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Stage 4b

Jen_louisiana
Posts: 2
Joined: Jan 2010

My sister was diagnosed with stage 4b cervical cancer. She has undergone surgery, chemo, radiation. She feels alone in her fight not knowing of any other stage 4b survivors. Please post so I can help show her that she is not the only one out there.

SvenskaFlikka
Posts: 1
Joined: Aug 2012

I too have Stage 4 cervical cancer...it is in my lungs...glowing away. There is NO cure. The doctors are trying to beat it back to give me more time. My original cervical cancer was treated in 2009 with radiation and brachytherapy (too unpleasant to think about). Then six months later they discovered it had metastasized into my lungs.

The doctors at Sloan gave me 6-10 months a year at the most "with or without treatment"...so why have treatment I said. BUT, I switched to Dana Farber who were optimistic about gaining me more time...So I had about 5 1/2 rounds of chemotherapy: cisplatin and gemcitabine as they are the least debilitating and I was interested in quality of life. It will be two years this October since that grim news. The tumors were stationary for 16 months, without treatment, so how lucky am I. Unfortunately, they have started to regrow, so I have now restarted the gemcitabine and cisplatin with hopes of stopping their growth. If that doesn't work, I can try a different combination of drugs, but I will lose my hair...and maybe get mouth sores and all that jolly stuff...and I have to decide if it is worth it.

I DO NOT like Sloan Kettering. Try Dr Barry Boyd at Greenwich Hospital. He seems brilliant and very accessible...most of the doctors at Sloan and Dana Farber treat you like a specimen. Whatever...good luck. I wish you the best in treatments...who knows what is around the corner? I am sixty-five, so it is very sad to read of your young age...truly not fair.

If you want to travel to Boston...hard to do, but still doable...my doctor there is Alexi Wright and she is quite brilliant, but has no miracle cures at the moment...

grievinghusband
Posts: 6
Joined: Jul 2012

I'm so sorry to read about your condition. My wife was at Memorial Sloan and we hated it for the same reason you mentioned. They treated her lime a used car and never with any sympathy.

I hope things are going as well as they can be with your treatment.

Bittersweetly's picture
Bittersweetly
Posts: 14
Joined: Apr 2012

I was diagnosed with stage 4b vaginal cancer with local mets in December 2011, which was treated virtually identically to cervical cancer. (the original tumor was an adenocarcinoma about an inch away from my cervix.) Like you, after initial treatment, my staging changed to stage 4, with around 6-8 nodules in my lungs. For the lung nodules I got 5 months of Carbotaxol, which did nothing.
I am 49 years old, in San Francisco.
I will find out in two weeks, after an x-ray, what my oncologist suggests.
I have also thought a great deal about what treatment I'm willing to endure, especially after a five useless months of chemo. I am kind of hoping for no growth! Any luck with the cisplatin and gemcitabine? x

beadinout@yahoo.com
Posts: 1
Joined: May 2013

Greetings:

 

She is not alone.  I am here.  The only one I know of internationally.  I have been through it all too.  Long story.  For me, the lonlieness is hard to bear.  I nearly died so many times.  I keep reanimating myself. 

 

The drama around these life and death situations is amazing.  For me, it is not drama.  It is trauma.  There is a big difference. 

 

Suzanne

kellybeans1980
Posts: 3
Joined: Feb 2017

Hello ladies, my SIL was diagnosed with IVB cervical cancer in 08/16 she has undergone a first round of chemo(with treatment weekly), a round of brachytherapy, and now she is in the middle of her second round of chemo every 3 weeks(although this next treatment will be 5 weeks after the last due to complications and low blood count this week. She is being treated at Medical City Dallas and I am very concerned with the care she has gotten so far. While the doctors have told her the % of survivors, the whole immencity of the cancer has just been too much for my MIL and SIL to take in and details have been lost in the mix. Supposedly my MIL spoke to my SIL's doctor with out my SIL around and he told her that we were just buying time. I don't like that term being thrown around without the actual patient knowing. My MIL is continuing to push her daughter to do chemo, but her kidneys are on the verge of failing and she is in constant pain now. she was in the hospital for 2 weeks strait due to uncontrolable pain. Hospice has not been called, she is on oxy every 2-3 hours, marijuana oil at all times and sometimes my SIL doesn't even know what day it is. That's how drugged up she is in order to control the pain. She is 29 years old and she is not completely informed. Like I said, she knows the "traditional medicine survival percentage", but I don't know if she fully grasps what she is up against. She went for a proton therapy consult this week. Maybe that will give us more hope?

With her first diagnosis, she had a 6cm tumor on her cervix and another smaller one inthe uterus. There was an unconfirmed mass in her lungs, cancer detected in her lymph nodes and cancer found in her liver.

With her last CT Scan on 1/24, the results found the mass in her lungs was now too small to treat with radiation(so that's really good), but cancer is now in her bladder, unconfirmed in bile ducts(but she was not able to urinate without stints being put in. it's either cancer or scar tissue according to the doctor), and cancer in all her lynph nodes at this time.

How do I remain positive for my husband and for my SIL? is it appropriate for her oncologist to say those kinds of things to someone other than the patient? For those that posted on this thread years ago, I am really hoping that you are still around fighting the good fight. I hope that all of you wonderful women are still here and can tell me, "It's ok. your SIL will make it." If any of you are in the DFW area and are in remission, I would love to introduce you to my SIL for some encouragement.

I do NOT want my SIL to die. my husband said it sounds like I want her to give up and just die. I want her to keep fighting and I want her to be around for my husband and for my kids. But more than my desire to want her around, I don't want to see her in pain. Seeing her become a shell of the vibrant, thriving woman that I have known is hard. I guess it's not as hard as loosing your sister. So I see where he is struggling. I just... I don't know where or how to help her and to keep believing that if anyone can beat this, it's her.

 

 

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