Hi Everyone- Thank you
He is still in ICU with his chest tube in and we are having some blood coming out of the chest cavity. I'm not fond of the medical community in Las Vegas and don't think I should have to tell the doctors what to do. But, unfortunately, I had to request that they test the fluid to determine exactly what caused the pleural effusion and collasped lung. They told me "Well we're pretty sure it is from his pneumonia" ARGH! While it's most likely that (he's had 8 bouts of pneumonia this year - baterial, viral and fungal). He also had a stroke and heart surgery within the last couple of months .... so "pretty sure" just isn't good enough to me. I want to know for sure what caused the problem and I told them so. His lung isn't responding so well and we don't expect it to reinflate quickly because of his underlying lung disease but, if it doesn't respond soon we will have to consider surgery (lung resection). It's something that I don't want done unless we have no other choice. We now have his platelets up into the 30's (which is about his normal) but can't do any kind of surgery with them that low so we are still just waiting to see and giving the lung more time. He's had 3 trasnfusions to get his platelets up that high as they were down to 12!
So, that's it in a nutshell. Had a busy Christmas day as I made a large dinner for friends and then ran dinner up to my son so he could have Christmas dinner too. The nurse gave him IV zofran before he ate. He scarfed it down which is good because he's now at about 88 lbs and needs his food. As I was about half way home he texted me to say he had thrown it all up. UGH!
I am exhausted and not looking forward to Chemo tomorrow. Not sure if my platelets are up enough but will find out as I get labs first to determine if chemo is on the menu. I still have some low platelet symptoms but not too bad so maybe they are up enough. We shall see.
I am so sorry if I missed anyone who needed some love and support recently. Know that you are all in my thoughts.
Again thank you all for the good vibes, prayers and well wishes. Feel the love!!!!
Comments
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Hey Lori
Lori, you are truly a remarkable person....you certainly have way too much on your plate right now...
There's no doubt that everyone here is rooting for you and your son...
Please take care of yourself too!
Your friend in Penn0 -
Lori, you are awesome!Friendinpenn said:Hey Lori
Lori, you are truly a remarkable person....you certainly have way too much on your plate right now...
There's no doubt that everyone here is rooting for you and your son...
Please take care of yourself too!
Your friend in Penn
What a strength ! I Hope and pray for a fast recovery of your son.Just have my best wishes for a better year in 2011!
I love you!
Pepe.0 -
Son
Hoping and praying that your son gets better soon. You have been dealing with so much, you need some good rest. Hoping that things will ease up for you soon. Stay strong.
Kim0 -
I'm sorry to hear your news
Lori,
I am so sorry to hear about your son..he is in my prayers as are you. I can only imagine the strength it takes to go through all that you are going through right now. I know things will get better soon. I wish I was there to help you in some way. Please get some rest and take care of yourself.
Big hugs,
Sara0 -
Lori,
My thoughts and
Lori,
My thoughts and prayers go out to you and your son. You're an amazing person. I read your posts often and am amazed by your determination, persistance, strenth, kindness, knowledge...check, check, check all of the above. I too, hope that 2011 brings health to you and your family.
Erin0 -
Lori
Hi Lori,
Wow- Unbelievable how much you have going on- I don't even know what to say except I'm thinking of you and your son and praying hard for him, for all the doctors involved, for your chemo tomorrow, & for healing and wellness for you both.
Hugs and much love to you,
Lisa0 -
Lori
Lori,
I am so darn sorry that you are in the midst of all of this. My heart breaks for you and your son. I wish he would get a break. I am praying for him. As you know, our family owes a lot to him and you.
My prayers are with you and this round of chemo.
I am holding your family in the light.
Aloha,
Kathleen0 -
This comment has been removed by the ModeratorKathleen808 said:Lori
Lori,
I am so darn sorry that you are in the midst of all of this. My heart breaks for you and your son. I wish he would get a break. I am praying for him. As you know, our family owes a lot to him and you.
My prayers are with you and this round of chemo.
I am holding your family in the light.
Aloha,
Kathleen0 -
the xmas mission, missed your posts
I am at loss for words. I hope you get your xmas wishes , you deserve them.
Goodluck on the folfox express.
love Pete
Ps a bagful of miracles for us all would not go astray as well with a dash of peace, love, joy and hope.0 -
Thanks for the update Lori.pete43lost_at_sea said:the xmas mission, missed your posts
I am at loss for words. I hope you get your xmas wishes , you deserve them.
Goodluck on the folfox express.
love Pete
Ps a bagful of miracles for us all would not go astray as well with a dash of peace, love, joy and hope.
Thanks for the update Lori. Sounds as if your plate is full. Try to get some rest, round 5 tomorrow.
Doing my bloodwork today.0 -
Yep, so sorry for yourAnneCan said:Lori
I don' know what words can express how sorry I am you + your son are going through this. Keep up your great attitude.
Yep, so sorry for your hardships, it must be very difficult to deal with everything. Take Care of yourself and please don't overdue.0
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