CSN Login
Members Online: 5

You are here

RESULTS FROM SCAN

jerseysue's picture
jerseysue
Posts: 626
Joined: Oct 2005

Not the results I wanted but I guess it CAN be worse (hopefully not GET worse). He said that the CT scan after review was ok. But that my CEA levels are 6.5 from a 1 so he has scheduled me a PET scan on 5/30. Anyone else ever have their CEA go up and it turns out to be nothing? Sue

StacyGleaso's picture
StacyGleaso
Posts: 1250
Joined: Mar 2003

Hi Sue,

I have heard tons (literally tons!) of stories where CEA increased, and it was nothing (literally nothing!). So don't put too much thought into it. Obviously, communicate with your doc the concerns you have and maybe additional testing?

Best wishes,
Stacy

spongebob's picture
spongebob
Posts: 2599
Joined: Apr 2003

Sue -

I am right on board with my pal Stacy!

- SB

Betsydoglover's picture
Betsydoglover
Posts: 1256
Joined: Jul 2005

Hi Sue -

Like Stacy says, this can happen easily. In fact, if CEA were such a reliable indicator of cancer, it would be standard to use it as a routine diagnostic test. But it isn't used that way because it isn't that clear cut. I know you can't help but worry, but the clear CT sounds great and the PET show add another dimension - which hopefully will alleviate your concerns.

Take care,
Betsy

nanuk's picture
nanuk
Posts: 1363
Joined: Dec 2003

CEA is fickle..what goes up doesn't necessarily mean down. and what goes down doesn't always mean down..I went from 21 to 3 under Avastin/Erbitux, and scan reveals tumors still growing.. bud

nanuk's picture
nanuk
Posts: 1363
Joined: Dec 2003

CEA is fickle..what goes up doesn't necessarily mean down. and what goes down doesn't always mean down..I went from 21 to 3 under Avastin/Erbitux, and scan reveals tumors still growing.. bud

kerry's picture
kerry
Posts: 1317
Joined: Jan 2003

Hi Sue,

I concur with everyone else. My CEA has gone up and down and does not necessarily coincide with tumor growth.

We'll send extra vibes and prayers to you on 5/30.

Kerry

Btrcup's picture
Btrcup
Posts: 287
Joined: Jun 2004

Hi Sue, Bud is right. Scott's CEA never went up throughout his fight. After his surgery and before the chemo, his CEA was .5. We knew they did not get all the cancer. Good luck to you!

Linda

Lisa Rose's picture
Lisa Rose
Posts: 595
Joined: Mar 2003

Hi Sue,

Take It One Step At A Time. . .

First congratulations on a good CT Scan. Stay positive and we'll keep you in our thought's & prayers that all will go well with your Pet Scan on the 30th.

Hugs

Lisa Rose

Kanort's picture
Kanort
Posts: 1275
Joined: Jan 2004

Hi Sue,

As our buddies have stated, CEA is one of those strange things. I'm just sorry that you having to even think about it. Postitive vibes and prayers are being sent your way for the 30th.

Hugs,

Kay

kangatoo's picture
kangatoo
Posts: 2115
Joined: Feb 2004

Hiya Sue, I agree with everyone else...my CEA was low at original dx and has never gone over 5.Metinks that your bubbly, effervecent attitude at Austin must have played havoc with your genes gal. It's all that excitement that has made yah body go haywire...you'll be fine sweetie!
huggs, Ross n Jen

Subscribe to Comments for "RESULTS FROM SCAN"