visit with gastro

msccolon
msccolon Member Posts: 1,917 Member
edited March 2014 in Colorectal Cancer #1
So, I've been dealing with a lot of pain lately and it's finally gotten to a point where SOMETHING has to be done! I moved recently to live with my twin brother and his family, as it's getting harder to deal with stuff on my own. It definitely has helped tremendously having them around and not having to worry about where my next meal was going to come from (frozen or fast food? ick!) I've been eating much better, and my brother is making sure attention is paid to things that need to be addressed with my health (yea, my MO of ignoring it and hoping it goes away just wasn't working out so well!) So, I got a prescription for a new pain med, one that's supposed to work on the nerves in the rectal area, and I'm hoping that is going to help with my pain. I take it at night, so tonight will be my first chance to see if I get more relief. I'm scheduled for a scope on the first; hopefully this will reveal what's causing my pain and we can do something to fix it. I would appreciate prayers that we will be able to find what's causing my problems and can find a solution to give me some relief! My gastro mentioned all kinds of things that COULD be causing my pain, mostly scar tissue and tumor growth, most likely a combo of these. Scans still show active growth in the lymph nodes in my peritoneum and retroperitoneum and it could be that they're pressing against the rectum, but it could also be that scar tissue from the cytoreductive procedure I had done in 2009 along with the associated infections has wrapped itself around the intestinal tract and is causing the pain. The scope will tell us whether the problem is on the inside of the intestinal tract or the outside. If it's the outside, I'll have to speak with a surgeon to see what can be done. Any thoughts out there?
mary
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Comments

  • HollyID
    HollyID Member Posts: 946 Member
    #2
    No thoughts from me, Mary...
    but you do have my prayers and warmest thoughts as you go through this.

    Love and Hugs,

    Holly
  • Buzzard
    Buzzard Member Posts: 3,043 Member
    #3
    HollyID said:

    No thoughts from me, Mary...
    but you do have my prayers and warmest thoughts as you go through this.

    Love and Hugs,

    Holly

    Like Holly...I have no info or idea...
    but I do send my love and prayers so that this comes to an end for your pain and that it is something very very minor.....Love to you, Clift
  • angelsbaby
    angelsbaby Member Posts: 1,165 Member
    #4
    Buzzard said:

    Like Holly...I have no info or idea...
    but I do send my love and prayers so that this comes to an end for your pain and that it is something very very minor.....Love to you, Clift

    Mary
    I pray that you find out whats causing the pain and they can fix it fast.


    michelle
  • AnneCan
    AnneCan Member Posts: 3,673 Member
    #5
    I don't have the answers...
    but you are definitely in my thoughts + I hope it gets resolved soon. I am glad you are living with your brother; it sounds like a very good thing!
  • Lovekitties
    Lovekitties Member Posts: 3,364 Member
    #6
    Praying for relief
    Dear Mary,

    I sure do hope that the new meds give you relief from the pain and that the scan will provide needed info on how to get you pain free with minimal treatment.

    Hugs,

    Marie who loves kitties
  • Sundanceh
    Sundanceh Member Posts: 4,392 Member
    #7
    I'm With the Rest of the Gang.....
    ....you've stumped me, Mary. I have nary a clue, cannot even speculate.

    Sounds like the scope is the best thing we got going to get the answers you so desperately need right now...hope the pain meds work for you. Hate to see you hurting like this.

    As far as any thoughts....well, my thoughts are with you:)

    -Craig
  • tina dasilva
    tina dasilva Member Posts: 641
    #8
    Sundanceh said:

    I'm With the Rest of the Gang.....
    ....you've stumped me, Mary. I have nary a clue, cannot even speculate.

    Sounds like the scope is the best thing we got going to get the answers you so desperately need right now...hope the pain meds work for you. Hate to see you hurting like this.

    As far as any thoughts....well, my thoughts are with you:)

    -Craig

    mmmmmm
    my thoughts and paryers are with you
  • maglets
    maglets Member Posts: 2,576 Member
    #9
    tina dasilva said:

    mmmmmm
    my thoughts and paryers are with you

    twin
    a twin brother Mary? how lovely....good for you....and what a relief to know you are getting some good meals without having to fuss about them yourself.

    So your scope is not until the first???/ do you mean Nov 1? or am i just missing something? that is 2 weeks...no? gosh I hope those pain meds click in and give you some relief Mary

    sending prayers for your well-being and hugs


    mags
  • tootsie1
    tootsie1 Member Posts: 5,044 Member
    #10
    Good move
    Mary, I'm glad you've moved in with your brother and his family. Now you can eat well without having to worry about preparing it yourself. Woohoo!!

    I have no info on your issues, but I'm praying things will be figured out and taken care of soon. Praying for that!

    *hugs*
    Gail
  • herdizziness
    herdizziness Member Posts: 3,624 Member
    #11
    Hello Mary
    I'm glad your going to get some good nutrition, and glad you're around family.
    I pray that your pain is taken care of.
    Winter Marie
  • Lori-S
    Lori-S Member Posts: 1,277 Member
    #12
    Mary
    Don't know what to think about your pain. I hope the meds work for you and they figure this out soon. I will pray for the best for you. Enjoy the good food and your twin!
  • lisa42
    lisa42 Member Posts: 3,625 Member
    #13
    hugs to you
    Mary,

    I'm glad you're getting some things accomplished soon & I will pray that a solution be found for your pain.
    Do take care-

    Lisa :)
  • msccolon
    msccolon Member Posts: 1,917 Member
    #14
    thank you
    For all your comments! The pain pill was a big disappointment; I couldn't really tell any difference, although I did sleep better (perhaps that means my pain was managed better, it usually wakes me up more than a few times a night). I will see how tonight goes, maybe I will decide it is worth it. Yes, Mags, my scope is scheduled the 1st of November, 2 weeks away. It hardly seems that long since I have been dealing with this for a while; I guess as long as I have pain meds, the time will go by soon enough :(. Will let you guys know of any new info, thanks again!
    mary
  • maglets
    maglets Member Posts: 2,576 Member
    #15
    msccolon said:

    thank you
    For all your comments! The pain pill was a big disappointment; I couldn't really tell any difference, although I did sleep better (perhaps that means my pain was managed better, it usually wakes me up more than a few times a night). I will see how tonight goes, maybe I will decide it is worth it. Yes, Mags, my scope is scheduled the 1st of November, 2 weeks away. It hardly seems that long since I have been dealing with this for a while; I guess as long as I have pain meds, the time will go by soon enough :(. Will let you guys know of any new info, thanks again!
    mary

    darn!
    darn i have been thinking about you all morning and had visions of a nice long drugged sleep....sorry they didn't work....there must be something that would help mary/////?

    hugs, maggie
  • pepebcn
    pepebcn Member Posts: 6,331 Member
    #16
    maglets said:

    darn!
    darn i have been thinking about you all morning and had visions of a nice long drugged sleep....sorry they didn't work....there must be something that would help mary/////?

    hugs, maggie

    Hope things improve now with your brother!
    Send you my prayers Mary .
    Take care of you Mary you are great!
  • Kathryn_in_MN
    Kathryn_in_MN Member Posts: 1,252 Member
    #17
    Glad to hear
    I'm glad to hear you've moved where you have the help you need. Eating better and having some stress reduced can only help! I hope you get answers to your pain issues soon so you can address the situation and get that under control.
  • traci43
    traci43 Member Posts: 773 Member
    #18
    Mary
    Wish the pain pills did the trick! Did you have HIPEC in 2009? I did and now I've got tumors in the same general area that you are talking about, no pain though. I've had tugging, is the best word, on the left side as gas passes through my colon, but no pain since my surgery last year that is likely cause by scar tissue. I hope your colonoscopy is clear and they can get to what's happening. Traci
  • Kathleen808
    Kathleen808 Member Posts: 2,342 Member
    #19
    Mary
    Mary,
    I am happy to hear that you are with family. Wonderful that you don't have to worry about meals and that you have family around. Ahh that you are in so much pain. I was hoping the pill would knock you out and allow you to sleep soundly through the night. I will keep you in my prayers for the 1st. I hope the scope shows what is causing the pain and most importantly helps them know how they can attack the pain.

    Aloha,
    Kathleen
  • msccolon
    msccolon Member Posts: 1,917 Member
    #20
    traci43 said:

    Mary
    Wish the pain pills did the trick! Did you have HIPEC in 2009? I did and now I've got tumors in the same general area that you are talking about, no pain though. I've had tugging, is the best word, on the left side as gas passes through my colon, but no pain since my surgery last year that is likely cause by scar tissue. I hope your colonoscopy is clear and they can get to what's happening. Traci

    yes, I had HIPEC in 2009
    which is the procedure that went so bad with so much infection, leaving lots and lots of adhesions. That's why we figure it's probably scar tissue, but who knows. I'm actually NOT hoping for a clear colonoscopy, I'm hoping they find something they can fix. The other option's going to be finding someone willing to go into the abdomen/pelvis with an already heavy adhesion burden to find out what the problem is :(. I guess not knowing is the worst ... no, I think the constant pain is the worst! :)
    mary
  • Lori-S
    Lori-S Member Posts: 1,277 Member
    #21
    msccolon said:

    yes, I had HIPEC in 2009
    which is the procedure that went so bad with so much infection, leaving lots and lots of adhesions. That's why we figure it's probably scar tissue, but who knows. I'm actually NOT hoping for a clear colonoscopy, I'm hoping they find something they can fix. The other option's going to be finding someone willing to go into the abdomen/pelvis with an already heavy adhesion burden to find out what the problem is :(. I guess not knowing is the worst ... no, I think the constant pain is the worst! :)
    mary

    UGH Mary
    You sound a bit discouraged. I'm sorry that the pain pills didn't work out for you. They think that adhesions might be the culprit?

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