having PET/CT scan Thurs pm & bloodwork results

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lisa42
lisa42 Member Posts: 3,625 Member
edited March 2014 in Colorectal Cancer #1
Hi,

Just an update on me- I just found out today that my PET/CT scan will be tomorrow (Thursday) at 3:00 pm. This is the first time I'll be having the scan done in the afternoon. I was told I can have a very light breakfast, as long as I have nothing except water after 8 a.m. I just made arrangements for the kids to be picked up from school, and imagine I'll not be home until after 5 p.m. I always leave with a CD disk of my scan. Although I don't know how to specifically read or compare, I know how to look at it enough to see whether spots are still lighting up in my lungs and liver. I know what my last one in Feb looked like, so I'll be able to see on it on the computer myself whether it looks about the same, worse, or better than the last one. Not being one to ever wait for very long for the official results in the form of the written scan report, I will plan on getting it from the hospital records room the next day, as I've always done in the past. I have an appt with my onc on Tuesday. He knows I never wait for my appt. w/ him to get my results- lol! I did get another CEA result back, which was taken on 4/28 right before the last time I got chemo. It was 61.8 and it was 62 the time before. I was hoping it would have gone down more, but at least it's stable. Since I had another chemo treatment since then, maybe it's actually a little less than that now. I've been feeling good, which I'm very glad of. I went in for the basic bloodwork today & all my counts of white cells, platelets, hemoglobin, etc. were all good. Oh, I had my vitamin D level checked, as it hadn't been checked in a few months. It's now up to 65, which is pretty good considering that a little over year ago when I first had it checked it was at 13. I'll report back in here when I have my scan results.

Lisa
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  • taraHK
    taraHK Member Posts: 1,952 Member
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    thinking of you
    Thinking of you, Lisa, and sending all good wishes your way.

    I have a scan Friday am in Hong Kong which is ALMOST the same time (?) -- I'll be thinking of you while I'm in that scanner!

    Love,
    Tara
  • lisa42
    lisa42 Member Posts: 3,625 Member
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    taraHK said:

    thinking of you
    Thinking of you, Lisa, and sending all good wishes your way.

    I have a scan Friday am in Hong Kong which is ALMOST the same time (?) -- I'll be thinking of you while I'm in that scanner!

    Love,
    Tara

    Tara
    Hi Tara,

    Ok- I'll be thinking of you too while I lay in the scan bed! I hope and pray we both have good results!

    Take care,
    Lisa
  • msccolon
    msccolon Member Posts: 1,917 Member
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    good results!
    I'm glad you take control of the situation and get your scans on CD. I have a few on CD, but really, just prefer to see the written interpretation. I figure that's what the radiologist makes the big bucks for! :) Looking forward to your good news on Friday
    mary
  • mom_2_3
    mom_2_3 Member Posts: 953 Member
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    Lisa
    Lisa,

    Sounds like things are moving in the right direction with your CEA. I am so happy for you. I have a CT scan tomorrow at the same time (taking in account the time difference) so I will be praying for you and perhaps you can think of me. We can re-direct that radiation into good thoughts for one another across the 3000 miles that are between us. I always wait and get a copy as well but my husband always makes me promise to leave it in the cd case. I like to have them in case I ever needed to quickly get stuff to another doctor or just for my records.

    I love your new pic of the family and I hope you are enjoying the spring and getting out to do gardening etc.

    Love and hugs to you Lisa!

    Amy
  • lisa42
    lisa42 Member Posts: 3,625 Member
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    mom_2_3 said:

    Lisa
    Lisa,

    Sounds like things are moving in the right direction with your CEA. I am so happy for you. I have a CT scan tomorrow at the same time (taking in account the time difference) so I will be praying for you and perhaps you can think of me. We can re-direct that radiation into good thoughts for one another across the 3000 miles that are between us. I always wait and get a copy as well but my husband always makes me promise to leave it in the cd case. I like to have them in case I ever needed to quickly get stuff to another doctor or just for my records.

    I love your new pic of the family and I hope you are enjoying the spring and getting out to do gardening etc.

    Love and hugs to you Lisa!

    Amy

    Amy
    Hi Amy,

    Wow- so three of us are all getting scanned at the same time- I'll be looking forward to hearing all of our results! Thanks for the comment and yes, I've definitely been enjoying spring- it's my favorite season and we've just had beautiful weather lately. I planted some vegetables and some flowers this past week. Long overdue, as my garden has been sorely neglected lately.
    We'll check in w/ each other again soon. Hugs to you, and I'll also be thinking of and praying for you tomorrow, as well.

    Lisa
  • Kathleen808
    Kathleen808 Member Posts: 2,342 Member
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    Lisa
    Lisa,
    I'll be thinking about you and praying for you tomorrow. It will be noon here in Hawaii and I will be holding you tight in my heart. Tara and Amy you are in my prayers too. Prayers will be reaching around the world for all of you.

    Aloha,
    Kathleen
  • dmdwins
    dmdwins Member Posts: 454 Member
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    Lisa
    Lisa,
    I'll be thinking about you and praying for you tomorrow. It will be noon here in Hawaii and I will be holding you tight in my heart. Tara and Amy you are in my prayers too. Prayers will be reaching around the world for all of you.

    Aloha,
    Kathleen

    Praying for you today
    Lisa,
    I will lift you in prayer today. I am actually on my way to church and community Bible study and will have you in my mind and on my heart. You too Tara and Amy.

    Smiles,
    Dawn
  • dianetavegia
    dianetavegia Member Posts: 1,942 Member
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    Will be praying ladies!
    I'm 3 hours ahead but I always figure all of us are on 'God's Time' but I'll not forget to pray for all of you!

    Lisa, Tara and Amy for today!!

    Lisa, even that small drop in your CEA is exciting to me! It's heading in the right direction!!
  • Sundanceh
    Sundanceh Member Posts: 4,392 Member
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    To All the Gals:)
    I hope all of your scans are every bit what you expect them to be - clear:)

    Looks like next week will be many Result Parties and hopefully lots of good news.

    Until then, "Same BatTime, Same BatChannel" :)

    -Craig
  • linandtom
    linandtom Member Posts: 67
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    Scan results
    Praying for you Lisa - nothing but good results - say that over and over and thank God for good results before you even look at that disk! Much love.
  • angelsbaby
    angelsbaby Member Posts: 1,165 Member
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    linandtom said:

    Scan results
    Praying for you Lisa - nothing but good results - say that over and over and thank God for good results before you even look at that disk! Much love.

    Lisa
    I am hoping for the best good luck and prayers are coming,
    take care
    michelle
  • geotina
    geotina Member Posts: 2,111 Member
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    Scans
    Looks like Thursday is Scan day. I wish all of you the best with your results.

    Lisa - looks like stable according to your CEA and that is good news.

    Take care all and I will be thinking of all of you today as I wash windows (ugh).

    Tina
  • AnneCan
    AnneCan Member Posts: 3,673 Member
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    Lisa, Tara, Amy
    Good luck + warm wishes to all of you for great scan results.
  • betina61
    betina61 Member Posts: 642 Member
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    Hi Lisa
    Sending you good thoughts, I will be praying for you, Tara and Amy for great results.
  • amyb15
    amyb15 Member Posts: 109 Member
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    Lisa
    wishing you great

    Lisa
    wishing you great results!!!!!Know that I am thinking of you. Please post when you know anything.
    Amy
  • amyb15
    amyb15 Member Posts: 109 Member
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    Lisa
    wishing you great

    Lisa
    wishing you great results!!!!!Know that I am thinking of you. Please post when you know anything.
    Amy
  • PGLGreg
    PGLGreg Member Posts: 731
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    Best wishes.
    Best of luck to Lisa and all getting scans. Yours is in about an hour, I guess. Your current test results sound pretty good.

    --Greg
  • thready
    thready Member Posts: 474
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    Best wishes
    I am wishing you all well on scans! Prayers also. You all are my heroes.

    Jan
  • lisa42
    lisa42 Member Posts: 3,625 Member
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    back from scan and looked at CD
    Hi All,

    Well, I finished the PET/CT a couple of hours ago & walked out with a CD of it. Before looking at it, I popped the CD of my last scan on 2/10/10 in to remind myself what that looked like. Then popped in the new one from today...same old lit up spots all over lungs and my liver. Damn. BUT, maybe it's stable- I really couldn't tell from looking if it was worse, better, or the same. It actually did not look better- either the same (stable) or slightly worse. I do need to remember that this is the first time ever that starting up treatment again after a bad scan that treatment was delayed. In the past, I always started new treatment w/in a week or so after the scan. This time it was 5 weeks (because of not getting in a clinical trial and the insurance denial saga)- but that does mean that I probably got worse in those 5 weeks & that was never recorded on a scan. So when the Gemzar started working, it was like 5 steps backward and 3 forward. Something like that. I'm surmising, since I don't have the scan report yet. I should get that from the hospital tomorrow afternoon & then I meet w/ my onc next week Tuesday.

    Well, I'll check back in w/you all later.

    Hugs,
    Lisa
  • Sundanceh
    Sundanceh Member Posts: 4,392 Member
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    lisa42 said:

    back from scan and looked at CD
    Hi All,

    Well, I finished the PET/CT a couple of hours ago & walked out with a CD of it. Before looking at it, I popped the CD of my last scan on 2/10/10 in to remind myself what that looked like. Then popped in the new one from today...same old lit up spots all over lungs and my liver. Damn. BUT, maybe it's stable- I really couldn't tell from looking if it was worse, better, or the same. It actually did not look better- either the same (stable) or slightly worse. I do need to remember that this is the first time ever that starting up treatment again after a bad scan that treatment was delayed. In the past, I always started new treatment w/in a week or so after the scan. This time it was 5 weeks (because of not getting in a clinical trial and the insurance denial saga)- but that does mean that I probably got worse in those 5 weeks & that was never recorded on a scan. So when the Gemzar started working, it was like 5 steps backward and 3 forward. Something like that. I'm surmising, since I don't have the scan report yet. I should get that from the hospital tomorrow afternoon & then I meet w/ my onc next week Tuesday.

    Well, I'll check back in w/you all later.

    Hugs,
    Lisa

    Hi Lisa
    I'm hopin' to hear "stable." Sounds like you already know sort of what the outcome is, Lisa - not surprising, you're a sharp gal.

    I'll wait right along with you to find out what's up doc?

    -Craig