New Trial Info

chicoturner
chicoturner Member Posts: 282
edited March 2014 in Colorectal Cancer #1
Well, I visited UCSF on Friday and met with a research Dr. To make a very long story short, They did find a trial from me to begin. I will be heading back to SF on Monday evening and begin testing on Tue a.m. with an echocardiogram, bloodwork and, ECG. If all goes well, I will take the little pill on Wed. and be watched and tested all day. Thur. and Fri will be more blood work. I am feeling overwhelmed right now. I know the odds of this trial really helping me are very slim, as it is a trial to see what they can safely dose, but the hope is there that it just might be the one for me! At times, it doesn't seem worth all of this, but then the next moment I know it is really the only chance I have and I will take all I can get, as I have grandbabies to watch grow! What a muttled mess my mind in in tonight! It is kind of crazy when the drug is so new it only has a number, no name.....Hopefully this will spare others down the line of having to fight this insane battle. Thanks for listening. Jean

Comments

  • coloCan
    coloCan Member Posts: 1,944 Member
    #2
    Speaking of numbers,these are all in various phases of
    trials for CRC:
    TCD-717
    AZD6244
    AZD3965
    STA-9090
    JX-594
    NPC-1c
    Aflibercept
    Angiozyme
    Tivozanib
    and today I read about for the first time Regorofenib (as per
    Medicalnewstoday..........By now, the others should show on Google,if anyone interested for more info......

    Also, there's an upcoming meeting of the American Association of Cancer Research specifically on colorectal cancer in Philly at end of this month. Who knows what results and insights might come from this conference of scientists and doctors.....
    steve
  • AnneCan
    AnneCan Member Posts: 3,673 Member
    #3
    Jean
    I am happy that a clinical trial has been found for you. This may just be "the one" + if not it may help keep things in check until you find "the one". I hope this goes really well for you!
  • pepebcn
    pepebcn Member Posts: 6,331 Member
    #4
    AnneCan said:

    Jean
    I am happy that a clinical trial has been found for you. This may just be "the one" + if not it may help keep things in check until you find "the one". I hope this goes really well for you!

    Jean
    it's going to work we all will send you all our good vibes to get it!
  • Buzzard
    Buzzard Member Posts: 3,043 Member
    #5
    pepebcn said:

    Jean
    it's going to work we all will send you all our good vibes to get it!

    Stand tall, chest out, and attitude installed.............
    and you will persevere...yes, you will persevere......Love to you, Clift
  • kathybd
    kathybd Member Posts: 126
    #6
    New trial
    Jean If you don't mind me asking, which trial are you starting? My husband will be starting a new one, soon; but it's an infusion and he was originally told it was a pill.
    Thanks,
    Kathy
  • Lovekitties
    Lovekitties Member Posts: 3,364 Member
    #7
    May it be the ONE!
    Dear Jean,

    So very glad that you were able to get into a trial.

    Hoping that you have an easy first week and that it turns out that "This is the ONE".

    Hugs,

    Marie who loves kitties
  • chicoturner
    chicoturner Member Posts: 282
    #8
    kathybd said:

    New trial
    Jean If you don't mind me asking, which trial are you starting? My husband will be starting a new one, soon; but it's an infusion and he was originally told it was a pill.
    Thanks,
    Kathy

    Hi Kathy, this trial is with
    Hi Kathy, this trial is with Dr. Pamela Munster- drug called GSK2126458- they said about 20 people at UCSF are involved. What is your husband doing? How is he handling it? How often does he go to SF? Best to you. Jean
  • lisa42
    lisa42 Member Posts: 3,625 Member
    #9
    it may be the one!
    Hi Jean,

    Thanks for the update and I'm very glad to hear they found a trial for you to start!
    Keep us posted on how it goes. I know it must be scary to start something new and have no idea if it's going to help you or not. I'm praying this is the one for you!

    Hugs,
    Lisa
  • kathybd
    kathybd Member Posts: 126
    #10
    chicoturner said:

    Hi Kathy, this trial is with
    Hi Kathy, this trial is with Dr. Pamela Munster- drug called GSK2126458- they said about 20 people at UCSF are involved. What is your husband doing? How is he handling it? How often does he go to SF? Best to you. Jean

    Hi Jean
    So sorry it's taken so long to reply. Thank you for your info. I am pretty sure that's the one my husband was too late getting in to. he is being treated at Stanford under Dr george Fisher...love that man! The study he will hopefully get cleared for, is called
    OMP-21M18, manufactured by Oncomed.. It targets cancer stem cells. This is a Phase 1 clinical trial for a humanized monoclonal antibody called OMP-21M18. We are hoping this will either stop further cancer metastisis, or slow it. He is getting all the pretesting done now; and we should know more next week.
    I learn so much from this board and appreciate everyone and all the info given.

    Best of luck to you and I will be watching your progress.
    Kathy

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