Stage 4b

Jen_louisiana
Jen_louisiana Member Posts: 2
edited March 2014 in Gynecological Cancers (other than ovarian and uterine) #1
My sister was diagnosed with stage 4b cervical cancer. She has undergone surgery, chemo, radiation. She feels alone in her fight not knowing of any other stage 4b survivors. Please post so I can help show her that she is not the only one out there.
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Comments

  • beckyracn
    beckyracn Member Posts: 322
    #2
    Jen,
    Sorry to hear about
    Jen,
    Sorry to hear about your sister. I am a one year survivor of stage IVA cervical cancer and I can understand her feelings of solitaire. I have sought others at my stage without success. But I plan to be a success story...so tell her to stop by and chat. There's alot of support here.
  • Jen_louisiana
    Jen_louisiana Member Posts: 2
    #3
    beckyracn said:

    Jen,
    Sorry to hear about
    Jen,
    Sorry to hear about your sister. I am a one year survivor of stage IVA cervical cancer and I can understand her feelings of solitaire. I have sought others at my stage without success. But I plan to be a success story...so tell her to stop by and chat. There's alot of support here.

    Thank you for your prompt
    Thank you for your prompt response. I will let her know that there is support here!
  • d.lee
    d.lee Member Posts: 31
    #4
    stage4
    hi jen im stage 4 uteran cancer i was diagnosed the beginning of 2009 ive been on chemo for almost a year im doing good the chemo is working thank god ! its hard but im taking one day at a time i wiil be praying for your sister keep your head up ok?
  • cathyK
    cathyK Member Posts: 93
    #5
    d.lee said:

    stage4
    hi jen im stage 4 uteran cancer i was diagnosed the beginning of 2009 ive been on chemo for almost a year im doing good the chemo is working thank god ! its hard but im taking one day at a time i wiil be praying for your sister keep your head up ok?

    stage4
    hello
    I was wandering around the discussion board, I am usually on the uterine cancer discussion area , but found this and this post, I have stage 4 b grade 3 endometrial cancer, uterine cancer that grew to the abdomen . have been looking for survivors and success stories,
    right now at the moment. I have no cancer detected after historectomy and 6 rounds of taxol , andromisin, and cisplatin (sp) , doc says that most of the time it recurs but , "most of the time " not all the time so that gives me some ray of hope, been up and down about this. stopped me dead in my tracks, as I travel for work all summer long and caught the cancer 1 week before I was to go out for the summer!
    what chemo have your docs have you on? 1 year! that is a long time to be on chemo!
    I will be praying for ya ,
    cathy K
  • d.lee
    d.lee Member Posts: 31
    #6
    cathyK said:

    stage4
    hello
    I was wandering around the discussion board, I am usually on the uterine cancer discussion area , but found this and this post, I have stage 4 b grade 3 endometrial cancer, uterine cancer that grew to the abdomen . have been looking for survivors and success stories,
    right now at the moment. I have no cancer detected after historectomy and 6 rounds of taxol , andromisin, and cisplatin (sp) , doc says that most of the time it recurs but , "most of the time " not all the time so that gives me some ray of hope, been up and down about this. stopped me dead in my tracks, as I travel for work all summer long and caught the cancer 1 week before I was to go out for the summer!
    what chemo have your docs have you on? 1 year! that is a long time to be on chemo!
    I will be praying for ya ,
    cathy K

    STAGE 4
    HI, SORRY IT TOOK SO LONG TO ANSWER U. I HAVE STAGE FOUR UTERAN CANCER. I HAD A LARGE TUMOR THAT WAS TAKEN OUT IN SURGERY. I WAS IN ICU FOR TWO DAYS AFTER THAT I WAS TOLD IT WAS DUE TO BLEEDING AND BREATHING PROBLEMS. THEN AFTER THAT I WAS DIAG. WITH METASTATIC UTERINE SARCOMA. MY DR. WOULD NOT TELL ME HOW LONG I WOULD BE ON CHEMO BECAUSE HE SAID HE DID NOT KNOW EXACTLY. THEN LATER HE TOLD ME PROBABLY A YEAR. I HAVE BEEN DOING CHEMO ONCE EVERY MONTH SINCE LAST APRIL. I ALSO TAKE A PILL CALLED FEMARA EVERY DAY.
    BY THE TIME THEY FOUND MY CANCER ITS WAS PRETTY BAD. I LOT OF THE THINGS THAT HAPPEN TO ME DURING THIS I DONT EVEN REMEMBER BUT MY FAMILY HAS FILLED IN A LOT OF THE BLANKS, LIKE I DIDNT EVEN KNOW THAT I WAS IN ICU TILL A FEW MONTHS AGO WHEN MY SISTER TOLD ME. I HAD THOUGHT I WENT TO SURGERY ,THEN TO RECOVERY, THEN MY ROOM BUT NO, I WAS IN ICU FOR TWO DAYS. I WAS IN SURGERY FOR A VERY LONG TIME BECAUSE OF THE BLEEDING THEY COULD NOT STOP IT. THEN I HAD BREATHING PROBLEMS ALSO. I WASNT TOLD ABOUT HOW BAD THE CANCER WAS RIGHT AWAY. I WAS TOLD I HAD CANCER, BUT NOT HOW BAD IT WAS UNTIL I ASKED, WHICH WASNT TILL A COUPLE OF DAYS LATER. THE DR. TOLD MY FAMILY THAT I WAS IN SHOCK, AND NEED TO PROCESS WHAT WAS GOING ON AND THAT HE WOULD TALK TO ME WHEN I ASKED HIM AND HE KNEW I WOULD BE READY TO HEAR ABOUT IT IN DETAIL WHEN I CAME TO HIM MY SELF AND HE WAS RIGHT .
    THKS FOR ASKING AND I APPRECIATE VERY MUCH YOUR PRAYERS.

    SO GRATEFUL, DIANE
  • d.lee
    d.lee Member Posts: 31
    #7
    d.lee said:

    STAGE 4
    HI, SORRY IT TOOK SO LONG TO ANSWER U. I HAVE STAGE FOUR UTERAN CANCER. I HAD A LARGE TUMOR THAT WAS TAKEN OUT IN SURGERY. I WAS IN ICU FOR TWO DAYS AFTER THAT I WAS TOLD IT WAS DUE TO BLEEDING AND BREATHING PROBLEMS. THEN AFTER THAT I WAS DIAG. WITH METASTATIC UTERINE SARCOMA. MY DR. WOULD NOT TELL ME HOW LONG I WOULD BE ON CHEMO BECAUSE HE SAID HE DID NOT KNOW EXACTLY. THEN LATER HE TOLD ME PROBABLY A YEAR. I HAVE BEEN DOING CHEMO ONCE EVERY MONTH SINCE LAST APRIL. I ALSO TAKE A PILL CALLED FEMARA EVERY DAY.
    BY THE TIME THEY FOUND MY CANCER ITS WAS PRETTY BAD. I LOT OF THE THINGS THAT HAPPEN TO ME DURING THIS I DONT EVEN REMEMBER BUT MY FAMILY HAS FILLED IN A LOT OF THE BLANKS, LIKE I DIDNT EVEN KNOW THAT I WAS IN ICU TILL A FEW MONTHS AGO WHEN MY SISTER TOLD ME. I HAD THOUGHT I WENT TO SURGERY ,THEN TO RECOVERY, THEN MY ROOM BUT NO, I WAS IN ICU FOR TWO DAYS. I WAS IN SURGERY FOR A VERY LONG TIME BECAUSE OF THE BLEEDING THEY COULD NOT STOP IT. THEN I HAD BREATHING PROBLEMS ALSO. I WASNT TOLD ABOUT HOW BAD THE CANCER WAS RIGHT AWAY. I WAS TOLD I HAD CANCER, BUT NOT HOW BAD IT WAS UNTIL I ASKED, WHICH WASNT TILL A COUPLE OF DAYS LATER. THE DR. TOLD MY FAMILY THAT I WAS IN SHOCK, AND NEED TO PROCESS WHAT WAS GOING ON AND THAT HE WOULD TALK TO ME WHEN I ASKED HIM AND HE KNEW I WOULD BE READY TO HEAR ABOUT IT IN DETAIL WHEN I CAME TO HIM MY SELF AND HE WAS RIGHT .
    THKS FOR ASKING AND I APPRECIATE VERY MUCH YOUR PRAYERS.

    SO GRATEFUL, DIANE

    continue from last post (SORRY)
    I FOR GOT TO TELL U WHAT CHEMO I AM ON. I AM CURRENTLY ON DOXIL.ITS BEEN GOING OK WITH DOXIL MY NUMBERS ARE GOING DOWN FAST WITH THIS CHOICE OF CHEMO. AT FIRST FOR TWO OF MY CHEMO SESSIONS I WAS ON CARBO/TAXOL. I HAD A REALLY BAD REACTION TO THAT SO WE HAD TO CHANGE IT. THE DOXIL WAS MUCH BETTER.

    SILLY ME,
    DIANE :)
  • wannaknow
    wannaknow Member Posts: 12
    #8
    d.lee said:

    continue from last post (SORRY)
    I FOR GOT TO TELL U WHAT CHEMO I AM ON. I AM CURRENTLY ON DOXIL.ITS BEEN GOING OK WITH DOXIL MY NUMBERS ARE GOING DOWN FAST WITH THIS CHOICE OF CHEMO. AT FIRST FOR TWO OF MY CHEMO SESSIONS I WAS ON CARBO/TAXOL. I HAD A REALLY BAD REACTION TO THAT SO WE HAD TO CHANGE IT. THE DOXIL WAS MUCH BETTER.

    SILLY ME,
    DIANE :)

    I NEED HELP..NO ONE EVER REPLIES
    I have uterine papillary serous carcinoma. had ovaries, tubes, and lymph node removed. onco has me doing chemo carbo/taxol to shrink tumor in uterus and cervix before he removes them. then said i will do 3 more chemo's and poss. radiation. he had told my family while i was in recovery if he had to guess its stage4. im 46 with an 11 year old daughter ..im scared big time..ive read on some posts the survival rate is 1-5 years and thats if your lucky. WTH!!! I have had one chemo, and my next one is this monday 5-10-10. i go once every 3 weeks. can ANYONE PLEASE TELL ME MORE ABOUT THIS? IS THERE HOPE TO LIVE A GOOD LIFE FOR MOR THAN 5 YEARS WITH THIS??? MY LITTLE GIRL HAS NOBODY EXCEPT ME! I need hope, and answers please!
    thanks, Kim also, my email is kgrover@woh.rr.com
  • beckyracn
    beckyracn Member Posts: 322
    #9
    wannaknow said:

    I NEED HELP..NO ONE EVER REPLIES
    I have uterine papillary serous carcinoma. had ovaries, tubes, and lymph node removed. onco has me doing chemo carbo/taxol to shrink tumor in uterus and cervix before he removes them. then said i will do 3 more chemo's and poss. radiation. he had told my family while i was in recovery if he had to guess its stage4. im 46 with an 11 year old daughter ..im scared big time..ive read on some posts the survival rate is 1-5 years and thats if your lucky. WTH!!! I have had one chemo, and my next one is this monday 5-10-10. i go once every 3 weeks. can ANYONE PLEASE TELL ME MORE ABOUT THIS? IS THERE HOPE TO LIVE A GOOD LIFE FOR MOR THAN 5 YEARS WITH THIS??? MY LITTLE GIRL HAS NOBODY EXCEPT ME! I need hope, and answers please!
    thanks, Kim also, my email is kgrover@woh.rr.com

    Kim,
    There are many of us
    Kim,
    There are many of us survivors out here. Don't go believing in old statistics. We are all unique and don't fit into those little boxes. First, ask your doc questions. Don't guess...are you a stage 4 or not?! You will scare yourself silly otherwise. Stay informed. The more knowledge you have the more powerful you will feel...and you need that right now. Also, post in the uterine board. There are many wonderful women there who have been through what your are experiencing right now...and are survivors!!!
    Sorry that you've joined the ranks. Good luck with everything!
    ((HUGS))
  • sagharbor
    sagharbor Member Posts: 1
    #10
    beckyracn said:

    Jen,
    Sorry to hear about
    Jen,
    Sorry to hear about your sister. I am a one year survivor of stage IVA cervical cancer and I can understand her feelings of solitaire. I have sought others at my stage without success. But I plan to be a success story...so tell her to stop by and chat. There's alot of support here.

    survivor
    I'm new to this board because my wife was just diagnosed with Stage iv b cervical cancer. She had a hysterectomy 3 years ago to remove the cancer which as stage 1 and she was cancer free up to a year ago. We are devastated.

    Any updates on your progress would be appreciated.
  • srpshellie
    srpshellie Member Posts: 3
    #11
    wannaknow said:

    I NEED HELP..NO ONE EVER REPLIES
    I have uterine papillary serous carcinoma. had ovaries, tubes, and lymph node removed. onco has me doing chemo carbo/taxol to shrink tumor in uterus and cervix before he removes them. then said i will do 3 more chemo's and poss. radiation. he had told my family while i was in recovery if he had to guess its stage4. im 46 with an 11 year old daughter ..im scared big time..ive read on some posts the survival rate is 1-5 years and thats if your lucky. WTH!!! I have had one chemo, and my next one is this monday 5-10-10. i go once every 3 weeks. can ANYONE PLEASE TELL ME MORE ABOUT THIS? IS THERE HOPE TO LIVE A GOOD LIFE FOR MOR THAN 5 YEARS WITH THIS??? MY LITTLE GIRL HAS NOBODY EXCEPT ME! I need hope, and answers please!
    thanks, Kim also, my email is kgrover@woh.rr.com

    Kim, I think the worst
    Kim, I think the worst thing to do is too much reading online as far as statistics. They scared me as well. I was diagnosed at 39 with stage 4a cervical cancer. It was too far advanced that they wouldnt do surgery. My tumor was protruding into my bladder, so I had to have a neuphrostomy bag put in on my right kidney as well as a leg cath. Did chemo and radiation and high dose radiation. I just celebrated my 1 yr of cancer free on June 29. Do not let negativity into your head. Positive people and a positive frame of mind along with treatment is the whole battle. Are you going to be sick, yes. Are you going to wonder from time to time "why me?" yes. The questions that you ask yourself sometimes cant be answered. Everything happens for a reason. I believe my mother had cancer to teach me how to deal with it. Maybe I can pass that forward and inspire someone else not to give up hope and become "statistics"
  • Curuk
    Curuk Member Posts: 9
    #12
    Hey Jen I am a 4b
    I am here in Texas and was diagnosed with 4b cervical cancer with liver and lung mets. Tell her we need to keep in touch!
  • Curuk
    Curuk Member Posts: 9
    #13
    sagharbor said:

    survivor
    I'm new to this board because my wife was just diagnosed with Stage iv b cervical cancer. She had a hysterectomy 3 years ago to remove the cancer which as stage 1 and she was cancer free up to a year ago. We are devastated.

    Any updates on your progress would be appreciated.

    Hey Sagharbor
    There are some of us out there.
  • Curuk
    Curuk Member Posts: 9
    #14
    wannaknow said:

    I NEED HELP..NO ONE EVER REPLIES
    I have uterine papillary serous carcinoma. had ovaries, tubes, and lymph node removed. onco has me doing chemo carbo/taxol to shrink tumor in uterus and cervix before he removes them. then said i will do 3 more chemo's and poss. radiation. he had told my family while i was in recovery if he had to guess its stage4. im 46 with an 11 year old daughter ..im scared big time..ive read on some posts the survival rate is 1-5 years and thats if your lucky. WTH!!! I have had one chemo, and my next one is this monday 5-10-10. i go once every 3 weeks. can ANYONE PLEASE TELL ME MORE ABOUT THIS? IS THERE HOPE TO LIVE A GOOD LIFE FOR MOR THAN 5 YEARS WITH THIS??? MY LITTLE GIRL HAS NOBODY EXCEPT ME! I need hope, and answers please!
    thanks, Kim also, my email is kgrover@woh.rr.com

    Hey Wannaknow
    We are here! I have a 22 year old and twin 10 year olds, so I know EXACTLY what you feeling. I am 47.
  • Curuk
    Curuk Member Posts: 9
    #15
    srpshellie said:

    Kim, I think the worst
    Kim, I think the worst thing to do is too much reading online as far as statistics. They scared me as well. I was diagnosed at 39 with stage 4a cervical cancer. It was too far advanced that they wouldnt do surgery. My tumor was protruding into my bladder, so I had to have a neuphrostomy bag put in on my right kidney as well as a leg cath. Did chemo and radiation and high dose radiation. I just celebrated my 1 yr of cancer free on June 29. Do not let negativity into your head. Positive people and a positive frame of mind along with treatment is the whole battle. Are you going to be sick, yes. Are you going to wonder from time to time "why me?" yes. The questions that you ask yourself sometimes cant be answered. Everything happens for a reason. I believe my mother had cancer to teach me how to deal with it. Maybe I can pass that forward and inspire someone else not to give up hope and become "statistics"

    Srpshellie You Inspire!
    You have given me a gift today. A gift to believe it is possible to survive.
  • beckyracn
    beckyracn Member Posts: 322
    #16
    Curuk said:

    Srpshellie You Inspire!
    You have given me a gift today. A gift to believe it is possible to survive.

    Like your spirit...keep
    Like your spirit...keep fighting!
  • flowerpower2
    flowerpower2 Member Posts: 4
    #17
    srpshellie said:

    Kim, I think the worst
    Kim, I think the worst thing to do is too much reading online as far as statistics. They scared me as well. I was diagnosed at 39 with stage 4a cervical cancer. It was too far advanced that they wouldnt do surgery. My tumor was protruding into my bladder, so I had to have a neuphrostomy bag put in on my right kidney as well as a leg cath. Did chemo and radiation and high dose radiation. I just celebrated my 1 yr of cancer free on June 29. Do not let negativity into your head. Positive people and a positive frame of mind along with treatment is the whole battle. Are you going to be sick, yes. Are you going to wonder from time to time "why me?" yes. The questions that you ask yourself sometimes cant be answered. Everything happens for a reason. I believe my mother had cancer to teach me how to deal with it. Maybe I can pass that forward and inspire someone else not to give up hope and become "statistics"

    Not Giving Up!
    I agree that you can scare yourself by looking too much into statistics. I get asked all the time what stage I'm in, I skirt around the question because I don't want to be treated like today is going to be my last day. Yes, realistically I know the odds are now against me for a long life (I've gone three rounds with adenocarcinoma), but I'm just the type of person that won't give in. I look in the mirror and tell myself all the time "Yes, the cancer will get the better of me someday, but it's not going to be today."...and I go on with my life. As a matter of fact I feel like a much stronger person now because of all that I have been through. My body is worn and scarred from multiple surgeries, but alive still I am!
  • celesteanne
    celesteanne Member Posts: 1
    #18
    Curuk said:

    Hey Jen I am a 4b
    I am here in Texas and was diagnosed with 4b cervical cancer with liver and lung mets. Tell her we need to keep in touch!

    cervical 4a and I am fighting!
    I was diagnosed on my birthday, April 19th. Started chemo on May 6th. Did 6 rounds of Cisplatin/Taxtere ever 3 weeks. Did a PET/CT about 3 weeks after my 6th chemo and it showed ZERO cancer activity. The main tumor is gone as well as the mets throughout my lymphnode which were lit up from my groin to my collarbone. By physical exam they feel nothing but what they think is just scar tissue. I am currently going through radiation as it is standard protocal. I will have a total of 27 or 28 external daily treatments and then 5 weekly internal treatments.

    As far as I am concerned, I am a survivor and will be one in my eyes and in my 8 year old little boy's eyes.

    To each and every one of you going throught this ( I include all husbands and loved ones), You all are survivors. From the moment you are diagnosed to the the moment you decide to proceed with treatment, you can call yourself survivors. You all inspire me and give me strength just by reading your stories and quick notes. By writing quick blurps on the web for people to find, you are touching someone. Thnk you for reaching out!
  • beckyracn
    beckyracn Member Posts: 322
    #19
    celesteanne said:

    cervical 4a and I am fighting!
    I was diagnosed on my birthday, April 19th. Started chemo on May 6th. Did 6 rounds of Cisplatin/Taxtere ever 3 weeks. Did a PET/CT about 3 weeks after my 6th chemo and it showed ZERO cancer activity. The main tumor is gone as well as the mets throughout my lymphnode which were lit up from my groin to my collarbone. By physical exam they feel nothing but what they think is just scar tissue. I am currently going through radiation as it is standard protocal. I will have a total of 27 or 28 external daily treatments and then 5 weekly internal treatments.

    As far as I am concerned, I am a survivor and will be one in my eyes and in my 8 year old little boy's eyes.

    To each and every one of you going throught this ( I include all husbands and loved ones), You all are survivors. From the moment you are diagnosed to the the moment you decide to proceed with treatment, you can call yourself survivors. You all inspire me and give me strength just by reading your stories and quick notes. By writing quick blurps on the web for people to find, you are touching someone. Thnk you for reaching out!

    celesteanne,
    I love your
    celesteanne,
    I love your fighting spirit! And you are so very correct...each day we wake up and are still here on Earth shows WE ARE SURVIVORS!!
    Now everyone...GET OUT THERE AND FIGHT LIKE A GIRL!!
  • bttrfls79
    bttrfls79 Member Posts: 1
    #20
    Curuk said:

    Hey Jen I am a 4b
    I am here in Texas and was diagnosed with 4b cervical cancer with liver and lung mets. Tell her we need to keep in touch!

    Stage 4b cervical cancer survivor in the making!
    Curuk, I am 4b cervical cancer lymph mets. Scary beyond all belief! I am 31 years old, and was diagnosed with fibroids a year and a half ago, which was a big mistake! I am only writing to you because you said you are in Texas, and I am located just south of Dallas. Where are you getting treatments at? How are you dealing with everything? How old are you?

    Just so everyone knows, I was diagnosed June 16,2010, and immediately started on chemo and radiation at the same time. I did five weeks of radiation with a booster of radiation for an addition 5 days, which was followed by 4 sessions of internal radiation (not fun). I had a PET scan yesterday, and a preliminary CT showed everything was looking good, so much that the person who read the scan said it looked like i had had surgery, which I have not yet! I find out tomorrow the results of the PET...but no matter what I am here for the long haul! I have three kids, ages 6, 4, and 3 that need their mommy!!!! Good luck to everyone! If you want to vent or talk about your thoughts I am here everyone!!!
  • beckyracn
    beckyracn Member Posts: 322
    #21
    bttrfls79 said:

    Stage 4b cervical cancer survivor in the making!
    Curuk, I am 4b cervical cancer lymph mets. Scary beyond all belief! I am 31 years old, and was diagnosed with fibroids a year and a half ago, which was a big mistake! I am only writing to you because you said you are in Texas, and I am located just south of Dallas. Where are you getting treatments at? How are you dealing with everything? How old are you?

    Just so everyone knows, I was diagnosed June 16,2010, and immediately started on chemo and radiation at the same time. I did five weeks of radiation with a booster of radiation for an addition 5 days, which was followed by 4 sessions of internal radiation (not fun). I had a PET scan yesterday, and a preliminary CT showed everything was looking good, so much that the person who read the scan said it looked like i had had surgery, which I have not yet! I find out tomorrow the results of the PET...but no matter what I am here for the long haul! I have three kids, ages 6, 4, and 3 that need their mommy!!!! Good luck to everyone! If you want to vent or talk about your thoughts I am here everyone!!!

    YOU GO GIRL!!! I like your
    YOU GO GIRL!!! I like your ATTITUDE :) Sorry to see you posting here. I can totally understand what you are feeling/going through. I have also had a number of scans where the radiologist reports that sometimes I've had a hysterectomy, other times I have ovaries, sometimes not...etc., etc. I thought these people were supposed to have gone to school for this!
    GREAT news that your preliminary CT is good...hope your PET results back it up!!

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