Saw oncologist today ------------ & I'm scared

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Comments

  • DianeBC
    DianeBC Member Posts: 3,881 Member
    #42
    fauxma said:

    I think that it is very
    I think that it is very unfortunate that this onc presented this to you by only saying it is a very painful procedure. While none of us want to go into a treatment not forewarned we also don't need to be scared out of our wits. I went to a site that had some information about spinal chemo and I copied this section for you.
    An intralumbar injection is when your caregiver gives your chemotherapy into your spine. It is also called a lumbar injection. Your caregiver will place a needle with the medicine into your spine. Once the chemotherapy is given, the needle is removed. An intralumbar injection may be painful. Your caregiver may use special medicine to make you lose feeling in the area or to make you drowsy before the medicine is given. Ask your caregiver for more information about intralumbar injections.
    It seems to me that the onc could and should have mentioned the possibility of using either of these. Would certainly have eased you mind? And since these can be given I would definitely request something. Twilight sleep, a spinal block, something. I think that there are just some caregivers that forget they are dealing with real life people and they have feelings, fears, and need some compassion when being told about treatments.
    Like the others said, call and talk with someone about what will be done to make this as comfortable as possible.

    Good luck on Wednesday
    Good luck on Wednesday Libby!

    Hugs and positive thoughts for you,


    Diane
  • mwallace1325
    mwallace1325 Member Posts: 806
    #43
    So sorry
    you have to go through this. We're all with you giving you all the strength you need, and then some.

    Take care, and hope this is over for you quickly.


    marge
  • Boppy_of_6
    Boppy_of_6 Member Posts: 1,138
    #44
    mwallace1325 said:

    So sorry
    you have to go through this. We're all with you giving you all the strength you need, and then some.

    Take care, and hope this is over for you quickly.


    marge

    Will be saying prayers for
    Will be saying prayers for you. God Bless
    (((Hugs))) Janice
  • DebbyM
    DebbyM Member Posts: 3,289 Member
    #45
    mariam_11_09 said:

    I agree with the others, the

    I agree with the others, the Onc. should have indicated what they were going to do to provide you with more confort during the procedure. DId he say what part of it was going to hurt? I had a needle into my spine (many years ago in another part of the world) and the only part that hurt was the needle going in which was very quick after that it was fine. If this is the case you can ask if the Emla cream or cold spray can be given before hand.

    Hang in there and just keep breathing deeply. You are in our thoughts and prayers.

    take care

    Praying for you Libby!
    Hugs,
    Praying for you Libby!


    Hugs, Debby
  • Kylez
    Kylez Member Posts: 3,761 Member
    #46
    mwallace1325 said:

    So sorry
    you have to go through this. We're all with you giving you all the strength you need, and then some.

    Take care, and hope this is over for you quickly.


    marge

    Saying prayers for you!
    Saying prayers for you!
  • Megan M
    Megan M Member Posts: 3,000
    #47
    ladyg said:

    I'm sorry
    to hear you have to go through something like that. I will keep you in my thoughts. Try not to let it ruin your Thanksgiving.

    Hugs,
    Georgia

    Good luck tomorrow Libby! I
    Good luck tomorrow Libby! I will be thinking of you and praying for you!


    Big hugs,


    Megan
  • pinkflutterby
    pinkflutterby Member Posts: 615 Member
    #48
    Kylez said:

    Saying prayers for you!
    Saying prayers for you!

    thanks everyone!!
    I did call and was assured they would do everything possible to make me a comfortable as they could. The nurse said it was a painful procedure but for some its a piece of cake so Im hoping for a piece of cake!!! Trying to be optomistic :)

    I'll post tomorrow after the procedure.

    My appt is at 11 BUT I have to lay there for 3 hours afterwards UGGGG

    ♥ to all, Libby
  • Jean 0609
    Jean 0609 Member Posts: 2,462
    #49
    pinkflutterby said:

    thanks everyone!!
    I did call and was assured they would do everything possible to make me a comfortable as they could. The nurse said it was a painful procedure but for some its a piece of cake so Im hoping for a piece of cake!!! Trying to be optomistic :)

    I'll post tomorrow after the procedure.

    My appt is at 11 BUT I have to lay there for 3 hours afterwards UGGGG

    ♥ to all, Libby

    Hope all goes well!
    Glad to hear that they are going to keep you comfortable. My surgery is at 11 a.m. also, but I'm on the east coast. We will be with each other in spirit, holding each others hands. Hope all goes well. Talk to you soon. Hugs, Jean
  • susie09
    susie09 Member Posts: 2,930
    #50
    New Flower said:

    Libby we will come with you
    Libby we will come with you and hold your hand. You will be Ok, please do not be scared.
    Thinking of you.
    Happy Thanksgiving.
    New Flower

    I love what New Flower wrote
    I love what New Flower wrote to you Libby. It is exactly what I was going to write. We will be with you!

    Sending you all the luck that I can and prayers!
  • Kylez
    Kylez Member Posts: 3,761 Member
    #51
    Jean 0609 said:

    Hope all goes well!
    Glad to hear that they are going to keep you comfortable. My surgery is at 11 a.m. also, but I'm on the east coast. We will be with each other in spirit, holding each others hands. Hope all goes well. Talk to you soon. Hugs, Jean

    Wishing you all the best
    Wishing you all the best tomorrow Libby! Praying the surgery goes well.


    Hugs, Kylez
  • warrrior3
    warrrior3 Member Posts: 92
    #52
    Kylez said:

    Wishing you all the best
    Wishing you all the best tomorrow Libby! Praying the surgery goes well.


    Hugs, Kylez

    Libby
    praying for you this AM as you are getting ready for your procedure. Hope you have a painfree "piece of cake" day.
  • survivorbc09
    survivorbc09 Member Posts: 4,374 Member
    #53
    sea60 said:

    Yes Libby
    I am praying for you that it will not be painful nor uncomfortable as he says. Know that we have you surrounded in love, positive thoughts and prayer.

    Let us know how it goes...

    Warms hugs,

    Sylvia

    Strength, hugs, prayers and
    Strength, hugs, prayers and lots of love are coming your way from everyone on this board!


    Jan
  • creampuff91344
    creampuff91344 Member Posts: 988
    #54
    warrrior3 said:

    Libby
    praying for you this AM as you are getting ready for your procedure. Hope you have a painfree "piece of cake" day.

    Thinking of You
    Libby, you are in my thoughts right now (exactly 11:00 am in East Texas), and I really hope that this procedure is something you can handle easily. Sometimes the doctors forget that the mind is a strong part of a person, and you can conjure up all kinds of things when a simple statment is made to you. Let us know how things go, and we will all have you in our prayers as you undergo this treatment process. Hugs, Judy
  • lynn1950
    lynn1950 Member Posts: 2,570
    #55
    pinkflutterby said:

    thanks everyone!!
    I did call and was assured they would do everything possible to make me a comfortable as they could. The nurse said it was a painful procedure but for some its a piece of cake so Im hoping for a piece of cake!!! Trying to be optomistic :)

    I'll post tomorrow after the procedure.

    My appt is at 11 BUT I have to lay there for 3 hours afterwards UGGGG

    ♥ to all, Libby

    Thinking of you and sending
    Thinking of you and sending piece of cake prayers your way. xoxoxo Lynn
  • Ritzy
    Ritzy Member Posts: 4,381 Member
    #56
    creampuff91344 said:

    Thinking of You
    Libby, you are in my thoughts right now (exactly 11:00 am in East Texas), and I really hope that this procedure is something you can handle easily. Sometimes the doctors forget that the mind is a strong part of a person, and you can conjure up all kinds of things when a simple statment is made to you. Let us know how things go, and we will all have you in our prayers as you undergo this treatment process. Hugs, Judy

    Praying for you today
    Praying for you today Libby!


    Sue :)
  • Angie2U
    Angie2U Member Posts: 2,991
    #57
    fauxma said:

    I think that it is very
    I think that it is very unfortunate that this onc presented this to you by only saying it is a very painful procedure. While none of us want to go into a treatment not forewarned we also don't need to be scared out of our wits. I went to a site that had some information about spinal chemo and I copied this section for you.
    An intralumbar injection is when your caregiver gives your chemotherapy into your spine. It is also called a lumbar injection. Your caregiver will place a needle with the medicine into your spine. Once the chemotherapy is given, the needle is removed. An intralumbar injection may be painful. Your caregiver may use special medicine to make you lose feeling in the area or to make you drowsy before the medicine is given. Ask your caregiver for more information about intralumbar injections.
    It seems to me that the onc could and should have mentioned the possibility of using either of these. Would certainly have eased you mind? And since these can be given I would definitely request something. Twilight sleep, a spinal block, something. I think that there are just some caregivers that forget they are dealing with real life people and they have feelings, fears, and need some compassion when being told about treatments.
    Like the others said, call and talk with someone about what will be done to make this as comfortable as possible.

    I was praying for you today
    I was praying for you today Libby.
  • DianeBC
    DianeBC Member Posts: 3,881 Member
    #58
    gagee said:

    My prayers are with you.
    My prayers are with you. Hang in there. You have many people praying and thinking of you. The angels will be with you during the procedure. God will not leave you to handle this alone. I truly believe that.

    Hugs and Prayers,
    Diana

    This whole board is praying
    This whole board is praying for you and will be holding your hand!
  • Ritzy
    Ritzy Member Posts: 4,381 Member
    #59
    pinkflutterby said:

    thanks everyone!!
    I did call and was assured they would do everything possible to make me a comfortable as they could. The nurse said it was a painful procedure but for some its a piece of cake so Im hoping for a piece of cake!!! Trying to be optomistic :)

    I'll post tomorrow after the procedure.

    My appt is at 11 BUT I have to lay there for 3 hours afterwards UGGGG

    ♥ to all, Libby

    Love to you too Libby!

    Love to you too Libby!
  • jnl
    jnl Member Posts: 3,869 Member
    #60
    pinkflutterby said:

    thank you all for your
    thank you all for your support!!! Im still worried about the pain ecckkk but we gotta do what we gotta do right?!??!?!?!?!?! I'll be keeping in touch and esp let ya'll know how it goes next week!

    They removed the port because it was leaking causing a pocket of liquid pressuring my brain causing seizures weakness dizzyness lots of weirdness.

    They want to put another type of port in my head in a couple of months!

    I am still praying for you
    I am still praying for you Libby! By the way, I love your name. Is Libby short for Elizabeth?


    Hugs, Leeza
  • outdoorgirl
    outdoorgirl Member Posts: 1,565
    #61
    Libby,
    I am sorry that you have to go through all of this.I would be scared too.
    I hope that all goes well with as little pain as possible!
    We all care and are behind you.

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