Round 3 in the bag!

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Comments

  • tcvine
    tcvine Member Posts: 174
    #22
    allmost60 said:

    Hi Tom....Maybe this would
    Hi Tom....Maybe this would work..
    NHL-DLBcell-S4-7/10...I don't know..it's up to you really. Maggie suggested we write our cancer info to help folks remember what type of cancer each of us has. It's totally a voluntary thing. I read your other thread before this one and it makes me sad to hear you feeling so frustrated. However..I "really" do understand where your thinking is at though. Yesterday I told Steve I wouldn't blame him a bit if he wanted to leave me. He looked at me like I was totally nuts! I told him it wasn't fair to him to be stuck with me being not the same woman he married. I've always been very energetic and healthy, and now he's stuck with this woman thats constantly going to a cancer clinic for God knows how many more years to come. I feel like I've ruined our dreams of getting our little log home down on the river and it just seems so sad for him. I told him he deserves someone thats whole and able to enjoy fun filled fishing days with him. This has been a much tougher week for me for some reason..I'm not re-bounding as quick as before after stopping the pred. I felt awful yesterday, better today, but knowticed some sudden fatigue off and on after hardly doing anything today. Maybe thats why I got so darn emotional yesterday. Needless to say...Steve told me he wasn't going anywhere that didn't include me by his side and said we were in this together no matter what. I'm not a moody unsure kind of person, so I'm praying this is just a bad week and those kind of thoughts will not linger in my head. Funny how you are having emotional thinking also and we are close to same amount of rounds. Must be a midway crisis type thing..ya think? Sure is out of charachter for me...Take care and I'll keep good positive thoughts and prayers for you and all of us! Sue...(FNHL-2-3A-6/10)

    Ever sleep?
    Hi Sue,

    Thanks for your your usual encouraging comments. Do you ever sleep? It shows that you wrote your comments at 2:24 AM!!
    I was sorry to hear that you were having such a bad time yourself. You know, I think that much of that could be related to the pred. But how have you been today? I hope that it has gone better. I don't know how long you've been married, but I KNOW that Steve only wants to help you in every way that he can. I hope he helped you today. You are as "whole" as you've ever been - you just don't feel like it. THAT I can understand. And don't give up on your dreams.

    Thanks for your help for my unwarranted self-indulgence yesterday.

    Say hey to Steve for me. He and Connie are truly the best.

    Tom (DLBCL,4a;7/10)
  • JoanieP
    JoanieP Member Posts: 573
    #23
    allmost60 said:

    Hi Tom....Maybe this would
    Hi Tom....Maybe this would work..
    NHL-DLBcell-S4-7/10...I don't know..it's up to you really. Maggie suggested we write our cancer info to help folks remember what type of cancer each of us has. It's totally a voluntary thing. I read your other thread before this one and it makes me sad to hear you feeling so frustrated. However..I "really" do understand where your thinking is at though. Yesterday I told Steve I wouldn't blame him a bit if he wanted to leave me. He looked at me like I was totally nuts! I told him it wasn't fair to him to be stuck with me being not the same woman he married. I've always been very energetic and healthy, and now he's stuck with this woman thats constantly going to a cancer clinic for God knows how many more years to come. I feel like I've ruined our dreams of getting our little log home down on the river and it just seems so sad for him. I told him he deserves someone thats whole and able to enjoy fun filled fishing days with him. This has been a much tougher week for me for some reason..I'm not re-bounding as quick as before after stopping the pred. I felt awful yesterday, better today, but knowticed some sudden fatigue off and on after hardly doing anything today. Maybe thats why I got so darn emotional yesterday. Needless to say...Steve told me he wasn't going anywhere that didn't include me by his side and said we were in this together no matter what. I'm not a moody unsure kind of person, so I'm praying this is just a bad week and those kind of thoughts will not linger in my head. Funny how you are having emotional thinking also and we are close to same amount of rounds. Must be a midway crisis type thing..ya think? Sure is out of charachter for me...Take care and I'll keep good positive thoughts and prayers for you and all of us! Sue...(FNHL-2-3A-6/10)

    Chemicals
    Sue, You sound like you are saying things that I did when I was on chemo. I have been married 40 years and I told my husband I was not what he needed etc. He had been warned by my sister-in-law that the chemo would make me cry and not feel worthy of his love. He loved me through it all as I am sure your husband will. Cancer does not define you. We would love our husbands just as much if the roles were reversed. Take care and know this will pass. God will get you through this. Remember HIS strength not yours.
  • allmost60
    allmost60 Member Posts: 3,178 Member
    #24
    tcvine said:

    Ever sleep?
    Hi Sue,

    Thanks for your your usual encouraging comments. Do you ever sleep? It shows that you wrote your comments at 2:24 AM!!
    I was sorry to hear that you were having such a bad time yourself. You know, I think that much of that could be related to the pred. But how have you been today? I hope that it has gone better. I don't know how long you've been married, but I KNOW that Steve only wants to help you in every way that he can. I hope he helped you today. You are as "whole" as you've ever been - you just don't feel like it. THAT I can understand. And don't give up on your dreams.

    Thanks for your help for my unwarranted self-indulgence yesterday.

    Say hey to Steve for me. He and Connie are truly the best.

    Tom (DLBCL,4a;7/10)

    Much better
    Hi Tom and Joanie,
    I am much better today and made it through my CT scan just fine. I'm still unusually tired, but I'm just going to have to get use to it. Steve and I have been married for 32 years and he is just the best man a woman could have. We talked about how I'm feeling and he understands it's not him I'm up-set with, it's just this crumby run down feeling and not being able to be my old perky self. He told me it's ok if I don't feel like doing anything...he expects it, and has no problem with it. He also said it's his turn to take care of me and he'd appreciate it if I'd just chill out and let him do it...ha! Felt good to talk everything out...eliminated that 800lb gorilla thats been hanging around the house for the last 4 months. Anyways...onward and upward folks..better days lay ahead. Thanks for the support during a down period!
    Love...Sue (FNHL-2-3A-6/10)
  • truckingalong
    truckingalong Member Posts: 445 Member
    #25
    allmost60 said:

    Seems crazy...
    Hi liz,
    That seems absolutely crazy that your cancer clinic would be out of the medicine you need. I would think instead of making the patient drive to another town to get the medicine the clinic would have had the forethought to have it sent to them "BEFORE" your appointment. We can put men on the moon and get information in a nano second, but a cancer clinic can't keep enough medicine on hand.....C-R-A-Z-Y!!! Just my humble opinion... I'll keep you in my prayers for a good evening after treatment! Love...Sue (FNHl-2-3A-6/10)

    Yeah, right!
    Got the Bleomythcin just in time before it ran out. Now having tummy bloating and some aches. Seems more like that in last 2 tx. AND gained 2 pounds. Don't know what that means but it is good for me to gain weight as I have been 102 - now 104 (used to be 128). I don't expect to gain much till after the treatments.

    7 treatments to go - I feel like running a long "marathon". I have issue with my heart rate - it is always 97 beats per min. - will try to walk - have not walked much... the onc. ordered me to have EKG this Monday.. well, Mary is right - I gotta be gentle to myself and not do too much!!

    Hugs,
    Liz

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