weirdest chemo side effect??? add yours

tesslee
tesslee Member Posts: 97
edited March 2014 in Colorectal Cancer #1
mine is my voice. it's low and shaky.
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Comments

  • ketziah35
    ketziah35 Member Posts: 1,145
    #2
    My mom had that. It went
    My mom had that. It went away.
  • idlehunters
    idlehunters Member Posts: 1,787 Member
    #3
    ketziah35 said:

    My mom had that. It went
    My mom had that. It went away.

    WOW
    I have often wondered HOW to bring this up but you just opened the door so I'm gonna just say it..... uhhhhhh... crud...better not...it's sexual and I don't want to offend anyone... Dang! oh well..... sorry, never mind... :)

    Jennie
  • jams67
    jams67 Member Posts: 925 Member
    #4
    I got a milkshake on the way
    I got a milkshake on the way home from chemo and the cold froze my tongue. Needless to say that I was having a lot of trouble talking. Freaked me out to not be able to talk.
    Jo Ann
  • ktlcs
    ktlcs Member Posts: 358
    #5
    idlehunters said:

    WOW
    I have often wondered HOW to bring this up but you just opened the door so I'm gonna just say it..... uhhhhhh... crud...better not...it's sexual and I don't want to offend anyone... Dang! oh well..... sorry, never mind... :)

    Jennie

    Come On
    come on Jennie, tell

    Kathy
  • breezie
    breezie Member Posts: 22
    #6
    first bite of food
    Can't quite explain it except it was like biting on a lemon or something sour. It didn't always happen and it could be something sweet, something salty or even just a piece of bread. The second bite was better and it happened more often while I was on chemo but have been off it for 8 months and I still get the sensation although not nearly as often.....weird.
  • Annabelle41415
    Annabelle41415 Member Posts: 6,742 Member
    #7
    breezie said:

    first bite of food
    Can't quite explain it except it was like biting on a lemon or something sour. It didn't always happen and it could be something sweet, something salty or even just a piece of bread. The second bite was better and it happened more often while I was on chemo but have been off it for 8 months and I still get the sensation although not nearly as often.....weird.

    Mouth
    Oh my goodness, that has happened to me just recently too and thought that was done when chemo ended. Guess not.

    Kim
  • Annabelle41415
    Annabelle41415 Member Posts: 6,742 Member
    #8
    Vision
    During chemo my vision would get so blurry and several days after that too. My age has contributed somewhat but it seems that my eyes have gotten worse since chemo.

    Kim
  • abrub
    abrub Member Posts: 2,174 Member
    #9
    breezie said:

    first bite of food
    Can't quite explain it except it was like biting on a lemon or something sour. It didn't always happen and it could be something sweet, something salty or even just a piece of bread. The second bite was better and it happened more often while I was on chemo but have been off it for 8 months and I still get the sensation although not nearly as often.....weird.

    First bite of food
    Felt like someone was slamming my face between 2 bricks. I'd literally double over in pain. Still (2 years out) occasional "reminder sensations" tho no more pain.

    Second bite was fine. Reset time: 15 minutes without eating, so slow restaurant service meant multiple "first bites".
  • herdizziness
    herdizziness Member Posts: 3,624 Member
    #10
    Crying
    It hurts my eyes to cry, which is in a way a good thing, can't have to many pity parties when it hurts too much to cry!!!
  • colon2
    colon2 Member Posts: 183
    #11
    herdizziness said:

    Crying
    It hurts my eyes to cry, which is in a way a good thing, can't have to many pity parties when it hurts too much to cry!!!

    crazy symptoms
    I had the cold sensitivity, making it feel like you couldn't breath, the pain with the first bite of food, chest pains, eyes hurting if I cried, but the weirdest one was the skin on the bottom of my feet completely blistered and peeled off. Good thing about it was they were numb and it didn't hurt. Just looked really weird.
    Carletta
  • abrub
    abrub Member Posts: 2,174 Member
    #12
    Total loss of fine motor skills
    I literally couldn't fold a piece of paper (a check) in half to put in my purse, let alone do buttons or fasten my own seatbelt. To this day (27 months post-cehmo) my writing is affected.
  • snommintj
    snommintj Member Posts: 601
    #13
    abrub said:

    Total loss of fine motor skills
    I literally couldn't fold a piece of paper (a check) in half to put in my purse, let alone do buttons or fasten my own seatbelt. To this day (27 months post-cehmo) my writing is affected.

    a few
    On folfox I would keep an erection almost the entire time I had the pump on and for about 1 day after. It was miserable

    on xeloda I lost most of my fingerprints and my face goes through extremely dry periods.

    on abraxane my lower left leg is almost completely numb, and the top half of my right leg is the same.
  • Patteee
    Patteee Member Posts: 945
    #14
    Mine was just typical chemo
    Mine was just typical chemo side effects that were magnified greatly. Wish I had a buck for every time my oncologist said, "wow I have never seen _____ this bad before!" (fill in the blank)
    The wicked one was my poor mouth's reaction to it all. I did fine until like say, treatment number 5, and then all heck broke loose. My mouth was SORE- no white places, just hurt along the inner checks to eat anything that was rough, like toast. So 4 days after disconnect I went in to have it checked. Just had a couple of nurses look at it- doc was busy and couldn't see me. By then I could barely talk, my tongue so swollen it was making me lisp something bad. I got fluids, miracle mouth wash and told to rinse mouth a zillion times. The next day I went to the inpatient unit for fluids- the nurse took one look at me and called for orders to admit me. By then I couldn't speak at all and they could not get my teeth apart to look in my mouth. One could just barely make out that my gums were so swollen they were up over my teeth. That hospitalization I was in for a week- and went home with my mouth still swollen, but better and totally white inside. It was pretty vile. That was the first time my oxy got cut-
  • Lifeisajourney
    Lifeisajourney Member Posts: 216
    #15
    I love this board
    I am always finding out I am not the only one that had a particular problem, sometimes you think you are the only one that had a problem. I can relate to so many of your issues, wish I had started coming here when I was going thru chemo, it should would have helped. I drooled and fell and could not write, much better now. Thanks again all. Pat
  • bdee
    bdee Member Posts: 304
    #16
    I could not swallow solid foods for 3 months
    This was while I was on oxy and about a month after I was taken off oxy. All together I lost 65 pounds, but not a good way. I went for a month having help to go to the bathroom because I was so weak from not eating.
    My onc made me have an upper GI and a swallow test because he had never seen anyone who actually could not swallow any solid food. After these two tests came back okay, he took me off oxy.
  • PhillieG
    PhillieG Member Posts: 4,866 Member
    #17
    It's strange
    Now I can speak fluent French!!!
  • AnneCan
    AnneCan Member Posts: 3,673 Member
    #18
    PhillieG said:

    It's strange
    Now I can speak fluent French!!!

    Bonjour Phillippe
    C'est tres bien!
  • PhillieG
    PhillieG Member Posts: 4,866 Member
    #19
    AnneCan said:

    Bonjour Phillippe
    C'est tres bien!

    Oui?
    I can speak it, not understand it or write it.
    That's what's so strange about it
    ;-)
    But I am fine, merci Anne.
  • Patteee
    Patteee Member Posts: 945
    #20
    PhillieG said:

    It's strange
    Now I can speak fluent French!!!

    delete

    delete
  • Patteee
    Patteee Member Posts: 945
    #21
    PhillieG said:

    It's strange
    Now I can speak fluent French!!!

    ...

    ...

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