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Joint and bone pain

britches's picture
britches
Posts: 10
Joined: May 2003

I am trying despratley to find anyone that can help me. Last summer i had chemo and now i am suffering with debilataing joint and muscle pain. I need to find written proof of this and or articals anything that shows my doc. that this is real. I could also use some support that im not alone that there are others. If you have any info if you could please email me at britches_26@hotmail.com I would appreciate it this is so important. Thank you

jq
Posts: 7
Joined: Dec 2011

Dear Pinksister 2012,

believe me I am not here for soliciting business but with the genuine belief that may be I can of some assistance to your pain and suffering. Please visit our website. www.bio-zen.biz and if you are interested you can liaise with me at jqlow1@gmail.com

Thank you

jqlow

BuzzyBee1208
Posts: 6
Joined: Mar 2011

Try herbal meds

klukos
Posts: 5
Joined: Apr 2012

Hi BuzzyBee,

I'm taking Immuplex to help boost my system over all. It's by Standard Process and I get it from my Chiropractor in Chicago. I've only been on it for two weeks and can see some improvement in my energy. But my biggest issue is this joint pain, even when I try to sleep. I'm still getting Hercepton every three weeks and have started on Aromasin too. I've been reading all the posts and it sure sounds like it will get worse. I walk everyday even if I hobble along. I had a double mastectomy June 2011, stage 2, HER2 positive. So what do you take? I would be very interested in hearing what has helped you. Blessings, K

klukos
Posts: 5
Joined: Apr 2012

Hi BuzzyBee,

I'm taking Immuplex to help boost my system over all. It's by Standard Process and I get it from my Chiropractor in Chicago. I've only been on it for two weeks and can see some improvement in my energy. But my biggest issue is this joint pain, even when I try to sleep. I'm still getting Hercepton every three weeks and have started on Aromasin too. I've been reading all the posts and it sure sounds like it will get worse. I walk everyday even if I hobble along. I had a double mastectomy June 2011, stage 2, HER2 positive. So what do you take? I would be very interested in hearing what has helped you. Blessings, K

jq
Posts: 7
Joined: Dec 2011

unable to reach you at your email address britches_26@hotmail.com.

Thank you

Jq

Hondo's picture
Hondo
Posts: 6643
Joined: Apr 2009

The post you are responding to is very old from back in 2004, sometimes the person just does not log on here any more or they have passed away. I did visit your web-site and thanks for your concern, as with my problem I always find a lot of good products out there but can’t afford the cost of them.

Thanks for your help
Hondo

jq
Posts: 7
Joined: Dec 2011

Thank you for your reply. I have in fact done research on nutritional health care. It is best that one should take plant base nutrition. Drugs have side effect and at times no effect at all. You may like to read books like "What your doctor doesn't know about nutritional medicine may be killing you " and Bionutrition both by Dr. Ray D strand. "The Antioxidant Miracle" by Dr. Lester Packer who is the well known researcher.

Thank you

JQ

Hondo's picture
Hondo
Posts: 6643
Joined: Apr 2009

Thanks I too believe a lot in the uses of plant base nutrition as I believe that is one reason I am still here today. When my NPC Cancer came back a third time all my Dr’s could offer me was more Chemo, but I ops for no more treatment. I went to home to see my family one last time and while there my brother took me to a place called USHA and started me on some alternative medicine just to help my body get stronger. That was about 6 years ago. I still light up some of my PET scans but nothing is growing and that has all my doctors at MD Anderson very confused and scratching there heads. One just said I am one of those mysteries. Oh well, they know what I did but can’t give any reorganization to it as the reason why the cancer stopped growing.

Thanks for the info
Hondo

jazzy1's picture
jazzy1
Posts: 1385
Joined: Mar 2010

Can I ask what type of "alternative medicine" you were on?

Thanks,
Jan

Hondo's picture
Hondo
Posts: 6643
Joined: Apr 2009

I will PM you my e-mail address

Wishing you well
Hondo

katrosel
Posts: 1
Joined: Dec 2011

Hi Jan,
I finished 6 months of chemo in Oct. I was so excited when it was over.
But recently I too, have had severe joint pain. It is hard to get up and stand for long. Usually if I get to moving around it gets better. I still have no feeling in the ends of my fingers and toes. I feel sometimes as if I have been beat up and my bones are so cold on the inside. They are supposed to do a bone scan at the end of Jan. I hope it gives me some kind of hope about what is wrong. Alleve seems to help. But I don't want to keep taking that the rest of my life. I just turned 58 but I feel like my Mom who is 86 gets around better than me!
Let me know if you found anything to help you! Thanks Kathi

erhickey's picture
erhickey
Posts: 1
Joined: Jan 2013

Hi Kathi,

I found this product called Jusuru that has been the most beneficial for me I too suffered from severe joint pain and was tired of taking pills which I found did not help much. I am on a mission to help as many people as I can to feel better like me. You can find information about my product on my website at www.jusuru.com/erica_hickey. Best of luck to you!

Erica

jq
Posts: 7
Joined: Dec 2011

have you taken the alternative remedy ? Is there any positive response ?

jq
Posts: 7
Joined: Dec 2011

It is good to hear that unfortunately many people still dont believe this. It is also established by the scientists that medical fratenity is always lagging behind by at least 30 years hence it is advisable to go in tandem with the latest scientific discoveries rather than with medical confirmation. For me the starting point for cancer is this, it is due to the attack by the free radicals on our cells which subsequently altered the DNA and become independent cell as it is no longer be controlled by our bodies system. To counteract this phenomena, scientists have suggested that anti-oxidants should be the answer but there must be the combination of the right type of anti-oxidants. Secondly I also believe that the Chinese medical theory of meridians will help. For the Chinese it is believe that our organs are inter-connected with meridians, just like the road, and along the road there is station, which we call acupunture points. If the road is blocked and the energy cannot flow then sickness will arise. In order to ease the blockage there are basically two methods one is (1) by proper massage and (2) by way of consumption of herbal medicine but again it must be the proper herbs. To me again the herb is basically nutrition and one boil over the time, one will consume the liquid and it is in fact the extracts of nutrition. Thus by easing the blockage, one's immunity system is improved and secondly by taking proper anti-oxidants the free radicals can be greatly reduced. Unfortunately medical arena always ask for proof before confirmation but this cannot be proven only when one consume it, one will know the result....

BuzzyBee1208
Posts: 6
Joined: Mar 2011

Your not alone I am on pain medication.

jq
Posts: 7
Joined: Dec 2011

Pain medication is not the solution. I think you may try alternative remedies. Drugs are well known to have side effect, particularly when we age, our body mechanism changed. We are no longer able to produce enzymes and hormones or sufficient amount of them to assist the function of our organs and as a result many drugs are not excreted or expelled from our bodies but remain in our bodies as toxic hence they may give rise to more sickness and diseases. It is therefore well known fact that once a person takes drugs he tends to take more drugs to counter the effect of the toxin..You can refer to book written by Ray D strand on Death by Prescription . As for health supplements I will again caution taking any supplement which is chemically synthesized and on this you can read "Suplements Exposed " by Brian R. Clement PhD, Director of Hippocrates Health Institute.

albx5
Posts: 1
Joined: Feb 2013

I finished chemo May 2010 (AC and taxol) and my pain is worse if anything. I too have pain all over my body, joints, muscles, feet. I have mentioned to oncologist who also thinks it may be rheumatiod arthritis but I did not have 

 

any pain until chemo. I do not take pain meds except ibuprofen but sometimes pain is terrible. Some good and some bad days. As much as chemo has changed me I too may not have chosen chemo. I do wish that MDs would listen and hear us because I feel I am not heard and by reading your posts sounds like u too are not being heard! Maybe some of us r

eceived too much taxol? Maybe why we get more pain and neuropathy?

momof2boys
Posts: 1
Joined: Jan 2013

I too have a lot of pain in my knee joints, sometimes hip (depends on how I get up), and my feet ache a lot.  I didn't have these issues before I started treatment but now I do.  I finished chemo Jan. 31/Feb.1-Neulasta shot.  I don't know why our doctors don't believe the pain we have but IT IS THERE!!!  I am 40 and feel like an old woman getting up from sitting positon or from bed.  Once I'm up I do better but too much walking hurts my feet.  I hope to do more walking/exercise later...still have radiation (6wks/5days wk) to complete...it's been three weeks from lumpectomy/16 nodes removed/port removed, so hope to begin in 2-4 wks from tomorrow. 

Tess2001
Posts: 1
Joined: Apr 2013

I was very active prior to my chemo and radiation treatments for stage III Lung cancer (non-smoker). After the surgery I felt great, After the chemo (carboplatin and another drug I can't remember) then 25 radiation treatments I got aplastic anemia. That's where things started going wrong. I had nerve damage in my back causing horrible pain in my leg above the knee, then the hip pain started and knee pain ...  I used to walk my dogs for hours on the beaches and woods, I did yoga and I rode horses all my life and never ever had pain. The oncologist denied any knowledge of joint pain from chemo as did the radiation oncologist. I had MRI's and CT's which show minor degeneration of the spine and some arthritis in the hips but I can't even get on a horse anymore the pain is so bad I scream.  I can't walk more than ten minutes and I've started gaining weight which in of itself is not good for the joints.  No one has answers and I feel as if now that I'm in remission the oncologist really isn't interested in my tales of woe!  Believe me when I say I am thrilled with each day I've been given and find something positive about every day but this pain gets me down.  I have been prescribed narcotics for the pain but won't take them because I get nauseaus and I need to function at a high level for my job, so take Advil every night so I can sleep.  I've also started taking a liquid glucoseamine/MSM/chondroiten supplement every night and hope this will help once it builds up in my system.  Why if so many of us are telling our oncologists about the joint pain after chemo aren't they listening and trying to help us?  I had one friend in the medical field tell me when I asked why aren't we told of the long term side effects of chemo / radiation... He said many people wouldn't have it if they knew how tough the battle was.  He is right. I can honestly tell you if the cancer comes back I don't think chemo is the route I'll take. 

I hope everyone here finds relief from the pain and can lead a pain free and productive life. 

alicemary
Posts: 1
Joined: Nov 2013

Tess,

My sister is going through the same thing with pain.

can you please email me.

I need to help her.... It kills me to hear her in so much pain.

alice@green-flymedia.com

hotmomma
Posts: 1
Joined: May 2013

Thank you for asking this question and for all the replies.  Definitely makes me happy I don't have to add "gone loopy" to my side effects list.  I am one month out from treatment completion for Hodgkins Lymphoma.  I asked my doc about my knees and she said it was probably the chemo.  It was intense - not the pain but the inability to use them normally.  I'm 45 and I couldn't bend my knees and expect to get back up again.  Not as bad as it was at first.  I'm hoping all this stuff will subside and fade into the background 'cause I've got a lot more stuff to do!  Outta my way joint pain, I'm comin' through!!!

shinning_like_me's picture
shinning_like_me
Posts: 23
Joined: May 2013

may sound strange but only accupressure and phsiotherapy can help.my mum in law is suffering from same but after 13 years of chemo therapy and treatments like such. so after heavy medication and all, she opted for some excercises and she is getting helped by it. it is working very well for her.

Dwwilburn's picture
Dwwilburn
Posts: 19
Joined: May 2011

I finished chemo in May 2011 and then started the anti-estrogen drugs to prevent recurrence. I was never sure if the pain was from chemo or the anti-estrogen drugs. The only thing that gave me relief was India Pale Ale beer. I told my doctor I was going to become an alcoholic! Howver, Now I am 2 years 6 months outside of chemo and still on the anti-estrogen. Over time, my joint pain has gotten better and now I don't take anything. And, this may be in my head, once I started taking the anti-estrogen at night, the joint pain seemed to be less.

Lorrie Blanks's picture
Lorrie Blanks
Posts: 1
Joined: Aug 2014

Post Chemo Rheumatoid Syndrome or  Chemo Related Arthropathy. These are the names of what we are going though and here is the article you need ; go to PubMed.Gov look up P MID22842318. Hope it helps God Bless!

 

tiko11
Posts: 1
Joined: Dec 2016

I am suspecting the cause is the fluoroquinolones family of drugs in chemotherapy infusions. Please look at https://floxiehope.com/

 

Keeponkeepingon
Posts: 2
Joined: Aug 2017

God bless all you survivors. Grateful to be sunny side up, but I started having serious joint pain and inflexibility three months after finishing chemo for lymphoma. I don't know what to do about it yet, but now I understand and sympathize with you all. I know it's not depression because I'm not depressed, just in pain. And I know it's real, like the fatigue is real, but hard to document it or prove it to skeptics who've heard less about it than even us patients! And many of us have been taken by surprise, obviously. So, I'm looking for answers and some relief.

ShadowFoxDelta
Posts: 1
Joined: Aug 2017

I'm well and truly out of chemo and radiation the last was back in 1999 first diagnosed in 93 was about 6 and a half and i just turned 31 this year from about 8 I had ankle problems and knee problems the doctors always put down to growing pains even when I stopped  growing for a few years it was growing pains  then the doctor told me I was imagining it and it was in my head the pain can be unbearable  as a kid I would just burst into tears it hurt so much now I'm still going in to the doctors same problem different year xrays and scans never come back with much but I'm so happy! they told me I would never have kids of my own because of how young I was when I was radiated  well I have my beautiful  daughter took her to the doctors he pointed at her and said how Did that happen I cope day to day some better than others some the pains a little tingle others it keeps you up all night but the GPs here are hopeless so I try my hardest to keep moving and spending all the time I can with my daughter. For all of you struggling with the joint pain I hope with all my heart your doctors  get it sorted for you so you may all live life to the fullest and have many pain free years to come 

MomCat6's picture
MomCat6
Posts: 6
Joined: Feb 2021

I'm not quite sure how to follow this discussion but it looks like it may have been quite a while since anyone participated. I had my first chemo treatment ten days ago-carboplatin and pacilitaxol for a recurrence of endometrial cancer. Since it never should have recurred and I am young relatively (59), they decided to attack it aggressively so chemo then radiation then chemo. Should be around 7 months of treatments. I definitely suffered bone and joint pain after my first treatment. It was so debilitating. My onc suggested I try ibuprofen. I didnt think it would help so I didnt. Im afraid the reaction will be worse after my second seession next week. Is anyone outh there reading this? Any hints of how to ward it off? Thanks!

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