Saw oncologist today ------------ & I'm scared

2

Comments

  • Jean 0609
    Jean 0609 Member Posts: 2,462
    #22
    Dear Libby,
    I am so sorry that you have to go through all of this. You are one strong cookie. Sending prayers your way. Hugs, Jean
  • susie09
    susie09 Member Posts: 2,930
    #23
    carkris said:

    I know very little about
    I know very little about this procedure I beleive it is intra thecal. However it is not right to tell you it is painful without telling you what they will do to make you comfortable during the procedure. I dont think you will have to endure this without help. perhaps you can call the office for further clarification. Libby you are such a doll and have gone through so much. We are always here for you !

    Praying for you!
    Wishing you good luck with your procedure next week. Just know that we all are here for you!
  • Gabe N Abby Mom
    Gabe N Abby Mom Member Posts: 2,413
    #24
    It's clear that you're a
    It's clear that you're a strong person, and that you plan to do whatever it takes to win this battle with the beast. You've also received great advice, so I will only add my thoughts and prayers for you.

    Hugs,

    Linda
  • Ritzy
    Ritzy Member Posts: 4,381 Member
    #25
    Gabe N Abby Mom said:

    It's clear that you're a
    It's clear that you're a strong person, and that you plan to do whatever it takes to win this battle with the beast. You've also received great advice, so I will only add my thoughts and prayers for you.

    Hugs,

    Linda

    Oh Libby :(
    Libby, this just makes me so sad. I wish there was something that I could do to help you with this. You have already endured so much and are so brave, so strong!


    I truly admire your strength and you!


    You know you have my prayers and always will!


    Please update us when you can and know that I am sending a rainbow of good luck to you!


    Sue :)

    P.S. Your picture says "Walking with love for Libby." Just know that all of us are praying for Libby!!!!!
  • Mama G
    Mama G Member Posts: 762
    #26
    Ritzy said:

    Oh Libby :(
    Libby, this just makes me so sad. I wish there was something that I could do to help you with this. You have already endured so much and are so brave, so strong!


    I truly admire your strength and you!


    You know you have my prayers and always will!


    Please update us when you can and know that I am sending a rainbow of good luck to you!


    Sue :)

    P.S. Your picture says "Walking with love for Libby." Just know that all of us are praying for Libby!!!!!

    What Fauxma said is great advice.
    Please let us know how it goes. my prayers and thoughts will be with you.
  • survivorbc09
    survivorbc09 Member Posts: 4,374 Member
    #27
    lynn1950 said:

    Your own power and strength
    Your own power and strength is so impressive. I'm standing with you now and Wednesday, sending prayers and love. It was good to read the others posts that you can be given something to make you more comfortable. And boo on the onc doc for telling you about the pain without giving you any reassurance. Keep fighting! xoxoxo Lynn

    I will send you all of the
    I will send you all of the strength and prayers that I can thru cyber space!

    Keep on fighting!



    Hugs, Jan
  • gagee
    gagee Member Posts: 332
    #28
    My prayers are with you.
    My prayers are with you. Hang in there. You have many people praying and thinking of you. The angels will be with you during the procedure. God will not leave you to handle this alone. I truly believe that.

    Hugs and Prayers,
    Diana
  • Alexis F
    Alexis F Member Posts: 3,598
    #29
    sea60 said:

    Yes Libby
    I am praying for you that it will not be painful nor uncomfortable as he says. Know that we have you surrounded in love, positive thoughts and prayer.

    Let us know how it goes...

    Warms hugs,

    Sylvia

    You got it!
    I am praying for you too Libby!
  • mollyz
    mollyz Member Posts: 756 Member
    #30
    gagee said:

    My prayers are with you.
    My prayers are with you. Hang in there. You have many people praying and thinking of you. The angels will be with you during the procedure. God will not leave you to handle this alone. I truly believe that.

    Hugs and Prayers,
    Diana

    My prayers are with you
    Lord look after Libby and take care of her you didn't bring her this far to leave her, in Jesus name, we all will be thinking of you Libby and know you are much love. MollyZ
  • DebbyM
    DebbyM Member Posts: 3,289 Member
    #31
    gagee said:

    My prayers are with you.
    My prayers are with you. Hang in there. You have many people praying and thinking of you. The angels will be with you during the procedure. God will not leave you to handle this alone. I truly believe that.

    Hugs and Prayers,
    Diana

    Ofcourse I am sending you
    Ofcourse I am sending you prayers and will continue Libby. Please keep us updated.


    Hugs, Debby
  • Katz77
    Katz77 Member Posts: 598
    #32
    Praying for strength and
    Praying for strength and wellness. Take nice deep breaths to help you through your procedure. Will be thinking of you Wed at 1100. Hugs and positive energy, Katz
  • chenheart
    chenheart Member Posts: 5,159 Member
    #33
    You have gotten such great
    You have gotten such great advice from the Warrior- Surivors here~ I simply want to add my (((((HUGS))))) and an angel or two ^j^ ^j^ to be with you on Wednesday. I can't help but think that if he told you it's going to hurt, you are expecting big pain, and what you get won't be nearly as bad as what you have conjured up! Know what I mean???
    And anyway, if we notice anyone causing you undue discomfort, we will all take turns smacking the offender upside the head~ with a "Knock it off, buster!" After all, we'll all be there with you.....

    Hugs,
    Chen♥
  • cahjah75
    cahjah75 Member Posts: 2,631
    #34
    Libby
    What the substitute onc said to you was unfortunate. I agree that when you are prepped for the procedure they will give you some kind of pain relief. If no one suggests it, demand it! I will keep you in my thoughts and prayers next Wednesday. It's unfortunate that your port was removed already. I'm hoping all goes well. Please let us know.
    {{hugs}} Char
  • pinkflutterby
    pinkflutterby Member Posts: 615 Member
    #35
    cahjah75 said:

    Libby
    What the substitute onc said to you was unfortunate. I agree that when you are prepped for the procedure they will give you some kind of pain relief. If no one suggests it, demand it! I will keep you in my thoughts and prayers next Wednesday. It's unfortunate that your port was removed already. I'm hoping all goes well. Please let us know.
    {{hugs}} Char

    Ya'll really are the bestest
    Ya'll really are the bestest ever!!! I'm calling tomorrow to ask again about the procedure and demand something for the pain. I hope it wont be as bad as he says and he did say the more I can crunch up in a ball (knees to chest) the better it is so I've been practicing that position, the problem is with the radiation my back is very stiff and its hard to get into that position :(

    Maybe I'll break all the rules and get drunk before I go in heheheee
  • Noel
    Noel Member Posts: 3,095 Member
    #36
    ladyg said:

    I'm sorry
    to hear you have to go through something like that. I will keep you in my thoughts. Try not to let it ruin your Thanksgiving.

    Hugs,
    Georgia

    So sorry Libby
    I'm so sorry too Libby, that you have to go through this after all you have already done. I pray for you and hope you find strength to continue fighting!
  • heidijez
    heidijez Member Posts: 441
    #37
    oh libby libby libby!
    i know you are scared, but you are a strong woman and i am sending you my "brave waves" for your treatment. in addition, i will be bombarding heaven with prayers that the pain will be minimal (if at all). hang in there, kiddo, you can do this!!!

    ♫♥´¯`•.¸¸.♥♫ Hugs from Heidi ♫♥´¯`•.¸¸.♥♫
  • jnl
    jnl Member Posts: 3,869 Member
    #38
    Annette 11 said:

    Libby
    I am so sorry you have to endure this but I am so sure they will have to give you something for the pain. Can you call the hospital or where ever you are getting this treatment and talk to a nurse. Tell them what the dr. said about the pain and you are scared. They may put your mind at ease and just talking about it with the nurse who is knowledgable of the procedure will make you feel better. This is what I would do for sure. I did just that about my port before I went in for surgery because the idea of that going into my skinny chest was scary.
    Keeping you in my thoughts and prayers Libby.
    Hugs.
    Annette

    I'm so sorry for this Libby.
    I'm so sorry for this Libby. You shouldn't have to endure pain. There has to be something your doctor can do to help you. Please demand something.

    Tell him if he doesn't, we will all come and beat him up. And, you know we will!


    You are in my prayers and thoughts,


    Leeza
  • Ritzy
    Ritzy Member Posts: 4,381 Member
    #39
    pinkflutterby said:

    Ya'll really are the bestest
    Ya'll really are the bestest ever!!! I'm calling tomorrow to ask again about the procedure and demand something for the pain. I hope it wont be as bad as he says and he did say the more I can crunch up in a ball (knees to chest) the better it is so I've been practicing that position, the problem is with the radiation my back is very stiff and its hard to get into that position :(

    Maybe I'll break all the rules and get drunk before I go in heheheee

    Did you call?
    Let us know Libby what you find out. Praying there is something to help you to get through this easily.


    Sue :)
  • mariam_11_09
    mariam_11_09 Member Posts: 691 Member
    #40
    I agree with the others, the

    I agree with the others, the Onc. should have indicated what they were going to do to provide you with more confort during the procedure. DId he say what part of it was going to hurt? I had a needle into my spine (many years ago in another part of the world) and the only part that hurt was the needle going in which was very quick after that it was fine. If this is the case you can ask if the Emla cream or cold spray can be given before hand.

    Hang in there and just keep breathing deeply. You are in our thoughts and prayers.

    take care
  • Megan M
    Megan M Member Posts: 3,000
    #41
    heidijez said:

    oh libby libby libby!
    i know you are scared, but you are a strong woman and i am sending you my "brave waves" for your treatment. in addition, i will be bombarding heaven with prayers that the pain will be minimal (if at all). hang in there, kiddo, you can do this!!!

    ♫♥´¯`•.¸¸.♥♫ Hugs from Heidi ♫♥´¯`•.¸¸.♥♫

    Sending you lots and lots of
    Sending you lots and lots of good luck and prayers for Wednesday!


    Hugs, Megan

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