my goodness, that has happened to me just recently too and thought that was done when chemo ended. Guess not.

Kim

abrub's picture
abrub
Posts: 2131
Joined: Mar 2010

Felt like someone was slamming my face between 2 bricks. I'd literally double over in pain. Still (2 years out) occasional "reminder sensations" tho no more pain.

Second bite was fine. Reset time: 15 minutes without eating, so slow restaurant service meant multiple "first bites".

jams67's picture
jams67
Posts: 927
Joined: May 2006

I had this too. I found that if I just licked/tasted the food, sounds gross, instead of putting it in my mouth, the first bite didn't hurt so bad. Then I could eat the rest of ir with no pain. Jo Ann

Annabelle41415's picture
Annabelle41415
Posts: 6510
Joined: Feb 2009

During chemo my vision would get so blurry and several days after that too. My age has contributed somewhat but it seems that my eyes have gotten worse since chemo.

Kim

herdizziness's picture
herdizziness
Posts: 3642
Joined: Apr 2010

It hurts my eyes to cry, which is in a way a good thing, can't have to many pity parties when it hurts too much to cry!!!

colon2's picture
colon2
Posts: 184
Joined: Feb 2009

I had the cold sensitivity, making it feel like you couldn't breath, the pain with the first bite of food, chest pains, eyes hurting if I cried, but the weirdest one was the skin on the bottom of my feet completely blistered and peeled off. Good thing about it was they were numb and it didn't hurt. Just looked really weird.
Carletta

abrub's picture
abrub
Posts: 2131
Joined: Mar 2010

I literally couldn't fold a piece of paper (a check) in half to put in my purse, let alone do buttons or fasten my own seatbelt. To this day (27 months post-cehmo) my writing is affected.

snommintj's picture
snommintj
Posts: 602
Joined: Mar 2009

On folfox I would keep an erection almost the entire time I had the pump on and for about 1 day after. It was miserable

on xeloda I lost most of my fingerprints and my face goes through extremely dry periods.

on abraxane my lower left leg is almost completely numb, and the top half of my right leg is the same.

Patteee's picture
Patteee
Posts: 950
Joined: Jul 2009

Mine was just typical chemo side effects that were magnified greatly. Wish I had a buck for every time my oncologist said, "wow I have never seen _____ this bad before!" (fill in the blank)
The wicked one was my poor mouth's reaction to it all. I did fine until like say, treatment number 5, and then all heck broke loose. My mouth was SORE- no white places, just hurt along the inner checks to eat anything that was rough, like toast. So 4 days after disconnect I went in to have it checked. Just had a couple of nurses look at it- doc was busy and couldn't see me. By then I could barely talk, my tongue so swollen it was making me lisp something bad. I got fluids, miracle mouth wash and told to rinse mouth a zillion times. The next day I went to the inpatient unit for fluids- the nurse took one look at me and called for orders to admit me. By then I couldn't speak at all and they could not get my teeth apart to look in my mouth. One could just barely make out that my gums were so swollen they were up over my teeth. That hospitalization I was in for a week- and went home with my mouth still swollen, but better and totally white inside. It was pretty vile. That was the first time my oxy got cut-

Lifeisajourney
Posts: 217
Joined: Apr 2010

I am always finding out I am not the only one that had a particular problem, sometimes you think you are the only one that had a problem. I can relate to so many of your issues, wish I had started coming here when I was going thru chemo, it should would have helped. I drooled and fell and could not write, much better now. Thanks again all. Pat

bdee
Posts: 305
Joined: Feb 2009

This was while I was on oxy and about a month after I was taken off oxy. All together I lost 65 pounds, but not a good way. I went for a month having help to go to the bathroom because I was so weak from not eating.
My onc made me have an upper GI and a swallow test because he had never seen anyone who actually could not swallow any solid food. After these two tests came back okay, he took me off oxy.

PhillieG's picture
PhillieG
Posts: 4907
Joined: May 2005

Now I can speak fluent French!!!

AnneCan
Posts: 3692
Joined: Oct 2009

C'est tres bien!

PhillieG's picture
PhillieG
Posts: 4907
Joined: May 2005

I can speak it, not understand it or write it.
That's what's so strange about it
;-)
But I am fine, merci Anne.

Patteee's picture
Patteee
Posts: 950
Joined: Jul 2009

delete

Patteee's picture
Patteee
Posts: 950
Joined: Jul 2009

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Patteee's picture
Patteee
Posts: 950
Joined: Jul 2009

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Patteee's picture
Patteee
Posts: 950
Joined: Jul 2009

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pepebcn's picture
pepebcn
Posts: 6352
Joined: Aug 2010

are growing on my head rigth now !!
jajaja!!
Now seriously double vision in this moment .
Have fun!

Kenny H.'s picture
Kenny H.
Posts: 503
Joined: Aug 2010

I lucked out. on xeloda none of the above.

nursesheri's picture
nursesheri
Posts: 50
Joined: Jul 2010

During tx, I experience facial and scalp muscle contractions. Think it might be from the pre chemo atropine. Not sure which is worse, the side effect prevention drugs, or the chemo it self.

Sheri

daydreamer110761's picture
daydreamer110761
Posts: 497
Joined: Dec 2008

I was in the beginning of the chemo, here in mn, and still in the "I can do it all myself" stage. I had gone grocery shopping and was headed to the car, walking out of the store my eyes "watered up" and then completely froze over (it was january) for a few seconds - really scary!

Of course I had my onc telling me he had never heard of that - everytime i mentioned something. my eyes still hurt when I cry, which stinks cause I cry at everything!

chicoturner's picture
chicoturner
Posts: 285
Joined: Apr 2009

On Friday after a Thurs. infusion, I had the most intense chest pain that ran all the way down my left arm. I was on the pump and thought it was from that. It eased up after a while so I thought it was just a crazy side affect. Went to bed and woke at about 1 am in considerable pain again. Called my onc and said get to emergency. I spent 3 days being checked out for everything heart realated, to find out my heart is good... This happened every time I had treatment (oxy) for 12 treatments. I choose to stay with it because the scans showed the tumors fading fast. My onc said he had never seen this reaction. They watched me closely and encouraged me to stop, but I wanted to just be done with it. The pain would last for about 40-45 mins - very intense, then fade and I would sleep for a couple of hours and it would begin again. This happened each treatment for about 12 hour period. I could tell with in a few hours when it would start!! At the end of treatment my tumors where down to just a speck or 2. within 3 months of no treatment they all came back.
I now know I am so much stronger then I ever thought and I CAN deal with more if I have to.
No pain meds helped with pain, but I did sleep when it was over!! Wierd to say the least! My onc still asks me about it!! Jean

taraHK
Posts: 1961
Joined: Aug 2003

I had a rash (most probably from oxaliplatin) which was exactly the shape of a man's beard (I'm female). My doc was disappointed I didn't take a photo -- I think he wanted to submit to a medical journal as a weird case story. It was controlled with steroid and antihistamine. I stayed on oxi but never had that exact rash again. Weird!
tara

christinecarl's picture
christinecarl
Posts: 545
Joined: Sep 2009

I went through chemo while it was Winter her in MN, not a the best time with the cold sensitivity issues. I had my eyes freeze shut a couple of times going from the store to my car, my eyes watered a bit and froze shut. I would have to put my hands on my eyes to warm them up and unfreeze them. I also had the jaw pain someone else mentioned below, the jolt I would get from the first few bites of food was enough pain to almost drop me to my knees, thankfully it stopped doing that about half way through my chemos.

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abrub's picture
abrub
Posts: 2131
Joined: Mar 2010

My hearing actually has become much more acute since chemo. White noise drives me nuts, as does any volume on other sounds (music, etc.)

I guess when making my nerves hypersensitive, it affected my auditory nerves as well.

HollyID's picture
HollyID
Posts: 951
Joined: Dec 2009

I got the cold thing in the winter. Eyes watering, jaw pain at first bite. My eyes got worse. Fingertip and toe Neuropathy.

One thing that did happen was chemo ate my fingerprints, which is how we access the time clock at work. When I tried to access one shift, I tried over twenty times to get in. It wouldn't let me because it couldn't read the prints. There really were none. Luckily, there was an override for that and now all I need is my name-badge. :) My onc didn't seem surprised to hear that.

imagineit2010's picture
imagineit2010
Posts: 153
Joined: Jan 2010

OK, I'm going to add to this even though I don't think it was from Chemo. I think it was from the simultaneous radiation. I had a couple weeks of difficulty urinating. When I stood to urinate I would get a FULL erection about five seconds in and it would shut down my ability to urinate causing very much discomfort. The blood flow would disapate and I would have to finish peeing about two minutes later. I tried to aleviate this condition by sitting which would cause me to have a bowel movement. It's like the signals were getting all crossed up.I was drinking alot of water so this was a regular occurance about five or ten times a day. It was tolerable but strange none the less. I also got a temporary (itchy)rash right on the end of my johnson that drove me a little crazy but I toughed it out. I know,I know, nuthin compared to some of these.
You asked for weird.....

ron50's picture
ron50
Posts: 1729
Joined: Nov 2001

i had infusions of 5fu via canulas in the back of alternate hands for 48 weeks. By the end of the 48 weeks the veins in each arm that carried the chemo were so dark they were nearly black all the way up to each shoulder. I often heard people commenting ,they probably thought I was some sort of drug addict. After chemo finished they gradually faded back to normal after about three months. Ron.

iluvmms's picture
iluvmms
Posts: 134
Joined: Aug 2009

I work in a courthouse with biometrics on the doors and you have to scan fingerprint to get in to the building, well I have a hard time convencing the bailiffs that me fingerprints are gone for now. They think Im crazy. I guess we would make good criminals with no fingerprints. They are totally gone for now.

Kathryn_in_MN's picture
Kathryn_in_MN
Posts: 1258
Joined: Sep 2009

But one of the weirdest was facial twitching and my face cramping and freezing into a funny expression. I couldn't do anything about it - it froze - and I had trouble breathing at the same time. Turned out to be an oxy allergic reaction - out came the Benadryl and steroids, which continued to be pulled out often through my treatments for other allergic reactions to both oxy and 5-FU.

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