Oh great diarrhea, learning to meditate on the loo

pete43lost_at_sea
pete43lost_at_sea Member Posts: 3,900 Member
edited March 2014 in Colorectal Cancer #1
emptied the bag at least 20 times today. feeling tired and warn out.
trying to keep fluids and food up.
just popped a couple immodiums, not working so far.

off to my 5 day cancer retreat tomorrow and am seeing onc before i go.

have a great week,
pete

Comments

  • Nana b
    Nana b Member Posts: 3,030 Member
    #2
    Me too....gurgle, gurgle!

    Me too....gurgle, gurgle!
  • John23
    John23 Member Posts: 2,122 Member
    #3
    Pete,

    If that's an Ileostomy you have, try drinking "high pulp" orange juice
    (it's got to be the "high pulp" one though, the others won't work as well).

    Grapefruit juice is better, but many medicines can't be used with
    any grapefruit juice intake.

    Dehydration happens fast, and 4oz per water per hour is a must.

    Good luck...

    John
  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    #4
    John23 said:

    Pete,

    If that's an Ileostomy you have, try drinking "high pulp" orange juice
    (it's got to be the "high pulp" one though, the others won't work as well).

    Grapefruit juice is better, but many medicines can't be used with
    any grapefruit juice intake.

    Dehydration happens fast, and 4oz per water per hour is a must.

    Good luck...

    John

    thanks john yes its my little Ileostomy
    will try sipping grapefruit and or orange, off to supermarket.
    the bags been a ****, couple of leaks. yuk, wife is great but over it.
    the bag does not take high flow well. might add some of the pulp from vege jiuce back into
    mix as well. my gut feels miserable like me. its been really hot here as well so it does not help with dehydration.
    off to brew tcm.
    pete
  • pepebcn
    pepebcn Member Posts: 6,331 Member
    #5
    pete43lost_at_sea said:

    thanks john yes its my little Ileostomy
    will try sipping grapefruit and or orange, off to supermarket.
    the bags been a ****, couple of leaks. yuk, wife is great but over it.
    the bag does not take high flow well. might add some of the pulp from vege jiuce back into
    mix as well. my gut feels miserable like me. its been really hot here as well so it does not help with dehydration.
    off to brew tcm.
    pete

    Hi Pete Good morning there!
    Hope you get better today!
    Hugs and good night here! hehehehe!
  • Nana b
    Nana b Member Posts: 3,030 Member
    #6
    pepebcn said:

    Hi Pete Good morning there!
    Hope you get better today!
    Hugs and good night here! hehehehe!

    Enough
    Pete I still have mine too. My stomach is making so many noises and gurgling. I can not imagine it coming out any other way then into the toils. So much water and gas. Maybe that why I have been bloated.
  • Kerry S
    Kerry S Member Posts: 606 Member
    #7
    I sure as hell don’t miss my damn bag
    I sure as hell don’t miss my damn bag. Also listen to John. Drink plenty of water. It is not gas in that bag. I tested for that and it does not burn. It is just a big load of stink that has not had the time to ferment.

    I will tell you that rye bread will pop a hole in it. The damn seed stays sharp. I had my first (in 90 days) hard salami & pepper cheese on Rye today for lunch. It was fantastic.

    I have only been to the john 2 times today. The days of crap storms are over. I hope.

    Kerry (the bag less old coot)
  • Lori-S
    Lori-S Member Posts: 1,277 Member
    #8
    Yep Pete
    I can gurgling with the best of them. Worst I ever had was after drinking the barium for a CT scan. Only time I ever had a blow out of my bag .... driving home from the scan ... yikes!

    As John said, try adding the pulp or some other nice fiber to bulk it up and hydrate. Good luck!
  • ron50
    ron50 Member Posts: 1,723 Member
    #9
    pete43lost_at_sea said:

    thanks john yes its my little Ileostomy
    will try sipping grapefruit and or orange, off to supermarket.
    the bags been a ****, couple of leaks. yuk, wife is great but over it.
    the bag does not take high flow well. might add some of the pulp from vege jiuce back into
    mix as well. my gut feels miserable like me. its been really hot here as well so it does not help with dehydration.
    off to brew tcm.
    pete

    Hi Pete
    What is your home town,I am in Nambour on the Sunshine coast,been hot and wet here,water water everywhere...Ron.
  • pepebcn
    pepebcn Member Posts: 6,331 Member
    #10
    Lori-S said:

    Yep Pete
    I can gurgling with the best of them. Worst I ever had was after drinking the barium for a CT scan. Only time I ever had a blow out of my bag .... driving home from the scan ... yikes!

    As John said, try adding the pulp or some other nice fiber to bulk it up and hydrate. Good luck!

    Yep, it is amazing how many forms and shapes
    you can discover on the marble of the floor of the toilet ! Dogs ,rabbits , lions ! .LOL.
  • Kenny H.
    Kenny H. Member Posts: 502 Member
    #11
    pepebcn said:

    Yep, it is amazing how many forms and shapes
    you can discover on the marble of the floor of the toilet ! Dogs ,rabbits , lions ! .LOL.

    So true pepe. I miss those
    So true pepe. I miss those art search days.
  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    #12
    slippery elm herbal supplement really helped me
    was advised about this on my live in cancer retreat.
    its been a fabulous experience, like up quest for life.

    the diarrhea was chronic emptying bag every hour or two at night.
    getting mild cramps.
    i look absolutely shocking. had a couple of gas/poo explosions

    trying to stay hydrated and eat well, but no appetite and nausa.
    the chemo must be finally hitting me. oh great. this is the worst i
    have felt in months. I think i am getting better slowly and the bag has reasonable stools at the moment.

    if i get desparate with diarrhea again then I will try slippery elm. it helped me.

    has anyone else used or heard of this

    thansk for the support.
    pete
  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    #13
    Kerry S said:

    I sure as hell don’t miss my damn bag
    I sure as hell don’t miss my damn bag. Also listen to John. Drink plenty of water. It is not gas in that bag. I tested for that and it does not burn. It is just a big load of stink that has not had the time to ferment.

    I will tell you that rye bread will pop a hole in it. The damn seed stays sharp. I had my first (in 90 days) hard salami & pepper cheese on Rye today for lunch. It was fantastic.

    I have only been to the john 2 times today. The days of crap storms are over. I hope.

    Kerry (the bag less old coot)

    you lucky bagless coot
    kerry
    i love your stories.
    stay well and bagless and keep up the encouraging posts.
    its good to know about life after the bag.
    pete
  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    #14
    ron50 said:

    Hi Pete
    What is your home town,I am in Nambour on the Sunshine coast,been hot and wet here,water water everywhere...Ron.

    hi ron
    i live in sylvania.
    give me a pm if you want a chat one day.
    this baord is so cool.
    pete
  • plh4gail
    plh4gail Member Posts: 1,238 Member
    #15
    Oh Pete, I sure hope you are
    Oh Pete, I sure hope you are feeling better by now. I'm a little late reading about your tough last few days. Sorry you've been having a hard time with the bag and all. I'm so glad mine is gone. I hope yours will be soon also.

    Gail
  • Kenny H.
    Kenny H. Member Posts: 502 Member
    #16
    plh4gail said:

    Oh Pete, I sure hope you are
    Oh Pete, I sure hope you are feeling better by now. I'm a little late reading about your tough last few days. Sorry you've been having a hard time with the bag and all. I'm so glad mine is gone. I hope yours will be soon also.

    Gail

    Pete have Dr prescribe you
    Pete have Dr prescribe you some lomatil. Works great when Immodium dont.
  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    #17
    Kenny H. said:

    Pete have Dr prescribe you
    Pete have Dr prescribe you some lomatil. Works great when Immodium dont.

    diarrhea back again
    thanks gail
    thanks henry will get a script tomorrow for lomatil.
    i am over the bag bursts and emp;tying every couple of hours. i would love a peaceful nights sleep.
    cheers pete
  • pepebcn
    pepebcn Member Posts: 6,331 Member
    #18
    pete43lost_at_sea said:

    diarrhea back again
    thanks gail
    thanks henry will get a script tomorrow for lomatil.
    i am over the bag bursts and emp;tying every couple of hours. i would love a peaceful nights sleep.
    cheers pete

    Hi pete, where you been last couple of days?
    Hugs from the other side!.
  • jenjerandkatesmom
    jenjerandkatesmom Member Posts: 37
    #19
    Been a couple of years since
    Been a couple of years since I had my ileostomy but I do remember eating one food that thoroughly plugged me up...tortilla chips and cheese dip. Up until that point, it was normal for me to empty my bag every 3 hours including during the night. I took 2 immodium after each empty. The tortilla chips really stopped all movement and I had to drink 3 full bottles of water to get things moving again. FYI...I ate alot of those darn chips . Moderation would have been a better idea. I'm assuming you are are on a normal diet and can eat what you would like.
  • stratplayer
    stratplayer Member Posts: 42 Member
    #20
    pete43lost_at_sea said:

    diarrhea back again
    thanks gail
    thanks henry will get a script tomorrow for lomatil.
    i am over the bag bursts and emp;tying every couple of hours. i would love a peaceful nights sleep.
    cheers pete

    Bowel Training is sooo much fun...
    Pete, I take 2 Lomotil every three to four hours just to keep out of the bathroom.
    Sometimes it doesn't work so well.
    There have been many times I wished for a reversal and have my Ileostomy back.

    The butte pain from the fissures are terrible.

    My surgeon said to give this 2 years and then we'll talk ostomy. I am on 6 months now, with my bowel training.

    Oh well, I am alive and that counts alot.

    Mickey

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