RESULTS FROM SCAN

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jerseysue
jerseysue CSN Member Posts: 624 Member
edited March 2014 in Colorectal Cancer #1
Not the results I wanted but I guess it CAN be worse (hopefully not GET worse). He said that the CT scan after review was ok. But that my CEA levels are 6.5 from a 1 so he has scheduled me a PET scan on 5/30. Anyone else ever have their CEA go up and it turns out to be nothing? Sue

Comments

  • StacyGleaso
    StacyGleaso CSN Member Posts: 1,233 Member
    #2
    Hi Sue,

    I have heard tons (literally tons!) of stories where CEA increased, and it was nothing (literally nothing!). So don't put too much thought into it. Obviously, communicate with your doc the concerns you have and maybe additional testing?

    Best wishes,
    Stacy
  • Betsydoglover
    Betsydoglover CSN Member Posts: 1,248 Member
    #3
    Hi Sue -

    Like Stacy says, this can happen easily. In fact, if CEA were such a reliable indicator of cancer, it would be standard to use it as a routine diagnostic test. But it isn't used that way because it isn't that clear cut. I know you can't help but worry, but the clear CT sounds great and the PET show add another dimension - which hopefully will alleviate your concerns.

    Take care,
    Betsy
  • spongebob
    spongebob CSN Member Posts: 2,565 Member
    #4
    StacyGleaso said:

    Hi Sue,

    I have heard tons (literally tons!) of stories where CEA increased, and it was nothing (literally nothing!). So don't put too much thought into it. Obviously, communicate with your doc the concerns you have and maybe additional testing?

    Best wishes,
    Stacy

    Sue -

    I am right on board with my pal Stacy!

    - SB
  • nanuk
    nanuk CSN Member Posts: 1,358 Member
    #5
    CEA is fickle..what goes up doesn't necessarily mean down. and what goes down doesn't always mean down..I went from 21 to 3 under Avastin/Erbitux, and scan reveals tumors still growing.. bud
  • nanuk
    nanuk CSN Member Posts: 1,358 Member
    #6
    CEA is fickle..what goes up doesn't necessarily mean down. and what goes down doesn't always mean down..I went from 21 to 3 under Avastin/Erbitux, and scan reveals tumors still growing.. bud
  • kerry
    kerry CSN Member Posts: 1,313 Member
    #7
    Hi Sue,

    I concur with everyone else. My CEA has gone up and down and does not necessarily coincide with tumor growth.

    We'll send extra vibes and prayers to you on 5/30.

    Kerry
  • Btrcup
    Btrcup Member Posts: 286
    #8
    Hi Sue, Bud is right. Scott's CEA never went up throughout his fight. After his surgery and before the chemo, his CEA was .5. We knew they did not get all the cancer. Good luck to you!

    Linda
  • Lisa Rose
    Lisa Rose CSN Member Posts: 598 Member
    #9
    Hi Sue,

    Take It One Step At A Time. . .

    First congratulations on a good CT Scan. Stay positive and we'll keep you in our thought's & prayers that all will go well with your Pet Scan on the 30th.

    Hugs

    Lisa Rose
  • Kanort
    Kanort CSN Member Posts: 1,272 Member
    #10
    Hi Sue,

    As our buddies have stated, CEA is one of those strange things. I'm just sorry that you having to even think about it. Postitive vibes and prayers are being sent your way for the 30th.

    Hugs,

    Kay
  • kangatoo
    kangatoo CSN Member Posts: 2,105 Member
    #11
    Kanort said:

    Hi Sue,

    As our buddies have stated, CEA is one of those strange things. I'm just sorry that you having to even think about it. Postitive vibes and prayers are being sent your way for the 30th.

    Hugs,

    Kay

    Hiya Sue, I agree with everyone else...my CEA was low at original dx and has never gone over 5.Metinks that your bubbly, effervecent attitude at Austin must have played havoc with your genes gal. It's all that excitement that has made yah body go haywire...you'll be fine sweetie!
    huggs, Ross n Jen

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