FOLFOX #7 Delayed

Lori-S
Lori-S Member Posts: 1,277 Member
edited March 2014 in Colorectal Cancer #1
So my WBCs, Plts, and RBC are all down so no #7 for me. I was so sick this weekend, running a low grade fever (got up to 100.4 and 100.5 is when I'm suppose to call in), diarrhea (woo hoo), nausea and fatigue fatigue fatigue. Spent most of yesterday in bed and was told at the clinic today to go back to bed so .... just checking in ... feel free to wish that I feel better soon because I sure do wish it!

Love you guys.
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Comments

  • maglets
    maglets Member Posts: 2,576 Member
    #2
    feel better
    oh Lori...I wish you could feel better.....just think you have done 7 of that stinking rotten horrible ugly stupid evil oxy.......there....that will help

    love to you

    mags
  • soccermom13
    soccermom13 Member Posts: 224
    #3
    all most done!
  • geotina
    geotina Member Posts: 2,111 Member
    #4
    Lori:
    All weekend George has felt lousy. Kinda like you. He just didn't look right to me. I didn't think it was cancer related, no fever, diarrhea a little, fatigue, fatigue and lots of gas. So today he didn't go into work and he tells me how many people were out last week with flu like symptoms. Bingo, I wish he had told me this last week. Could be that you have a touch of the same thing. George did go and get his Avastin this afternoon and his WBC was down, still normal, ok for the Avastin, but down for him.

    Now go to bed and get your rest.

    Take care - Tina
  • AnneCan
    AnneCan Member Posts: 3,673 Member
    #5
    Feel better soon
    Lori I am hoping you will feel better soon. I am sorry you missed your treatment; hopefully the break will do you good.
  • JoyceSteele
    JoyceSteele Member Posts: 145
    #6
    feel better
    Lori, I'm wishing you feel better SOON. So sorry about the weekend. You are in my prayers. Hugs, Joyce
  • Lovekitties
    Lovekitties Member Posts: 3,364 Member
    #7
    Dear Lori,

    Hope that as each day goes by you feel better and better.

    Here there is a bad stomach virus making the rounds with similar symptoms.

    Whatever the cause, take care and stay hydrated.

    Hugs,

    Marie who loves kitties
  • idlehunters
    idlehunters Member Posts: 1,787 Member
    #8
    Lovekitties said:

    Dear Lori,

    Hope that as each day goes by you feel better and better.

    Here there is a bad stomach virus making the rounds with similar symptoms.

    Whatever the cause, take care and stay hydrated.

    Hugs,

    Marie who loves kitties

    Hey Lori...
    GET GOOD!!!!!!!!!!!!

    JENNIE
  • LivinginNH
    LivinginNH Member Posts: 1,456 Member
    #9
    Oh dear, get plenty of rest

    Oh dear, get plenty of rest and pour yourself a nice cup of green tea with honey (always makes me feel better). I hope that you're feeling better soon! :-) Hugs, Cynthia
  • Lilmiss82
    Lilmiss82 Member Posts: 257 Member
    #10
    LivinginNH said:

    Oh dear, get plenty of rest

    Oh dear, get plenty of rest and pour yourself a nice cup of green tea with honey (always makes me feel better). I hope that you're feeling better soon! :-) Hugs, Cynthia

    Hope you feel better soon
    I missed a couple of sessions for the same reason. Get pleanty of rest, try to eat and drink whatever you can, and just take it easy. -Melissa
  • herdizziness
    herdizziness Member Posts: 3,624 Member
    #11
    Oh Sick One
    Hope you start feeling better very soon!!!! Go to bed, have a little Irish coffee, it'll help you feel better too!!!
    Hugs.
    Winter Marie
  • Annabelle41415
    Annabelle41415 Member Posts: 6,742 Member
    #12
    Bummer
    Yup that folfox can sure get you down and mess with all your counts. My schedule was changed to once every three weeks because my counts were always so low. Hoping that you feel better soon and it's good that you are resting as you need it.

    Kim
  • Kerry S
    Kerry S Member Posts: 606 Member
    #13
    Lori Darlin
    I just don’t understand how anyone with such a fantastic smile could ever feel bad.

    Hope you feel better soon. Here is a hug from the boards dirty old man.

    Love you to
    Kerry. (everyone knows I am easy)
  • lagwag
    lagwag Member Posts: 76 Member
    #14
    Hope you feel better soon.

    Hope you feel better soon.
  • TMac52
    TMac52 Member Posts: 352
    #15
    I wish you better days Lori !!!
    I did #4 today, onc lowered the dose its so far better than the last.
    Sending positive vibes your way......
    Tom
  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    #16
    I hope the rest break helps and you can recover.
    I hope you feel better soon, was going to say right now.
    Pete
  • LOUSWIFT
    LOUSWIFT Member Posts: 371 Member
    #17
    Sorry Lori
    Sorry to hear about the delay. My platelets were at 55000 so ONC decided to go ahead with #8. My white blood cells went from 1.7 critical to 4.9 normal. He did reduce the oxi by 10% because he is starting to worry about permanent damage due to the Folfox. He talked me into continuing beyond 8 treatments. He finally explained his concern with the chemo continuation when he pointed out that every Folfox treatment isn't uniform in its delivery. One treatment may go more to say the colon rather than the liver etc, and the rest may go to the lungs rather than the other places for cancer to start. He said the 12 treatments give me the best chance of getting the chemo to all the areas it needs to be. He believes I don't have cancer any more since there is nothing on Pet scan and CEA less than one since August but this is a reoccurrence and he doesn't want to take chances. So I will continue to #9 and beyond if possible. I hope you can fight through this too. Your adventures with Folfox are far worst than mine and mine have been bad. I'm sitting here now listening to the damn pump push more chemo into me and thinking still four more treatments...can I take it? Hugs always Lou
  • Lori-S
    Lori-S Member Posts: 1,277 Member
    #18
    Thanks everyone
    i appreciate all the well wishes. I'm doing a little better today. I kept down the scrambled eggs but, they still taste like dead baby chickens. I'm sure things are tougher going since I'm also dealing with my son.

    They have called in a specialist from Oakland who deals with transplants and immune dificiencies. They have done a lot of testing and we hope to have some sort of information by the end of the month. There is a whole team from various places around the country consulting with the Doc from Oakland. We are hoping that there might be some way to get a lung transplant before my son's heart wears out. At this point we are looking at possible heart failure. Prayers are welcome with this matter and thanks again to everyone.
  • pepebcn
    pepebcn Member Posts: 6,331 Member
    #19
    Lori-S said:

    Thanks everyone
    i appreciate all the well wishes. I'm doing a little better today. I kept down the scrambled eggs but, they still taste like dead baby chickens. I'm sure things are tougher going since I'm also dealing with my son.

    They have called in a specialist from Oakland who deals with transplants and immune dificiencies. They have done a lot of testing and we hope to have some sort of information by the end of the month. There is a whole team from various places around the country consulting with the Doc from Oakland. We are hoping that there might be some way to get a lung transplant before my son's heart wears out. At this point we are looking at possible heart failure. Prayers are welcome with this matter and thanks again to everyone.

    Sorry Lori l miss this post !
    Just know that I'm praying for your son recovery hope you find a donor soon that helps your son!
    God bless you!
  • Lori-S
    Lori-S Member Posts: 1,277 Member
    #20
    pepebcn said:

    Sorry Lori l miss this post !
    Just know that I'm praying for your son recovery hope you find a donor soon that helps your son!
    God bless you!

    Thanks Mate!
    Unfortunately, with the MRSA (antibiotic resistant staph infection in the lungs) that alone may be enough to keep him off the list. We're just keeping our fingers crossed that something good happens. The waiting list at Standford for lung transplants is currently at 3,800 patients and while we can't pinpoint how long anyone has, my son is said to have less than a year and most likely less than 6 months at the rate we are going. But, as we all know.... only God knows for sure. He's beat the odds many times before ... maybe again???
  • Kenny H.
    Kenny H. Member Posts: 502 Member
    #21
    pepebcn said:

    Sorry Lori l miss this post !
    Just know that I'm praying for your son recovery hope you find a donor soon that helps your son!
    God bless you!

    Sorry to hear that one Lori.
    Sorry to hear that one Lori. Mine got cut short today, the infusions quit working. Said something in Port blocking it. Whats wierd is the nurse could still flush it (3 times) and that worked. Had to install a IV in my hand to finish all except the 5fu, didnt want to send me home with the pump on a IV connection.
    Now have to go to hospital in am to figure out whats wrong with it. Supposed to run a dye thru to watch it. Hope they can fix it, dont want another surgery.

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