Topotecan has anyone been on this drug?

kericrew
kericrew Member Posts: 12
edited March 2014 in Long-Term Effects of Treatment #1
I have to start this new regimentand the drug I will given the drug topotecan. I would like to know if anyone has been on this drug and how they did. Are the side effects any different than other chemo drugs.

Comments

  • Maryn0122
    Maryn0122 CSN Member Posts: 3
    #2
    Yes, I've been on Topotecan
    I was on topotecan with abraxane, so it's hard to say which of the two drugs gave me side effects. Initially I did really well with the combination, my CA125 (ovarian cancer marker) finally reaching the lowest it had since my initial diagnosis. Unfortunately, I developed a resistance to that... same as the first three drug combinations prescribed.

    The biggest with the topotecan/abraxane combo for me was very low red blood counts. I had to have several transfusions (twice it was as much as three units). A lot of fatigue. This combo also took my hair (it had only gotten thin with taxol/carboplatin). Some naseau.

    That said, please remember that everyone reacts to the drugs differently. You may have no side effects at all. Or only some of them. Or different ones than I did.

    Good luck with the treatment. I hope it works really well for you and that you're cancer-free in no time at all!
  • kericrew
    kericrew Member Posts: 12
    #3
    Maryn0122 said:

    Yes, I've been on Topotecan
    I was on topotecan with abraxane, so it's hard to say which of the two drugs gave me side effects. Initially I did really well with the combination, my CA125 (ovarian cancer marker) finally reaching the lowest it had since my initial diagnosis. Unfortunately, I developed a resistance to that... same as the first three drug combinations prescribed.

    The biggest with the topotecan/abraxane combo for me was very low red blood counts. I had to have several transfusions (twice it was as much as three units). A lot of fatigue. This combo also took my hair (it had only gotten thin with taxol/carboplatin). Some naseau.

    That said, please remember that everyone reacts to the drugs differently. You may have no side effects at all. Or only some of them. Or different ones than I did.

    Good luck with the treatment. I hope it works really well for you and that you're cancer-free in no time at all!

    Topotecan
    Thank yu for your information. I have taken this drug now for 3 weeks and so far so good.
    I do get some naseau but so far so good I just worry that this going to do the trick. I have already done a couple of other chemos that did not work so prayerfully this is the one
    I dont go back for a scan until Oct. praying things will be smaller or going away.

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